I *wish* I had known about this sooner. My grandfather spent years taking care of his wife and I saw the toll it took on him. I wish I had known about and recommended palliative care to him. She's out of pain now, and we're taking care of grandpa as best we can.
Palliative care is end of life in uk , my hubby just been put on it. He’s been home from hospital 3 weeks , is dying a young horrible copd death and no one Has been to visit yet. It’s just down to me to see to his needs , which I do lovingly but I need support as I’m watching him dying , Blood is going towards acidosis by his symptoms , yet no help m I’m just asking him to push carbon dioxide out with breathing but I know I’m loosing him, I love him sooo much death is soo crap ! I’m letting him die here in my arms if I can , we’re he’s loved.
While I am not currently treated as a terminal illness patient, I have a multitude of severe chronic illnesses with a few being chronic pain conditions and the others cause chronic pain and a symptom. Luckily, I have a pain management provider that has me on their list of patients who are considered as "palliative care" patients as pain management only focuses on the pain management and side effects from the medications used for pain management such as constipation. However, I'm also under the care of neurology, cardiology, endocrinology, rheumatology, ear/nose&throat/sleep medicine, psychiatry and of course primary care along with orthopedic providers who happen to be within the same practice as my pain management provider as an as needed basis.
Sadly, in my state they lump palliative and hospice together. Once on palliative, one cannot receive any curative care -- very, very scary! You are completely given up on. Such a shame.
They are not given up on . Some patients willingly forgo treatment because it is worse than disease some it's about acting that you e life !send soon and helping patient and family adjust to this change
@@abbeysomething1352. GIVE 😡US PAIN 😡MEDS 😡THE DAY😡 WE ARE 😡, Told we have cancer , or aids, or any disease make it against the law for them not to give it to us, and we are suffering
Hi. I have a question. My mom had a serious illness which left her in I.c.u. for a couple of months. When she had enough treatment she went to palliative care. The fact all she wanted was to be kept comfortable, no treatment. Wouldn't that be more hospice than palliatives care?
In my humble opinion, yes absolutely it sounds more like Hospice. Four months ago I was diagnosed with incurable cancer and, just like your mom, didn't want treatment ,as such, but did want to be kept comfortable. I just started with Hospice two weeks ago and am so glad I did. They're wonderful.
I am a palliative Care Nurse practitioner.. we do provide end of life care.. hospice care is palliative care, for people with a terminal illness. It is designed to make the rest of a persons life as comfortable as possible, while maintaining a good quality of life in that time period
My daughter is a palliative care doctor here in Ireland and she crosses between palliative in a hospital setting and hospice care in a hospice setting, must be different to the USA?
PALLATIVE is giving comfort and giving medications that will reduce the pain. HOSPICE is more focus on the comfort of the family as well as the patient. AT THIS POINT consider other option like Natural or Naturopathic medications, such as strong vitamins C IV treatment, glutathione treatment or whatever you think to prolong the life of your love ones. It’s not bad to think that their is HOPE out there. My friend she’s 45 she got terminally ill, doctor told her she will have 6 mos to 1yr to live and this was in 2014. Now she still alive we are already in December 2021 almost 2022 already. This simply means that the doctor sometimes are not accurate they also make mistakes sometimes wrong diagnosis.
I am trying to find a way to get into palliative care I can’t live in this pain anymore and I have too many things going on I’m not technically terminal but I can’t live in pain like this anymore how do I get there
I am in multi organ failure along with Pulmonary Hypertension and a 75% Paralyzed right Diaphragm Ex Ex and they just put me on Palliative care and i am in soooo much Pain and i see a pain Doctor which is giving me 75 MME and said he will have to cut me back to 50 MME next month unless i get Hospice? I thought Palliative care i was exempt by the CDC Guidelines ??? wow so much suffering and can i see another Doctor if he is wrong??? Can someone please help and give me some info on this PLEASE Im in soooo much Pain that truthfully i do not want to Live and i have no quality of Life whatsoever. Can someone please tell me does Palliative care in Michigan un tie his hands? PS,, That Doctor cut me off cuz i can't have injections due to Chiari Malformation & Pseudotumor Cerebri. if anyone knows of a Good Doctor in the Detroit area PLEASE let me know i also have Severe Stenosis and Scoliosis DDD ex ex the list goes on and i am in to much pain to type.
Debbie, it is my understanding that those in palliative care are not _bound_ by CDC guidelines. So, let me say this; CDC has stated that their _ guidelines_ are just that, even for Chronic Pain sufferers. But many of these Doctors are scared and afraid to prescribe medications lest the DEA comes a-knocking. But, quite frankly I am shocked that you are tapped out at 50 MME per day when even the CDC's recommendation, for Chronic Pain is a mere 90MME. Thus, I would wonder if you should not seek another Doctor or call them on it. My Doctor, when they cut me down to the paltry 90MME stated that I should write to all of our Representatives, etc. and send them the copy. She also told me that another patient's family had written their State Senator and the fella had received a letter back stating that the CDC is merely a recommending Agency. However, my Doctor then stated, "But, it's my signature on the Rx, therefore, I _must_ be diligent!" And you cannot blame them as they cam for the head Doctor where my Pain Mgmt is at and he was arrested, for what I believe were bogus charges. See, these Politicians have no business in this. But they've learned that they can sue Big Pharma and win...and rightfully so, in countless instances. But for those of us in Chronic Pain, documented pain, this is to our detriment and we're paying for the BS and people like Andrew Cuomo, well, he doesn't give a rat's ass about anything but the big check he'll get when he beats Big Pharma. That's a nice legacy for him, hmm? For us, it's all a nonsensical nightmare and I encourage _you_ to pray and never give up. There is a promised degree of healing, even here on earth, for those of us who believe in the redemptive qualities of believing in what Christ did for us, on the Cross. At this juncture in life, it's all I need but, it's all I have. And I do have comfort in knowing that soon, very soon those of us who believe in the Grace of God and the Rapture that is coming and imminent, it becomes of a matter of *_Just Hanging On To The Cross!_* Debbie, I pray here and now for Jesus to touch you and the Holy Spirit to engulf you and fill your soul! With everything that is happening, it is only a matter of days. Hang in there, Debbie!! Hugs! *ABC's of Salvation... Admit you are a sinner in need of a savior. Believe in the finished redemptive work of Jesus Christ on the cross alone for the remission of all your sins (past, present, and future) and eternal life! Call on the name of the Lord. ("All who call on the name of the Lord will be saved." Romans 10:13) "I am the way, the truth, and the life. No one comes to the Father but through me." (John 14:6) "When you declare with your mouth Jesus is Lord and believe in your heart God raised Him from the dead you will be saved. For with the heart man believes and is justified and with the mouth, confession is made unto salvation." ( Romans 10:9-10) "For it is by grace you are saved through faith. It is not your own doing. It is the FREE gift of God. Not by works lest any man boast." (Ephesians 2:8-9) Should you need prayer, wish to add yourself or another to our Prayer List, or want a copy of our Left Behind letter, please email harpazokathy@gmail.com **Eternal Security I believe that, because of the eternal purpose of God toward the objects of His love, because of His freedom to exercise grace toward the meritless on the ground of the propitiatory blood of Christ, because of the very nature of the divine gift of eternal life, because of the present and unending intercession and advocacy of Christ in heaven, because of the immutability of the unchangeable covenants of God, because of the regenerating, abiding presence of the Holy Spirit in the hearts of all who are saved, we and all true believers everywhere, once saved, shall be kept saved forever. We believe, however, that God is a holy and righteous Father and that since He cannot overlook the sin of His child
@@askauntb Awww Your message touched my Heart and My Soul as i need Jesus back in My Life and i would Love to receive Your letter so Please Email me at debbiemonsinger@gmail.com and Thank You soooo much for caring.
@@abbeysomething1352 so you’re not allowed to see your own primary care physician because they want the money for themselves and the people that have cancer drowned to death they suffocate because they won’t clear out the liquid that’s coming into your lungs so that’s how you die
I have been in Hospice and Palliative care and I cannot think of anything negative to say about either. I can't imagine what you could have experienced for you to have a bad opinion. Can you share a specific instance or event that went wrong for you and your loved one?
This nurse just said, you cannot see other doctors outside of Hospice while the patience is in Hospice. . YES YOU CAN. You can SEE YOUR MEDICARE PRIMARY DOCTOR while your still on Hospice, if a patient develops another illness other than the diagnosis he is being care for under Hospice. You most certainly are able to see your primary doctor outside of Hospice. How else is the patient suppose be treated.
Yes! You are 100% correct. I just started with Hospice two weeks ago (and am so happy I did) but if, purely as an example, I happened to break my arm, which would have nothing to do with my cancer, then absolutely positively yes, I would go straight to my local E.R. same as usual. I don't get why there is this level of confusion over something so obvious.
Palliative care was brought in for my ex whom was giving 6 months to live. They were so warm and caring. Helped so much with the stress of the family and the patient. They prepared him for his death. priest prayed and held his hand . Then moving to hospice he was at peace. Thanks to both palliative care, and hospice nurse 🙏
Apollo Hospitals Belapur Navi Mumbai offers the palliative care in Mumbai. It helps patients to deal with the physical and mental strain that accompanies cancer. Palliative Care in Mumbai | Cancer Treatment in Belapur Navi Mumbai - Apollo Hospitals Mumbai Visit to know more: mumbai.apollohospitals.com/clinical-excellence/cancer-care/treatments-and-procedures/TrueBeam-STX/palliative-care.html
we have been told 6 to 8 weeks for my mother in law , yes we get to have christmas and new year , witch im so glad for
I *wish* I had known about this sooner. My grandfather spent years taking care of his wife and I saw the toll it took on him. I wish I had known about and recommended palliative care to him. She's out of pain now, and we're taking care of grandpa as best we can.
Palliative care is end of life in uk , my hubby just been put on it. He’s been home from hospital 3 weeks , is dying a young horrible copd death and no one
Has been to visit yet. It’s just down to me to see to his needs , which I do lovingly but I need support as I’m watching him dying ,
Blood is going towards acidosis by his symptoms , yet no help m I’m just asking him to push carbon dioxide out with breathing but
I know I’m loosing him, I love him sooo much death is soo crap ! I’m letting him die here in my arms if I can , we’re he’s loved.
I'm so sorry for your loss! How blessed he was to have you!
God bless you both and bring you His loving comfort
While I am not currently treated as a terminal illness patient, I have a multitude of severe chronic illnesses with a few being chronic pain conditions and the others cause chronic pain and a symptom. Luckily, I have a pain management provider that has me on their list of patients who are considered as "palliative care" patients as pain management only focuses on the pain management and side effects from the medications used for pain management such as constipation. However, I'm also under the care of neurology, cardiology, endocrinology, rheumatology, ear/nose&throat/sleep medicine, psychiatry and of course primary care along with orthopedic providers who happen to be within the same practice as my pain management provider as an as needed basis.
Sadly, in my state they lump palliative and hospice together. Once on palliative, one cannot receive any curative care -- very, very scary! You are completely given up on. Such a shame.
You can always tear up DNR and leave services. Totally a choice. Sadly, some things are worse than dying.
They are not given up on . Some patients willingly forgo treatment because it is worse than disease some it's about acting that you e life !send soon and helping patient and family adjust to this change
@@abbeysomething1352. GIVE 😡US PAIN 😡MEDS 😡THE DAY😡 WE ARE 😡, Told we have cancer , or aids, or any disease make it against the law for them not to give it to us, and we are suffering
Hi. I have a question. My mom had a serious illness which left her in I.c.u. for a couple of months. When she had enough treatment she went to palliative care. The fact all she wanted was to be kept comfortable, no treatment. Wouldn't that be more hospice than palliatives care?
In my humble opinion, yes absolutely it sounds more like Hospice. Four months ago I was diagnosed with incurable cancer and, just like your mom, didn't want treatment ,as such, but did want to be kept comfortable. I just started with Hospice two weeks ago and am so glad I did. They're wonderful.
I am a palliative Care Nurse practitioner.. we do provide end of life care.. hospice care is palliative care, for people with a terminal illness. It is designed to make the rest of a persons life as comfortable as possible, while maintaining a good quality of life in that time period
I'm a year2 nursing student and this was very informative. Thank you so much for sharing. It was very easy to understand.
My daughter is a palliative care doctor here in Ireland and she crosses between palliative in a hospital setting and hospice care in a hospice setting, must be different to the USA?
Palliative care , you can still see your regular medical and specialists providers
I am a palliative Care Nurse Practitioner… hospice IS palliative care, but for people who have a terminal illness
PALLATIVE is giving comfort and giving medications that will reduce the pain. HOSPICE is more focus on the comfort of the family as well as the patient. AT THIS POINT consider other option like Natural or Naturopathic medications, such as strong vitamins C IV treatment, glutathione treatment or whatever you think to prolong the life of your love ones. It’s not bad to think that their is HOPE out there. My friend she’s 45 she got terminally ill, doctor told her she will have 6 mos to 1yr to live and this was in 2014. Now she still alive we are already in December 2021 almost 2022 already. This simply means that the doctor sometimes are not accurate they also make mistakes sometimes wrong diagnosis.
I am trying to find a way to get into palliative care I can’t live in this pain anymore and I have too many things going on I’m not technically terminal but I can’t live in pain like this anymore how do I get there
what is the specialty are the doctors in hospice trained in if the palliative physician is stopped once a patient is transferred to hospice?
I am in multi organ failure along with Pulmonary Hypertension and a 75% Paralyzed right Diaphragm Ex Ex and they just put me on Palliative care and i am in soooo much Pain and i see a pain Doctor which is giving me 75 MME and said he will have to cut me back to 50 MME next month unless i get Hospice? I thought Palliative care i was exempt by the CDC Guidelines ??? wow so much suffering and can i see another Doctor if he is wrong??? Can someone please help and give me some info on this PLEASE
Im in soooo much Pain that truthfully i do not want to Live and i have no quality of Life whatsoever. Can someone please tell me does Palliative care in Michigan un tie his hands?
PS,, That Doctor cut me off cuz i can't have injections due to Chiari Malformation & Pseudotumor Cerebri. if anyone knows of a Good Doctor in the Detroit area PLEASE let me know i also have Severe Stenosis and Scoliosis DDD ex ex the list goes on and i am in to much pain to type.
@daniel gabriel Wow so sorry to hear this Honey and You will be in My Prayers
Debbie, it is my understanding that those in palliative care are not _bound_ by CDC guidelines. So, let me say this; CDC has stated that their _ guidelines_ are just that, even for Chronic Pain sufferers. But many of these Doctors are scared and afraid to prescribe medications lest the DEA comes a-knocking. But, quite frankly I am shocked that you are tapped out at 50 MME per day when even the CDC's recommendation, for Chronic Pain is a mere 90MME. Thus, I would wonder if you should not seek another Doctor or call them on it.
My Doctor, when they cut me down to the paltry 90MME stated that I should write to all of our Representatives, etc. and send them the copy. She also told me that another patient's family had written their State Senator and the fella had received a letter back stating that the CDC is merely a recommending Agency. However, my Doctor then stated, "But, it's my signature on the Rx, therefore, I _must_ be diligent!" And you cannot blame them as they cam for the head Doctor where my Pain Mgmt is at and he was arrested, for what I believe were bogus charges. See, these Politicians have no business in this. But they've learned that they can sue Big Pharma and win...and rightfully so, in countless instances. But for those of us in Chronic Pain, documented pain, this is to our detriment and we're paying for the BS and people like Andrew Cuomo, well, he doesn't give a rat's ass about anything but the big check he'll get when he beats Big Pharma. That's a nice legacy for him, hmm?
For us, it's all a nonsensical nightmare and I encourage _you_ to pray and never give up. There is a promised degree of healing, even here on earth, for those of us who believe in the redemptive qualities of believing in what Christ did for us, on the Cross. At this juncture in life, it's all I need but, it's all I have. And I do have comfort in knowing that soon, very soon those of us who believe in the Grace of God and the Rapture that is coming and imminent, it becomes of a matter of *_Just Hanging On To The Cross!_* Debbie, I pray here and now for Jesus to touch you and the Holy Spirit to engulf you and fill your soul! With everything that is happening, it is only a matter of days. Hang in there, Debbie!! Hugs!
*ABC's of Salvation...
Admit you are a sinner in need of a savior.
Believe in the finished redemptive work of Jesus Christ on the cross alone for the remission of all your sins (past, present, and future) and eternal life!
Call on the name of the Lord. ("All who call on the name of the Lord will be saved." Romans 10:13)
"I am the way, the truth, and the life. No one comes to the Father but through me." (John 14:6)
"When you declare with your mouth Jesus is Lord and believe in your heart God raised Him from the dead you will be saved. For with the heart man believes and is justified and with the mouth, confession is made unto salvation." ( Romans 10:9-10)
"For it is by grace you are saved through faith. It is not your own doing. It is the FREE gift of God. Not by works lest any man boast." (Ephesians 2:8-9)
Should you need prayer, wish to add yourself or another to our Prayer List, or want a copy of our Left Behind letter, please email harpazokathy@gmail.com
**Eternal Security
I believe that, because of the eternal purpose of God toward the objects of His love, because of His freedom to exercise grace toward the meritless on the ground of the propitiatory blood of Christ, because of the very nature of the divine gift of eternal life, because of the present and unending intercession and advocacy of Christ in heaven, because of the immutability of the unchangeable covenants of God, because of the regenerating, abiding presence of the Holy Spirit in the hearts of all who are saved, we and all true believers everywhere, once saved, shall be kept saved forever. We believe, however, that God is a holy and righteous Father and that since He cannot overlook the sin of His child
I'm dying of COPD text me back maybe we can meet
Awwww Thank You so very much @Daniel Gabriel
@@askauntb Awww Your message touched my Heart and My Soul as i need Jesus back in My Life and i would Love to receive Your letter so Please Email me at debbiemonsinger@gmail.com and Thank You soooo much for caring.
My mom was on hospice. I‘d never ever put another loved one through that. All hospice care did was increase not decrease my stress as a caregiver.
How?
I'm sorry to hear that 😔
.
@@abbeysomething1352 so you’re not allowed to see your own primary care physician because they want the money for themselves and the people that have cancer drowned to death they suffocate because they won’t clear out the liquid that’s coming into your lungs so that’s how you die
I have been in Hospice and Palliative care and I cannot think of anything negative to say about either. I can't imagine what you could have experienced for you to have a bad opinion. Can you share a specific instance or event that went wrong for you and your loved one?
This nurse just said, you cannot see other doctors outside of Hospice while the patience is in Hospice. .
YES YOU CAN. You can SEE YOUR MEDICARE PRIMARY DOCTOR while your still on Hospice, if a patient develops another illness other than the diagnosis he is being care for under Hospice. You most certainly are able to see your primary doctor outside of Hospice. How else is the patient suppose be treated.
Hi, the female in the video is a physician. Dr. Amy Newton is a palliative care doctor.
Why did you assume she’s a nurse?
My hubby is palliative care in uk, he’s seeing his normal doctor as well
Yes! You are 100% correct. I just started with Hospice two weeks ago (and am so happy I did) but if, purely as an example, I happened to break my arm, which would have nothing to do with my cancer, then absolutely positively yes, I would go straight to my local E.R. same as usual. I don't get why there is this level of confusion over something so obvious.
@@pilgrimkiwi2144 are you still on hospice
This is very informative.
thank you for this video. very helpful.
Thanks a lot,
Palliative care was brought in for my ex whom was giving 6 months to live. They were so warm and caring. Helped so much with the stress of the family and the patient. They prepared him for his death. priest prayed and held his hand . Then moving to hospice he was at peace. Thanks to both palliative care, and hospice nurse 🙏
Thanks for sharing
Palliative is basically pre hospice
I think so too
Thank you
Liked the video 🙏
Apollo Hospitals Belapur Navi Mumbai offers the palliative care in Mumbai. It helps patients to deal with the physical and mental strain that accompanies cancer.
Palliative Care in Mumbai | Cancer Treatment in Belapur Navi Mumbai - Apollo Hospitals Mumbai
Visit to know more:
mumbai.apollohospitals.com/clinical-excellence/cancer-care/treatments-and-procedures/TrueBeam-STX/palliative-care.html
They both aren't what you are told.
❤️