My First Adrenal Crisis Experience - Addison's Disease | Part Three |
ฝัง
- เผยแพร่เมื่อ 27 ส.ค. 2024
- Hello friends,
First things first, I am the furthest thing from an expert on any aspect of anyone’s else. I just have an intense internal dialogue always running about my own health issues that is borderline impossible to escape 🫠
Still, maybe I’m hoping that someday, someone who is also feeling like they’re doing something wrong with every choice they make with their bodies will see this and feel less alone. Or mostly I’m hoping that one day I’ll look back and realise I wasn’t doing anything wrong at all and life was just hard.
Either way, I hope this video impacts you only positively.
Jens x
I can relate to many things you mentioned. I have been diagnosed since 12/1999 after many years of being unwell. The one thing you said at the end is key “take one day at a time” . It’s a lot to manage and sometimes one moment at a time is needed. ❤ Your videos are helping others ❤️
Hello and my wifee has addison too. I just figured out when it's hot... aka the summer... go to the urgent care and ask for saltine bag before the storm comes but pay attention to your body because it will give you alot of signs before dehydration comes...thanks for your story and stay strong
Thank you so much for commenting this. I am trying to become more conscious of what a dehydration sign is versus what a sign of low cortisol is - it's tough!
thank you Jeninifer, beautifully put into the words I could not find. A fellow Addison. impossible to advocate for oneself in a crisis. I wish you love, peace and happiness always and will check in from time to time. big hugs
I wish you peace too. May we both have only contented days ahead, we deserve no less.
Such a hard road you are on. I have secondary adrenal insufficiency due to a pituitary tumor. Tumor was diagnosed then a few months later i ended up in the emergency department where they discovered how low my cortisol was. I have never felt that bad in my life (age 70). Had the tumor removed in 2018 and just had a second surgery 2 weeks ago since tumor grew back. So have been on the adrenal insufficiency path over 5 years now. Sending all the positive energy i can you way from the west coast USA.
Thank you so much for commenting 💛 This whole experience can be quite isolating so it is nice to know that across and ocean someone feels the same. I hope you are doing the very best you can be!
Thank you for being honest and sharing your feelings. Living with Addison’s is so difficult and overwhelming. I have had it for 3 years and have not had a crisis but it terrifies me. You are not alone, things will get better. Keep sharing your story ❤
Thank you so much for these kind words - some days just knowing I am not alone holds me together! I am sending you such love and wishes for your wellness.
Thank you for sharing this. I have complex heath problems in addition to Addison’s. It is overwhelming at times. Being ok with not-knowing, it is something I am trying to get comfortable with.
I too am 'trying' to get used to this everyday, and it's a real work in progress!
I wish I could hug you, it's important that you're sharing this important information 🧡 x
Thank you sweat pea, you're the kindest soul x
@jenniferpoyntz thank you, I love you soo much Jen 🩷
May GOD BLESS!!!
I'm so glad you shared this. Thank you so much! It sounds like such a harrowing experience. I'm glad you're okay. You're a brave one.
Thank you so much for commenting this. It was a kindness I needed to see, and I am very grateful.
If it reassures you, if you are a confused mess and totally too far gone, a passerby found me outside my student (this is key) accomodation, assumed i was too drunk to know how to get home, rang our porters who know where i live but they quickly recognised i couldnt get home or be safe alone so an ambulance was rung, they immediately assumed i was extremely drunk or on drugs, but quite quickly coz i was incoherent they checked for medic alerts and saw i was SAI and injected cortisol and rushed me to hospital. So there are lots of things that could happen that would mean theyd be more proactive checking medic alerts and looking specifically for information about you.
Also, if it helps, I have all the diagnoses you listed at the end minus the ED and over 10yrs or so I've learnt to work with my Adrenal Insufficiency and understand it better even if mine is very unpredictable
Does your wife take fludrocortisone as well as cortisone . My daughter eats lot more salt in hot weather . But heat is definitely an enemy of Addisons !
Love you❤❤. Let's zoom soon. I'm still getting knee replacement two under control. All is good g as it should. I'm sorry you had this experience.
Please! I've missed you so much x
❤❤❤
Wishing for a cortisol monitoring device soon.
Absolutely feeling the exact same! Fingers crossed.
They're quite close to inventing one! That's my understanding. That they're getting close to study phases
But also we need a cortisol "epipen" genuinely now
Do a raw vegan diet
My husband and I were raw vegan for quite a while and it’s honestly the healthiest I had ever been in my life. I recently switched to meat out of feeling desperate. What are your thoughts on Addisons and how raw vegan could help?
@@myflourishingfam I’ve no idea. Speak to a carnivore person. I don’t see any benefits myself but they swear by it. 🤷♂️