To combat my RCC I did Keytruda for one year June 2015- May 2016, it knocked me for a loop then. Since I have had re-occurrences and was put back on Keytruda June 2021, today January 25th, 2021 I will be going for my last treatment. I can NOT take it any longer..The aches, fatigue, and now my face gets red as a beet and feels like it is on fire. I will get my affairs in order and enjoy my life. Thanks to all the thousands of people that have done so much for me and my family over my 12 years of fighting. UPDATE; March of 2023, I'm still here!!! and I believe I wrote the incorrect date (should have read 1/25/22) Nonetheless, still fighting and have upcoming treatments and procedures with my oncologist and radiologist.
@@fanorama1 Thanks for checking in Luke, still here!! Within the last few months my doctor switched me to Optivo in hopes that the side effects would be easier to handle.... The side effects are still the pits and I have been growing tumors like crazy. Fortunately for me, I found an interventional radiologist that zaps the little SOBs into oblivion. As a matter of fact, tomorrow I go to get two more taken off my spine. Can't wait, I have been in quite a bit of pain, and Im; not a big fan of taking pain killer. Sorry for the long-winded reply, but it passes the time. Good luck to you and I hope that you are doing well. God Speed.
@@dennisadorno6721 I GLAD YOUR ALIVE. HOW DO YOU FEEL. ARE YOU STILL ALIVE ,, Are you doing better since you switched medicines? I have non-small cell stage four lung cancer. Adenocarcinoma .. I’ve been on. Keytruda ,, for three months tomorrow and in three more weeks this will be my second pet scan to see if my cancer grew. I do not have any pain medicine at all and nobody’s giving me any and I have no other treatment and they haven’t told me how big the cancer is it’s in the upper left lobe and both lower lobes. Does that mean that it’s metastasize if it goes from one lobe of the lung to the other and then to the other side or not and my question is, how long does it take for non-small cell cancer to metastasize to another organ? How long does it take to grow? And my other question is I have a headache all the time with this medicine but it’s only option that I have left is pretty much what they’re saying. I have only seen the oncologist one time and I talk to the nurse the rest of the time, anyway I hope do you know more than me because I just found out I just found out that I had it and nobody’s answering any questions and I don’t know the questions to ask. I hope you’re alive when Jesus comes. Hopefully he comes soon. I hope you’re OK and not hurting and I hope you don’t give up your fight. Hope you keep on fighting because living is worth living, please write me back and let me know at least if you’re alive because you should teach people you should tell people what kind of cancer you have where it’s at what stage you’re in and pretty much all the things you went through because millions of people are gonna come up here one day and they won’t know what’s going on. I don’t know what’s going on. I don’t know nothing about medicine hospital nothing😂
@@godschild3640my mother has been on keytruda for 3 yrs now. Same kind of cancer as you was already in her liver when we found out. She also has severe headaches every day. No mad to the brain just checked last month. I need to be honest I believe at this point she has been on it to long and it’s poisoning her system. He dr isn’t very forth coming with her which upsets me. So I look over her charts and research her lab results. I believe she should have been taken off at the 2 yr point. Instead he doubled the dose and she only goes every six wks now. Please remember every person’s journey is very different and can’t really answer the question you are looking for. Through it all try to keep a positive outlook remember medication is changing for the better every day. If your spiritual keep your faith. I wish you the very very best.
It is a great opportunity to have immunotherapy. My mother had total laryngectomy around 2 years ago. On April she had metastases in neck and lung. She refused to have any chemo or radio. Now the doctors told us to do immunotherapy but it is not available here in my country. I have to pay for it and it is a huge amount of money for us. I wish everyone to be safe healthy and totally healed from this disease 🙇♀️🙇♀️🙇♀️ I pray to God for my mother too
Clindy..how is he now?Please leave some hope ...even a i am a mbbs graduate but my inspiration and my love ,grandpa(muttya) diagnosed with satge 4 pancreatic ca...have u gone through any patient diagnosed with same condition?? Or did u hear about any modern therapies like immunotherapy?? Or really arent there any chance of surviving over a year?? Your reply is very important please
@@guruprasad7184 Have you heard about Xcures? They help cancer patients find treatment options. th-cam.com/users/shortsmFrXrUkDEQM th-cam.com/video/Y9O-uIpBgXw/w-d-xo.html th-cam.com/users/TargetCancer
@@guruprasad7184. I heard with stage four non-small cell lung cancer. You have about 4 to 8 months to live 50% will be alive and 50% will be dead but I don’t know if if this is true if they have. Keytruda … and I don’t know how fast it grows. I don’t know how many days it takes to metastasize to another organ are you OK? Are you still alive? Write us back tell us what where your cancer is that how many cancer spots do you have in your body? Where is it? What kind of medicine are you on? What kind of treatments? How do you feel? We would like to know what you’re going through so that other people can learn from you thank you for your time. Tell us if you’re alive.❤
Keytruda has shipwrecked my immune system. I’ve been in chronic pain for months after pulling the plug on this drug. Symptoms include painful and locked joints, both knee and elbow. A sinus infection that lasted for months even with antibiotics. Pancreatitis and fatigue. The chronic pain is the worst.
After my 2nd round of Keytruda, I began experiencing non-stop upper abdominal pain that has persisted for over one month now. I had minimal to no side effects from chemo except fatigue. I told my oncologist that I was stopping immunotherapy. I have no idea how to alleviate this constant pain.
Unbelievable joint pain, bordering on paralysis, arms shoulders and legs, literally screaming out in pain at times this can last 3 days to a week then just abates within hours back to normal - joy, pain free for days, then it comes on again the dreaded agony. The diarrhoea awful and uncontrollable, forget the embarrassment Imodium helps, no appetite just nauseous most days am now on heavy steroids which thankfully so far so good.
I had stage 4 melanoma was put on Opdivo immunotherapy but after years on it I developed pneumonitis. At first zpac prednisone and Ariythomyisin worked but as I continued immunotherapy it wasn’t working. My cancer is gone but now have shortness of breath not during rest but with activity. After two lung doctors I’m still not healed . It will be two years this coming March 2024 ; second doctor says it’s in the bronchial tubes. But I haven’t been given any form of treatment. I do t think they even know. Praying!
1st treatment last week, side effects killing me. Fever, chills, shaking, nausea, fatigue, soars in and outside mouth, no appetite, tired. Will not do 2nd treatment, I’m scared.
Atleast it is less worse than Chemo. My advise ask your doctor for protontherapy or brachytherapy in combination with targeted drug therapy and try to contect Cardiff University or Augusta University Health for CAR-T cell therapy. And stay strong man you can do it, i have my cancer check up for my throat next week, i hope i don't have throat cancer.
Hi henry..which cancer younwere diagnosed? How are you doing now?here i am also thinking to take immunotherapy..Please leave some hope ...even a i am a mbbs graduate but my inspiration and my love ,grandpa(muttya) diagnosed with satge 4 pancreatic ca...have u gone through any patient diagnosed with same condition?? Or did u hear about any modern therapies like immunotherapy?? Or really arent there any chance of surviving over a year?? Your reply is very important please
@@guruprasad7184 Hi have been on keytruda for a yr. have come to find out it is the lesser side effect of most immunotherapies. i had headaches for 2 months (history concussions) and then like a button- just went away and then kinda flared up in my gastro system which i can handle much better than headaches
I'm coming up to my 3rd session..the only side effect I have had fatigue and eating less..I have stage 4lung cancer it's also in my liver it's incurable....
What happens when the physician doesn’t answer to you when you call her to tell horrible side effects that are completely new to you and you don’t know what to do my life changed for the worse at these because I don’t know how to deal with some many symptoms at the same more than ten
At least my doctor is helping me with the crazy terrible symptoms... I'm having I would love to talk to you.. and find out what they are and the kind of symptoms you're having.. because I've been sick for 15 months.. try and message me back thank you
I am taking Keytruda for Stage 3 Melanoma.. I’m having fatigue, aches and pains all over and muscle spasms… I was wondering if any one else has had the muscle spasms and if anything can be done for them?
Yes very common, I have been on immunotherapies for years and at times need to take a break. Here are some pointers I hope they help. #1 If it's working then stick with it. #2 Hydrate hydrate hydrate, Water, tea, and club soda with juice are my go-tos. #3 Eat / drink protiens. Even if you're not hungry eat or drink something. Muscle Milk, eggs, and my fave is rare roast beef from a deli, two or three slices can make a big difference. #4 Manage your pain, Don;t be a hero...I alternate Tylenol, Advil, and Adleev. When your skin starts to crawl ask your doc for Gabipentine. crazy muscle aches, Valium (Diasapan) works and if you're able get oxy if it gets too much to handle. I hope this helps Good luck and Godspeed to us and our families. Dennis
Did the side effects reduce ? And how long should polycythemia Vera therapy take it , specifically with the newer version of interferon therapy for two weeks? Thank you
OK, let's consider immunotherapy and its potential side effects, followed by the utilization of pharmaceutical drugs for side effects developed by companies associated with significant legal penalties. Both immunotherapy and COVID vaccines share common manufacturers. Instead, here's an alternative idea: enhance your immune system naturally through the expertise of naturopathic doctors, achieving similar results without encountering side effects.
As a healthcare professional, I can’t tell you how many patients I’ve encountered who have followed your kind of advice and sadly progressed to fulminant cancers that are beyond treatment. Also, these “natural treatments” you speak of are not given away for free - they cost money and someone is profiting off of them.
To combat my RCC I did Keytruda for one year June 2015- May 2016, it knocked me for a loop then. Since I have had re-occurrences and was put back on Keytruda June 2021, today January 25th, 2021 I will be going for my last treatment. I can NOT take it any longer..The aches, fatigue, and now my face gets red as a beet and feels like it is on fire. I will get my affairs in order and enjoy my life.
Thanks to all the thousands of people that have done so much for me and my family over my 12 years of fighting.
UPDATE; March of 2023, I'm still here!!! and I believe I wrote the incorrect date (should have read 1/25/22)
Nonetheless, still fighting and have upcoming treatments and procedures with my oncologist and radiologist.
Same.
I hope you're still with us.
@@fanorama1 Thanks for checking in Luke, still here!!
Within the last few months my doctor switched me to Optivo in hopes that the side effects would be easier to handle....
The side effects are still the pits and I have been growing tumors like crazy.
Fortunately for me, I found an interventional radiologist that zaps the little SOBs into oblivion.
As a matter of fact, tomorrow I go to get two more taken off my spine. Can't wait, I have been in quite a bit of pain, and Im; not a big fan of taking pain killer.
Sorry for the long-winded reply, but it passes the time.
Good luck to you and I hope that you are doing well. God Speed.
@@dennisadorno6721 I GLAD YOUR ALIVE. HOW DO YOU FEEL. ARE YOU STILL ALIVE ,, Are you doing better since you switched medicines? I have non-small cell stage four lung cancer. Adenocarcinoma .. I’ve been on. Keytruda ,, for three months tomorrow and in three more weeks this will be my second pet scan to see if my cancer grew. I do not have any pain medicine at all and nobody’s giving me any and I have no other treatment and they haven’t told me how big the cancer is it’s in the upper left lobe and both lower lobes. Does that mean that it’s metastasize if it goes from one lobe of the lung to the other and then to the other side or not and my question is, how long does it take for non-small cell cancer to metastasize to another organ? How long does it take to grow? And my other question is I have a headache all the time with this medicine but it’s only option that I have left is pretty much what they’re saying. I have only seen the oncologist one time and I talk to the nurse the rest of the time, anyway I hope do you know more than me because I just found out I just found out that I had it and nobody’s answering any questions and I don’t know the questions to ask. I hope you’re alive when Jesus comes. Hopefully he comes soon. I hope you’re OK and not hurting and I hope you don’t give up your fight. Hope you keep on fighting because living is worth living, please write me back and let me know at least if you’re alive because you should teach people you should tell people what kind of cancer you have where it’s at what stage you’re in and pretty much all the things you went through because millions of people are gonna come up here one day and they won’t know what’s going on. I don’t know what’s going on. I don’t know nothing about medicine hospital nothing😂
@@godschild3640my mother has been on keytruda for 3 yrs now. Same kind of cancer as you was already in her liver when we found out. She also has severe headaches every day. No mad to the brain just checked last month. I need to be honest I believe at this point she has been on it to long and it’s poisoning her system. He dr isn’t very forth coming with her which upsets me. So I look over her charts and research her lab results. I believe she should have been taken off at the 2 yr point. Instead he doubled the dose and she only goes every six wks now. Please remember every person’s journey is very different and can’t really answer the question you are looking for. Through it all try to keep a positive outlook remember medication is changing for the better every day. If your spiritual keep your faith. I wish you the very very best.
Have had bone and joint pain, fatigue, nausea, headache, body stoves up painful to move but I refuse to quit taking treatments I want to live longer
It is a great opportunity to have immunotherapy. My mother had total laryngectomy around 2 years ago. On April she had metastases in neck and lung. She refused to have any chemo or radio. Now the doctors told us to do immunotherapy but it is not available here in my country. I have to pay for it and it is a huge amount of money for us. I wish everyone to be safe healthy and totally healed from this disease 🙇♀️🙇♀️🙇♀️
I pray to God for my mother too
I hope your mother is doing well. Which country are you in?
My husband is having immunotherapy and has no side AFFECTS apart from feeling sleepy
My 1st cousin is going through this now,he has skin cancer stage 4,doing real good.
Clindy..how is he now?Please leave some hope ...even a i am a mbbs graduate but my inspiration and my love ,grandpa(muttya) diagnosed with satge 4 pancreatic ca...have u gone through any patient diagnosed with same condition?? Or did u hear about any modern therapies like immunotherapy?? Or really arent there any chance of surviving over a year?? Your reply is very important please
@@guruprasad7184 Have you heard about Xcures? They help cancer patients find treatment options.
th-cam.com/users/shortsmFrXrUkDEQM
th-cam.com/video/Y9O-uIpBgXw/w-d-xo.html
th-cam.com/users/TargetCancer
@@guruprasad7184. I heard with stage four non-small cell lung cancer. You have about 4 to 8 months to live 50% will be alive and 50% will be dead but I don’t know if if this is true if they have. Keytruda … and I don’t know how fast it grows. I don’t know how many days it takes to metastasize to another organ are you OK? Are you still alive? Write us back tell us what where your cancer is that how many cancer spots do you have in your body? Where is it? What kind of medicine are you on? What kind of treatments? How do you feel? We would like to know what you’re going through so that other people can learn from you thank you for your time. Tell us if you’re alive.❤
Keytruda has shipwrecked my immune system. I’ve been in chronic pain for months after pulling the plug on this drug. Symptoms include painful and locked joints, both knee and elbow. A sinus infection that lasted for months even with antibiotics. Pancreatitis and fatigue. The chronic pain is the worst.
Me too 😢 I had to stop after 5 cycles and I'm having numbness and pain all in my legs.
After my 2nd round of Keytruda, I began experiencing non-stop upper abdominal pain that has persisted for over one month now. I had minimal to no side effects from chemo except fatigue. I told my oncologist that I was stopping immunotherapy. I have no idea how to alleviate this constant pain.
Unbelievable joint pain, bordering on paralysis, arms shoulders and legs, literally screaming out in pain at times this can last 3 days to a week then just abates within hours back to normal - joy, pain free for days, then it comes on again the dreaded agony. The diarrhoea awful and uncontrollable, forget the embarrassment Imodium helps, no appetite just nauseous most days am now on heavy steroids which thankfully so far so good.
I had stage 4 melanoma was put on Opdivo immunotherapy but after years on it I developed pneumonitis. At first zpac prednisone and Ariythomyisin worked but as I continued immunotherapy it wasn’t working. My cancer is gone but now have shortness of breath not during rest but with activity. After two lung doctors I’m still not healed . It will be two years this coming March 2024 ; second doctor says it’s in the bronchial tubes. But I haven’t been given any form of treatment. I do t think they even know. Praying!
1st treatment last week, side effects killing me. Fever, chills, shaking, nausea, fatigue, soars in and outside mouth, no appetite, tired. Will not do 2nd treatment, I’m scared.
Same with me
Atleast it is less worse than Chemo.
My advise ask your doctor for protontherapy or brachytherapy in combination with targeted drug therapy and try to contect Cardiff University or Augusta University Health for CAR-T cell therapy.
And stay strong man you can do it, i have my cancer check up for my throat next week, i hope i don't have throat cancer.
@@Revitalization4241 it’s no easier than chemo stupid!!!
Hi henry..which cancer younwere diagnosed? How are you doing now?here i am also thinking to take immunotherapy..Please leave some hope ...even a i am a mbbs graduate but my inspiration and my love ,grandpa(muttya) diagnosed with satge 4 pancreatic ca...have u gone through any patient diagnosed with same condition?? Or did u hear about any modern therapies like immunotherapy?? Or really arent there any chance of surviving over a year?? Your reply is very important please
@@guruprasad7184 Hi have been on keytruda for a yr. have come to find out it is the lesser side effect of most immunotherapies. i had headaches for 2 months (history concussions) and then like a button- just went away and then kinda flared up in my gastro system which i can handle much better than headaches
I'm coming up to my 3rd session..the only side effect I have had fatigue and eating less..I have stage 4lung cancer it's also in my liver it's incurable....
How are you now?
Yes how are you doing now ?@theresamarriott
What happens when the physician doesn’t answer to you when you call her to tell horrible side effects that are completely new to you and you don’t know what to do my life changed for the worse at these because I don’t know how to deal with some many symptoms at the same more than ten
At least my doctor is helping me with the crazy terrible symptoms... I'm having I would love to talk to you.. and find out what they are and the kind of symptoms you're having.. because I've been sick for 15 months.. try and message me back thank you
I am taking Keytruda for Stage 3 Melanoma.. I’m having fatigue, aches and pains all over and muscle spasms… I was wondering if any one else has had the muscle spasms and if anything can be done for them?
Yes very common, I have been on immunotherapies for years and at times need to take a break.
Here are some pointers I hope they help.
#1 If it's working then stick with it.
#2 Hydrate hydrate hydrate, Water, tea, and club soda with juice are my go-tos.
#3 Eat / drink protiens. Even if you're not hungry eat or drink something. Muscle Milk, eggs, and my fave is rare roast beef from a deli, two or three slices can make a big difference.
#4 Manage your pain, Don;t be a hero...I alternate Tylenol, Advil, and Adleev. When your skin starts to crawl ask your doc for Gabipentine. crazy muscle aches, Valium (Diasapan) works and if you're able get oxy if it gets too much to handle.
I hope this helps
Good luck and Godspeed to us and our families.
Dennis
@@dennisadorno6721 Thankyou hun great advice just had 1st treatment & no appetite! Very wobbly lol ❤ hope your well. Xxx
@@unawild7186 Good luck to you, it's not easy but these drugs have high success rates. Stick with it for a while and if need be take a break
I have stage 4 melanoma. Have been on immunotherapy off and on for 3 years. I use prescribed muscle relaxers at night for spasms.
Fantastic subject 👍
Knee weakness. Barely walk. Joint pain. Every second day after this drug i cant see. White cloud. Left eye swollen. Blury. Keep the junk.
Did the side effects reduce ? And how long should polycythemia Vera therapy take it , specifically with the newer version of interferon therapy for two weeks?
Thank you
So what the hell are the side effects???
Gary look it up. It's terrible dangerous drug.
Can this work on prostate cancer that has spread to the bone
YES!!
This doesn't say much.
OK, let's consider immunotherapy and its potential side effects, followed by the utilization of pharmaceutical drugs for side effects developed by companies associated with significant legal penalties. Both immunotherapy and COVID vaccines share common manufacturers. Instead, here's an alternative idea: enhance your immune system naturally through the expertise of naturopathic doctors, achieving similar results without encountering side effects.
Idiot..
As a healthcare professional, I can’t tell you how many patients I’ve encountered who have followed your kind of advice and sadly progressed to fulminant cancers that are beyond treatment. Also, these “natural treatments” you speak of are not given away for free - they cost money and someone is profiting off of them.
Doesn't tell us anything
Your good deed toward humanity is incomparable thank you dr oiwoh on TH-cam for your kind gesture toward helping people i recommend him.
Great they blind ... the blind
Your good deed toward humanity is incomparable thank you dr oiwoh on TH-cam for your kind gesture toward helping people i recommend him.