I have a daughter of 22. Also being referred for hsct your blog has been amazing I wanted to arm myself before and if she gets accepted. Thank you for sharing your story. I hope you are doing well. X
Hi Louise. I'm so pleased they've been helpful! (I always thought that if they made a genuine difference to even one person, they'd be worth it). I shall keep my fingers crossed she gets accepted! And then cross the rest of my fingers/toes/limbs the treatment goes well if she does 🙂
Hi I have ms for 7 months now and I’m highly considering hsct treatment can you please tell me what were your symptoms before the treatment and what have improved thank you
I talk about it in the earlier episodes, but my MS was quite 'good' before HSCT. Highly active (relapsing roughly every year), but not much long term damage yet. EDSS 4-4.5 during last relapse, but 1.5 out of relapse. Symptoms vary - during relapse there was numbness from chest down, numbness in hands etc etc. But that stopped when relapse did. Other underlying symptoms (word finding, sensitivity to sound, memory) - got quite a bit worse after HSCT. But that's expected, the uptick is expected after a year. But I'll be happy if things stay as they are currently.
1st chemo was just a day. Then a couple of weeks later, you do a week of activation injections. Then in-patient for a week for more chemo. Then it's a case of waiting in isolation until your numbers come back up...2-3 weeks.
Thank you Chris. Really enjoyed watching this.
Thanks, Austin. Very kind of you
I have a daughter of 22. Also being referred for hsct your blog has been amazing I wanted to arm myself before and if she gets accepted. Thank you for sharing your story. I hope you are doing well. X
Hi Louise. I'm so pleased they've been helpful! (I always thought that if they made a genuine difference to even one person, they'd be worth it).
I shall keep my fingers crossed she gets accepted! And then cross the rest of my fingers/toes/limbs the treatment goes well if she does 🙂
Thank you. X
Hi I have ms for 7 months now and I’m highly considering hsct treatment can you please tell me what were your symptoms before the treatment and what have improved thank you
I talk about it in the earlier episodes, but my MS was quite 'good' before HSCT. Highly active (relapsing roughly every year), but not much long term damage yet. EDSS 4-4.5 during last relapse, but 1.5 out of relapse.
Symptoms vary - during relapse there was numbness from chest down, numbness in hands etc etc. But that stopped when relapse did.
Other underlying symptoms (word finding, sensitivity to sound, memory) - got quite a bit worse after HSCT. But that's expected, the uptick is expected after a year. But I'll be happy if things stay as they are currently.
How long did the whole process last? Thank you
1st chemo was just a day. Then a couple of weeks later, you do a week of activation injections. Then in-patient for a week for more chemo. Then it's a case of waiting in isolation until your numbers come back up...2-3 weeks.
Thank you very much God bless you! Your videos are very helpful!!!!