My grandma died of this disease and I wish my family would have known about this treatment. Glad she was able to fight this terrible disease and I know how much pain she was in.
+haleigh kinsey , I am so sorry that you have lost your grandma. My husband, age 47, has just been diagnosed with PLS but is also showing signs of fasciculations. It is so hard to get information on what to expect. I realize that every person is different but we have been told that he will have "decades" My question is: Decades of what? What are the normal stats on PLS? Desperate to learn something while we fight this disease.
+Dusty Daniels You're right every patient is different and PLS is not fully understood as with other motor neuron conditions... It is a bit wordy but you can take a look at this study to see how PLS progresses: www.ncbi.nlm.nih.gov/pmc/articles/PMC3434688/ PLS is not as severe in progression as ALS or Ataxia, but the symptoms are similar and gradually get worse. In Mia's case for example she is almost unable to walk or speak coherently every year or two between treatments. While our treatment is not yet a cure (as there isn't one currently), it can stabilize or improve the condition, leading to longer periods of quality of life. Best of luck to your family and simply inquire below if you would like to speak to a representative. stemcells.wufoo.com/forms/rppe9g40roan3a/
i have this PLS iv had it for decades i can still walk a short distance before i tire my arms are heavy but still working my speech is only affected when I’m tired i hope this helps you. We are all different. Best Wishes to you.
The video does not exactly state what difference the stem cell treatment made. There is no before and after in muscle strength or in speach clarity. This video teaches me, PLS patient, nothing.
Hello Titia, improvements from stem cells tend to appear in the weeks and months following the treatment. Thus, it is complicated for us to make videos that include "before and after" as patients are likely to be back home already by the time improvements really start. We can suggest you to make an inquiry by clicking the link below and we will put you in touch with patients who previously came for treating their PLS. info.beikebiotech.com
Isn't stem cell treatment also a form of western medicine? It doesn't originate from the eastern medicine that is for sure. How do you get the stem cells to function like brain cells? If that's possible at all.
Mia seems to have disappeared from view. What has happened to her? Where is she now? Many people have tried to trace her to see how she is but her facebook page is not active. We fear the worst, but do not know. Does anyone have answers? Thanks.
Sorry for the late reply. We too try to stay in touch with Mia and other patients and had not received any communications. She is doing amazing, and sent us the following email: "OMGosh! Here I am! I am fine…I am GREAT!!!! I am not on my facebook because of lack of time and I am on the computer all day at school. I feel awesome and have been able to drop some weight due to the diet Sara has me on… 50 total so far! I am very very strong still… that has never changed which amazes my DRs at Northwestern! I apologize for my not keeping in touch. I have to get better at that. I am already planning for my next trip in June! I miss everyone and just the overall feeling there! OK… well I’m fabulous so please, please pass that on so I can be of help to other Beike patients. Let me know if there is anything else I can do! Cannot wait to come back! My love to all at Beike!!! Mia" Thank you for your concern!
My grandma died of this disease and I wish my family would have known about this treatment. Glad she was able to fight this terrible disease and I know how much pain she was in.
+haleigh kinsey , I am so sorry that you have lost your grandma. My husband, age 47, has just been diagnosed with PLS but is also showing signs of fasciculations. It is so hard to get information on what to expect. I realize that every person is different but we have been told that he will have "decades" My question is: Decades of what? What are the normal stats on PLS? Desperate to learn something while we fight this disease.
+Dusty Daniels You're right every patient is different and PLS is not fully understood as with other motor neuron conditions... It is a bit wordy but you can take a look at this study to see how PLS progresses: www.ncbi.nlm.nih.gov/pmc/articles/PMC3434688/
PLS is not as severe in progression as ALS or Ataxia, but the symptoms are similar and gradually get worse. In Mia's case for example she is almost unable to walk or speak coherently every year or two between treatments. While our treatment is not yet a cure (as there isn't one currently), it can stabilize or improve the condition, leading to longer periods of quality of life. Best of luck to your family and simply inquire below if you would like to speak to a representative. stemcells.wufoo.com/forms/rppe9g40roan3a/
i have this PLS iv had it for decades i can still walk a short distance before i tire my arms are heavy but still working my speech is only affected when I’m tired i hope this helps you. We are all different. Best Wishes to you.
pa a website called "patients like me" may help.
This is great. Do you have new Als or Pls videos you can share?
We are working on more videos, all the videos will be posted here. Make sure to subscribe...
The video does not exactly state what difference the stem cell treatment made. There is no before and after in muscle strength or in speach clarity. This video teaches me, PLS patient, nothing.
Hello Titia, improvements from stem cells tend to appear in the weeks and months following the treatment. Thus, it is complicated for us to make videos that include "before and after" as patients are likely to be back home already by the time improvements really start. We can suggest you to make an inquiry by clicking the link below and we will put you in touch with patients who previously came for treating their PLS. info.beikebiotech.com
Please keep us posted about your progress
Mia had no hope with Western Medicine. Through stem cell treatment, it was given back to her.
Isn't stem cell treatment also a form of western medicine? It doesn't originate from the eastern medicine that is for sure.
How do you get the stem cells to function like brain cells? If that's possible at all.
Mia seems to have disappeared from view. What has happened to her? Where is she now? Many people have tried to trace her to see how she is but her facebook page is not active. We fear the worst, but do not know. Does anyone have answers? Thanks.
Sorry for the late reply. We too try to stay in touch with Mia and other patients and had not received any communications. She is doing amazing, and sent us the following email:
"OMGosh! Here I am! I am fine…I am GREAT!!!!
I am not on my facebook because of lack of time and I am on the computer all day at school.
I feel awesome and have been able to drop some weight due to the diet Sara has me on… 50 total so far! I am very very strong still… that has never changed which amazes my DRs at Northwestern!
I apologize for my not keeping in touch. I have to get better at that. I am already planning for my next trip in June!
I miss everyone and just the overall feeling there!
OK… well I’m fabulous so please, please pass that on so I can be of help to other Beike patients. Let me know if there is anything else I can do!
Cannot wait to come back!
My love to all at Beike!!!
Mia"
Thank you for your concern!
I suspect she has passed.
What about Mia now, is she okay and is this disease threatening a person's life as in ALS
If this worked, then why no update?
Hello, here is Mia's profile on Facebook, please feel free to contact her to get an update: facebook.com/mia.ruthey
Sa fonctionne vraiment ?
The fact that these video's on ALS/PLS are never continued over time, is your proof of fraud.
in italia non fanno le cellule staminali perche?