My sister (48) was diagnosed with metastatic brain cancer in early June this year 2020. She had a tumor removal in her cerebellum on the 12th of June. Right after that surgery she couldn’t swallow, walk or do anything with her left side of the body. 2 weeks later they diagnosed her with LEPTOMENINGEAL DISEASE after an MRI screen on her spine. The doctors offered the regular quemo therapy protocol with Omaya implant, we refused as the life quality would be just miserable. We accepted radiation on the head and spine (10 sessions) and some light quemo therapy through INFUSION every 3 weeks. Right now she had 7 radiations and 2 weeks ago had her first infusion. Today is 08/09/20 I’m taking care of my sister since the 4th of June. I’ve been giving her a combination of herbs and vitamins, together with some natural supplements and we have noticed her appetite is increasing, she is walking better by herself, her swallowing and speech is improving as her left vocal cord is awakening any her soft palette is getting back to place. She has her period back after 2.5 years since it was gone with her first quemo treatment. This time her period lasted 7 days as it would on a regular basis. She hasn’t loss any hair yet, probably will happen after the second infusion. We are very hopeful about what we are doing as we are reaching some positive results against all the odds. If you want to follow our case, or know what we are doing on our side, just email me to: tryny000@gmail.com
I had a grade 2 a-typical meningioma removed. Im 35 yrs old it was the size of a baseball. Would you recommend starting radiation right away? Most of the tumor was taken out but theres possibly some cells left by the SSS.
Hello, this video is very informative. I have been recently diagnosed with a posterior clinoid meningioma compressing on my brain stem 3.1x 2.1x2.4. NS I spoke with does not feel I can have any type of radiation due to its location. I would like another opinion or recommendation on this and for a NS highly experienced in debulking/surgery in this location. I am 55 years of age and healthy. Thank you for your time. Sincerely Natalie
Hi dr. Charles cobbs, in fact i have many questions however it is really saf to say that a cousin of mine was diagnosed by an MRI with diffuse intrinsic pontine glioma after present to ED with a failure to move his left eye to the left side, i would like to ask if there is any new approach to the tumor and if the surgery is possible and if not how to deal with this situation.
To bad they never bring up the effects of radiating the brain long term with cognitive functions of the brain and long term damage of necrosis caused by radiation.
You included a lot of the basic information but you also left out a lot of information. Not everyone goes for extended radiation therapy. Sometimes only one treatment is required. And the brain tumor that's being treated is not the kind that metastasizes. Sometimes the tumor being treated is benign. I have an acoustic neuroma. It only required one radiation treatment. It was a large dose administered all at once. That is the only way to treat an acoustic neuroma. I was hoping that this video would mention side effects but it didn't even get that far. It's very frustrating when your doctor is very vague about side effects. So you don't know whether or not you are healing in a proper manner because everyone's healing process is unique to them. So that makes it harder to know if what you are experiencing is what you should be experiencing. I had my radiation treatment a month ago and I'm still having side effects. And I don't even know if that's normal. Or even if there is a normal in this type of situation. Nobody can give me a straight answer. And it's also going to take a long time to find out if the radiation treatment actually worked. Not until after I have two MRIs that can be compared to each other and that can take the better part of another year. In the meantime I don't have any idea whether or not the tumor is still growing or if it's totally shut down. and there's no way to measure that. I feel totally helpless in this situation.
Hello Janet, everyone is different with how they react to the radiation with regards to hair loss. Many people do experience hair loss in spots or even throughout all of their hair. Thank you, Maria Barrett-BrainCancer.org
That's the same for toke 5 times putting it on before I was able to keep it on it freak me out every time and to go true it again tomorrow and every day for the next 6 weeks is freaking me out
My sister (48) was diagnosed with metastatic brain cancer in early June this year 2020. She had a tumor removal in her cerebellum on the 12th of June. Right after that surgery she couldn’t swallow, walk or do anything with her left side of the body. 2 weeks later they diagnosed her with LEPTOMENINGEAL DISEASE after an MRI screen on her spine. The doctors offered the regular quemo therapy protocol with Omaya implant, we refused as the life quality would be just miserable. We accepted radiation on the head and spine (10 sessions) and some light quemo therapy through INFUSION every 3 weeks.
Right now she had 7 radiations and 2 weeks ago had her first infusion.
Today is 08/09/20
I’m taking care of my sister since the 4th of June. I’ve been giving her a combination of herbs and vitamins, together with some natural supplements and we have noticed her appetite is increasing, she is walking better by herself, her swallowing and speech is improving as her left vocal cord is awakening any her soft palette is getting back to place. She has her period back after 2.5 years since it was gone with her first quemo treatment. This time her period lasted 7 days as it would on a regular basis. She hasn’t loss any hair yet, probably will happen after the second infusion.
We are very hopeful about what we are doing as we are reaching some positive results against all the odds.
If you want to follow our case, or know what we are doing on our side, just email me to:
tryny000@gmail.com
Wow 😮 Dr Cobbs💙💙💙
I had a grade 2 a-typical meningioma removed. Im 35 yrs old it was the size of a baseball. Would you recommend starting radiation right away? Most of the tumor was taken out but theres possibly some cells left by the SSS.
Hello, this video is very informative. I have been recently diagnosed with a posterior clinoid meningioma compressing on my brain stem 3.1x 2.1x2.4. NS I spoke with does not feel I can have any type of radiation due to its location. I would like another opinion or recommendation on this and for a NS highly experienced in debulking/surgery in this location. I am 55 years of age and healthy. Thank you for your time. Sincerely Natalie
Hi how are you
Hi dr. Charles cobbs, in fact i have many questions however it is really saf to say that a cousin of mine was diagnosed by an MRI with diffuse intrinsic pontine glioma after present to ED with a failure to move his left eye to the left side, i would like to ask if there is any new approach to the tumor and if the surgery is possible and if not how to deal with this situation.
How are you
Thank you
To bad they never bring up the effects of radiating the brain long term with cognitive functions of the brain and long term damage of necrosis caused by radiation.
You included a lot of the basic information but you also left out a lot of information. Not everyone goes for extended radiation therapy. Sometimes only one treatment is required. And the brain tumor that's being treated is not the kind that metastasizes. Sometimes the tumor being treated is benign. I have an acoustic neuroma. It only required one radiation treatment. It was a large dose administered all at once. That is the only way to treat an acoustic neuroma. I was hoping that this video would mention side effects but it didn't even get that far. It's very frustrating when your doctor is very vague about side effects. So you don't know whether or not you are healing in a proper manner because everyone's healing process is unique to them. So that makes it harder to know if what you are experiencing is what you should be experiencing. I had my radiation treatment a month ago and I'm still having side effects. And I don't even know if that's normal. Or even if there is a normal in this type of situation. Nobody can give me a straight answer. And it's also going to take a long time to find out if the radiation treatment actually worked. Not until after I have two MRIs that can be compared to each other and that can take the better part of another year. In the meantime I don't have any idea whether or not the tumor is still growing or if it's totally shut down. and there's no way to measure that. I feel totally helpless in this situation.
Will I lose my hair I'm been put on this
😊😊😊
Hello Janet, everyone is different with how they react to the radiation with regards to hair loss. Many people do experience hair loss in spots or even throughout all of their hair.
Thank you, Maria Barrett-BrainCancer.org
I started my treatment found it hard the mask is so hard I found it hard to breathe did anyone else have it
That's the same for toke 5 times putting it on before I was able to keep it on it freak me out every time and to go true it again tomorrow and every day for the next 6 weeks is freaking me out
Gabor Szeifert your lucky I've 30 minutes and don't help with my ms lol