Living with Spinal Muscular Atrophy (Type 1)

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  • เผยแพร่เมื่อ 6 ต.ค. 2024

ความคิดเห็น • 336

  • @nutrirebyanaluarrivillaga2646
    @nutrirebyanaluarrivillaga2646 9 หลายเดือนก่อน +830

    the sister, understanding everything he says, its adorable. I can tell she loves him so much!

    • @jonnyhawkins7744
      @jonnyhawkins7744 9 หลายเดือนก่อน +30

      i wouldnt say her being able to understand what he says is adorable, wrong wording there. more like hard dedication to trying to learn how her brother speaks. fair play to her cos she didnt need to

    • @nutrirebyanaluarrivillaga2646
      @nutrirebyanaluarrivillaga2646 9 หลายเดือนก่อน +32

      @@jonnyhawkins7744 well I still thinks it adorable and amazing ❤️

    • @stepht7508
      @stepht7508 9 หลายเดือนก่อน +19

      I can't believe that she's only 11 years old

    • @sarahpackiaraj6310
      @sarahpackiaraj6310 9 หลายเดือนก่อน +5

      God bless you abundantly little missi

    • @UnchainedAmerica
      @UnchainedAmerica 9 หลายเดือนก่อน +11

      I work with ID adults. Some of them aren't very good speakers but overtime my ears adjust to their speech. The sister had adjust her ears to understand him.

  • @JayJay32186
    @JayJay32186 9 หลายเดือนก่อน +303

    The father going to school with him everyday to help and be his nurse… astounding. I don’t know of any other fathers being that dedicated. This man is in a class of his own. 💜 A father beyond fathers.

  • @FlickeringEmber
    @FlickeringEmber 9 หลายเดือนก่อน +535

    I notice a common theme with these families. The siblings always are so kind and mature. I love seeing the relationships and bonds they share.

    • @javi9038
      @javi9038 9 หลายเดือนก่อน +14

      Es cierto. Eso es tan conmovedor de ver

    • @MV-ew6ty
      @MV-ew6ty 9 หลายเดือนก่อน +7

      Yes indeed ❤

    • @UnchainedAmerica
      @UnchainedAmerica 9 หลายเดือนก่อน +14

      I am multi disabled. My brother was always protective and patient with me growing up. He still does.

    • @guardianangel9517
      @guardianangel9517 9 หลายเดือนก่อน +6

      ​@@UnchainedAmericaWhat a great blessing 🫂🙏🏻

    • @KPAproductionStudios1970
      @KPAproductionStudios1970 9 หลายเดือนก่อน +4

      ​@@UnchainedAmerica My family was never that way with me when being blind, well *sometimes,* only my friends were... well *some of them* but some understood that I had impairments, and other stuff wrong with me so they completely understood what I was going through, and tried to help me through it. ❤

  • @Ninja-ty4lw
    @Ninja-ty4lw 9 หลายเดือนก่อน +255

    Very impressed by his family's ability to understand him. The love they have for eachother is strong af.

  • @Ameliafromhere
    @Ameliafromhere 9 หลายเดือนก่อน +310

    My neice had SMA and lived well past her life expectancy. She was diagnosed at 2 and was only expected to live to 12, and she went to heaven when she was 29. The love between this brother and sister is so sweet! Love is what keeps people going. Bless these kids.

    • @MV-ew6ty
      @MV-ew6ty 9 หลายเดือนก่อน +14

      😢God rest her soul.

    • @pennyp7382
      @pennyp7382 9 หลายเดือนก่อน +10

      🫂 Some real world warriors. 🌎 ❤

    • @klaudiaczarnecka5251
      @klaudiaczarnecka5251 9 หลายเดือนก่อน +10

      Now there are a lot of therapies for SMA so the life expectancy got a lot longer, spinraza, zolgensma, evrysdi

    • @star2162
      @star2162 9 หลายเดือนก่อน +6

      I'm so sorry for your loss rip

    • @dogdonut3
      @dogdonut3 9 หลายเดือนก่อน +5

      I'm sorry for your loss

  • @thebullockbunch224
    @thebullockbunch224 9 หลายเดือนก่อน +57

    The sister though!!! Words can’t express how impressive she is. I hope the world sees her light from afar.

  • @luchirimoya
    @luchirimoya 9 หลายเดือนก่อน +71

    You can just feel how much his sister Natalie loves and supports him, it's heartwarming to see. Their parents have raised two amazing human beings. Much love to Isaac and his family

  • @jeremiahallyn4603
    @jeremiahallyn4603 9 หลายเดือนก่อน +97

    Isaac is a wonderful young man! His bond with his sister is so amazing. I guarantee she will always be there for him, no matter what 🫶🤗

  • @julievanderleest
    @julievanderleest 9 หลายเดือนก่อน +44

    Made me really happy for Isaac when his dad shared that he always has friends at recess who will run up to him and play games with him. Games that he can do and are there to help him and include him. This family is incredibly sweet and supportive. When they teared up, I got teared up right with them. The bond that they all have is amazing. Great interview Chris.

  • @shannonakins5752
    @shannonakins5752 9 หลายเดือนก่อน +91

    Aww.....God Bless, Issac. My son had Type 1. You're doing amazing. And you have an amazing sister and family.

  • @pinlight97
    @pinlight97 9 หลายเดือนก่อน +28

    Amazing family! The dad training as an aide to support his son and also bring in a bit of money is astounding…I’ve been in a huge variety of classrooms as a teacher and never seen that. The daughter and mom are incredible intuitive communicators too. They’re all so supportive of each other. ❤

  • @anthonymatute6057
    @anthonymatute6057 9 หลายเดือนก่อน +47

    Isaac and his sister are so supportive of each other, I wish the best of luck to Isaac’s family

  • @cc8328
    @cc8328 9 หลายเดือนก่อน +42

    Isaac is so lucky to have his dad with him at school. When you asked what some of his biggest obstacles were, the look in his dad's eyes, that love, is the love we all deserve in this lifetime. Thank you for continuing to share these stories, Chris. It truly has been life changing to watch your work!

  • @Jamesp0nd
    @Jamesp0nd 9 หลายเดือนก่อน +88

    God bless this family and these children. I am 30 and I broke my spine a few years ago I've been disabled since and I cannot imagine how much worse it must feel for this kid
    My heart goes out to him my injury is nothing compared to the weakness he feels every day thank God he has such an amazing family it makes his life whole I can tell. God bless this family ❤

    • @susanne5803
      @susanne5803 9 หลายเดือนก่อน +23

      I'm a mom of a (born) disabled kid nearly your age. If you get disabled later in life you'll know what you lost and you'll know what you miss.
      If you're born that way you can only miss having an ability in a very abstract sense. Like if people rub it in what you can't participate in.
      My kid is pretty content most of the time actually.
      Watch the kid with SMA say that if he could change a thing he would want to watch more cartoons - it's not being "regular" in our sense that crosses his mind.
      Wishing you all the best!

  • @debbie5454
    @debbie5454 9 หลายเดือนก่อน +38

    Perfect ending. His sister is so young, but is wise beyond her years. Great advice. Sending love and prayers to this family.❤

  • @shoshannafachima1306
    @shoshannafachima1306 9 หลายเดือนก่อน +31

    Wonderful family,so gentle,caring and compassionate
    Isaaks sister is so mature and both kids are so bright

  • @boneymacaroni13
    @boneymacaroni13 9 หลายเดือนก่อน +120

    I love Issac saying hes happy with who he is ❤ part of that is his wonderful family.
    Edit: goddamn Issac is an awesome human. Its true that comparison is the thief of joy.
    If you're reading this Issac, you freakin rock. Your family rocks. I wish nothing but happiness for yall.

  • @ieva5948
    @ieva5948 9 หลายเดือนก่อน +25

    Natalie, Isaac, Mom and Dad - you're all so interesting and wise. Sending best wishes.

  • @SpectateDrake
    @SpectateDrake 9 หลายเดือนก่อน +20

    His sister is such a blessing as well 🥺

  • @xobls
    @xobls 8 หลายเดือนก่อน +3

    Omg this family is amazing. His sister knowing everything he is saying, astounding. His father going to school to be a CNA so he can be Isaac’s nurse at school, astounding. Brought me to tears seeing dad well up wishing his son could run & play with his friends. His mother is so full of light & love - I adore this family! Bless them 🥰🫶

  • @pamelawooten3251
    @pamelawooten3251 9 หลายเดือนก่อน +9

    Such a sweet bond they have. My daughter was diagnosed at 4 months old and she passed at 7 months old. She was not expected to survive past 2 years old. It was the hardest thing for us to ever go through. I am so glad medicine has come as far as it has these past 38 years since her passing.

    • @pinlight97
      @pinlight97 9 หลายเดือนก่อน +3

      Even though it’s been many years, I have no doubt that you still often think of your daughter. If you’re willing to share her name, I would love to know it. (My daughter, Abigail, was stillborn at 33 weeks many years ago).

    • @pamelawooten3251
      @pamelawooten3251 9 หลายเดือนก่อน +4

      @@pinlight97 She was born Sept. 1985 and passed away April, 1986. Her name is Deidre. Not a day passes that I don't think of her. She was such a happy and good baby. We noticed the floppiness when she was 2 months old and was diagnosed at 4 months old.

    • @erinaa9486
      @erinaa9486 9 หลายเดือนก่อน +3

      ​@@pamelawooten3251I'm so sorry for your loss. Your Deidre sounded like the best baby, may she rest in peace 💜

  • @anniedeering2455
    @anniedeering2455 9 หลายเดือนก่อน +25

    “Still be funny, and still pick on them, and still let them do the same to you.” Yes! How beautiful, and how true. 💛

  • @Brycesaggiebabe
    @Brycesaggiebabe 9 หลายเดือนก่อน +105

    I love how Isaac is surrounded by a great community and friends.

  • @pennyp7382
    @pennyp7382 9 หลายเดือนก่อน +13

    The Mom had a very important part to say during the end. You can be vulnerable around your children. They know despite our best try to hide our struggles. Being age appropriate to answer their questions with honesty does them a great service. SMA is not who this young man is. Thank you Issac for sharing your family and life with us. ❤

  • @AuroraMeansDawn27
    @AuroraMeansDawn27 7 หลายเดือนก่อน +4

    What a loving family. My heart aches for his parents pain.

  • @garden_vibes7796
    @garden_vibes7796 9 หลายเดือนก่อน +23

    This whole family is doing such a good joh, and I love Isaacs sense of humor. They deserve all the love that surrounds them and even more!

  • @CharGC123
    @CharGC123 9 หลายเดือนก่อน +16

    So many challenges, yet so much love! It's good to know Isaac is content with his ability, and the hearts of his family are enormous! We all want the best and more for our kids, but self love and acceptance is the greatest gift of all. Love to you all! ❤❤❤❤

    • @josiethecatlover
      @josiethecatlover 8 หลายเดือนก่อน

      You can say disability! It’s not a bad word!

  • @randimichelle2810
    @randimichelle2810 9 หลายเดือนก่อน +7

    I was a live in caregiver for a woman with SMA for about 3 years in college. It was life changing and I have so much respect and admiration for this family. They sound like such awesome people. Love his sister and their relationship seems like the strongest connection in the world. Isaac seems like a really cool person. ❤

  • @balaam_7087
    @balaam_7087 9 หลายเดือนก่อน +13

    I like who you are too, Isaac. In fact, your whole family seem to be stellar folks. You’re really fortunate to be surrounded by such exemplary people-I bet your home life is a bastion of goodness. Not everyone is so lucky, so cherish every day. I know they feel the same way about the joy you bring to their lives too ☺️

  • @ideal1968
    @ideal1968 9 หลายเดือนก่อน +16

    Siblings have a special bond ❤

  • @mddell58
    @mddell58 9 หลายเดือนก่อน +8

    I'm amazed at how his sis understands him so very well.
    I worked in the medical field, & I simply could not understand any words he said. That, alone, made me feel inadequate and not-too-smart.

  • @leafortner
    @leafortner 7 หลายเดือนก่อน +2

    that had to be the most well spoken and mature young lady I've ever seen.. bless her heart and the brother well the whole family..❤ may God bless them all each and every day...

  • @kobemarshall8646
    @kobemarshall8646 9 หลายเดือนก่อน +15

    Best channel ever!

  • @shanablackmar7484
    @shanablackmar7484 9 หลายเดือนก่อน +22

    What a truly cool family! And it must be a big comfort to Mom and Dad that if they were unable to care for their son for any reason that their daughter would be there for him.

  • @nadinefamille3855
    @nadinefamille3855 9 หลายเดือนก่อน +8

    Thanks for sharing your story Isaac and family! Just wanted to add : I m so impressed with Natalie. She is very wise, I can't believe she is only 11 yo! Love from France!

  • @jenshuttleworth5284
    @jenshuttleworth5284 9 หลายเดือนก่อน +5

    My heart just feels so full. That little girl is such a good soul. And the parents. This video is great!

    • @elbalirachid2658
      @elbalirachid2658 5 หลายเดือนก่อน

      You feel the love of these people. Such a loving family

  • @MissNebulosity
    @MissNebulosity 9 หลายเดือนก่อน +6

    This is one of your best interviews, Chris. I was hanging on the answer to every great question you asked.

  • @emilypashak9834
    @emilypashak9834 9 หลายเดือนก่อน +5

    👏👏👏 The only word I can use to describe this Family is Incredible. The love they share isn't broken and still whole ❤ The Father dropping everything an applying himself in school to help his boy is INCREDIBLE, (I was balling!) The mother still being there for both of her kids and especially her husband is Incredible! She wanted to do more❤. The Beautiful sister who is a shining Angle for her young brother who understands him like no other! INCREDIBLE ❤ You guys are doing such a good job I'm so proud of your daughter and amazed of how much love your family has pumped out.

  • @blairariavanderkamp3405
    @blairariavanderkamp3405 9 หลายเดือนก่อน +4

    Life is so difficult fot him, for his parents and his sister. I wonder how she understands what he's saying. Yes, she's used to hearing it but still. It's impressive because I honestly can't hear any words or anything similar to words even though I'm really listening.

  • @nightyew2160
    @nightyew2160 9 หลายเดือนก่อน +12

    I love the loving bond between Isaac and Natalie but that her main advice is to tease each other. I think siblings often take teasing for granted and usually just complain about it, but letting your sibling tease you sometimes can be an act of love.

  • @juliejacobs6070
    @juliejacobs6070 5 หลายเดือนก่อน +1

    Your family is amazing! Thank you for sharing your story of courage, strength, and love, real love. Blessings to all of you!!

  • @SimplyRomy11
    @SimplyRomy11 9 หลายเดือนก่อน +9

    Awww 😢❤❤ his dad is just so sweet

    • @jeremiahallyn4603
      @jeremiahallyn4603 9 หลายเดือนก่อน +3

      He really is. It made me so sad when he was tearing up. Poor guy, he just loves his little boy so much 😢

  • @westberry1
    @westberry1 9 หลายเดือนก่อน +5

    I wonder what state that is, because I am a nurse and a CNA can’t go to school with a medical fragile child. It must be a nurse even if you are the family. Member.

  • @kellybishop7238
    @kellybishop7238 9 หลายเดือนก่อน +4

    What a wonderful family and heartwarming to see the two siblings interact ❤

  • @fgkfriz
    @fgkfriz 9 หลายเดือนก่อน +8

    Oh how fun you two siblings are! I can feel it :) love from Italy

  • @daniellerocco8237
    @daniellerocco8237 9 หลายเดือนก่อน +3

    This family is just straight up so cool. They seem chill and just relaxed about life. I love it. They do so much for each other through their actions.

  • @CynthiaMUrban
    @CynthiaMUrban 9 หลายเดือนก่อน +4

    Thank you for sharing, Chris. This is very much a loving family, and from what I see, so strong. God bless them richly and provide the strength they need both physically and mentally.

  • @lovingmayberry307
    @lovingmayberry307 9 หลายเดือนก่อน +4

    What an amazing family! The siblings were just meant to be siblings, the mom is awesome and I want to give the dad a huge hug because he cares so much it hurts! ❤

  • @mumineveryway6269
    @mumineveryway6269 9 หลายเดือนก่อน +2

    What an amazing family! Issac seems so confident . He has much to teach the world. He's got a great sister.
    Thank you to his parents for opening your hearts to talk about the hard stuff.

  • @aliciawright5352
    @aliciawright5352 9 หลายเดือนก่อน +2

    What an amazing family. Natalie, you are truly the best sister ever. The love this family has for one another is setting a standard for everyone. Isaac, you are incredible 💕

  • @jiunwang7421
    @jiunwang7421 9 หลายเดือนก่อน +8

    I am humbled by Issac and his family.

  • @soniamiller4787
    @soniamiller4787 9 หลายเดือนก่อน +3

    Your channel is one of the best channels on youtube ever.

  • @katec9893
    @katec9893 9 หลายเดือนก่อน +1

    I always cry when watching this channel because I feel overwhelmed by the kindness, love, warmth and empathy of both the interviewer and the loving families he interviews.

  • @Spartacus45
    @Spartacus45 9 หลายเดือนก่อน +1

    What an amazing loving relationship between brother and sister, so heartwarming to see.
    This young man has a very strong character and his sister is so mature and supportive of him.
    God bless all of you!! 🙏

  • @pondfamily7295
    @pondfamily7295 9 หลายเดือนก่อน +2

    A beautiful, dedicated and raw family ❤ I appreciate the parents sharing the tough side of things but a confidence shines through that they will get through as they can trust and lean on each other. I love how Issac prefers to use his own voice and I love how His family have developed an accute understanding of his subtle words. Just an amazingly tighly bonded family. Love will continue to carry you all through! ❤

  • @Tranquility32
    @Tranquility32 9 หลายเดือนก่อน +1

    I love the family dynamics! And it’s so wonderful that Natalie understands him so well. I tried very hard but couldn’t (other than yes and no). But that would NOT ever prevent me from smiling and saying hello and interacting if I saw this beautiful family out and about. They are amazing. Love to Isaac, Natalie, Mom and Dad!

  • @ShannonRD1990
    @ShannonRD1990 9 หลายเดือนก่อน +5

    Beautiful family, and what a sweet sister ❤️❤️❤️

  • @ksteak27
    @ksteak27 9 หลายเดือนก่อน +2

    Wow... Natalie is an absolute gem of a human!!! God bless this family! They have more love here than many other families!!!

  • @junebugx1312
    @junebugx1312 9 หลายเดือนก่อน +3

    i absolutely adore isaac and his family. thank you so much for sharing your story with us. you are so awesome 🩷

  • @teagunnn
    @teagunnn 9 หลายเดือนก่อน +5

    i love his sister that last quote is spot on i have a brother with a disability and we still pick on each other lol

  • @donnaadom8483
    @donnaadom8483 9 หลายเดือนก่อน +1

    I ve discovered in the past few years, that some families that look so great from the outside just arent at all. To have this much love and honesty, is truly a blessing, something to be be proud about and to cherish like crazy. Thanks for sharing.

  • @SuperMarioJacksonYT
    @SuperMarioJacksonYT 9 หลายเดือนก่อน +4

    Isaac, you're the coolest guy I've seen all day! You rock, buddy! Never give up!

    • @chanelnave8595
      @chanelnave8595 2 หลายเดือนก่อน

      Yes he’s really cool and the most strongest person ever! He never gave up and accepts the way he was born !

  • @8vI
    @8vI 9 หลายเดือนก่อน +1

    What a beautiful family! It’s amazing to see so much love between a brother and sister.

  • @barbaragremaud3499
    @barbaragremaud3499 9 หลายเดือนก่อน +6

    I’m so surprised that she is only 11.

  • @CyberVeggie
    @CyberVeggie 9 หลายเดือนก่อน +5

    Most of these videos make me wonder why I ever try and complain about my epilepsy when I am still able to live alone and do a lot of things myself even if I am somewhat restricted still

    • @abigrant7194
      @abigrant7194 9 หลายเดือนก่อน +9

      Epilepsy is still bad. Just because he has something worse than you it doesn't mean you can't complain about your condition

    • @lovingmayberry307
      @lovingmayberry307 9 หลายเดือนก่อน +10

      Allow yourself to feel compassion for your own situation. ❤

  • @yarideyarguelles1071
    @yarideyarguelles1071 9 หลายเดือนก่อน +2

    Hola Isaac eres un niño muy inteligente, estoy segura que das grande ejemplo de vida y esfuerzo a otros que también pasan o están padeciendo este tipo de sindromes tan poco conocidos, qué bueno que aceptaste la entrevista junto a tu familia y asi explicar con detenimiento tus vivencias y la forma de llevar adelante el trabajo que hacen como un equipo unido y fuerte.Saludos y mucho ánimo para ustedes desde México.

  • @abdullahak2204
    @abdullahak2204 9 หลายเดือนก่อน +1

    This was a great interview! Isaac's bond with Natalie is really amazing! Wooow dad is such a great guy! He stepped up and became a certified nurse's aid! Mom's doing a great job as well!

  • @jesusdiaz9340
    @jesusdiaz9340 9 หลายเดือนก่อน +1

    I really admire the four members if this family. They, are fighting together! Congratulations for being this way and never give up!!!.

  • @shalacarter6658
    @shalacarter6658 9 หลายเดือนก่อน +3

    Hi Isaac and family!
    You are such a joy! :)

  • @thereschenschwarzer
    @thereschenschwarzer 9 หลายเดือนก่อน +3

    You guys are beautiful!!!! Big sis... Oh man, the world would be perfect if everyone had one like you

  • @Judymontel
    @Judymontel 9 หลายเดือนก่อน +2

    I have to say that maybe twenty years ago I would not have agreed with Isaac about using his own voice and maybe not being able to communicate the longest sentence and most sophisticated concepts in the most complex way. As a parent I totally understand his parents' perspectives. It IS important to have the option of using his other communication devices when strangers or complex ideas need to be expressed. And I used to feel that the more complex a thought, the more worthy it was.
    But now? As a grandmother? I've kind of come back to his perspective. His voice. He says so much with the way he even says "Mmhmmm" and "Unnnunnn" that no device could ever get across. And also I've come to see that there is very little in the world, even the world of sophisticated concepts, as powerful and as important as direct and genuine communication, in whatever form that takes. I like your stubbornness, Isaac - and I am empowered by the genuineness of your entire family. Thanks.

  • @chipkid
    @chipkid 9 หลายเดือนก่อน +9

    Isaac is awesome man, good game choices too. Also, play hollow knight man it’s awesome, and make your sister play it

  • @LogoDojo
    @LogoDojo 9 หลายเดือนก่อน +2

    Beautiful family
    Very important Project
    May God Bless this family and these wonderful children

  • @markmuller7962
    @markmuller7962 9 หลายเดือนก่อน +2

    I'm literally crying for how amazing this kid and the whole family is and also the society we live in it's sometime underrated given that we manage to give a chance for a decent life even to people with extreme disabilities like him

  • @BNHAalltheway
    @BNHAalltheway 9 หลายเดือนก่อน +3

    He has an amazing family thst love him alot and it's so great how his sister understands him

  • @esperthebard
    @esperthebard 5 หลายเดือนก่อน

    It's been a while since I've watched this channel, and I'm so glad to see the comments got reinstated!

  • @beckwil0852
    @beckwil0852 9 หลายเดือนก่อน +1

    What a loving, beautiful, amazing, inspirational family. I love each one of you. Thank you for sharing your story.❤

  • @melindajohnson9726
    @melindajohnson9726 9 หลายเดือนก่อน +3

    amen. my issues are moderate (fibromyalgia and some mental health issues, so maybe some would call those mild, but it does affect everything I do), so I have had to include the children, even from a young age, into my health journey. We homeschool, so they have had to go with me at time to doctor appointments. Or they have seen me sit on the couch all day instead of be active (i.e. we do school from the couch instead of out and about). my husband, too, has hard to learn how sorts of things that other husbands don't have to learn. And of course I have had to learn my limits and the consequences of ignoring them. I appreciate these videos so very much because I live on the edge of these situations myself. obviously, it's nowhere in comparison to these severe. but I really appreciate this dad's vulnerability. And his ability to flip the norms and be the CNA and how mom goes to work full time. Way to go, Dad! You're family is working out beautifully! It's hard work, but all families are hard work, just like you said. All families have different stressors. And those kids are not resenting the lives they have because their parents love them and each other and the kids love each other. It's very, very obvious. Especially when the mom breaks down because she sees the dad struggling. Bless her heart. What a beautiful video!

  • @Danielleb723
    @Danielleb723 9 หลายเดือนก่อน +4

    I think we all need to slow down. I never imagined feeling this way but with age I can see what is really important and I think we all need to stop being consumed with chasing money and material things. Isaac can teach us all some lessons

  • @pantonbleu7612
    @pantonbleu7612 9 หลายเดือนก่อน +1

    Thank you for making stories like this public.

  • @Ruthybwn
    @Ruthybwn 9 หลายเดือนก่อน +3

    Sometimes I think it’s a bit crappy when family members talk about how hard it is for them in front of the disabled person. I’m the only disabled person in my family and I’ve always struggled with guilt about that. Obviously I don’t think this family are doing anything wrong by expressing their feelings, but for Isaac to not be able to even really respond in time while they’re expressing that stuff must be quite overwhelming for him.

  • @jeremymuther8656
    @jeremymuther8656 9 หลายเดือนก่อน +7

    Beautiful family ❤❤

  • @LinKoRn-parK
    @LinKoRn-parK 9 หลายเดือนก่อน +1

    This channel is amazing and inspiring. I am grateful for this channel. Thank you for sharing your story Isaac and family.

  • @puppyraiser1710
    @puppyraiser1710 9 หลายเดือนก่อน +3

    What an amazing family! A good example for us all.

  • @Sealife834
    @Sealife834 9 หลายเดือนก่อน +2

    Such an awesome and brave boy! Obviously he is very smart too! All the best to Isaac and the entire family 💖

  • @MandyLucas-bh8lh
    @MandyLucas-bh8lh 9 หลายเดือนก่อน +1

    What a lovely and brave young man and a thoughtful and loving sister good luck for the future god blessxxx

  • @jacquicoder7160
    @jacquicoder7160 9 หลายเดือนก่อน +1

    Chris, I love the way you ended this video. Isaac's sister is the most precious girl, so understanding and compassionate. As much as we may be so sad about his condition, his own attitude is remarkable and he has a tremendously supportive family.

  • @chantalhounsom744
    @chantalhounsom744 6 หลายเดือนก่อน

    What a fantastic family....supporting each other in such a loving way...despite the crazy challenges they must face! I salute you guys!

  • @uNkLeRaRa4
    @uNkLeRaRa4 9 หลายเดือนก่อน +2

    The sister.... What a beautiful soul... Instant onions 😭

  • @SilverScribe85
    @SilverScribe85 9 หลายเดือนก่อน +2

    Merry Christmas to you and your family, Issac

  • @AK27inAZ
    @AK27inAZ 9 หลายเดือนก่อน +2

    I adore this family! They're all so awesome. 💕💕

  • @katherineking3174
    @katherineking3174 3 หลายเดือนก่อน

    Howo loving and spiritually mature!!! Bless you all!!!

  • @ieva5948
    @ieva5948 9 หลายเดือนก่อน +5

    I love this family so much!!!

  • @naturegirl7420
    @naturegirl7420 9 หลายเดือนก่อน +2

    Issac , I’m glad you have friends at school..not everyone has friends like you do. I like your independence

  • @littlenippas
    @littlenippas 8 หลายเดือนก่อน

    Wow I cried watching this!! Your family has so much strength and kindness! Beautiful family 🥰

  • @kellyjd1978
    @kellyjd1978 9 หลายเดือนก่อน +2

    I want to help this Dad! Can we get this family a really nice vacation with a nurse and all the accommodations?

  • @Anonymouse85
    @Anonymouse85 9 หลายเดือนก่อน +1

    Love the dedicated family, its always very uplifting to see people be so good to their kid in need. I'm sorry for Isaac that he's got SMA, hopefully one day in the future there will be a cure for these shitty illnesses. Game on, Isaac! 👍🎮

  • @calonafloyd1159
    @calonafloyd1159 9 หลายเดือนก่อน +2

    I can feel the love this family has for him as they speak.

  • @aleeymeow
    @aleeymeow 9 หลายเดือนก่อน

    This beautiful family makes me have faith in the world. What a beautifully spoken, caring 11 year old sister and what a sweet, kind and intelligent young man. Amazing parents as well. Bless them

  • @faithf5846
    @faithf5846 9 หลายเดือนก่อน +1

    Beautiful family. Unusual that every member of the family is strong, secure, funny, and beautiful! ❤️