The Bela might be coming to the end | Frustrated and Sad

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  • เผยแพร่เมื่อ 20 ม.ค. 2025

ความคิดเห็น • 16

  • @ResilienceBook
    @ResilienceBook 6 หลายเดือนก่อน +4

    Keep going, God know how many people you’ve helped . From dialysis to my transplant your content helped and informed me every step. 🙏🏾

    • @CrissyMac
      @CrissyMac  6 หลายเดือนก่อน

      Aww I’m so happy you found the videos in my playlist helpful 😊

  • @latoyashaw9343
    @latoyashaw9343 6 หลายเดือนก่อน +3

    I love your videos, I just had my 2nd kidney transplant 6 weeks ago

    • @CrissyMac
      @CrissyMac  6 หลายเดือนก่อน

      Congratulations 🎉

  • @H2SO4Queen
    @H2SO4Queen 7 หลายเดือนก่อน +3

    I am so sorry for your bad experience. I had a transplant 10 months ago and found you the first day of recovery. It helped me so much to know what to expect. They never mentioned hair loss. You prepared me for that. Knowing someone who is way ahead in this process is a blessing. Don't be discouraged, you do make a huge difference.

    • @CrissyMac
      @CrissyMac  6 หลายเดือนก่อน

      I appreciate the encouragement and I’m so happy I was able to help educate

  • @amoura278
    @amoura278 7 หลายเดือนก่อน +3

    i had the bone marrow/kidney transplant together which decreases meds over time. 2 years post and i’m just on bela once a month. i notice that if i don’t eat before my treatment, i am so tired and nauseous afterwards

    • @CrissyMac
      @CrissyMac  7 หลายเดือนก่อน

      I always eat before I go because I have to take my meds in the morning so I never experienced that before. That’s awesome that you only take just the bela. Pray for good health and strength throughout your journey. Stay strong 💪🏾

  • @shirleyhoskyns-jones1520
    @shirleyhoskyns-jones1520 7 หลายเดือนก่อน +3

    Hey there....😊Sending hugzzzzzz and love....I understand your feelings totally. I am sorry that they have stopped you from doing what you love and what brings joy and hope to others . The Most High will make another way. He always makes ways , where there seem to be none. ❤
    Just seeing your beautiful face brings me joy😊
    My husband of 40 years , just got a kidney transplant, after waiting almost 6 years (the Covid situation caused a 2 year delay)
    But wooohooo 🎉🎉😊 He got the transplant April 30th!
    I started watching your videos while he was in the hospital. We didn't even know a stent was in!
    Thank you for sharing your journey. We really appreciate it❤
    Also, congratulations on your weights at the gym❤
    .

    • @CrissyMac
      @CrissyMac  7 หลายเดือนก่อน

      Sending big hugzzzzzz and loads of love right back to you! Thank you so much for your kind words and understanding. You’re absolutely right…the Most High always makes a way where there seems to be none. Your support means the world to me.
      Wow, congratulations on your husband’s kidney transplant! That’s incredible news, and I’m so happy for both of you. Wooohooo indeed! 🎉 April 30th will forever be a special day. I’m honored that you started watching my videos during such a pivotal time. It’s amazing to know that I could bring a bit of joy and hope into your life.
      Thank you for the congrats on my gym progress! Your encouragement keeps me motivated. Keep shining and stay blessed! I’m on TikTok as well if your on that platform @crissymac

  • @nanayaw1797
    @nanayaw1797 7 หลายเดือนก่อน +2

    Thanks for sharing another wonderful video.

    • @CrissyMac
      @CrissyMac  7 หลายเดือนก่อน

      I truly appreciate you watching and supporting 🫶🏾

  • @rocioortega2336
    @rocioortega2336 6 หลายเดือนก่อน +1

    But besides celcep and prednisone you also take the anti rejection meds right?

    • @CrissyMac
      @CrissyMac  5 หลายเดือนก่อน

      I take those 2 and belatacept infusion once a month and thats all

  • @adrianneedwards6179
    @adrianneedwards6179 7 หลายเดือนก่อน

    Why would it be discontinued? My doctor let me know about some rejections with Bela. Even though I’m doing much better on it.

    • @CrissyMac
      @CrissyMac  7 หลายเดือนก่อน

      Good morning! Hope all is going well with you. Were you able to watch the full video? I explained in detailed what happened at the center to me.