This is the video I needed to see. I was diagnosed 3 weeks ago over a telemedicine visit. I wasn't given a whole lot of info, other than the "watch and wait" and I'll be tested again in 3 months. I've been able to control my T2 diabetes and high blood pressure with minimal meds, diet, and exercise. Being told you have CLL doesn't help with stress. I wish she was in the Washington DC area.
This is a really great time to use naturopathic medicine. You might be a candidate for high dose IV vitamin C or oral B17, artemesinin, chlorine dioxide, low carb diet, mistletoe therapy. There is a lot of research supporting all of these and others too. You have nothing to lose by researching and cycling through some of these.
Presenting with lung involvement and shortness of breath, it was hard to go from bone marrow biopsy to port placement to chemo (2 days each month for 4 months), to repetitive scans following the lung mass (which even after chemo didn't go away) to after a year of follow-up being told- "We'll see you in a year unless you have some problems" was a hard thing to process even as a physician.... I'm happy about no eminent treatment because the chemo was four months of hell, but it is difficult to process watch and wait psychologically.
I have very mixed feelings about this. I understand not introducing potentially toxic medications before they are needed, especially since some CLL patients may never need them. But when there are signs that the disease is affecting the immune system, why wait until that system is severely damaged before treatment?
Watch and wait means wait and worry , while I have minimum issues it would be good to slow the progress . Sometimes I feel it better to have some discomfort now and not when you are at your lowest
I wish I can found someone would listen to me. After the second shot from Pfizer. My lymph nodes in my armpits and base of my neck had swollen five days after overnight. They tell me I have CLL and Pfizer is why!!!!!!!
Thank you!!
This is the video I needed to see. I was diagnosed 3 weeks ago over a telemedicine visit. I wasn't given a whole lot of info, other than the "watch and wait" and I'll be tested again in 3 months. I've been able to control my T2 diabetes and high blood pressure with minimal meds, diet, and exercise. Being told you have CLL doesn't help with stress. I wish she was in the Washington DC area.
Very smart and beautiful doctor. Thank you, its helps to me ❤💙💛
This is a really great time to use naturopathic medicine. You might be a candidate for high dose IV vitamin C or oral B17, artemesinin, chlorine dioxide, low carb diet, mistletoe therapy. There is a lot of research supporting all of these and others too. You have nothing to lose by researching and cycling through some of these.
Presenting with lung involvement and shortness of breath, it was hard to go from bone marrow biopsy to port placement to chemo (2 days each month for 4 months), to repetitive scans following the lung mass (which even after chemo didn't go away) to after a year of follow-up being told- "We'll see you in a year unless you have some problems" was a hard thing to process even as a physician.... I'm happy about no eminent treatment because the chemo was four months of hell, but it is difficult to process watch and wait psychologically.
I have very mixed feelings about this. I understand not introducing potentially toxic medications before they are needed, especially since some CLL patients may never need them. But when there are signs that the disease is affecting the immune system, why wait until that system is severely damaged before treatment?
Watch and wait means wait and worry , while I have minimum issues it would be good to slow the progress . Sometimes I feel it better to have some discomfort now and not when you are at your lowest
I wish I can found someone would listen to me. After the second shot from Pfizer. My lymph nodes in my armpits and base of my neck had swollen five days after overnight. They tell me I have CLL and Pfizer is why!!!!!!!