Overview of Juvenile Xanthograuloma (JXG) - Dr. Oussama Abla, MD

[@wheezy_mads]

I had juvenile xanthogranuloma and I also have neurofibromatosis, at the time only 3 other people in the world had both.

[@mohamedwahba6113]

Madison Sheets hi are you still had it

[@olesyapelle4571]

Maddie, do you still have it or not? How old were you when you've got it? Did you get any medicine?

[@michaczekanski4949]

My 14months old daughter has been diagnosed JXG :( We did the screening of belly, we checked eyes and liver, all looks clear. She has one leasion on her head that is growing :(

[@kellymarkham6775]

Thank you!

[@MichaelDonna-z1r]

Guiseppe Haven

[@DeborahJohnson-n2j]

Bruen Stravenue

[@TheCinderella888]

Just found out I have this not sure what the next steps are. I was told to get an eye exam.

[@Histiocytosis]

Hi Cynthia, we encourage you to visit our website to find out more information. You can register for an account, which unlocks additional resources such as a Physicians Directory, which may be of help to you.

[@TheCinderella888]

Histiocytosis Association Thank you so much!

[@Pytalovely]

@@TheCinderella888 I also have it in my eye it first came in 4th grade im in 6th grade...

[@jutkaroha6742]

Hol találok eről magyar nyelvű videot vagy hasonlot ???? S.o.s

[@Histiocytosis]

We're sorry but we do not have a video translation available. More information can be found on our website, www.histio.org, which should translate in your country or you can email us at [e-mail] and we can try to help you further that way.

[@jutkaroha6742]

@@Histiocytosis sorry but I don't unerstand very much English writing and speaking , I want to know more about xhantugranulom !

[@Histiocytosis]

@@jutkaroha6742 www.histio.org/jxg. Write an email to us at [e-mail] with your email address so we can help more.

[@jutkaroha6742]

@@Histiocytosis Thanks