Mary was so frustrating. She put herself in the middle knowing she didn’t take anything, and then said people would think she takes medication because she has tattoos and piercings. Like why are you perpetuating a stereotype that alternative people struggle with mental health? And she said that doctors make money off of medications they prescribe people… she seems like a skeptic
I'm a psychiatric nurse practitioner. I diagnose and treat mental health conditions, including prescribing and managing medications. Doctors/NPs/PAs do NOT make more money the more medications we prescribe. I feel that Mary is perpetrating stereotypes and fear that already adds to stigma a lot of people have to seeking care, especially mental health care. I don't make more money prescribing brand names vs generic, and I work with patients to figure out a regimen that allows my patients to have the greatest quality of life with the fewest meds/lowest doses.
Maybe it’s a state thing then? I live in Michigan and prescribers definitely get a kick back from certain pharmaceutical companies for suggesting and prescribing their medication. They meet with the pharmaceutical rep & are given info on the med(s), and also given lots of free samples as well. Over the last 10+ years or so there has been a huge crackdown on prescribers that prescribe narcotics. Doctors face huge fines, suspended DEA (I think that’s the correct acronym) numbers, and eventual jail time & licensing forfeiture. I can think of two of my late husbands Dr’s that had their practices shut down & no longer can practice medicine because of overprescribing narcotics, and putting the “kick-backs” in front of patient health & wellbeing. One of them ALWAYS was pushing some “newest & greatest” med. always had a bunch of free samples to get you started on them and then some discount coupon because they were new meds so they were ridiculous expensive. When he’d have an appointment there, about 75% of the time he’d always be called back about a 1/2 hour or so later than his appointment time because the Dr was in a meeting. We would see him come out of his meeting room with the pharm reps that had rolling luggage with them. He was fined and suspended and when he re opened he continued doing it so he was raided & permanently shut down. Dr Stephen Owens. There were plenty of articles about him. The other one I’m thinking of was a female Dr. she seemed to love pushing OxyContin & Percocet & Vicodin. She was also fined, suspended, etc. she also kept doing it and was eventually permanently shut down. I think she ended up doing a year or two in prison! I cannot remember her name. I remember thinking jezzzz she really wants him on heavy narcotics! He could stub his toe & she’d write a script for 120+ Vicodin or whatever. It wasn’t until she was busted that I found out she was receiving some form of payment aka kickback for prescribing those certain medications. I put “” around the word kickbacks because I’m not sure what the form of it is. Maybe it’s cash or large “gifts”. But one thing I do know for certain is that it is a thing in some areas at least.
Medication has definitely saved my life and allowed me to function. I have dealt with doctors who 'don't believe in medicating adhd'; They don't get that when you have the combo of CPTSD, autism, adhd, treatment-resistant depression and chronic fatigue syndrome medication can literally save your life and ability to function. It is wild how the stigma can even reach medical professionals. Luckily doctors who meet me a few times understand, but sometimes a newbie will decide I am over-medicated because I 'look healthy' and am young.
I guess depends where and on the doctor, Once i had leg problem and doctor told me about magic pill but to get it i need to call the number and say its from him so i will get a discount... totally not paid XD im from Poland tho
the way the people beside the person showing off their meds just silently holds their medication while they introduce each one is so funny in an endearing way. idk im giggling this group seems so cute
@@toetail8665 you do realize producers tell them not to give out certain things. So Mary was just listening to people EVEN though she tried putting herself at the bottom
i think it’s much more entertaining if none of them self-rank each other. i personally hate it when people are like “i don’t think i should be up here” - it’s not about getting the correct answer, it’s about impressions and evaluation. i think jubilee should restrict people from talking about their own rank completely
It was so nice to see the girl with gastroparesis talk about her story. I just got diagnosed a year ago and starting to also have dysautonomia and possibly Ehlers Danlos Syndrome.
Could you speak to how you were finally diagnosed and how long it took? Did u have to see multiple doctors? I am having GI issues and all thats been done is an upper endoscopy. Please if u can share any part of ur story it would help. I could share my email too!!
@@danaelona4081 The best way to diagnose it is with a four hour gastric emptying scan specifically with eggs. I had the 90 minute one with the oatmeal and it delayed my diagnosis by five years.
The girl second from the top.. in black.. quietly mentioned a med she was taking. It is daily usage for genital herpes. She also mentioned "addiction". I would pair that together. No shame. Just awareness. Life gets real.
Why did Mary think she was in the middle if she didn’t take anything…… she coulda been like “I really think I’m at the end guys” but she put herself above two people 🤦🏾♀️ I know they looked at her like wtf lol why you here
I don’t really get that just say hey guys I don’t take any meds so just suck me in the back but I will talk about my experience that’s all she needed to say
i think it’s much more entertaining if none of them self-rank each other. i personally hate it when people are like “i don’t think i should be up here” - it’s not about getting the correct answer, it’s about impressions and evaluation. i think jubilee should restrict people from talking about their own rank completely
So grateful to see someone else with Idiopathic Hypersomnia! It is such a debilitating condition and so few people know about it so very grateful to Joyce for being willing to share and for the hole crew for helping to destigmatize taking medication.
How Joyce talked about her last medication and the reason for it made me feel better about taking it too. That's a hard pill to swallow, both literally and metaphorically.
i just took my last 2 today! I have shingles atm and it is really big i can’t believe i took 6 of them a day for a whole week i can’t imagine having to take them my entire life 😭
Yeah. I’ve only taken Valtrex for singles, but I’m really glad she was comfortable enough to say she took it to treat her condition. There is till so much shame around herpes that I wish people didn’t have to feel (considering A LOT of people carry HSV1…cold sores!)
Just wanted to make a quick correction that doctors don’t make any money off of the drugs they prescribe. This seems to be a common misconception that I wanted to nip in the bud since this line of thinking scares those suffering from mental and physical illness from getting the help they need.
Exactly! Why was she even there? It’s like she’s shitting on everyone else because they’re not “strong enough” to live without their meds. Those were straight up conspiracies that stem from ignorance!
Thank you for this comment! I'm on a ton of medications and they save my life! I love my doctor he's been nothing but helpful, informative and supportive. I know not everyone has my experience but a lot of people do. My doctor doesn't get a pay raise with each medication he prescribes me 🙄
For the most part there is probably no direct commissions or bonuses regarding prescriptions, but there may be a lot more subtle ways in which the doctors profit from dolling out prescriptions. BTW, I'm not suggesting that most doctors are abusing their abilities to prescribe. Edit for spelling
I was undiagnosed for over a decade and it wasn’t until I was at rock bottom almost in a psych ward to get diagnosed and medicated. I hope anyone who is is suffering from mental illness seek out the help they need regardless of severity. Disappointed by some of these comments. We can do better and should not shame others for the route they take to cope with their invisible illnesses.
You're not alone I finally got an official diagnosis after ending up in a psych facility too and is currently taking meds this year. I'm 24 but had these issues since I was roughly 13. If it wasn't for my therapist catching the patterns I would've never found out and getting a diagnosis literally changed my life for the better.
I take 6 kinds of medications not including the supplements and natural medications I take on top to treat my INVISIBLE illnesses so I really, truly appreciate this video for creating awareness.
When the person in the middle was talking about the medication that needed to have frequent EKG’s done I knew everything about it and exactly what was going to be said. I actually have Gastroparesis as well and have been on the medication for three and a half years. It helps me just get through life daily, but it doesn’t cure me. It’s too bad that it’s not FDA approved, but in some ways I’m glad that I’m able to get it and it’s cheaper. Also, in my case you take it four times a day.
How do you get it if it's not FDA approved, and what is it called if you don't mind me asking? I am really interested in pharmacology and this one is a new one on me.
Have you tried any type of feeding tube for it? I had gastro along with some other GI issues, and have both an NJ and a GJ tube placed (different times) and it’s honestly saved my life
@@nicolerepetto3311 How do you find the quality of life with a feeding tube? I might need that in the not too distant future and I want to get an idea of what I'm in for.
@@vorpal22 I can say physically it has helped tremendously, I have better energy levels and nutritional status. It’s helped me gain weight which I’ve struggled with for years! Mentally however, there are some challenges with being self conscious, having a fear of someone getting too close to my tube or it getting yanked on. Which has happened and is not fun. I’ve had it replaced a few times as well & was able to get on with my day no problem. Now this is all for my GJ tube experience. When I had an NJ tube it was the complete opposite, I was in constant pain, couldn’t eat anything orally. Just mentally in the dirt. I hope you have the best experience possible with the tube feedings & don’t hesitate to ask more!
I thought I was the only ones who's parents were against mental health medication. So it was really nice to see this and know I wasn't alone in that fight. Like one of my parents literally flushed my meds any time they found the bottle when I lived with them.
Nah unfortunately with a lot of parents therapy or medications is like walking a tight rope between convincing them you really are in need of help on one hand and on the other convincing them that you do not mean Arkham Asylum level of help 🤣 add to that the real dangers from those meds when taken without really needing them and the greed of big pharma 🫠 the world sure doesn’t make it easy to seek help sometimes😩
For those annoyed at Mary, please remember these videos are edited and she never made the case that medication doesn't work for others or tried to invalidate anyone's experience. There are quite a few cuts in the video, but Mary makes an effort to move herself down but then the guy next to her moved himself down 9:36. You can see she was in the last spot around 4:09 but then it cuts to a different order and we don't know why.
I have untreated ADHD so I hear you... the impact that it has on your life is tremendous, but not always bad. If I love something, I can hyperfocus on it for hours and hours.
I suffer from a disorder and sometimes I dont want to take medications because I feel like its damaging me because the side affects are so painful and hard to get rid off you never know if they can actually make you worse so I try to keep it down on the medications. But I related with the vid a lot. Not many people believe in your chronic pain they just say your fine. I hope people learn from this vid.
I hear you... especially if you have an invisible illness. I have Crohn's and have needed two major resections and have chronic pain. Doctors don't like to treat pain much anymore since the oxy crisis.
I feel you there!!! I have constant chronic pain, and they don’t give me any real pain meds. I’m in a red state too, so the only pain relief that works for me isn’t even legal here
@@mackenziewesten8506 I agree with you a lot. The medications are so strange these days. I try to make naturally remedies to ease the pain like make teas, honey and other things.
So proud of them for talking about potentially uncomfortable topics and helping break the stigma around medication and mental illness. Also loved seeing the heart transplant receiver on here! My dad had a heart transplant, and many of the medicines he brought up I recognized I would love to see Jubilee do a video in detail about asking questions to people who have had a heart transplant!
This is so strange to me being from a country that definitely uses Western medicine, but it takes a long time to get, especially for mental health. Is it normal for Americans that most people take medication? I'm very much pro-western medicine and don't believe in homeopathy or any of that stuff, but this is so much???
I have the same diagnoses as joyce! Not the last one. I’ve never been addicted to substances, but I have struggled with an eating disorder and currently trichotillomania. I consider these to be addictive behaviors, along with the mental aspect of trying to be in control. I always resort to unhealthy coping methods 💔
@@BluBerryPi I need to get tested for it still, I had the first sleep study done then a sleep study with a CPAP machine and they think there's some form of narcolepsy so they want me to do an MSLT which i need to get insurance authorization for, I just haven't been able to fully keep up with going through with it because im applying to grad school and working on apps, going to school and working part time so I've kinda been putting off the MSLT lol even though I really need to get it done
i feel like this is the safest space for a rant, for all my ADD folks; i feel like there's a huge stigma on our medication. Very often I look at myself like an addict. I don't abuse my medication and in some ways I feel like it's saved me. But it's so SO often abused by others (mostly without the condition.) at times I feel like I'm judged for taking it. I wish it was easier for us.... I can't wait for vyvanse to become generic this coming year!
Nobody's judging you for taking ADD medication. People either have issues with medication in general or they don't - never specifically to one condition. If you don't abuse your medication, why are you worried about being judged by others? Do your part, and let others worry about themselves
Im around 9-10 medications because of gastroparesis, hormone issues, urological issues, and heart issues so I understand how it is to be chronically ill
damn i can relate to the people who said they didn’t take meds until they were older because their parents were against it. that’s something i’ve been struggling with for years now, my parents (mainly just my mom i think my dad would be fine with it tbh) are super against the whole idea of medication even though they know i have certain mental disorders that need to be taken care of somehow😭😭
I stopped taking Zoloft after 2 years it helped a lot but I didn’t want to be dependent on medication forever and lucky to have a great support system.
Im been on Zoloft for 4 years, hoping that eventually I’m not dependent on it. Very worried that as soon as I’m off the bad in my brain will come back. Been a long process for me but someone that’s just how it goes lol
@[ Felix ] They are not placebos but you can find studies showing that many meds for things like depression are only slightly more effective than a placebo.
I love that you chose to do this topic, it raises awareness and alleviates the fear of trying medication when maybe it's your only hope at a better life.
I was on ptsd medication for years and finally got off after years of therapy and learning how to handle my ptsd and anxiety without it and I’m so grateful for it. Seeing how my body became dependent on the medicine was horrifying. I still have rough days but I know how to handle them through years of learning ❤️
I think thats the goal, to eventually wean people off of certain medication (mainly depression and anxiety meds). Its more used to get the process started while going through regular talk therapy. But everyone's situation is different.
I have a chronic illness, so I knew what she was talking about (being in the spoonie community)! I’m so sorry you suffer from it- I know how awful it can be, especially when you can’t find a medication that works
this was a really fun awareness piece about invisible disabilities. the whole time I kept thinking about where I would put myself in this lineup, and where I would have assessed people based on first look vs. more info in comparison to the final ranking. I’m also surprised there wasn’t more discussion around contraceptives.
I feel like they should have explained what "most medicated" means here. I was expecting they would count dosage in milligrams, not just the number of different meds; also idk if supplements should count (for example vitamin d.) And birth control is complicated because the pill counts but idk if an arm implant would count since it's not a tablet. I was trying to compare myself to the contestants but there's so much nuance they missed
Comparing dosages would not be ideal either... In order to achieve, for example, the dosage it takes for me to cut my headache, i would probably have to take 25x the dosage of the pills i take daily to treat another thing
I think supplements should count if you actually require them. For example, my B12 was so low as to be undetectable (due to Crohn's), so I inject that regularly, and my D was also extremely low, so I have to take megadoses of that. Melatonin is one that's iffy for me, since it isn't prescribed. I have severe insomnia and it takes me about four medications and a 2-4 beers to even get four or five hours of sleep a night.
@@vorpal22 try not drinking before going to sleep and going to sleep at the same time every day. Also get low angle solar light into your eyes when getting up in the morning
I’m not on any meds but I found it kind of.. odd that the “most medicated” person listed a bunch of things I wouldn’t necessarily classify as “meds” like the birth control and inhaler and the vitamins. The third girl was clearly the most medicated.
cool video as always, I just wanna remember to everyone that health is really important and you should never compare yourself to others! once I had this friend who always made me feel as if my problems weren’t serious enough because i wasn’t taking as many medications as her. Take care of yourself, your friends and family ♡
Respectfully I was also like so what does this girl even have like it’s ok to not be medicated I respect the representation but what is she here for ???
My mother has Gastroparesis and used to take the same medication (Motilium). She had to order her's from New Zealand (she lives in the US). So sad that the possibility of bad side effects causes it to be unapproved by the FDA. Yet some medications get prescribed like they're candy and they literally have deadly cancers and other horribly dangerous conditions as possible side effects. I think, as long as the patient and prescribing doctor are made aware of those side effects, it can be prescribed & filled.
Omg aughhh this is so nice to see. Everybody in this group was so nice and refreshing… I am on 6 different medication and I feel like people treat me differently when I tell them what for. I wish I had more medicated friends to relate to
it was really nice hearing the girl in blues story, because i have a paralyzed esophagus and sorta stomach paralyzation and i’m only 13 and it’s great to know i’m not alone❤️
I appreciate the discussion about medication hesitation and medication need. I feel like it's such a complicated discussion: each medication is different, every disease and condition are different, every person responds differently. Personal, family, and cultural histories play a huge role. There's medication I obviously need to survive (i.e. insulin), but I also don't jump on every medication without exploring options (i.e. treatment for insomnia using therapy before meds)... I appreciate that this video kind of shows this and shows other people struggling with these questions of wether to use medication or not.
weird feeling when you “beat” the person who takes the most meds. however my meds keep me functioning and I’m really glad to be alive at a time and place where I have access to medications.
I take more than 10, but I'm honestly not sure how many, because I am supposed to be taking more on a regular basis, but sometimes my body just cannot handle that much medication. There was a period where I had to come off a ton of them because I just started throwing up all of them, so my body needed a break. I'm slowly working my way back into all of them. My doctors need to prescribe me more, but I'm not ready for it. I also have infusions that last 6 hours that are modified chemo, I get needles in my back, and I get injections in both knees and hips. I take more meds than both of my parents (60s and 70s) combined, and then some. I normally take 5 different meds, multiple pills for each, before bed alone. And 6 just for daily pain, and 3 of the night meds are for pain. I have another medication I am supposed to be on for pain, but it has a lot of side effects, so it is on the medicine waiting list for my body. And they stopped refilling my emergency migraine medicine when doctors got mixed up. I'm only 31, it is exhausting.
I wonder if anyone else looked up the diagnoses while watching like I did... Looking at the lesser known ones like, gastroparesis, vasovagal syncope, aerophagia, restrictive cardiomyopathy, and idiopathic hypersomnia; it helped clarify which were the most severe and which might require the highest level of treatment. But I was still surprised by the rankings because I actually thought Fay would be in 4th not first, with the rest of the rankings the same, because her diagnoses seemed to require the least amount of medication (according to my minimal research in the form of googling) Can anyone help clarify this for me? I'm honestly curious and not trying to make any judgements without having more information.
It's possible she might take some to help with side affects! Also, more than one were for migraines, which take multiple medications depending on the severity (I take sumatriptan when needed, which is about 4-6 times a month, and I also have a daily med for migraines that double as an antidepressant). She also featured her birth control, an inhaler, etc which are all common medications as well:) It seems to just really depend on the person, what works for them and how severe their condition is! I def want to highlight the migraines part. Migraines can be very very severe or really really common in some people. The source of migraines is still not really known that well (I think?) so medication can be tricky when they're as severe as hers might be, because it isn't a particular condition. Migraines can be caused by environmental factors like stress and that sort of thing. Some people might have a severe condition and one medication is what's available/what treats it. But for some others, that medication might be taken with another medication that stops the side effects, like the person before Fay at the reveal mentioned! So all in all, severity of a condition depends on the person and what medication will work for them or they decide to try/take also depends on the person.
In some of these cases, their medication isn't about the severity of their condition, but moreso about comorbity, which is when a person has multiple conditions that work together. Just like Fay mentioned how that can work. A physical disability can create a mental disability, etc etc. So mental illnesses like depression, anxiety, and PTSD are really commonly comorbid, because they have a link in the nature of their disorders. Autism and ADHD also tend to be comorbid, hence why ADHD and Autism can be screened at the same time, since a LOT of people w/ ADHD also have Autism and a LOT of people w/ Autism also have ADHD! Trying to give you some examples I know:)
I think she also implied she has other medical conditions that she wasn’t really comfortable sharing. Cause she listed off some diagnoses and then went “and I think that’s enough.”
I get prescribed vitamin D for severe deficiency. You can order the strength I take from specialty stores, but you won't find it in the vitamin aisle in your local pharmacy. I also need to inject B12, and at least here in the US, you can't get injectable B12 and syringes without a prescription. (In Canada, it was no problem... you can walk into any pharmacy and buy syringes and injectable B12.)
(I should have added that my D and B12 were so low that my B12 was undetectable, and my doctor thinks I have some permanent mild neurological damage as a result.)
You can get them prescribed. I've had high dose on prescription before. If I'm taking a normal supplement I wouldn't count it but if I had it on prescription I would.
Why shouldn’t prescription level supplements that are necessary for certain people to function count ? there’s a huge difference between someone taking vitamin D they bought at the store just because, and a chronically ill person being prescribed an certain dosage of it because their body needs it or is deficient of it
with a twist, have a major social media star wear a disguise (full on face prostethics) in the mix to throw them off. like a mix of odd one out and who is the most.
*secret elaborate IBD high five* Crohn's here. Did you get an ostomy or a J-pouch, if you don't mind me asking, or something else entirely? I'm so glad you could cut your meds... IBD meds are pretty awful, not to mention expensive.
the girl talking about gastroparesis described the last 10 years of my life. it happens for me to throw up my whole meal after 2 hours of eating, and all doctors up till now have told me that it is just acid reflux. and when I say I don't throw up just acid, they haven't explained anything further. I wonder if I might need to go check my stomach again... maybe there is medication that might help me feel better ...
I take around 13? Meds but I only take 9 daily it was such a relief to see the one girl who had Gastroparesis as I also recently got diagnosed with it and it desperately needs more awareness
Maybe we should consider the root cause of some of these conditions instead of simply masking their symptoms with allopathic drugs. Depression for example. In certain European countries they mandate eight weeks vacation, while in the U.S. I don’t think there even IS a mandate…the number of vacation days is determined by the employer. Such a stressful country. Way too competitive and pressurized to “succeed”, and the popular avenues for decompression are booze, weed, and pills.
I am an American and I have not had a real vacation since I was a teenager. I take days off to go to appointments or due to sickness. Eight weeks vacation sounds like a dream lol
This makes me feel better about myself. I have lots of different issues so I take at least 10 different medications. My mom always says I take too much, but it really makes my quality of life better. Whether it’s for my mental health, allergies, stomach issues or my skin issues. Loved this video!
Saw a few comments asking what each med does, here is a summary of each one mentioned here (from someone in medicine), hope this helps! - zofran: basic antinausea, we prescribe this alot, like a strong gravol - scopolamine patch: also another strong antinausea med, prevents the frequency of the "vomiting magic trick" the girl with gastroparesis can do haha. - tacrolimus/sirolimus: immunospressants to prevent transplant rejection - modafinil: helps keep you stay awake in the day, specific for narcolepsy and idiopathic hypersomnia. - acyclovir: antiviral for many types of viruses, included HSV1 or 2, shingles, etc. treats and prevents spread of the virus. - motilium: increases muscle contractions to move food down the GI tract, but also used to increase breast milk production! - Adderall/Vyvanse: both for ADHD, help increase brain activity in frontal cortex, which leads to more focus and better executive function (impulse control, etc.) - trazodone: anti-depressant/anti-anxiety med that is also used to help people with insomnia (helps make you sleepy) - remeron is the brand name for mirtazapine: anti-depressant that also helps people gain weight and sleep better. - ativan is the brand name for lorazepam: fast-acting anti-anxiety medication also helpful for agitation and panic attacks. it is highly addictive! - clonidine: an anti-hypertensive drug (high blood pressure) that can also treat ADHD, anxiety, and insomnia. also sometimes helps with withdrawals. - bupropion: anti-depressant medication that can also curb nicotine addiction, and helps with weight loss/reduce appetite. should NOT be given to someone with both anxiety and depression as it can make anxiety worse. - synthroid: synthetic thyroid hormone for people that either don't have a thyroid or have low thyroid hormone. super common in middle-age to older women. helps increase energy and metabolism, while decreasing hair loss and dry skin in hypothyroid. - diltiazem: treats high blood pressure (so helps his new heart stay strong longer) - atorvastatin: treats high cholesterol (prevents his new heart from getting clogged with cholesterol) - aspirin: prevents blood clots, used in people with a history of heart attack, atrial fibrillation, or heart transplant. - lisinopril: treats high blood pressure, prevents heart failure - xulane patch: birth control, helps prevent pregnancy and as a patch, it means patient doesn't have to actively remember to take a daily pill. - topamax is the brand name for Topiramate: treats epilepsy and migraines. - midodrine: treats orthostatic hypotension (term meaning you get a huge drop in your blood pressure when you stand up fast, causing you to feel light-headed or faint) - gabapentin: mainly for treating nerve pain but also helps as an add-on medication for anxiety/mood, but I usually refrain from using it for the main purpose of mood unless a severe case as it can cause brain fog. but main and most common treatment for nerve pain. - cymbalta is the brand name for duloxetine: anti-depressant/antianxiety medication that can also help with chronic pain - imitrix is the brand name for Sumatriptan: treats severe headaches - mostly migraines and cluster headaches. - nasal spray: she didnt explain which one specifically but treats allergies - singulair/other inhaler she didnt name: treating asthma and preventing bronchospasms - anti-acid which she did not specify: most common one is pantoprazole, just helps reduce acid production in the stomach to prevent/treat stomach ulcers and pain. P.S. we DO NOT MAKE money off prescriptions!! not allowed to, at least in Canada. that would be a huge conflict of interest.
registered nurse here in australia - didn't know motilium (domperidone) was not legal nor FDA approved in the US! this medication was always on hand lol because nausea/vomiting is a major symptom in palliated patients. i feel for those taking medications for their mental health because it's not like you can just check their blood levels or vital signs to determine the correct dosage of meds, and it's especially difficult for the ones that don't have the support due to traditional/cultural upbringings (asians waddup). and polypharmacy is a huge issue because of certain meds such as immunosuppressants like tacrolimus for post-transplant patients, which causes other problems that need treating with MORE meds. western medicine is fascinating and groundbreaking but ofc, nothing is perfect when humans design it. i'm just rambling now. anyways great video jubes!
As soon as the lady in first spot (forgor her name) said she suffered migraines I understood why she's taking the most medication. My girlfriend has been suffering with chronic migraines for around 4 years and she has A LOT of medication to take to help relieve the pain or deal with the main medication's side effects.
Hey Joyce if you’re reading this, I follow you on Instagram and TikTok and you are one of the most inspiring people I know. Your strength and resilience is astounding. Sending lots of love your way xx
this was a really, really well done Jubilee video on a topic that needs to be talked about more openly for mental health. props to everyone who participated in this video :)
I have IH or Idiopathic Hypersomnia too. It's not too common, so I'm glad someone shared info about it. I'm sleepy all the time. I take Adderall and have tried Armodafinil, but nothing really works that well. I yawn constantly and struggle to get though each day, but I'm managing the best I can.
My brother and I used to take Singulair when we were little for asthma, allergies, and other possible autoimmune conditions. I was represcribed Montelukast (generic Singulair) within this past year. I experienced SEVERE side effects and quit taking it. Now knowing about those side effects, it explains a lot about how my brother and sometimes myself behaved as children. Wild wild stuff
I'm amazed at how Americans have precriptions drugs placed in identical bottles. Where I live most meds are in blister foils and oftentimes medicines for different conditions are packaged differently. Also, I never knew motilium would be banned somewhere because of the side effects. It's a very common over the counter drug in my country.
Because that one lady got a lot of backlash , I’m guessing she was the one who requested Jubilee to turn off comments. So much for free speech, I’m not hating on anyone btw. I really hope they don’t turn off the comments on future videos, it really unappeals it sometimes since we can’t give our thoughts about it. After all TH-cam was originally created a platform for anyone to give their thoughts even if it’s not positive criticism.
Mary acted strange. Her saying the thing about doctors making money off us taking meds, like, ok? We still need them tho. That part made me really sad. And also, her saying she survived without meds so far, so why not continue on? That's not how it works girl. For a lot of people.
My heart goes out to the victim of the Colorado Massacre. Can’t imagine what he went through and goes through on the daily basis.
bullets 🤣🤣🤣🤣🤣🤣🤣
@@daviddavidsonn3578 stfu
@@daviddavidsonn3578 dumbass... they went through him, not the other way around smh
@@daviddavidsonn3578 ???
Something about them all helping hold the medications gave a vibe of acceptance which was pleasant.
LOL I was thinking, "Someone's probably not getting their Ativan back..."
it was cringe, they all looked like they didn't want to do it
@@magnumopiss244 not really
Ikr? Such a small but sweet thing to do
This shouldn’t be accepted
Mary was so frustrating. She put herself in the middle knowing she didn’t take anything, and then said people would think she takes medication because she has tattoos and piercings. Like why are you perpetuating a stereotype that alternative people struggle with mental health? And she said that doctors make money off of medications they prescribe people… she seems like a skeptic
Okay just because she isn’t on meds doesn’t mean she’s mentally healthy. Maybe she’s been undiagnosed or she prefers to not take the medication
@@WealthwiseGR who cares lol. This video is about people who take medications. What does that have to do with anything?
she actually annoyed me sm it reminded me of another jubilee episode when someone did something similar.
@@fatima-jw7oi I swear every episode has at least one of these
seethe
If Mary knew she didn’t take any meds why didn’t she move herself down the line?
Facts, that's lowkey annoyed me
She wanted atention.
they aren’t supposed to give it away
She tried tbh but you can’t just blurt it out
@@landishershey7797 I mean yeah but at the same time you want to achieve the objective- that is being ranking each other correctly
I'm a psychiatric nurse practitioner. I diagnose and treat mental health conditions, including prescribing and managing medications. Doctors/NPs/PAs do NOT make more money the more medications we prescribe. I feel that Mary is perpetrating stereotypes and fear that already adds to stigma a lot of people have to seeking care, especially mental health care. I don't make more money prescribing brand names vs generic, and I work with patients to figure out a regimen that allows my patients to have the greatest quality of life with the fewest meds/lowest doses.
Maybe it’s a state thing then? I live in Michigan and prescribers definitely get a kick back from certain pharmaceutical companies for suggesting and prescribing their medication. They meet with the pharmaceutical rep & are given info on the med(s), and also given lots of free samples as well. Over the last 10+ years or so there has been a huge crackdown on prescribers that prescribe narcotics. Doctors face huge fines, suspended DEA (I think that’s the correct acronym) numbers, and eventual jail time & licensing forfeiture. I can think of two of my late husbands Dr’s that had their practices shut down & no longer can practice medicine because of overprescribing narcotics, and putting the “kick-backs” in front of patient health & wellbeing. One of them ALWAYS was pushing some “newest & greatest” med. always had a bunch of free samples to get you started on them and then some discount coupon because they were new meds so they were ridiculous expensive. When he’d have an appointment there, about 75% of the time he’d always be called back about a 1/2 hour or so later than his appointment time because the Dr was in a meeting. We would see him come out of his meeting room with the pharm reps that had rolling luggage with them. He was fined and suspended and when he re opened he continued doing it so he was raided & permanently shut down. Dr Stephen Owens. There were plenty of articles about him. The other one I’m thinking of was a female Dr. she seemed to love pushing OxyContin & Percocet & Vicodin. She was also fined, suspended, etc. she also kept doing it and was eventually permanently shut down. I think she ended up doing a year or two in prison! I cannot remember her name. I remember thinking jezzzz she really wants him on heavy narcotics! He could stub his toe & she’d write a script for 120+ Vicodin or whatever. It wasn’t until she was busted that I found out she was receiving some form of payment aka kickback for prescribing those certain medications.
I put “” around the word kickbacks because I’m not sure what the form of it is. Maybe it’s cash or large “gifts”. But one thing I do know for certain is that it is a thing in some areas at least.
Medication has definitely saved my life and allowed me to function. I have dealt with doctors who 'don't believe in medicating adhd'; They don't get that when you have the combo of CPTSD, autism, adhd, treatment-resistant depression and chronic fatigue syndrome medication can literally save your life and ability to function. It is wild how the stigma can even reach medical professionals. Luckily doctors who meet me a few times understand, but sometimes a newbie will decide I am over-medicated because I 'look healthy' and am young.
I guess depends where and on the doctor, Once i had leg problem and doctor told me about magic pill but to get it i need to call the number and say its from him so i will get a discount... totally not paid XD im from Poland tho
Some do sadly
You said it correctly these naturopaths hate on evidence based psychiatric medical care too much ❤️
She was so sweet for offering to show a vomiting magic trick ❤
How considerate of her!
I was curious.
😭
Out of context this looks really weird
I felt bad for how everyone reacted. I thought it was funny 🤷🏼♀️ I guess a lot of people don’t appreciate dry, dark humor
the way the people beside the person showing off their meds just silently holds their medication while they introduce each one is so funny in an endearing way. idk im giggling this group seems so cute
its so cute lol they're doing like a show and tell, i wanna join them
deadass i want to be friends with all of them
weird comment
dude why was she featured here??! this isn’t odd one out she didn’t take ANY medications
She’s not just unmedicated, she’s against medication. I guess it’s to represent those types of people
you definitely take medications
@@karmellla medication is generally bad for you
But why wouldn’t she put herself last if she knew she was not taking medicine 😂 she’s on some herbal medicine that’s for sure she’s wild
@@toetail8665 you do realize producers tell them not to give out certain things. So Mary was just listening to people EVEN though she tried putting herself at the bottom
Let’s just say Mary did not understand the assignment why did she not just move herself to the least side😂
9:23 there ya go.
Isn’t she not supposed to?
Like wouldn’t that defeat the purpose of having everyone decide together?
@@Hibbity_Hobbity well ofc she shouldn’t say her position, but she could have been like I strongly believe I am on the low side.
i think it’s much more entertaining if none of them self-rank each other. i personally hate it when people are like “i don’t think i should be up here” - it’s not about getting the correct answer, it’s about impressions and evaluation. i think jubilee should restrict people from talking about their own rank completely
It was so nice to see the girl with gastroparesis talk about her story. I just got diagnosed a year ago and starting to also have dysautonomia and possibly Ehlers Danlos Syndrome.
Could you speak to how you were finally diagnosed and how long it took? Did u have to see multiple doctors? I am having GI issues and all thats been done is an upper endoscopy. Please if u can share any part of ur story it would help. I could share my email too!!
@@danaelona4081 The best way to diagnose it is with a four hour gastric emptying scan specifically with eggs. I had the 90 minute one with the oatmeal and it delayed my diagnosis by five years.
My sister just recently got diagnosed with eds, its some crazy stuff. Wishing you the best
@@tabithawalker Sending your sister love ❤️
@@snc2
Was a bit annoying that most of them didn’t explain what any of the medication did and Mary did put herself at the bottom knowing she didn’t take any…
The girl second from the top.. in black.. quietly mentioned a med she was taking. It is daily usage for genital herpes. She also mentioned "addiction". I would pair that together. No shame. Just awareness. Life gets real.
a lot of them were meds that someone else was already taking and i do think they mostly explained what they did
Honestly they don’t know what the medications do and that’s the scary part is they take them without knowing what they are their for.
@@toetail8665 that doesn't mean they aren't necessary
They mostly did tho but also you can tell the video was edited to not be too long
Why did Mary think she was in the middle if she didn’t take anything…… she coulda been like “I really think I’m at the end guys” but she put herself above two people 🤦🏾♀️ I know they looked at her like wtf lol why you here
I don’t really get that just say hey guys I don’t take any meds so just suck me in the back but I will talk about my experience that’s all she needed to say
Bruh jubilee do this in other videos 🤦🏽♀️ they probably told her to act as if she belong there in some way.
i think it’s much more entertaining if none of them self-rank each other. i personally hate it when people are like “i don’t think i should be up here” - it’s not about getting the correct answer, it’s about impressions and evaluation. i think jubilee should restrict people from talking about their own rank completely
So grateful to see someone else with Idiopathic Hypersomnia! It is such a debilitating condition and so few people know about it so very grateful to Joyce for being willing to share and for the hole crew for helping to destigmatize taking medication.
I’ve never seen so many random people with IH in one spot before lol. I was diagnosed 9 years ago.
…why mary didn’t move herself down the line is beyond me
How Joyce talked about her last medication and the reason for it made me feel better about taking it too. That's a hard pill to swallow, both literally and metaphorically.
i just took my last 2 today! I have shingles atm and it is really big i can’t believe i took 6 of them a day for a whole week i can’t imagine having to take them my entire life 😭
The whole time I was thinking “I’d be too embarrassed to admit up there that I take Valtrex” then when she said it I got so excited
Yeah. I’ve only taken Valtrex for singles, but I’m really glad she was comfortable enough to say she took it to treat her condition. There is till so much shame around herpes that I wish people didn’t have to feel (considering A LOT of people carry HSV1…cold sores!)
It literally is a hard pill to swallow. The size. I dispense that medication often.
Just wanted to make a quick correction that doctors don’t make any money off of the drugs they prescribe. This seems to be a common misconception that I wanted to nip in the bud since this line of thinking scares those suffering from mental and physical illness from getting the help they need.
Exactly! Why was she even there? It’s like she’s shitting on everyone else because they’re not “strong enough” to live without their meds. Those were straight up conspiracies that stem from ignorance!
Thank you for this comment! I'm on a ton of medications and they save my life! I love my doctor he's been nothing but helpful, informative and supportive. I know not everyone has my experience but a lot of people do. My doctor doesn't get a pay raise with each medication he prescribes me 🙄
Well actually, sometimes they do. Which is why we have an opioid endemic
Where is your evidence? Do you work in healthcare? My guess would be no.
For the most part there is probably no direct commissions or bonuses regarding prescriptions, but there may be a lot more subtle ways in which the doctors profit from dolling out prescriptions.
BTW, I'm not suggesting that most doctors are abusing their abilities to prescribe.
Edit for spelling
11:28 girl next to her looked scared when she mentioned it’s not legal or safe to take 💀
Lmao the addict
@@nviscallin3702 You're gross for labeling someone as 'the addict'. She is a person. Her addiction doesn't define her life
@@Night-Shade. did I lie?
@@nviscallin3702 You did not. She’s just got her panties in a twist over a non-issue like a simple descriptor
@@nviscallin3702 she is in recovery, so yes.
I was undiagnosed for over a decade and it wasn’t until I was at rock bottom almost in a psych ward to get diagnosed and medicated. I hope anyone who is is suffering from mental illness seek out the help they need regardless of severity. Disappointed by some of these comments. We can do better and should not shame others for the route they take to cope with their invisible illnesses.
100%!
You're not alone I finally got an official diagnosis after ending up in a psych facility too and is currently taking meds this year. I'm 24 but had these issues since I was roughly 13. If it wasn't for my therapist catching the patterns I would've never found out and getting a diagnosis literally changed my life for the better.
absolutely
I take 6 kinds of medications not including the supplements and natural medications I take on top to treat my INVISIBLE illnesses so I really, truly appreciate this video for creating awareness.
same i take 11, people don’t realize that just because you look healthy doesn’t mean you are
I used to be taking 12 pills at night and 2 every morning. It’s hard 💜
When the person in the middle was talking about the medication that needed to have frequent EKG’s done I knew everything about it and exactly what was going to be said. I actually have Gastroparesis as well and have been on the medication for three and a half years. It helps me just get through life daily, but it doesn’t cure me. It’s too bad that it’s not FDA approved, but in some ways I’m glad that I’m able to get it and it’s cheaper. Also, in my case you take it four times a day.
Me and my granny take meds Ouu
How do you get it if it's not FDA approved, and what is it called if you don't mind me asking? I am really interested in pharmacology and this one is a new one on me.
Have you tried any type of feeding tube for it? I had gastro along with some other GI issues, and have both an NJ and a GJ tube placed (different times) and it’s honestly saved my life
@@nicolerepetto3311 How do you find the quality of life with a feeding tube? I might need that in the not too distant future and I want to get an idea of what I'm in for.
@@vorpal22 I can say physically it has helped tremendously, I have better energy levels and nutritional status. It’s helped me gain weight which I’ve struggled with for years! Mentally however, there are some challenges with being self conscious, having a fear of someone getting too close to my tube or it getting yanked on. Which has happened and is not fun. I’ve had it replaced a few times as well & was able to get on with my day no problem. Now this is all for my GJ tube experience. When I had an NJ tube it was the complete opposite, I was in constant pain, couldn’t eat anything orally. Just mentally in the dirt. I hope you have the best experience possible with the tube feedings & don’t hesitate to ask more!
I thought I was the only ones who's parents were against mental health medication. So it was really nice to see this and know I wasn't alone in that fight. Like one of my parents literally flushed my meds any time they found the bottle when I lived with them.
Nah unfortunately with a lot of parents therapy or medications is like walking a tight rope between convincing them you really are in need of help on one hand and on the other convincing them that you do not mean Arkham Asylum level of help 🤣 add to that the real dangers from those meds when taken without really needing them and the greed of big pharma 🫠 the world sure doesn’t make it easy to seek help sometimes😩
They better Cash App you for all the money they wasted. I’d be very annoyed
I’m sorry but why would your parents be the only ones against it lmao most people are against it
SSRIs don't work
You’re probably never the only one to do anything tbh
Joyce deserves a hug.
Fay is such a ray of sunshine, and her service dog is so cute!
agreed :)
fay of sunshine!!
shes an attention seeker lol
@@tyrashelm6014 fr I see so many of these types of people who have stolen their personalities from tiktok 💀
@@sienna2645 yep!! i havea sd and autism and i dont go on looking for attenton
For those annoyed at Mary, please remember these videos are edited and she never made the case that medication doesn't work for others or tried to invalidate anyone's experience. There are quite a few cuts in the video, but Mary makes an effort to move herself down but then the guy next to her moved himself down 9:36. You can see she was in the last spot around 4:09 but then it cuts to a different order and we don't know why.
It’s just the fact that she should have immediately gone to the bottom.
I have ADHD too. Seeing other people who have the condition, doesn't make me happy, but it makes me feel less alone
Me and my granny take meds Ouu
Yup! It makes me feel less alone!
I have untreated ADHD so I hear you... the impact that it has on your life is tremendous, but not always bad. If I love something, I can hyperfocus on it for hours and hours.
@@vorpal22 yup
I have adhd, anxiety, and am on maintenance medication for an addiction I’ve been clean from with the help of this medication for 6 almost 7 years. ❤
I really liked how some of them subconsciously through their language considered "medicated" mental only and the others both physical and mental
I suffer from a disorder and sometimes I dont want to take medications because I feel like its damaging me because the side affects are so painful and hard to get rid off you never know if they can actually make you worse so I try to keep it down on the medications. But I related with the vid a lot. Not many people believe in your chronic pain they just say your fine. I hope people learn from this vid.
I hear you... especially if you have an invisible illness. I have Crohn's and have needed two major resections and have chronic pain. Doctors don't like to treat pain much anymore since the oxy crisis.
@@vorpal22 well there are new alternatives to opioids becoming legal (namely thc which is not physically addictive and you cant overdose on it)
Same.
I'm type 2 diabetic and meds make me feel weak and fatigued so I don't take them daily
I feel you there!!! I have constant chronic pain, and they don’t give me any real pain meds. I’m in a red state too, so the only pain relief that works for me isn’t even legal here
@@mackenziewesten8506 I agree with you a lot. The medications are so strange these days. I try to make naturally remedies to ease the pain like make teas, honey and other things.
So proud of them for talking about potentially uncomfortable topics and helping break the stigma around medication and mental illness. Also loved seeing the heart transplant receiver on here! My dad had a heart transplant, and many of the medicines he brought up I recognized I would love to see Jubilee do a video in detail about asking questions to people who have had a heart transplant!
This is so strange to me being from a country that definitely uses Western medicine, but it takes a long time to get, especially for mental health. Is it normal for Americans that most people take medication? I'm very much pro-western medicine and don't believe in homeopathy or any of that stuff, but this is so much???
Yes, it is normal for them. America has a huge pharmaceuticals usage problem.
(Not so) fun fact: The US's accounted for 48% of the global pharmaceutical consumption..
American here ✌️Myself (27f), my boyfriend (42m), my brother (22m), and my mother (48f) don't take any medications but we're definitely not the norm.
@@recklessrioux8208 why ur bf 15 years older than u 💀
@@zeka7812 Cuz she can choose her boyfriends? Stop age shaming.
I have the same diagnoses as joyce! Not the last one. I’ve never been addicted to substances, but I have struggled with an eating disorder and currently trichotillomania. I consider these to be addictive behaviors, along with the mental aspect of trying to be in control. I always resort to unhealthy coping methods 💔
Me and my granny take meds Ouu😅
omg I have IH too! But mine is super different from hers. Hopefully the FDA starts approving us some more medications in the near future🙂
I have dermatillomania, and it’s exhausting. I’ve had so many infections due to it, and my family doesn’t understand that I can’t just not do it
@@BluBerryPi I need to get tested for it still, I had the first sleep study done then a sleep study with a CPAP machine and they think there's some form of narcolepsy so they want me to do an MSLT which i need to get insurance authorization for, I just haven't been able to fully keep up with going through with it because im applying to grad school and working on apps, going to school and working part time so I've kinda been putting off the MSLT lol even though I really need to get it done
@@mackenziewesten8506 im so sorry. i wish it was easier to stop. hugs ❤️
i feel like this is the safest space for a rant, for all my ADD folks; i feel like there's a huge stigma on our medication. Very often I look at myself like an addict. I don't abuse my medication and in some ways I feel like it's saved me. But it's so SO often abused by others (mostly without the condition.) at times I feel like I'm judged for taking it. I wish it was easier for us.... I can't wait for vyvanse to become generic this coming year!
Nobody's judging you for taking ADD medication. People either have issues with medication in general or they don't - never specifically to one condition. If you don't abuse your medication, why are you worried about being judged by others? Do your part, and let others worry about themselves
omg I had no idea vyvanse is becoming generic soon!! how exciting, that's my favorite of all the ones I've tried :D
Im around 9-10 medications because of gastroparesis, hormone issues, urological issues, and heart issues so I understand how it is to be chronically ill
Nobody asked
@@india.rubber ok??
How do u get diagnosed ?? Did u deal with water retention when u mention the urological issues?
@@danaelona4081 chronic utis for urological issues bc of a surgery I had when I was a baby :(
What are the meds for gastroparesis? How did they rule out everything else (tests) before concluding it was gastroparesis?
damn i can relate to the people who said they didn’t take meds until they were older because their parents were against it. that’s something i’ve been struggling with for years now, my parents (mainly just my mom i think my dad would be fine with it tbh) are super against the whole idea of medication even though they know i have certain mental disorders that need to be taken care of somehow😭😭
My godmom had gastroperesis and she died from it because medicaid determined a gastric pacemaker was to risky and all meds were banned. .she was 36
American healthcare got to love it… My condolences
My husband (36) has it - it's so debilitating & impacts every area of our life. I'm terrified of finding him dead.
so heartbreaking, i’m sorry to hear. she deserved better
I stopped taking Zoloft after 2 years it helped a lot but I didn’t want to be dependent on medication forever and lucky to have a great support system.
Im been on Zoloft for 4 years, hoping that eventually I’m not dependent on it. Very worried that as soon as I’m off the bad in my brain will come back. Been a long process for me but someone that’s just how it goes lol
The problem is these medications (that are placebos anyways) are only meant to be taken temporarily.
@@rust44 they are not placebos. There are literally so many studies lol
@@rust44They’re not placebos at all
@[ Felix ] They are not placebos but you can find studies showing that many meds for things like depression are only slightly more effective than a placebo.
I love that you chose to do this topic, it raises awareness and alleviates the fear of trying medication when maybe it's your only hope at a better life.
I was on ptsd medication for years and finally got off after years of therapy and learning how to handle my ptsd and anxiety without it and I’m so grateful for it. Seeing how my body became dependent on the medicine was horrifying. I still have rough days but I know how to handle them through years of learning ❤️
I think thats the goal, to eventually wean people off of certain medication (mainly depression and anxiety meds). Its more used to get the process started while going through regular talk therapy. But everyone's situation is different.
@@gangatalishis completely agree!
I also have Gastroparesis! No one really knows what it is, so I'm glad to see this and for it to spread awareness!
I have a chronic illness, so I knew what she was talking about (being in the spoonie community)! I’m so sorry you suffer from it- I know how awful it can be, especially when you can’t find a medication that works
me to! however i was sad to see the misinformation spread.
Me too, I felt less alone in having it when she mentioned it
i'm so grateful elizabeth was in this video! i struggle to find others who take remeron, so it was healing to hear them mention it :-)
Honestly surprised they kept putting the person who SURVIVED A MASSACRE at the end lol
so happy to see joyce here! been following her journey for years
What social media is she on?
this was a really fun awareness piece about invisible disabilities. the whole time I kept thinking about where I would put myself in this lineup, and where I would have assessed people based on first look vs. more info in comparison to the final ranking. I’m also surprised there wasn’t more discussion around contraceptives.
I feel like they should have explained what "most medicated" means here. I was expecting they would count dosage in milligrams, not just the number of different meds; also idk if supplements should count (for example vitamin d.) And birth control is complicated because the pill counts but idk if an arm implant would count since it's not a tablet. I was trying to compare myself to the contestants but there's so much nuance they missed
Comparing dosages would not be ideal either... In order to achieve, for example, the dosage it takes for me to cut my headache, i would probably have to take 25x the dosage of the pills i take daily to treat another thing
@@Nov1cegg true but that proves my point even more that there’s nuance
I think supplements should count if you actually require them. For example, my B12 was so low as to be undetectable (due to Crohn's), so I inject that regularly, and my D was also extremely low, so I have to take megadoses of that.
Melatonin is one that's iffy for me, since it isn't prescribed. I have severe insomnia and it takes me about four medications and a 2-4 beers to even get four or five hours of sleep a night.
@@vorpal22 try not drinking before going to sleep and going to sleep at the same time every day. Also get low angle solar light into your eyes when getting up in the morning
I’m not on any meds but I found it kind of.. odd that the “most medicated” person listed a bunch of things I wouldn’t necessarily classify as “meds” like the birth control and inhaler and the vitamins. The third girl was clearly the most medicated.
i love how fay's dog is just laying down chilling lol hes so cute
I also have idiopathic hypersomnia and I've never seen any representation for it. Really glad to see it here!!
LOL THE "physical disabilities" and then "yes" at 2:45 being reused at 3:25 threw me for a loop
🥺🥺🥺 I have idiopathic hypersomnia too!! It’s some heart warming to see someone else.
Me too!! So heartwarming 🥺 I've never heard someone mention it before without searching info out myself
same!! made me so happy to see :')
Happy to see someone else is also screwed. Bruh 😂😂
@@ericdiniz6776 not screwed bruhhh just sleepy. How dare people want to find a community from a really isolating condition
@@sydney4986 People are weird. Hopefully this donut will never have to go through something as isolating, but maybe if they do they'll eat there words
cool video as always, I just wanna remember to everyone that health is really important and you should never compare yourself to others!
once I had this friend who always made me feel as if my problems weren’t serious enough because i wasn’t taking as many medications as her.
Take care of yourself, your friends and family ♡
I just got diagnosed with idiopathic hypersomnia, Joyce is the first time I’ve seen someone else with my diagnosis!
so why was mary there if she didn’t say her diagnosis or on any meds that’s confusing
Respectfully I was also like so what does this girl even have like it’s ok to not be medicated I respect the representation but what is she here for ???
I got so excited when Joyce said she takes Valacyclovir. It’s the first time I’ve seen someone represent my community on such a large platform
What is the condition?
This was such a dorky and wholesome group! Loved it.
'So wholesome that people in their physical prime require 5+ meds to function in modern society!'
My mother has Gastroparesis and used to take the same medication (Motilium). She had to order her's from New Zealand (she lives in the US). So sad that the possibility of bad side effects causes it to be unapproved by the FDA. Yet some medications get prescribed like they're candy and they literally have deadly cancers and other horribly dangerous conditions as possible side effects. I think, as long as the patient and prescribing doctor are made aware of those side effects, it can be prescribed & filled.
I worked at Shawnee Optical, eye doctor place. I had patients that take 40 meds. The most I’ve seen was 72 meds. That was crazy and mind blowing to me
Omg aughhh this is so nice to see. Everybody in this group was so nice and refreshing… I am on 6 different medication and I feel like people treat me differently when I tell them what for. I wish I had more medicated friends to relate to
it was really nice hearing the girl in blues story, because i have a paralyzed esophagus and sorta stomach paralyzation and i’m only 13 and it’s great to know i’m not alone❤️
I appreciate the discussion about medication hesitation and medication need. I feel like it's such a complicated discussion: each medication is different, every disease and condition are different, every person responds differently. Personal, family, and cultural histories play a huge role. There's medication I obviously need to survive (i.e. insulin), but I also don't jump on every medication without exploring options (i.e. treatment for insomnia using therapy before meds)... I appreciate that this video kind of shows this and shows other people struggling with these questions of wether to use medication or not.
Next episode be like: "who has longer toes"
Ahhahahahahahaha
weird feeling when you “beat” the person who takes the most meds. however my meds keep me functioning and I’m really glad to be alive at a time and place where I have access to medications.
I take more than 10, but I'm honestly not sure how many, because I am supposed to be taking more on a regular basis, but sometimes my body just cannot handle that much medication. There was a period where I had to come off a ton of them because I just started throwing up all of them, so my body needed a break. I'm slowly working my way back into all of them. My doctors need to prescribe me more, but I'm not ready for it. I also have infusions that last 6 hours that are modified chemo, I get needles in my back, and I get injections in both knees and hips.
I take more meds than both of my parents (60s and 70s) combined, and then some.
I normally take 5 different meds, multiple pills for each, before bed alone. And 6 just for daily pain, and 3 of the night meds are for pain. I have another medication I am supposed to be on for pain, but it has a lot of side effects, so it is on the medicine waiting list for my body. And they stopped refilling my emergency migraine medicine when doctors got mixed up.
I'm only 31, it is exhausting.
As a nursing major who just took pharmacology this was a great video!
i kept rewinding to find Mary's "why i need medication" story
It’s literally not in the video. I don’t know why she was there honestly
Kevin seems like a sweetheart. I would love to be friends with him
I wonder if anyone else looked up the diagnoses while watching like I did... Looking at the lesser known ones like, gastroparesis, vasovagal syncope, aerophagia, restrictive cardiomyopathy, and idiopathic hypersomnia; it helped clarify which were the most severe and which might require the highest level of treatment. But I was still surprised by the rankings because I actually thought Fay would be in 4th not first, with the rest of the rankings the same, because her diagnoses seemed to require the least amount of medication (according to my minimal research in the form of googling) Can anyone help clarify this for me? I'm honestly curious and not trying to make any judgements without having more information.
It's possible she might take some to help with side affects! Also, more than one were for migraines, which take multiple medications depending on the severity (I take sumatriptan when needed, which is about 4-6 times a month, and I also have a daily med for migraines that double as an antidepressant). She also featured her birth control, an inhaler, etc which are all common medications as well:) It seems to just really depend on the person, what works for them and how severe their condition is! I def want to highlight the migraines part. Migraines can be very very severe or really really common in some people. The source of migraines is still not really known that well (I think?) so medication can be tricky when they're as severe as hers might be, because it isn't a particular condition. Migraines can be caused by environmental factors like stress and that sort of thing. Some people might have a severe condition and one medication is what's available/what treats it. But for some others, that medication might be taken with another medication that stops the side effects, like the person before Fay at the reveal mentioned! So all in all, severity of a condition depends on the person and what medication will work for them or they decide to try/take also depends on the person.
In some of these cases, their medication isn't about the severity of their condition, but moreso about comorbity, which is when a person has multiple conditions that work together. Just like Fay mentioned how that can work. A physical disability can create a mental disability, etc etc. So mental illnesses like depression, anxiety, and PTSD are really commonly comorbid, because they have a link in the nature of their disorders. Autism and ADHD also tend to be comorbid, hence why ADHD and Autism can be screened at the same time, since a LOT of people w/ ADHD also have Autism and a LOT of people w/ Autism also have ADHD! Trying to give you some examples I know:)
I think she also implied she has other medical conditions that she wasn’t really comfortable sharing. Cause she listed off some diagnoses and then went “and I think that’s enough.”
Why did they count vitamin D as a medication? I feel like supplements you can get at the store shouldn’t count…
It may be prescribed for Vitamin D deficiency?
I get prescribed vitamin D for severe deficiency. You can order the strength I take from specialty stores, but you won't find it in the vitamin aisle in your local pharmacy. I also need to inject B12, and at least here in the US, you can't get injectable B12 and syringes without a prescription. (In Canada, it was no problem... you can walk into any pharmacy and buy syringes and injectable B12.)
(I should have added that my D and B12 were so low that my B12 was undetectable, and my doctor thinks I have some permanent mild neurological damage as a result.)
You can get them prescribed. I've had high dose on prescription before. If I'm taking a normal supplement I wouldn't count it but if I had it on prescription I would.
Why shouldn’t prescription level supplements that are necessary for certain people to function count ? there’s a huge difference between someone taking vitamin D they bought at the store just because, and a chronically ill person being prescribed an certain dosage of it because their body needs it or is deficient of it
Not sure if you guys did it but you should do who is the most followed on socials
with a twist, have a major social media star wear a disguise (full on face prostethics) in the mix to throw them off. like a mix of odd one out and who is the most.
Just 6 weeks ago I was on 10 medications for my severe ulcerative colitis. Now I no longer have a large intestines and am only on 2 😚
*secret elaborate IBD high five*
Crohn's here. Did you get an ostomy or a J-pouch, if you don't mind me asking, or something else entirely?
I'm so glad you could cut your meds... IBD meds are pretty awful, not to mention expensive.
🎉👏🥳
No more of that 🌶️🥵💩
@@vorpal22 Hey fellow Crohnie! I see you have ADHD too, double snap!
the girl talking about gastroparesis described the last 10 years of my life. it happens for me to throw up my whole meal after 2 hours of eating, and all doctors up till now have told me that it is just acid reflux. and when I say I don't throw up just acid, they haven't explained anything further. I wonder if I might need to go check my stomach again... maybe there is medication that might help me feel better ...
Fay's makeup game was on point and i'm jealous!! So beautiful.
I’m literally taking my morning meds as I watch this episode… 😹
Same!!
@@Cynararose Same.
😂😂
It is refreshing to see them understand and accept their situation.
Thank you for bringing awareness to gastroparesis💚
I’m also on a lot of medications and it’s so hard having an invisible illness and trying to explain that i do need it to survive
congrats joyce on three years
I take around 13? Meds but I only take 9 daily it was such a relief to see the one girl who had Gastroparesis as I also recently got diagnosed with it and it desperately needs more awareness
Maybe we should consider the root cause of some of these conditions instead of simply masking their symptoms with allopathic drugs.
Depression for example. In certain European countries they mandate eight weeks vacation, while in the U.S. I don’t think there even IS a mandate…the number of vacation days is determined by the employer.
Such a stressful country. Way too competitive and pressurized to “succeed”, and the popular avenues for decompression are booze, weed, and pills.
I am an American and I have not had a real vacation since I was a teenager. I take days off to go to appointments or due to sickness. Eight weeks vacation sounds like a dream lol
This makes me feel better about myself. I have lots of different issues so I take at least 10 different medications. My mom always says I take too much, but it really makes my quality of life better. Whether it’s for my mental health, allergies, stomach issues or my skin issues. Loved this video!
This is the most American thing I've seen all year.
What’s American about it?
Saw a few comments asking what each med does, here is a summary of each one mentioned here (from someone in medicine), hope this helps!
- zofran: basic antinausea, we prescribe this alot, like a strong gravol
- scopolamine patch: also another strong antinausea med, prevents the frequency of the "vomiting magic trick" the girl with gastroparesis can do haha.
- tacrolimus/sirolimus: immunospressants to prevent transplant rejection
- modafinil: helps keep you stay awake in the day, specific for narcolepsy and idiopathic hypersomnia.
- acyclovir: antiviral for many types of viruses, included HSV1 or 2, shingles, etc. treats and prevents spread of the virus.
- motilium: increases muscle contractions to move food down the GI tract, but also used to increase breast milk production!
- Adderall/Vyvanse: both for ADHD, help increase brain activity in frontal cortex, which leads to more focus and better executive function (impulse control, etc.)
- trazodone: anti-depressant/anti-anxiety med that is also used to help people with insomnia (helps make you sleepy)
- remeron is the brand name for mirtazapine: anti-depressant that also helps people gain weight and sleep better.
- ativan is the brand name for lorazepam: fast-acting anti-anxiety medication also helpful for agitation and panic attacks. it is highly addictive!
- clonidine: an anti-hypertensive drug (high blood pressure) that can also treat ADHD, anxiety, and insomnia. also sometimes helps with withdrawals.
- bupropion: anti-depressant medication that can also curb nicotine addiction, and helps with weight loss/reduce appetite. should NOT be given to someone with both anxiety and depression as it can make anxiety worse.
- synthroid: synthetic thyroid hormone for people that either don't have a thyroid or have low thyroid hormone. super common in middle-age to older women. helps increase energy and metabolism, while decreasing hair loss and dry skin in hypothyroid.
- diltiazem: treats high blood pressure (so helps his new heart stay strong longer)
- atorvastatin: treats high cholesterol (prevents his new heart from getting clogged with cholesterol)
- aspirin: prevents blood clots, used in people with a history of heart attack, atrial fibrillation, or heart transplant.
- lisinopril: treats high blood pressure, prevents heart failure
- xulane patch: birth control, helps prevent pregnancy and as a patch, it means patient doesn't have to actively remember to take a daily pill.
- topamax is the brand name for Topiramate: treats epilepsy and migraines.
- midodrine: treats orthostatic hypotension (term meaning you get a huge drop in your blood pressure when you stand up fast, causing you to feel light-headed or faint)
- gabapentin: mainly for treating nerve pain but also helps as an add-on medication for anxiety/mood, but I usually refrain from using it for the main purpose of mood unless a severe case as it can cause brain fog. but main and most common treatment for nerve pain.
- cymbalta is the brand name for duloxetine: anti-depressant/antianxiety medication that can also help with chronic pain
- imitrix is the brand name for Sumatriptan: treats severe headaches - mostly migraines and cluster headaches.
- nasal spray: she didnt explain which one specifically but treats allergies
- singulair/other inhaler she didnt name: treating asthma and preventing bronchospasms
- anti-acid which she did not specify: most common one is pantoprazole, just helps reduce acid production in the stomach to prevent/treat stomach ulcers and pain.
P.S. we DO NOT MAKE money off prescriptions!! not allowed to, at least in Canada. that would be a huge conflict of interest.
Best comment! thanks
thanks alot
The fact I could tell which healthcare provider fay uses from the inhaler is kind of funny
Fay list her meds out with so much enthusiasm. I love her spirit
registered nurse here in australia - didn't know motilium (domperidone) was not legal nor FDA approved in the US! this medication was always on hand lol because nausea/vomiting is a major symptom in palliated patients. i feel for those taking medications for their mental health because it's not like you can just check their blood levels or vital signs to determine the correct dosage of meds, and it's especially difficult for the ones that don't have the support due to traditional/cultural upbringings (asians waddup). and polypharmacy is a huge issue because of certain meds such as immunosuppressants like tacrolimus for post-transplant patients, which causes other problems that need treating with MORE meds. western medicine is fascinating and groundbreaking but ofc, nothing is perfect when humans design it. i'm just rambling now. anyways great video jubes!
The amount of medications I'm currently on is 3 but the amount I've tried over my lifetime is a very different story lol
As soon as the lady in first spot (forgor her name) said she suffered migraines I understood why she's taking the most medication. My girlfriend has been suffering with chronic migraines for around 4 years and she has A LOT of medication to take to help relieve the pain or deal with the main medication's side effects.
Hey Joyce if you’re reading this, I follow you on Instagram and TikTok and you are one of the most inspiring people I know. Your strength and resilience is astounding. Sending lots of love your way xx
what’s her @?
this was a really, really well done Jubilee video on a topic that needs to be talked about more openly for mental health. props to everyone who participated in this video :)
I have IH or Idiopathic Hypersomnia too. It's not too common, so I'm glad someone shared info about it. I'm sleepy all the time. I take Adderall and have tried Armodafinil, but nothing really works that well. I yawn constantly and struggle to get though each day, but I'm managing the best I can.
Same here! Was happy to see someone talking about it.
My brother and I used to take Singulair when we were little for asthma, allergies, and other possible autoimmune conditions. I was represcribed Montelukast (generic Singulair) within this past year. I experienced SEVERE side effects and quit taking it. Now knowing about those side effects, it explains a lot about how my brother and sometimes myself behaved as children. Wild wild stuff
Fay's meds sounded pretty generic and for generalized pain etc compared to the others. She just takes more
fay reminds me of a mermaid or a fairy theyre so pretty
i also have gasteoparises. and take zofran. what’s crazy is it’s commonly given to people undergoing chemotherapy to chill out vomiting
Zofran is fine I think it is mottilium which has adverse risks
I'm amazed at how Americans have precriptions drugs placed in identical bottles. Where I live most meds are in blister foils and oftentimes medicines for different conditions are packaged differently. Also, I never knew motilium would be banned somewhere because of the side effects. It's a very common over the counter drug in my country.
I forgot her name, but the girl with the black long sleeve I follow on tiktok! She’s an amazing person❤so strong
it's so cool to see Fay and Juni in a video! I see them all them time on insta and tik tok :))
What’s Fay’s instagram?
@@lolalacey1377 faythefae
I'm so confused why they turned off the comments on the "Whats it like to be Black in Japan?" 😭😭
probably cause that one lady was getting cooked
@@us3rnam3333 who? Lol
Because that one lady got a lot of backlash , I’m guessing she was the one who requested Jubilee to turn off comments. So much for free speech, I’m not hating on anyone btw. I really hope they don’t turn off the comments on future videos, it really unappeals it sometimes since we can’t give our thoughts about it. After all TH-cam was originally created a platform for anyone to give their thoughts even if it’s not positive criticism.
@@bruh4345 The one coming for the guy for saying he’s blessed with his hair
The Holy Trinity 😂😂😂 Damn it. I have it too! 😂
Mary acted strange. Her saying the thing about doctors making money off us taking meds, like, ok? We still need them tho. That part made me really sad.
And also, her saying she survived without meds so far, so why not continue on? That's not how it works girl. For a lot of people.
Omg It's Fay and Juni!! I recognised them within the first 5 seconds haha I've been following them on tiktok for ages now! 🥰
Why are the comments off on their new Black in Japan video?
More videos with Joyce please, i really liked her story