Below is the time progression of my father's symptoms. 2018 - High blood sugar 2020 - unable to empty the bladder completely 2022 - Slurred speech and loss of balance while walking 2023 - Fall of BP on standing and two episodes of unconsciousness that lasted 1 min The doctors are still not sure whether it's MSA-C because the MRI doesn't show any hot cross bun sign. He is 56 years old and currently undergoing treatment at AIIMS, Delhi.
HE NAILED IT, ONE OF THE BEST LECTURES OF MY LIFE, HE KNOWS X, Y, AND Z-AXISES OF MOVEMENT DISORDER, I WISH HE WOULD HAVE BEEN MY SUPERVISOR. THANKS, ALOT SIR , I LEARNED ALOT
My sister was diagnosed with MSA by the Mayo Clinic after going from doctor to doctor. In the beginning, the diagnosis was Parkinson’s. She can no longer walk, feed herself, sit up by herself, comb her hair, etc., and her speech is faint. Sometimes I cannot understand her. She went through a miserable period of muscle and nerve pain and the only thing that relieved her pain was muscle relaxers. She sought out another doctor who said she has Lyme disease so she is being treated for it by that doctor. There is no improvement after three rounds of antibiotics. She always ate healthfully, never smoked, never drank, always exercised and lived her life right in every way with lots of friends and a healthy social 41:36 weight and has never been over weight. I want her to get better but it does not happen. After four plus years of this, she was put in hospice but outlived her time. Hospice no longer treats her. Her husband does everything; they have some help that they pay for out of pocket to give her therapy and to bathe her, do her hair and so forth. I wish science could find some way to reverse or at least stop the progression of neurological diseases. We feel so helpless. It is so sad watching your love one’s and her caretaker husband’s deterioration despite all the friends who help and bring over meals.
Thank you Doctor , i learn a lot. It is quit depressing to be neurologist i guess, only follow up patients and see them gradually deteriorate helpless to change the course of illness.
Does having one side of the body more affected than the other (mainly tremors) rule out PSP, and rule in typical PD? Haven't fallen yet, but definite balance issues. No resting tremors (except for occasional pill rolling in right hand), hands are more or less still at rest on the lap, but difficulty getting a spoon to my mouth, and holding, pouring a water bottle. Don't seem to respond well to carb/levodopa meds.
My father is diagnosed with PSP and we feel helpless because doctors say there is no cure for this disease . What should we do now ? any suggestion from anyone ?
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My dad has the same but its called Parkinson + MSA (multiple system disorder) .. I hv been visiting neuros regularly but to no avail , I see him struggling to move and he often gets unbearable pains .. please advise if anything can be done ..
YSR, if your dad is the same it is more likely that he has PSP and not Parkinsons + MSA. I've worked with people with PSP and none of them reported pain to any great degree. (Note: information given is not a diagnosis and is simply information.)
@@maunster3414 my mom has psp and doesn’t particularly have bad pain. She only ever complains about the left side of her neck. Understandable she is so stiff and cannot hardly move her neck.
It’d be helpful if you would spell out all the abbreviations so we can know what the disease is that you are talking about.it’s not raising education and awareness by keeping the loop closed with abbreviations that say nothing to us.
Aprende ingles,mi amigo😉😉.por ejemplo, yomisma aprendia ingles y un poco espaniol y ahora puedo escuchar muchas lectures en medicina aun que vivo en Belorussia.
neurology is fucking scary to me.i can see all medical videos but neurology gives me chill down the spine and cold feet.u can hardly treat any neurological disorder .be it als brain cancer ,psp,cbd,msa,frontal temporal dementia or even a bfs ,epilepsy .all you do is manage epilepsy.fuck no progress is made in neurology.don't tell me u can treat ms and huntington and sma.
After going to "the best" Neurologists in New York, I am convinced that any person on the street could treat MSA just as well. That sounds very negative but if we are honest and evaluate what we are told after all the many tests we must come to the conclusion that Neurologists know next to nothing about MSA. Sad but true.
This neurologist is an excellent speaker.
Jim was my neurologist when I visited Mayo.
Excellent speaker. Well worth listening to this speech.
I learnt a lot after watching this enlightening presentation!
Thank you so much Dr Bower you have helped me so much more than you will ever know in your presentation as I understand it much more no, Bless you
Excellent explanation
Thank you so much Dr. Bower. Your presentation is so clear, so informative with cases which are so easy to follow and understand soundly.
He hits it on the nail... exactly my mom’s behavior. When I started research there wasn’t much here. I’m glad to see new information.
Below is the time progression of my father's symptoms.
2018 - High blood sugar
2020 - unable to empty the bladder completely
2022 - Slurred speech and loss of balance while walking
2023 - Fall of BP on standing and two episodes of unconsciousness that lasted 1 min
The doctors are still not sure whether it's MSA-C because the MRI doesn't show any hot cross bun sign. He is 56 years old and currently undergoing treatment at AIIMS, Delhi.
HE NAILED IT, ONE OF THE BEST LECTURES OF MY LIFE, HE KNOWS X, Y, AND Z-AXISES OF MOVEMENT DISORDER, I WISH HE WOULD HAVE BEEN MY SUPERVISOR. THANKS, ALOT SIR , I LEARNED ALOT
My sister was diagnosed with MSA by the Mayo Clinic after going from doctor to doctor. In the beginning, the diagnosis was Parkinson’s.
She can no longer walk, feed herself, sit up by herself, comb her hair, etc., and her speech is faint. Sometimes I cannot understand her.
She went through a miserable period of muscle and nerve pain and the only thing that relieved her pain was muscle relaxers.
She sought out another doctor who said she has Lyme disease so she is being treated for it by that doctor. There is no improvement after three rounds of antibiotics.
She always ate healthfully, never smoked, never drank, always exercised and lived her life right in every way with lots of friends and a healthy social 41:36 weight and has never been over weight.
I want her to get better but it does not happen. After four plus years of this, she was put in hospice but outlived her time.
Hospice no longer treats her. Her husband does everything; they have some help that they pay for out of pocket to give her therapy and to bathe her, do her hair and so forth.
I wish science could find some way to reverse or at least stop the progression of neurological diseases.
We feel so helpless. It is so sad watching your love one’s and her caretaker husband’s deterioration despite all the friends who help and bring over meals.
Great lecture.
Thank you Doctor , i learn a lot. It is quit depressing to be neurologist i guess, only follow up patients and see them gradually deteriorate helpless to change the course of illness.
I can imagine. Cuz there just isn’t much to offer. I’m watching it happen in real time with my mom. It’s pretty damn awful.
@@kimboslice9445 It's horrible; I just lost my father to this.
Thank you, learned so much. Understanding so much better.
Does having one side of the body more affected than the other (mainly tremors) rule out PSP, and rule in typical PD?
Haven't fallen yet, but definite balance issues. No resting tremors (except for occasional pill rolling in right hand), hands are more or less still at rest on the lap, but difficulty getting a spoon to my mouth, and holding, pouring a water bottle. Don't seem to respond well to carb/levodopa meds.
Yes very useful!
My father is diagnosed with PSP and we feel helpless because doctors say there is no cure for this disease . What should we do now ? any suggestion from anyone ?
After many failed experiments with some other brands, I finally found this brand. Weedborn products are the best and I don't think I would ever need to look for another CBD supplier. I highly recommend for practically any health problem.
My dad has the same but its called Parkinson + MSA (multiple system disorder) .. I hv been visiting neuros regularly but to no avail , I see him struggling to move and he often gets unbearable pains .. please advise if anything can be done ..
YSR, if your dad is the same it is more likely that he has PSP and not Parkinsons + MSA. I've worked with people with PSP and none of them reported pain to any great degree. (Note: information given is not a diagnosis and is simply information.)
Same with my father, do you figure out anything?
@@maunster3414 my mom has psp and doesn’t particularly have bad pain. She only ever complains about the left side of her neck. Understandable she is so stiff and cannot hardly move her neck.
It’d be helpful if you would spell out all the abbreviations so we can know what the disease is that you are talking about.it’s not raising education and awareness by keeping the loop closed with abbreviations that say nothing to us.
Hola sería bueno que también lo traduzcan en español
Aprende ingles,mi amigo😉😉.por ejemplo, yomisma aprendia ingles y un poco espaniol y ahora puedo escuchar muchas lectures en medicina aun que vivo en Belorussia.
We would you attribute bladder issues in a menopausal woman to the disease and not to GSM, Genitourinary Syndrome of Menopause? Makes no sense.
Почему же нет русскоязычных аналогов подобных лекций??? Сууупер позновательно и интересно.лайк.
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neurology is fucking scary to me.i can see all medical videos but neurology gives me chill down the spine and cold feet.u can hardly treat any neurological disorder .be it als brain cancer ,psp,cbd,msa,frontal temporal dementia or even a bfs ,epilepsy .all you do is manage epilepsy.fuck no progress is made in neurology.don't tell me u can treat ms and huntington and sma.
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After going to "the best" Neurologists in New York, I am convinced that any person on the street could treat MSA just as well. That sounds very negative but if we are honest and evaluate what we are told after all the many tests we must come to the conclusion that Neurologists know next to nothing about MSA. Sad but true.
I have o.p.c.a. ☹️
❤️
Does that mean you can’t spell out your disease so we can understand what you are talking about?
26:10 CBD talks
Mean
Hindi translation
Marathi translation PSP
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Great lecture.