opening up about what's been going on & our baby
ฝัง
- เผยแพร่เมื่อ 26 ก.ย. 2024
- While we have been going back and forth regarding whether or not to make this video and how in-depth to go. At this time, this is what Kurt and I believe is best for our family and mental health.
This has been a rollercoaster experience with ups and downs and we ask that you be kind, compassionate and respectful.
Thank you to everyone who reached out to me when I disclosed I was going through some personal issues. Your love, encouragement and support really got me through some really dark moments. I will forever be grateful for you.
As a person with a severe rare genetic disorder: Yes, there are times when my disease is horrible and has made my life miserable. And any chronically ill or disabled person who doesn't acknowledge that life can be hard sometimes is in denial. HOWEVER, you will very rarely meet a disabled person who wishes they had never been born in the first place. We are *just* people. You're son will have good periods and bad periods, that's part of being alive for everyone. As for not wanting to use him to become a spokesperson, I get you. And that is totally the right decision. My daughter inherited my disease and I know people would eat up content about her more so than about me, but she is a child. Her privacy comes first.
@jen'sLife this was beautiful! It's so true though. Even if their son has a rare disease and will have a hard life, he'll be surrounded by loving parents and an amazingggg family.
to me, people who show vulnerability are people i’m so admirable of, because of their bravery and how strong and resilient they are. i can’t commend u enough for sharing your vulnerability - not that u had to because it’s ur “baggage” and ur life, but this took strength and it’s something u should be incredibly proud of.
We’ve lost nine babies and cannot have children at all now. It’s hard coming out and telling people. People don’t know your life and struggles and you have to do what is right for you and baby. I’ve been in the situation of being judged but no one saw the choices I had to choose from. Respect to you both. Praying for you.
Different perspective; I am autistic. It does define me. I am disabled, not because there is something wrong with me, but because the world isn’t set up for me. My parents tried to pretend I wasn’t autistic and it caused me severe trauma.
Please try to reach out to adults who have the same condition as your child to help guide you advocating for him. A lot of parents fall into this ableist trap of “not letting it define their kids” to the point they ignore very real needs. I can tell your heart is in the right place, but some of these the “positive” things said can be really toxic.
Disabled isn’t a bad word. People need to stop pretending like it is.
I understand where you are coming from but in the video she clearly says she reached out to parents whose child have the condition. She also clearly says in the video that she is reaching out to people who have the ability to help her son when the time comes. She also never said disabled was a bad word and obviously wants whatever is best for her child. I usually never comment on videos but I think this comment is just bringing negativity to the video.
I'm sending all the love to you Sarah and think it was really brave of you and Kurt to share your experience. I have loved watching you individually for years and am so excited to see your family grow!!
Absolutely!
@@emmasummerhill7161 It's not you know.
@AFL Rookie It is what it is. They were being TOTALLY positive. You are the one not understanding.
@AFL Rookie The comment wasn’t unkind they were just giving an honest perspective on what their life has been like based on how their parents raised them. And from what Sarah said it sounded like the doctor wasn’t very tactile with their choice of words but not unkind just giving a realistic opinion from their professional point of view. I think it’s important to not sugar coat this as they have no way of knowing what end of the spectrum their child will be on. That’s why these tests are carried out early so the option is available.
Would you be willing to do an update on him? He looks like he’s doing amazing and I’d love to know if that’s true ❤ glad he’s doing okay if he is! It’s such An amazing thing that you trusted your gut and didn’t listen to the doctors. He’s such a handsome happy boy! Disorder or not! ❤
I was wondering the exact same thing. I was wondering if they would ever want to do any updates.
As an adult with a genetic condition, there is good and wonder in everything. Yes I live my life a little differently but you learn to appreciate the small things and celebrate the little wins. I love life. I love being given the chance to prove people wrong. It drives me and fuels my ambition. Disability can be a beautiful thing. It’s often misconstrued as frightening or negative. It’s completely the opposite. There’s beauty to be found in everything and your little boy will thrive and flourish with your outlook and support. He’s exceptionally lucky to have parents who want to educate themselves on every aspect. Being his advocate is the best thing you can do for him. Fight his corner and get ready for him to consistently amaze you.
Beautifully written. 🥰 thank you!
Yes, beautifully written!!
A baby boy!!!! 😍
Go Tilse Fam❣❣❣❣❣
So beautiful.
you made my cry. so touching and honest.
this comment made me very happy. bless you
This boy, regardless of whatever health condition he has, without a doubt has the best parents fit to love and care for him. God has truly prepared your heart and soul to love and protect your son. You are so loved and beautiful for sharing your story and your son is going to look back on this video years from now and see how incredibly loved and honored he was before he was even born. You have truly opened my eyes and heart by being so vulnerable and sharing your testimony with your son. So much love for you Sarah. I can’t wait to meet this little world changer. ♥️♥️♥️
💯
this is a very sweet message!!! so beautiful and so true!
TH-cam needs more people that open up on raw subjects. You guys are not alone in this situation. Sending Prayers for your family! God is so good and has a plan for each of us.
When my mum was pregnant the doctors told her that there was a 70% chance I would be born with a genetic disorder. She was really young, and they suggested she terminate the pregnancy, she believed that I would be okay, and decided to have me anyway. I was born a perfectly healthy baby, with no disorders.
Regardless of they’re possible condition, you are such a beautiful loving human, your baby will be blessed in life because of the people that around them with love.
The Lord doesn’t make mistakes. We have a son with Down syndrome (surprise diagnosis at birth)- and though we have many challenges, he is an amazing blessing. Praying for you and your sweet baby boy.
Amen to that @Emily S. My daughter Abigayle was born with Down Syndrome as well, and we also didn't find out until she was born. It wouldn't have made a difference knowing a head of time, and I wouldn't have her any other way. She is a blessing to our family and anyone that she comes in contact with. You're right, the Lord doesn't make mistakes, and it's an honor that He chose us to be her parents. And that's true for you and your family and Kurt and Sarah.
Amen 🙏
exactly what happened to me! 🤍 they are so so special!
Amen!!!
This is such a amazing thing to share praise god for you and your son you are a strong women ♥️
I can already see Fox being so kind and a protector of his little bro.
so i def missed when the announced it was a boy. where did they reveal that?
@@jacysleyster8242 4:06 mark she says “his condition”. 💙😊
I missed the announcement
@@jacysleyster8242 She didn't do a full gender reveal this time because with the other stress going on and the bad lockdown in her area she felt is was unnecessary so she just told everyone on instagram.
I once heard a couple speaking on their baby’s health conditions and they said, “instead of questioning ‘why us?’ We question ourselves, ‘why not us?’” If you have the means, the love, the hope, the will, the fight, to get the privilege to take care and raise a little one with these circumstances, why not? You will love and cherish every moment, every step of the way! I said a prayer for your baby boy and for you both, as well as your families 💙💙 cheers to an amazing future!!
ThT is beautiful! They are meant for this baby boy!
Beautifully put ❤️❤️
Okay this is amazing. So beautifully put. I will keep this in my heart.
Acacia Brinley said that about her baby Rosie! ❤️
Totally get wanting to keep his condition private but I think you have a powerful opportunity here to share his journey and build awareness in society ! Talking about it helps break the stigma and can help others feel less alone ❤️ but of course it’s a very personal thing for each family
As a trainee doctor, I just want to apologise for the way that doctor spoke to you. There is no reason why he should have pushed his views on to you, and the fact that he made you feel pressured to feel one way or another is unacceptable. I come across doctors like this every so often and it’s so sad to me that they think that they are behaving in an acceptable way. In no circumstance should you be pressured into anything (a doctor should NEVER phrase his opinion as a medical fact) unless your life is in danger, and I am so sorry that this happened to you. I wish you happiness in whatever you decide.
My mother was told that I would be disabled and that she should teinate me, I was born with no health conditions at all. I am thankful to my mother for bringing me into this world. This baby is a gift from God for you to take care of and you will be amazing at it. Lots of love xx
Same, my parents were told something was wrong with my spine, that my brain wouldn't fully develop, and I would never walk, the doctor told them to terminate as well. They were scared but trusted God and kept me. Other than being socially awkward 😅 I came out totally fine. I walk, dance, run, and live a completely normal life. So thankful they didn't terminate🥰
As someone with a debilitating birth defect, that’s endured 17 operations and months in hospitals, being the the talking point of lectures, poked and prodded like an object at times, I love my life and wouldn’t change ANY part of me. I wouldn’t become ‘normal’. I would lose so much of myself. Please don’t mistake that there have not been times I have cried and hurt because I hated the way i looked, hated the operations, hated having people look after me - but this is ME.
You are inspiring, thank you for sharing your light
THIS
God bless your beautiful soul!! 🙏🏻
I’m here in December ‘22. As a mother of a child with a genetic abnormality that resulted in disability, my heart went out to Sarah after first seeing this. I have been a long time supporter of Sarah and have enjoyed her channel, both in regards to health and fitness, and family life and spirituality.
I was recently sent a link to a website that had a post that revealed Sarah’s son Malachi is healthy and is not suffering from any genetic condition.
Hey, tests can be wrong- no judgement there.
I am a little confused as to why Sarah and Kurt choose not to share this positive news as I’m sure her followers would be happy that they no longer have to struggle with an incredibly stressful diagnosis for their new baby.
I wish them all the best, but wish they would be more honest about this. ❤
I completely agree with you, very worrying that a video as serious as this was posted and no update since having a healthy baby.
I was born with a massive list of health conditions & my parents nearly lost me as a baby. I'm here now and I am so glad that I am. Yes, life has had extra challenges with my chronic health conditions & disability, but I feel so fortunate that I am here. I grew up with loving parents & now have an amazing partner, am in the degree of my dreams & have so much life ahead of me, even if it's different to others. Sending you strength and love. You will be wonderful parents for this baby boy 🤍
I believe that the baby's soul picks their parents, and this little boy picked the right parents, because he knows that you will love and support him no matter what. I am praying for you that he will be the healthiest way possible and life is going to be easy and as normal as possible. ❤️
I agree with this so much
Yes!! We all pick our parents :)
I couldn’t agree more. He’s so happy he chose you 3 because he knows you’ll take the best care of him
So what you are saying is, that kids growing up in terrible environments, with abuse etc have chosen their parents? Biggest bullshit i have heard in a long time....
@Chuan Cresi🌹 üü
When you said “he is designed for us” I got goosebumps all over my body. You guys are a beautiful family and he is going to be a beautiful addition ❤️
As someone with a disability myself ( cerebral palsy) I’m going to be honest: it can be hard at times. The world will have its assumptions of what they think your condition is and put you in a box. I’ve had some pretty rough days when I’ve wished my CP away, but they’re few and far between.
That being said the one thing I illiterate to people when they ask how they can help with my disability is ‘ Let me tell you what I need , if I can. ‘
That’s the one take away I’d leave you both with... don’t hide the condition from your child if they’re aware they are different, but if they are able to make choices for themselves and express what they need then let them lead the way
( much easier when they’re older).
One thing you crave as a person with a disability is independence and autonomy over ones own body, rather than ‘being normal’ or ‘being like everyone else.’
I think whether you're a mum or not, we can all understand that you deserve to put yourself first in every situation of your life. You have given us YEARS of your time, energy and valued information Sarah, and we can't thank you enough for that. I think I can speak for a lot of us when I say that you've helped us grow in more ways than you know, and I hope you understand you have a whole community of empowered women on your side, praying for you, Kurt and your baby's happiness ❤
exactly!!
My favorite part was Kurt saying “sorry”. As a TH-camr I can’t imagine the pressure that you feel from us to let us in such a private part of your family. I hope the people who pass judgment understand the position you are in. I pray for healing for your family and understanding from baby fox💞
Yep. You don't owe any of us anything. You have a right to set whatever boundaries you want and need to set for yourself and your family.
God did not give you this baby by accident, He makes no mistakes. You were specially chosen for him. Absolutely loving your testimony and presence on TH-cam x
Amen!!!
Soo true...❤
Naomi - you said it perfectly. Amen to that.
Amen Naomi ❤️
Oh my goodness this made me cryy!!!
Will you be open to giving us an update? I think seeing Malakai and his growth can be inspiring to others?
as a nurse ive noticed that for myself and other healthcare professionals we can come across as a bit cold and withdrawn but to be honest for alot of us its a way to keep our own mental health in tact. Its never a personal thing, as a doctor who has to deliver that type of news on a weekly/daily basis, he may have to remain a bit withdrawn from the emotions of the situation in order to keep his mental health in order. But in saying that, some doctors just dont have great people skills unfortunately and im so sorry he wasnt more sensitive with you
makes total sense. And probably makes it easier to control emotions so you're not crying with people!
As someone with a hugely life-impacting health condition, I am super glad that I am alive and there is so much beauty in having a condition. It gives you and the people around you an outlook on life that shows how amazing it is to love and live, and facing adversity in challenges makes general life challenges seem like a breeze so it's all in perspective! You are definitely making the right decision for you and little bubs. He is already so loved by you both he is going to be a lucky dude!!
Oh Sara & Kurt! My sister in law went through a similar thing: Drs discovered a huge health concern during her pregnancy, asking whether she wants to terminate etc. I remember her coming over after that appointment, crying about how she's going to tell her husband and what to do... Well, the baby was born PERFECT! He's over a year now, not a thing wrong with him!
I have a baby with Down syndrome and she’s the best thing that happened to me. Being her mum means more to me. More love, more strength, more clarity.
Your family will benefit from so much. Sending you my love
Me too! My son is 19 months and has Down Syndrome and ahhh I just can’t imagine that people think he is less worthy of life than another. 🥺 He is the best thing that has ever happened to me.
I didn’t find out that I had a health condition that I’ve had since I was born until I was 14, and honestly if I had known about it earlier it would of defined me. I am grateful that I only just found out about it recently so that I could enjoy childhood and be ‘normal’. Not disclosing your sons health condition to the world will benefit him and I 100% agree with your thoughts! You’re doing the right thing!!!
My husband has cerebral palsy. He was born at 28 weeks (this was back in the 80’s, so he really is a miracle). We have been married 8years, have two beautiful children, he loves the Lord with all his heart, excels at his career & has more joy than almost anyone you could meet. He would tell you that ‘disability’ does not define you, it doesn’t tell you want you can & can’t do( you just might do it differently), it doesn’t determine how happy your life will be & it certainly doesn’t determine your value. Sure, there were challenges, life threatening & frustrating ones. He didn’t walk until he was 4 but he learned to talk at 6 months. His parents wouldn’t change him for the world.
As a mother to two children with different health related conditions, I totally get it. It’s your right as parent to disclose as much info as you feel necessary. I know this baby will come into this world happy and loved, that’s what’s important. ♥️♥️
As an older sister to my brother who has a neurological condition called Genesis of the missing corpus callosum. My brother has not let his condition define him. My mum was told at 6 months to terminate the pregnancy because the ‘baby’ would not be able to walk, talk, eat, or even function a day to day life routine. But 19 years later and my brother has graduated high school, studying tafe and opening his own dog therapy business. He loves sports and loves just being a young adult. No matter what these health professionals tell you when it comes to just terminating a pregnancy, it’s your choice and you will be wonderful parents to this beautiful new born. Don’t let anyone or anything determine your decision, you’ll be amazing.
If you need to talk to anyone about what you’re going through and need another point of view of this situation my mum would be super happy to talk to you.
Hi Chloe! Is there any way I could connect you or your mom to my sister? She has a beautiful one year old little girl with the same condition and I think she might like hearing more about her experience!
I grew up with a sister with a disability and it has honestly shaped the person I am today! It makes me constantly reflect how lucky I am in life and the bond between myself and my sister is very very special, fox will love his brother so much. My parents never let it define our family and gave us all the best life they could possible ❤️ they use to always tell me that god only gives the ones who need a bit more looking after to the families that could handle it and I use to feel comfort in that 😊 sending so much love from a sibling point of view ❤️
Aww I love this so much🤍🤍🤍
@@SarahsDay big big hugs! ❤️
I love to hear this. I also have a brother with a genetic disorder, the fragile X syndrome, and it absolutely shaped me. I get a lot out of the little things in life and also reflec much more on how good we actually have it. ❤️
@@TheAnnefleur1 100% ❤️
I completely second this!! my sister has down syndrome and it’s been nothing but a blessing. she’s shaped me to be the person today and i’m forever grateful for god blessing us with her xx
My husband and I went through this in March! One thing that really helped me was something my mom told me. "God has not only chosen this baby for you, but chosen you as their parents. So he will prepare you for whatever your life is going to look like ♡
This little boy has lucked out with some absolutely incredible parents. Sending love and support your way always!
This child is extremely lucky to have such wonderful parents!
havent watched the video yet and Im just about to, but i just wanna let you know Sezzy that you do not need to feel the "need" to share any of your personal problems with us :) because it could be triggering for you or uncomfortable to talk about. We love you and support you and you deserve personal privacy and we'll always respect that
When my mom was pregnant with me, doctors said after genetic testing that I was gonna have Down-syndrome. She was also advised to terminate the pregnancy.
My mom refused to do that, went home and cried out to the Lord and prayed with my dad that I'd be healthy.
I was born with no health issues and I give glory to God for it every day.
Life is precious, no matter what.
I wish you strenght and bravery to these times.
Same thing happened with my little sister
Same thing happened to my parents with me
My beautiful Emma, she was Born with a health condition, I was there when she took her first breath and there when she took her last and went back to the Lord. she was 23 years young and the love of my life.. My life was richer happier and fuller because of her.💙🙏
the Lord has His hand over you and that precious baby! God has a beautiful plan, even when it doesn't make sense and it's hard. rest in that! you two are so loved. lifting your family up in prayers right now!
AMEN AMEN AMEN…🙏🏻🙏🏻
Amen!! And he gives his special babies to special parents who can look after his precious babies 🥰🙏
Amen! It's so encouraging to see how much you are leaning into God and trusting him during this time. 🙏 Praying for your family and this wonderful baby that God has given you.
I'm a mum and a paediatric nurse.
You have to be a very special, strong person to have the perspective that you guys have ❤️
Can we all just acknowledge Abby here supporting her family! What a gift she is! 😍 Sarah, sending you supporting vibes!
You both are very strong!
For those who don't know: NIPT searches trisomy 21,18,13,22 (non vital), and X, Y related disorders. All these are very serious conditions where the person will be affected in a big way. It will require lifelong treatments and care. It's expensive and extenhuating. In most cases the family life revolves around the disability. It means not only physical malformations, sterility of the child, dependance on meds, but also cognitive impairment. So there is absolutely no shame at all in wanting to terminate in these cases. I just wanted this to be clear in case someone watching the video felt shame in not wanting that future.
A mother’s intuition is never wrong. Well done for listening to your inner voice and advocating for you and your son. I’m already cheering him on xx
I have grown up with a physical disability, my parents were told that they should terminate also, and that if I survived birth I wouldn't survive. Here I am 35 years later because of God's blessing and God's grace. He is with you. He is gracious. He is sovereign and he is almighty. I am standing with you in prayer over this precious blessing from God. He has this little one in his hands.
I'm really glad you decided to choose your child's safety and well-being over sharing every detail with your audience. Your son will be so grateful one day, and I think you have made all the right decisions (not that it would matter if I disagreed). God bless you and your family and I will be praying for health and strength for both you and your beautiful son.
True story, my brother had a down syndrome baby and it was the biggest blessing of their life. They had multiple health practitioners advise abortion after the tests revealed the 'condition' of their baby. They already had 3 healthy children b4 this child. They couldn't terminate and had their precious child. This baby has been the most amazing gift from God. They say this child, Isabella is secretly their favorite child and brings so much to the family, she has taught the whole family so much about LOVE.
I feel like no matter how mild or severe, Fox is going to be the best big brother to him. And you two will be the best possible support network. Thanks for being so open, I love your little fam. 🥺💕
A family friend of ours is special needs. They said he wouldn’t live past 5… he’s in his 60s and got a drivers license at normal age. You can tell he’s special needs just by talking to him but he’s highly HIGHLY functioning. He outlived his parents and is on his own for the first time as of earlier this year. They also suggested his parents terminate the baby 60 years ago. And look what became of him. 🥰🤗
My first son was born with an extremely rare genetic condition that we didn’t find out about until after he was born (he’s just turned 13) we didn’t have access to the speciality testing back then and you know what I’m glad! He was meant to be here and do all the amazing things he has done and be the incredible kid that he is! I too was given the worst possible scenarios and expectations for him and he has surpassed them all every step of the way! He is doing amazingly well and has changed the course of so many lives just by being in ours. I am incredibly blessed and so grateful to be his mumma and while I truly wish I could make life easier for him, he is happy and resilient and amazing and I wouldn’t change anything about him… he’s perfect 😍 I have also gone on to have two more beautiful sons and they are the light of my life and my reason for living ♥️♥️♥️
Sarah and Kurt, you have got this! I know your wondering how you’ll manage but not only will you but you’ll thrive and be more grateful and happy and In love than you’ve ever been! Celebrate every step of the way because even when it’s scary there is so much beauty in it ♥️♥️♥️ sending you guys so much love xxx
“When pregnant, the cells of the baby migrate into the mothers bloodstream and then circle back into the baby, it’s called “fetal-maternal microchimerism”.
For 41 weeks, the cells circulate and merge backwards and forwards, and after the baby is born, many of these cells stay in the mother’s body, leaving a permanent imprint in the mothers tissues, bones, brain, and skin, and often stay there for decades. Every single child a mother has afterwards will leave a similar imprint on her body, too.
Even if a pregnancy doesn't go to full term or if you have an abortion, these cells still migrate into your bloodstream.
Research has shown that if a mother's heart is injured, fetal cells will rush to the site of the injury and change into different types of cells that specialize in mending the heart.
The baby helps repair the mother, while the mother builds the baby.
How cool is that?
This is often why certain illnesses vanish while pregnant.
It’s incredible how mothers bodies protect the baby at all costs, and the baby protects & rebuilds the mother back - so that the baby can develop safely and survive.
Think about crazy cravings for a moment. What was the mother deficient in that the baby made them crave?
Studies have also shown cells from a fetus in a mothers brain 18 years after she gave birth. How amazing is that?”
If you’re a mom you know how you can intuitively feel your child even when they are not there….Well, now there is scientific proof that moms carry them for years and years even after they have given birth to them.
I find this to be so very beautiful.🌸🌷⚘
Blessings for you and your family!*♡
When you started talking about finding verses for termination & only found the beautiful words from God “I knew you in the womb” I started to get emotional in the best way 💕 I pray that your baby boy has a healthy pregnancy and birth, that he grows up to be strong & courageous in life. & I know that yours & Kurts & Fox’s love will be so abundant 💕 your baby boy is truly blessed that God chose you as his family 🥰
Wasn't it Powerful! God is Good.
.
..
So beautiful!!! Gods got this. There are no accidents. 💞🙏💞
Same here. I started crying because He is so good. He already loves this boy so much and i think that heaven i celebrating that their son gets to live his life
Amen! I fully agree with this!! I love how turning to God's Word brings life into every situation 💓
You and Kurt are going to be the most incredible parents, this little bubba is so lucky to be born into a world with you two and little Foxxy by his side ❤️
This baby is so lucky to be being born to such caring parents. Excited to meet your little boy!
Gods is with you and your special little boy, he’s going to have a happy and healthy life being so loved by his amazing parents and big brother. We all love and support you Sarah and can’t wait to see your family go from 3 to 4 and how beautiful it’s going to be. Can’t wait till bubba is here🤍 may God continue to protect and bless you💕
I am disabled, and I’ve worked in it. People with difficulties are just extra special. They don’t know anything different, they’re happy being who they are. And they’re loved by everyone around them💕💕
My brother has autism and my mum had to go through this whole process when he was diagnosed. She said she had to go through a bit of grieving process to let go of this whole idea of what she thought his life was going to look like. She would always say to me, 'it's not a worse life, it's just a different life.' He's the greatest addition to our family and we couldn't imagine life without him. He's the happiest person I know!
Miracles happen everyday, just remember that. I’m sorry you’re dealing with such heavy stuff right now, lots of worry around it and big decisions. Prayers for you guys, God has your back Sezzy
Yes they do. My 2nd child who is now 21 is a miracle. They thought she had cystic fibrosis, she had echogenic bowel in my ultrasound. We all prayed for her healing. My husband and I had to have gene tests and the dr wanted me to have an amniocentesis, I refused as it could have caused miscarriage. The next scan the echogenic bowel was gone!!! I was very ill my whole pregnancy and she had breathing issues for the first year but she is a healthy girl. She had small airways disease and got pneumonia a few times in childhood but that is as bad as anything got. I thank God everyday for my blessing. I trust God. I am praying for you Sarah.
🤍
@@shaybatty3785 that’s amazing, so glad she turned out way healthier than they thought. God is good
I have a condition called cystic fibrosis, i think you guys are amazing. My mum and dad didn’t know i had cf until i was born. They where told i wouldn’t live past 18, i am now 27, married to my child hood sweetheart and a mum of the most beautiful little one year old. Now on life saving treatment. I was brought up in a positive household, laughter was the best medicine. We never felt sorry for our self as a family. Yes we have had tough times, but we had eachother. Youv got this guys! He will be the most beautiful amazing soul the world will ever meet.
I just wanna add to my first comment, sezz don’t cry, this is not your fault, you can do everything right and things can still go wrong, ill keep praying for you, you are a fantastic mother, watching be a mum to fox has made me excited to become one once i find my own Kurt haha xxx
This baby is so lucky to have you two as parents. Whatever happens, all of you are so lucky to have each other and will learn from each other. sending love 🤍
It is so wonderful to hear Kurt’s support in this situation. Having gone through something similar, words cannot express the emotional impact it has on the mother who hears this news. As a self titled researcher, I had thought the worst would occur in my own situation. It is the way you both raise him and instill those values in your sons that will determine his acceptance and self love. I’m also a special education teacher and advocacy is key! Wishing you find peace, continued optimism, and much love and support.
Y’all are such amazing parents. That sweet baby is already being taken care of. God definitely created him specifically for you two and He will be with y’all in the valleys & on the mountain tops. In the darkness & in the light. Don’t you forget that sister.
I can confidently say, you are made for this. You are so brave, Sarah. God has a plan. A plan that is far greater than one you could imagine for yourself. Keeping your family in my thoughts in prayers. We love you and support you!
I lost my son three months ago due to a birthing complication, and although I can’t relate to what you guys are going through with this circumstance, I think you guys made the right choice. He is still your son. He will still be loved. And he deserves all of the chances in the world to be able to say how he gets to live his own life. I would do anything to have my son in my arms again so watching you guys accept this so graciously is huge.
I am so sorry to hear that. I wish you all the best and hope you are well. Sending you much strength
My brother was born with a disability and parents had no idea until they had him. Honestly would not be who I am today without him! Completely changed the course of our family life but he brings so much happiness to our world and I actually can’t put into words how much love everyone has for him ❤️ of course there’s ups and downs and it can be frustrating but I wouldn’t change a thing and neither would my parents, he is the light of our life. Your a strong woman and this baby boy will be so blessed to be surrounded by such supportive people ☀️
Bedside manner is really nonexistent these days. We were thrown around from specialist to specialist, ultrasound to ultrasound, blamed for not taking the genetic testing, used to practicing 3D heart ultrasounds, and talked down to about the basics of what veins are by the same people who couldn't figure out if our baby would have a genetic condition, a heart condition, an undeveloped brain, or be completely fine. We are so fortunate to have been able to find a professional who WAS compassionate, caring, and provided answers in a sensitive manner. Our girl had nothing more than a murmur, and all the back and forth would've been avoided if our original doctor knew more about updated guidelines for detecting Down's or the uniqueness of ultrasounds in Asian (or mixed) babies.
But something her cardiologist said really resonated with me as I listened to your story. He said to never tell others (non medical people) about her heart. Her murmur is one that has zero affect on her life, but, he said the way people treat her would change IMMEDIATELY. They'd think she's weaker, not as capable..etc. Your choice resonates with me-don't let any condition define your son. If and when you need the support of that niche community, you may share. But you're also giving him a chance to define who he is regardless of the condition.
Strength and love to you both ❤
My 19 year old son has Autism and though it was hard to find out when he was 2 years, our son is the biggest blessing of our lives. He is in college right now;) . I can't even imagine him being different. This video made my heart smile, as you will absolutely love this baby! May God bless your lives! Will pray for you all as well as your support friend and family group.
My 19 year old son is exactly the same, they are such a blessing and I wouldn’t change him for the world x
when i went to the doctor and found out i lost my son, my doctor sat there and cried for me/with me. and it’s common to lose babies, so for your doctor to sit there and tell you retry? no matter if you retried or not, no one else can be the son you have now. it’s not that simple. you have so many people who support you no matter what you do, but i’m so happy to hear you and kurt are going to raise this sweet baby boy. y’all are amazing parents!
P
Perfectly "normal" genetic presenting babies can still grow to have genetic abnormalities as they grow and change. Strength to you both in navigating this new period of life.
Yes & vice versa!
This little one has a family preparing to love and support him in all the ways he needs, what a lucky little lad. Prayers for your family. ❤️❤️❤️
I'm SO encouraged to hear how much you've been looking to and clinging to the Lord through all of this. Thank you for sharing that part of this situation with the world. God will continue to strengthen you and strengthen your family's faith in His goodness. He is faithful!! I'm praying for all four of you.
As a mama of a child with additional needs and health issues, thank you for your vulnerability and honesty. There’s so much internal processing with things like this that most people don’t realise. Wishing you a beautiful pregnancy with your perfect son who’s created in Gods image x x
We got told at our 20 week scan that our son had bilateral talipes (feet are twisted) which could be linked to various syndromes. I was offered extra tests to see if he had these syndromes, I turned them down and decided to go on with the pregnancy. He was born in March and was the perfect little bundle, nothing wrong apart from his feet. He started treatment on his feet at 7days old and now at 7 months his feet are perfectly positioned. The NHS have been fantastic throughout the pandemic. I also attended every scan on my own so I sympathise how scary that is in the pandemic. For health conditions to be found in pregnancy gives them a head start with the correct health professionals being in place when he’s born. We were having meetings with orthopaedic surgeons when he was still tucked up warm inside my tummy!! Good luck for the rest of your pregnancy and beyond, sending you both lots of love. ❤️💙 Xxx
This video is basically verbatim of what i experienced at a 22 weeks doctors appointment. I felt just as lost as you Sarah and have gotten so much closer to God as a result. I sat in the hospital room receiving news of a possible genetic disorder based on scan abnormalities (the nipt came back low risk but they still pressed it cluld be somethingsl else). I saw signs he would be perfectly healthy and to trust my intuition. Im now 27 weeks and still get anxious but feel at peace overall. Im so grateful for you both sharing. I wanted to crawl in a hole and hide when i heard the news. Im in a place of peaceful surrender now. So happy to see your beautiful baby running around your videos now ❤
Sarah and Kurt. Everyone walks different paths. We are all on this earth ‘riding different waves’. 🌊 And this baby could not have come to a more beautiful loving home. Best of luck. Sending you strength guys!
My son has a condition called Cystic Fibrosis and it’s pretty much consumed my life but I wouldn’t have it any other way. We didn’t know that he would be born with it, it just happens that my partner and I both have the gene for it. I think even if we did, we would push through with the pregnancy because the medication and technology we have these days is amazing! It’s very hard, we are in and out of hospital a bit but he has a wonderful team behind him and really the love that you have for your children is what gets you through! You can do this and he’ll be one happy little bubba and not know anything is wrong or different.
Hi, I hope your son is ok! I have CF too and have a TH-cam channel which you may find interesting 😊
@@TheEwanEllis I have CF too! I’ll have a look at your channel. I’m 22 from Australia
@@TheEwanEllis thank you lovely! He had a very tough start! Had a collapsed lung from the mucus and has been on a pic line antibiotics for a while but he’s good :) he was 8 months yesterday :) I’ll definitely check out of your channel!
My brother has AngelmanSyndrome (genetic disorder). He is 21 years old and I love him so much. He definitely has shaped me and my sister! So happy he is in my life🥰
Praying for you guys.
Constantly amazed at the strength of Sarah and the way Kurt supports her. Literal couple goals! Will be praying for you guys and your baby boy❤
God makes no mistake, you guys are a strong family unit and this is happening for a reason. Wishing you all the best always 💕
As a believer in Christ and a pediatric occupational therapist, my heart feels for your journey. Thank you for sharing your experience, for protecting your son, and for believing God makes beauty in all forms and fashions. I’ll be praying for your family ❤️ I can’t wait to see all the things he will do and meet his personality!
Yes.. love this
I was born with a genetic health condition called “Common Variable Immunodeficiency”, I’m stating it just in case he has something similar. I have to get weekly injections in my stomach of antibodies to boost my immune system. I was so sick growing up that I had to be homeschool to prevent catching germs from the kids at school. It was a rough childhood, but I have mostly grown out of it. I’m as healthy as ever. I still receive my weekly injections, and I’m not normal, but I’m now a senior in college, living in San Francisco and I live a normal and wholesome life
Sarah, please read this. The genetic tests told my parents I would be born with spina bifida. The doctors encouraged my parents to abort me. They chose to have me anyways, knowing my life was God’s plan, and I ended up NOT having spina bifida. Miracles happen.
This!
This was my parents case too! Here I am healthy and I just had my baby a few weeks ago.
Same thing happened to me but with Down syndrome! Parents chose to have me and I don’t have any health conditions whatsoever!
"When you pass through the waters I will be with you; and through the rivers, they shall not overwhelm you; when you walk through fire you shall not be burned, and the flame shall not consume you. For I am the Lord your God, the Holy One of Israel, your Savior..."-Isaiah 43:2-3 this verse came to mind as you talked. Praying for you guys!
I have this verse tattooed on my arm. It has so much meaning to my brother & I, he read it to me while I was going through a rough place. Thank you for reminding me, it gave me goose bumps 🤍
This beautiful soul couldnt have picked a better family. He is and will always be SO LOVED ❤️
I am so encouraged by how much you’ve leaned on the Lord. I have a friend who turned out amazing through his struggle with a disability because his parents raised him to love the Lord and celebrate the way God created him! Proud of you guys for being Christ centered parents💛 he is going to be so special🧡
Sarah , as a medical student myself , we are TAUGHT to deal with patients with empathy and understanding. It varies doctor to doctor but in general it is adviced to us to NOT give our suggestions but rather explain the situation fully , no sugarcoating , give them as much medical information as we can ,educate them about their options ,make them feel that they are understood and not judged for their choices. We are not adviced to give our opinion. The doctor should not have adviced you to terminate or not ,it's not his call . Sending lots of love your way.
This was so beautifully said, Sarah. You are so incredible, open minded, and kind. You literally were born to be a momma- you’ve worked SO hard to get here and I am confident that you’re going to continue being the best mum for your new baby boy.
Thank you for being you. I have PCOS and your journey gives me so much hope for my future. Sending love and light to you and your sweet family.
This made me so happy to see how God has given you such confidence and peace at this point! The Lord is with you guys, He will not give you any trial that He won't being you through
I honestly prayed for a blanket of peace over me and that’s how I’ve been feeling for a month now!
@@SarahsDay God is so good! I'm so happy you are just riding that wave 😉 your faith is beautiful
My daughters tests all came back normal, I had her & she was diagnosed with Down syndrome 🤍 she is an angel. I was broken, for months exactly how you feel right now! It’s ok to feel the way you feel. They are treasured 🤍🤍🤍
My daughters test came out normal too,but she was born without a left arm stomach issues and back problems. She is in 11th grade.
I'm delayed in watching this due to crazy study schedule, but I just want to say that NONE of this situation has surprised God. He has gone before you guys in this situation and already is equipping you for all that's ahead. Both my sons were born blind due to a genetic condition that we weren't aware of for our first son. Our 2nd son we knew it was a 50% chance he would also have it, which he did. I can only say that God full on prepared me for all the appointments, surgeries and lifestyle changes that came. Now they are 19 & 16, have their licences.. and are doing so great. 💙
Guys, this little boy is already so loved by all of us here. We cannot wait to welcome him and see him grow!! Just know we are here to support you, Kurt and Foxy!!
In the Old Testament God said to Joshua:
“Have I not commanded you? Be strong and full of courage. Do not be afraid, and do not be dismayed, for the Lord your God is with you wherever you go.” ❤️
Doctors have to be so matter of fact. It’s part of the job. However, your family is YOUR family. A health professional can give you standard of care, not give falsehoods. I’m so happy you have such a strong support system and ultimately, you know what’s best for you. You know what works for you and your family. A doctor sees multiple cases a day and can’t extend the compassion that most patients need. I hate that such a blatant statement was said to you and the affect that it had. Bedside manner is foreign to so many providers. But I’m glad you have answers and can make an informed decision. I wish you the healthiest pregnancy moving forward. 🥰🥰
I work with kids with disability and I love this, everyday I see the struggles and the amazing this the kids do. I also see what the parents go through there are definitely people to help and you guys are a very special type of person x
I was diagnosed with a pretty serious health condition at 15 and can say that it doesn’t change the value in who I am and how I go through life at all. Just like you said, God knit us all in the womb and has extraordinary plans for us. Im praying for your little one and you all, and just know that God sees you and holds you in the palm of his hands💜
I commend you both for being so open and vulnerable on a topic that would be so so so hard to discuss. You’re right, so many families and other mothers will and have gone through this and it is heart breaking and likely feels very lonely. I love that you have shared your story so openly and gave a voice to so many others and making them feel less alone. Praying for your sweet family and baby boy! May God wrap you up in his everlasting love, strength and peace as you navigate this new journey as a family of 4! ❤️
My nephew has severe learning issues. He’s basically considered IHC with this really rare epilepsy. But honestly he is the cleverest little guy I’ve ever met. He may not be “book smart” but my god he is so emotionally intelligent and he has such an amazing memory. And he is full with so much love. You will be fine! When your little man arrives you will never be able to imagine a world without him in it. 🤍🤍🤍
Sarah I belive baby would be fine. I pray for you!