What she did: #1 thing is to believe in yourself! #2 believe in your body! Steps: 1. Walking - slow progress, every single day with a supportive person if needed. Without a supportive person, go shorter distances, then make loops around your block 2. Physical therapy for POTS - moving and strengthening your legs 6:27 she shares the specific exercises Thank you to the creator for this video!
having people “bullying” me for not being at school saying “at least i go to school” and stuff like that. and having dysautonomia/POTS it hurts to hear that and expecally being young still. thank you for sharing the exersizes beacuse they help! and having this is VERY scary. thank you so much!
Yes it’s very difficult to understand if you’ve never been through it! I see you girl keep pushing forward. Lots of teens that are diagnosed do end up growing out of it. Praying for your healing!! 🤍
I did something similar, except it was yoga. I was bedridden 2 years from pots. I did yoga before I got sick and was in great shape, then it progressed to all the things that come with pots. One day, I was so sad, isolated, and frustrated. I was watching yoga videos on TV and decided to crawl out of bed and try a half-assed yoga pose. I did it for 15 seconds. But I did it. I went back to sleep for 4 hours, woke up, and did it again. I decided just to keep doing what I could and eventually could do it for 10 minutes. My energy was improving, and I had the ability to walk around and do stuff. I still had to take many breaks. Once, I got to the point of not having to fall asleep after exerting myself injoined a yoga studio. I told the teacher thar I'd be taking many breaks during class. I was able to do it for 10 minutes, and I'd sit on my mat the rest of the class. Then it progressed to 15. 20. 25 minutes. At the 25-minute mark, I'd take a 10- 15 minute break and then get up and finish the class. I can now complete an entire class with one break that just lasts a few minutes. Thanks for sharing your story. The doctors were no help to me going through this, and I had to figure this out for myself intuitively. I did nutritional things as well, and meditation.
This is a beautiful story!! I LOVE it!! Congratulations to you!!!!🤍🤍🤍 isn’t it wild that we grow up thinking doctors have the answers only to find out we are our own best healers!
@@jenniferflower9265 Omg that's so helpful. Bless you. I felt much better after work Thursday. After a few days of exercise this weekend, back to a dizziness stupor of a morning. Confusion. It's such a relief to know this gets better over time. Thanks again Jennifer. I really needed to read that ❤
you described this so perfectly. i had to get to my breaking point to decide “okay i need to push through this or i’ll be disabled forever”. thank you for your video. it’s helped me so much. my legs have zero muscle and i know i need muscle to ease my symptoms. so i’ll be back to update y’all :3
I have the opposite; I have orthostatic hypotension (postural drop) from covid (Pfizer vaccine). My blood pressure drops by half and I collapse. I'm 56 and I feel like my life is over. This video made me cry, because it's the first time I've heard someone speak who just.....gets it. Thank you so much. Sending you a lot of love. Subscribed.
I've been struggling for 3 years with anxiety disorder, racy pouding heart, stomach aches, fatigue, cold and heat intolerance. I have no confidence in my body. But i will try walking every day now. Even just a short one.
I got diagnosed with POTS from Covid, it’s not nearly as serious as your condition was, but I’ve signed up to join the army reserves so everyday I go jogging, and I walk when my heart feels too much. And you are so right about the determination.
Another covid potsy over here! It’s been okay as long as the weather was cold, but since it’s getting warmer it’s just the worst. Best things that help me: exercise as much as you can! For me running is the best. If you can’t, swimming is a good thing to start with. Also Salt in form of pills, it’s like a infusion, but you have to drink the water yourself, not getting it injected. Also drinking as much as you can. And than there are compression socks on recipe. Don’t buy once on the internet, get them from your doctor or pharmacy, they will actually measure you and get you the perfect fit. Helped me sooooo much, my blood stays up. You can see the difference when I’m taking of the first one and take off the second one like 5 minutes after, my leg will swell, looks waay darker than the over one (cause of the blood) and also it’s huge. As soon as I got the money, I will get me a Apple Watch controlling my exercise and heart beat and find my best and comfortable rates.
I got POTS from COVID also,had to deal with it for about a year.it was horrible,but a year later,I’m mostly symptom free. One of the things I did was cut out coffee out of my diet. But I never smoked or drank,and exercised alot
Thank you Molly for sharing your experience and awesome exercise advice. I’ve been off work for 3 years due to POTS and vestibular migraine, gained 30kgs as a result of just staying in bed. I wish I knew how important exercise is from the start. My physiotherapist recommended a blow up exercise ball and it changed my life, so thought I’d mention it here to help others. It’s perfect for POTS because it feels safe to be sitting on the soft ball and most exercises are done sitting/lying down. You can buy those balls real cheap and there are plenty of free workouts on YT. Good luck everyone!
Thank you for commenting this advice! I also have pots and just stay at home because of it but I'm currently waiting to be seen as I'm almost certain I may have pppd because of it ( very similar to vestibular migrane). I haven't met anyone who suffers with both. My worst symptom is definitely the dizziness it can be very disabling. Is this the same with you? Did you get vestibular migraine because of pots? I hope you don't mind me asking but I thought I'd comment as I never see someone with both pots and a vestibular issue ☺
@@JuneHeffer I’m so sorry this happened to you Jennifer. It’s an awful disease. I started with a ball workout and now also swimming. If there’s any possibility of getting in the pool for you, do it! Swimming makes me feel normal when I’m in the water and builds your fitness with minimal effort. My cardiologist said it’s because of water pressure all around you. I can’t even begin to tell you how much better I feel if I swim every day. I’m telling everyone because I really wish someone told me that 3 years ago. Good luck!
@@AgataNicole That is so good to know! Hopefully this summer I’ll be able to do more swimming. I’m really looking forward to it! Thanks so much for your kind words. Best wishes.❤️
Thanks for sharing the exercises and your advice. I have been bedridden since December and have had to leave my job and do school online. I have far and few good days. Every time I try to get up I almost faint and lay back down again. Going to try to take exercising more seriously.
Thanks for sharing this awesome video I really want to help my friend she’s an amazing person and she has this same condition and I want to help understanding her and help her get through it.people in the comments if you guys have this just keep pushing I know you can!
❤new aubscriber🎉very grateful to have found your channel 😊thank you for the inspiration❤i never "imagined my life would be like this"... I walk but 😢i miss the days I used to gym ,I struggle more with joint pain in winter. Sending you lots of love
I currently have POTS and suffering from severe anxiety attacks on top of normal pots attacks this video helped give me some peace of mind and gave me energy to start doing these exercises. My question is what diet did the doctors suggest for you?? Along with many other POTS patients I’m on a very high salt diet with lots of water. Is yours different?
Thank you so much for this kind comment 🤍 no doctors really helped with much, diet included. I stayed away from gluten and dairy. Hopefully can get into more detail in a video
I’m happy you had good family. All my caretaker father does is scream at and abuse me. It’s so hard to heal and so unbearable to only have him as help in this
Sending you so much love. I hope that you have friends or other family that you can reach out to. You can always message me as well! Stay strong and continue to heal for yourself and your future 🤍🤍🤍
Depends on the root cause of your pots. If you have me/cfs, pushing through is a really bad advice. I didn’t even have pots until I began a demanding exercise regiment, as I didn’t know I had me/cfs. Now my heart rate can go from 60 to 160 just from standing for a couple of minutes. I can still walk 2-3 kilometers on a good day, but as soon as I stop moving I feel like dying.
I think I have something similar I have an SVT I think it’s partly because of sleep apnea so I’m trying to figure it out because truly you are right to be able to walk ideally 30 minutes a day eat well and sleep well and have your friends and stuff is the secret to being well in life
I am better in hot climate than cold. My symptoms are purple hands/feet and knee caps and man area. When it gets too cold every thing goes stiff like arthritis. When i am sat my heart rate jumps from 65/70 to around 110 when i walk around. Apart from cold hands/feet i dont see other symptoms apart from the cold. I try cut dairy and gluten as well which helps the stiffness.
This is so encouraging. I am a dancer and active person. I had a severe flare of ulcerative colitis about 2 years ago and my body just went bananas. I get muscle spasms, chills temp dysregulation, pounding in my chest and tremors all over when I eat, lay down, wake up and exercise. So much to even say all of it the joint and muscle pain and gi and electrolyte issues. Did this help with the tremors? Anyone have suggestions I also tend to pass out after I eat but it is not consistent.
I used to hike before POTS. 4 years after diagnosis I’ve hiked twice for the first time. Lots of exercise that was terrifying to get to this point. Hiked like 5 miles yesterday. I want to see if I can increase the distance. Thank you so much for praying. It’s hard to find encouragement from someone who understands. PrayerS for you too. Do you have any special salt intake things or hydration things you do before or during g your longer walks or hikes?
I’m so happy for you, I got pots from being diagnosed with CIDP. I’m going to start walking slow and build my way up. My boyfriend loves to hike and I really want to hike with him one day.
@@peggycoleman8370 I had to put it on pause for the rest of the season due to an injury. From experimenting I've found it helpful to drink a mug of broth the salty kind and then sip on electrolytes as I hike. I like the NUUN tablets. I was hiking alone which might not be recommended depending on how bad your symptoms are. Keep pushing, it also helps your overall symptoms and quality of life.
Molly, what was your activity level prior to being bedridden? I was fully functioning, and running a few days per week. Then 4 family members got sick with virus. I did not (so I thought) then a week later I was bedridden. Just looking for another glimmer of hope. Thanks
Sorry to hear about your predicament. I have all the sympathies for people who get this condition suddenly. Mine was a slow progress, because of the type of POTS I have (the rarest progressive hyperadrenic type with hypermobility that has gotten worse with age). What I've gathered is that plenty of people who get POTS after COVID are the highly strung type (type A overachievers) or just generally stressed people because of demands in their lives or because of prior illnesses that the body has been trying to fight. It may be a genetic predisposition for a reason or another that causes the autoimmune system to go haywire because of prior excess of stress hormones, but the problem is stress hormones that trigger it. You should absolutely not stress your system in any way (be it more activity that will tire you out or eating something that will cause you an ill feeling in any way) whilst maintaining a low level of activity. You should accept that your body will be able to tolerate different levels of activity on different days. It's nothing you can control, and that you will pay for excess activity in deterioration of your condition. POTS is a dysautonomia, i.e. the body not functioning in the way it should, and the only way you can try to get rid of it is by living withing its boundaries and slowly nudging it back to stability. This is not a matter of willpower. For people who are used to being in control, it's very difficult. It requires a complete change of attitude except in the sense of having to plan every getting up from bed or a chair and limiting stationary standing time to minimum. Walking and stopping as soon as you feel you are starting to get tired is the key as well as salt and water. To maintain your mental stamina, add as much pleasure in your life as you can. Watch comedy, do the hobbies that relax you and you can still do (i.e. not running) etc. Also, eat small meals with little carbohydrates (digestion of carbs requires more stress hormones to protect against low blood sugar - it's the source of the 'sugar rush') and large meals require more blood rushing into your intestines instead of your head and muscles thus making the idiopathic hypervolemia worse. There's a vicious circle of stress hormones causing hypervolemia (low blood volume) and low blood volume causing more stress hormones to be excreted. You need to limit this cycle by little stress and more than regular salt & water intake. And be realistic. If you have joint hypermobility, your POTS will be harder to kick off (there's an underlying connective tissue disorder preventing your body from regulating blood pressure effectively because of vascular constriction is not functioning normally kicking the stress hormone response resulting in excessive heartbeat). Another thing is to check if you have misalignment in your neck and get it fixed (the upper neck vertibrae misalignment triggers the stress response in the body - but only allow properly trained people to do this). If you suffer from other autoimmune problems, POTS will also be more difficult to kick off, because those conditions maintain the stress response on their own. So, understand what you are battling against and adjust your expectations accordingly. The good news is that if it is POTS only that you are suffering from and not CFS/ME with POTS, even if caused by a virus, you have a better chance kicking it off particularly if you have the possibility to control your stressors. All the best with your forced relaxation.
Thank you for sharing your experience. I hope you are doing fine. I'm going to try it from today, hoping my Pots attack reduce. Again thank you for encouraging 👍🏻
Hi, Molly! I'm so grateful to have found your video. Did you have blood pooling in your legs with your POTS? I've gotten better with my heart rate and movements like you did, but in addition when I stand too long I get out of breath and I get spots and rashes all over my legs. Especially in heat. 😔 My cardiologist says it's connected to pots. I'm turning 16 next month and I'm tired of feeling self-conscience and not being able to wear shorts. I'm going to camp this summer, and I'm very scared. I'm sorry to dump all of this on you... Do you have any suggestions? Thank you so very much for your encouraging video 🙏
Hi! Yes I definitely had blood pooling if standing too long and especially at night for me. Sometimes I still notice it but not every day. I know this might not help but 100% should wear those shorts!! You are so blessed to be feeling better and able to go to camp and enjoy yourself. You deserve to wear shorts!! Make sure you’re staying SUPER hydrated throughout the day especially if you’ll be outdoors. I’m not sure if you’ve ever tried compression stockings but those might help as well. The thigh high stockings worked better for me than the knee length ones never helped much. Hope you continue to feel better and stay positive!🤍
I've had POTS since... forever. But no one knew about it in the early 2000s. I was just fainting amd getting concussions all the time + lazy. 🙄 ive found that compression socks geared towards diabetics are helpful. Some don't have feet if you don't like that. They come in a LOT of colours online, not just target/walmart black, beige. Comrad Socks + viasox have sales a lot and they last awhile if following washing directions. I have ProCompression but the calves are too tight. Brands for diabetics tend to have stretchier calves. Good luck.
Not sure if I have this, but if I stand too long (sometimes even a min or two) my feet get red, my toes pulse (kinda like there’s too much blood flow to my feet) and I can’t think properly and get sweaty! Does this sound like pots? I can take hot baths and showers but sometimes feel dizzy after, or if I stand up too fast I do almost pass out (haven’t yet though) I have a theory that pots is mostly in women due to hormonal Imbalances! I also read B1 is very helpful! th-cam.com/video/rBusfMVDPpk/w-d-xo.html
Hi! I am still on medication as I continue to heal but I am slowly weaning off of it. It took me about 16 months to see the biggest change. Each day wouldn’t feel like an improvement but if I looked back maybe every 2 months I could see progress.
Did you ever have any uncontrollable hyperventilating attacks where you're breathing is out of whack and you feel like you're having an asthma attack? I had that happen to me twice. It was after I exerted myself. I was at a customer's house doing a moving job. It is scary. Hope you're still doing well.
Something similar but my heart rate would go out of wack not so much breathing. I would uncontrollably shake sometimes it would last hours. Glad you are okay and yes over exertion would cause it sometimes! All a part of the autonomic nervous system so that would make sense yours would happen with breathing. Stay strong!
Did you feel like you always had to faint? Mines is so bad I can’t even stand for to long, I feel like I need a cane. But I have faith things will get better.
@@crizeldamaldonado9796 a lot of things I basically changed my entire lifestyle & diet. It took time too but it would start happening less frequently. Celery juice, spirulina, magnesium, L-lysine. I know it’s so scary. I’ll keep sharing as much info as I can!
If all you can do is lay start with just doing some leg lifts throughout the day making sure your heart rate stays at a safe rate & you don’t exhaust yourself too much. But start trying to strengthen those legs to help out with the blood pooling!
Starting is the hardest part. I kept telling myself… “Doing one leg lift is better than doing 0” and “if I want tomorrow to be better I have control over trying”. Just try to lift my toes and point them. So hard… but it’s working. I’ve been there, stuck in bed. It’s depressing. I was hit by a car and got the bonus gift of POTS with all the other injuries. I thought the traumatic Brain Injury was going to be the worst part but it’s the POTs that put me on my back
@@prathamrballal1229 I have seen people heal but because God healed them. If God wants to he will do it, but if not yea we will have to live with it till death.
@@rachaelenglish348 Yea people heal through DNRS and Guapa program. I do DNRS and its taking time. If its God's will he heals in many different forms but for some people its genetic.
@@prathamrballal1229 If you do some of your own research, you will find that there are many people who have healed themselves from all kinds of chronic illnesses.
Can I get in touch with you ?
Hi yes my Instagram is now under @ molllzy
@@mollyrose2412you are an inspiration to me❤️
Your mom is a superhero @@mollyrose2412
Did you stop excercising @@mollyrose2412
What she did:
#1 thing is to believe in yourself!
#2 believe in your body!
Steps:
1. Walking - slow progress, every single day with a supportive person if needed. Without a supportive person, go shorter distances, then make loops around your block
2. Physical therapy for POTS - moving and strengthening your legs
6:27 she shares the specific exercises
Thank you to the creator for this video!
having people “bullying” me for not being at school saying “at least i go to school” and stuff like that. and having dysautonomia/POTS it hurts to hear that and expecally being young still. thank you for sharing the exersizes beacuse they help! and having this is VERY scary. thank you so much!
Yes it’s very difficult to understand if you’ve never been through it! I see you girl keep pushing forward. Lots of teens that are diagnosed do end up growing out of it. Praying for your healing!! 🤍
I did something similar, except it was yoga. I was bedridden 2 years from pots. I did yoga before I got sick and was in great shape, then it progressed to all the things that come with pots. One day, I was so sad, isolated, and frustrated. I was watching yoga videos on TV and decided to crawl out of bed and try a half-assed yoga pose. I did it for 15 seconds. But I did it. I went back to sleep for 4 hours, woke up, and did it again. I decided just to keep doing what I could and eventually could do it for 10 minutes. My energy was improving, and I had the ability to walk around and do stuff. I still had to take many breaks. Once, I got to the point of not having to fall asleep after exerting myself injoined a yoga studio. I told the teacher thar I'd be taking many breaks during class. I was able to do it for 10 minutes, and I'd sit on my mat the rest of the class. Then it progressed to 15. 20. 25 minutes. At the 25-minute mark, I'd take a 10- 15 minute break and then get up and finish the class. I can now complete an entire class with one break that just lasts a few minutes. Thanks for sharing your story. The doctors were no help to me going through this, and I had to figure this out for myself intuitively. I did nutritional things as well, and meditation.
This is a beautiful story!! I LOVE it!! Congratulations to you!!!!🤍🤍🤍 isn’t it wild that we grow up thinking doctors have the answers only to find out we are our own best healers!
@@mollyrose2412 it's true. ❤️
What a wonderful story!! Thanks so much for posting! This is so helpful!
@@jaypineau768 I’ll update my story, over a year later from my posting this. I am now a yoga teacher and personal trainer.
@@jenniferflower9265 Omg that's so helpful. Bless you. I felt much better after work Thursday. After a few days of exercise this weekend, back to a dizziness stupor of a morning. Confusion. It's such a relief to know this gets better over time. Thanks again Jennifer. I really needed to read that ❤
you described this so perfectly. i had to get to my breaking point to decide “okay i need to push through this or i’ll be disabled forever”. thank you for your video. it’s helped me so much. my legs have zero muscle and i know i need muscle to ease my symptoms. so i’ll be back to update y’all :3
Update ?
I have the opposite; I have orthostatic hypotension (postural drop) from covid (Pfizer vaccine). My blood pressure drops by half and I collapse. I'm 56 and I feel like my life is over. This video made me cry, because it's the first time I've heard someone speak who just.....gets it. Thank you so much. Sending you a lot of love. Subscribed.
I've been struggling for 3 years with anxiety disorder, racy pouding heart, stomach aches, fatigue, cold and heat intolerance. I have no confidence in my body. But i will try walking every day now. Even just a short one.
I got diagnosed with POTS from Covid, it’s not nearly as serious as your condition was, but I’ve signed up to join the army reserves so everyday I go jogging, and I walk when my heart feels too much. And you are so right about the determination.
Hey. How are you feeling ?
Another covid potsy over here! It’s been okay as long as the weather was cold, but since it’s getting warmer it’s just the worst. Best things that help me: exercise as much as you can! For me running is the best. If you can’t, swimming is a good thing to start with. Also Salt in form of pills, it’s like a infusion, but you have to drink the water yourself, not getting it injected. Also drinking as much as you can. And than there are compression socks on recipe. Don’t buy once on the internet, get them from your doctor or pharmacy, they will actually measure you and get you the perfect fit. Helped me sooooo much, my blood stays up. You can see the difference when I’m taking of the first one and take off the second one like 5 minutes after, my leg will swell, looks waay darker than the over one (cause of the blood) and also it’s huge.
As soon as I got the money, I will get me a Apple Watch controlling my exercise and heart beat and find my best and comfortable rates.
@@jennyoh3770 hi this comment is 8 months old how are u now I also have pots from covid
I got POTS from COVID also,had to deal with it for about a year.it was horrible,but a year later,I’m mostly symptom free.
One of the things I did was cut out coffee out of my diet.
But I never smoked or drank,and exercised alot
Thank you for sharing your story and the exercises. Your Mom sounds like an angel and an amazing support person ❤️
Thank you Molly for sharing your experience and awesome exercise advice. I’ve been off work for 3 years due to POTS and vestibular migraine, gained 30kgs as a result of just staying in bed. I wish I knew how important exercise is from the start. My physiotherapist recommended a blow up exercise ball and it changed my life, so thought I’d mention it here to help others. It’s perfect for POTS because it feels safe to be sitting on the soft ball and most exercises are done sitting/lying down. You can buy those balls real cheap and there are plenty of free workouts on YT. Good luck everyone!
Thank you for commenting this advice! I also have pots and just stay at home because of it but I'm currently waiting to be seen as I'm almost certain I may have pppd because of it ( very similar to vestibular migrane). I haven't met anyone who suffers with both. My worst symptom is definitely the dizziness it can be very disabling. Is this the same with you? Did you get vestibular migraine because of pots? I hope you don't mind me asking but I thought I'd comment as I never see someone with both pots and a vestibular issue ☺
Wow I never thought of that, thank you so much for sharing!
Thanks so much for this idea! Currently looking for ways to exercise starting from the floor up since walking has been a bit much for me.
@@JuneHeffer I’m so sorry this happened to you Jennifer. It’s an awful disease. I started with a ball workout and now also swimming. If there’s any possibility of getting in the pool for you, do it! Swimming makes me feel normal when I’m in the water and builds your fitness with minimal effort. My cardiologist said it’s because of water pressure all around you. I can’t even begin to tell you how much better I feel if I swim every day. I’m telling everyone because I really wish someone told me that 3 years ago. Good luck!
@@AgataNicole That is so good to know! Hopefully this summer I’ll be able to do more swimming. I’m really looking forward to it! Thanks so much for your kind words. Best wishes.❤️
everytime i feel too dizzy to go to the gym or do leg exercises i'll remember this lol, thanks
I wish I had someone like your mom to help me.
🙌🏻
Thanks for the video! It is great to see a success story from someone with POTS. God bless!
I just got diagnosed today, this gives me a lot of hope. Thank you!
Thanks for including the exercises!!!❤❤❤
Thanks for sharing the exercises and your advice. I have been bedridden since December and have had to leave my job and do school online. I have far and few good days. Every time I try to get up I almost faint and lay back down again. Going to try to take exercising more seriously.
Hi how are you ❤️
Thank you for sharing your story and the exercises! So inspiring!
I got pots following the Pfizer vaccine. Glad to hear there is hope.
Me too. Symptoms started right after the 1st dose. Wish I'd never gotten that.
@@MissMoMoCitaModerna for me
Thanks for sharing this awesome video I really want to help my friend she’s an amazing person and she has this same condition and I want to help understanding her and help her get through it.people in the comments if you guys have this just keep pushing I know you can!
I’m sure your friend is so very appreciative. We all need a friend like you! Thank you! 🤍
That’s so sweet
❤new aubscriber🎉very grateful to have found your channel 😊thank you for the inspiration❤i never "imagined my life would be like this"... I walk but 😢i miss the days I used to gym ,I struggle more with joint pain in winter.
Sending you lots of love
I currently have POTS and suffering from severe anxiety attacks on top of normal pots attacks this video helped give me some peace of mind and gave me energy to start doing these exercises. My question is what diet did the doctors suggest for you??
Along with many other POTS patients I’m on a very high salt diet with lots of water. Is yours different?
Thank you so much for this kind comment 🤍 no doctors really helped with much, diet included. I stayed away from gluten and dairy. Hopefully can get into more detail in a video
How is your pots condition now?
Do you have tachycardia in the night??
Brooklyn, did you find any other solutions? I have the same as you and it’s awful :(
I’m happy you had good family. All my caretaker father does is scream at and abuse me. It’s so hard to heal and so unbearable to only have him as help in this
Sending you so much love. I hope that you have friends or other family that you can reach out to. You can always message me as well! Stay strong and continue to heal for yourself and your future 🤍🤍🤍
Thanks for sharing this! So wonderful. The more we can spread knowledge about this mysterious illness the better!!
Absolutely!!
Depends on the root cause of your pots. If you have me/cfs, pushing through is a really bad advice. I didn’t even have pots until I began a demanding exercise regiment, as I didn’t know I had me/cfs. Now my heart rate can go from 60 to 160 just from standing for a couple of minutes. I can still walk 2-3 kilometers on a good day, but as soon as I stop moving I feel like dying.
I think I have something similar I have an SVT I think it’s partly because of sleep apnea so I’m trying to figure it out because truly you are right to be able to walk ideally 30 minutes a day eat well and sleep well and have your friends and stuff is the secret to being well in life
Thank you for sharing! I really liked how realistic you are.
Thank you for showing the exercises. They are so helpful!
Thank you I’m so glad!
Were you super dizzy from walking? I am having a hard time understanding when to push when to rest
You're a gem !! :) keep it real yooO00 ! Mad that the 3nd physio exercise is one that I used from my physio for Ehlers Danlos ! Shamooon! :)
Thank YOU, very much! You've given us lots of information & INSPIRATION
I am better in hot climate than cold. My symptoms are purple hands/feet and knee caps and man area. When it gets too cold every thing goes stiff like arthritis.
When i am sat my heart rate jumps from 65/70 to around 110 when i walk around. Apart from cold hands/feet i dont see other symptoms apart from the cold.
I try cut dairy and gluten as well which helps the stiffness.
This is so encouraging. I am a dancer and active person. I had a severe flare of ulcerative colitis about 2 years ago and my body just went bananas. I get muscle spasms, chills temp dysregulation, pounding in my chest and tremors all over when I eat, lay down, wake up and exercise. So much to even say all of it the joint and muscle pain and gi and electrolyte issues. Did this help with the tremors? Anyone have suggestions I also tend to pass out after I eat but it is not consistent.
If you haven’t checked out the dynamic neural retraining system for Pots then give it a try
I had always wanted to try that! It’s difficult being disabled and spending the money but I’ve heard great things!
I used to hike before POTS. 4 years after diagnosis I’ve hiked twice for the first time. Lots of exercise that was terrifying to get to this point. Hiked like 5 miles yesterday. I want to see if I can increase the distance. Thank you so much for praying. It’s hard to find encouragement from someone who understands. PrayerS for you too. Do you have any special salt intake things or hydration things you do before or during g your longer walks or hikes?
I’m so happy for you, I got pots from being diagnosed with CIDP. I’m going to start walking slow and build my way up. My boyfriend loves to hike and I really want to hike with him one day.
Congratulations I am so happy to hear that!!! Have you tried liquid iv electrolyte powder? I love it
@@mollyrose2412 I have not tried it yet, I've heard good things. I'll give it a shot! Thanks! Is Potsies got to stick together... 😊
How is this going? I’m trying to improve my distance too
@@peggycoleman8370 I had to put it on pause for the rest of the season due to an injury. From experimenting I've found it helpful to drink a mug of broth the salty kind and then sip on electrolytes as I hike. I like the NUUN tablets. I was hiking alone which might not be recommended depending on how bad your symptoms are. Keep pushing, it also helps your overall symptoms and quality of life.
Thank you!!!!! You’re amazing!
Molly, what was your activity level prior to being bedridden? I was fully functioning, and running a few days per week. Then 4 family members got sick with virus. I did not (so I thought) then a week later I was bedridden. Just looking for another glimmer of hope. Thanks
Sorry to hear about your predicament. I have all the sympathies for people who get this condition suddenly. Mine was a slow progress, because of the type of POTS I have (the rarest progressive hyperadrenic type with hypermobility that has gotten worse with age).
What I've gathered is that plenty of people who get POTS after COVID are the highly strung type (type A overachievers) or just generally stressed people because of demands in their lives or because of prior illnesses that the body has been trying to fight. It may be a genetic predisposition for a reason or another that causes the autoimmune system to go haywire because of prior excess of stress hormones, but the problem is stress hormones that trigger it.
You should absolutely not stress your system in any way (be it more activity that will tire you out or eating something that will cause you an ill feeling in any way) whilst maintaining a low level of activity. You should accept that your body will be able to tolerate different levels of activity on different days. It's nothing you can control, and that you will pay for excess activity in deterioration of your condition. POTS is a dysautonomia, i.e. the body not functioning in the way it should, and the only way you can try to get rid of it is by living withing its boundaries and slowly nudging it back to stability. This is not a matter of willpower.
For people who are used to being in control, it's very difficult. It requires a complete change of attitude except in the sense of having to plan every getting up from bed or a chair and limiting stationary standing time to minimum. Walking and stopping as soon as you feel you are starting to get tired is the key as well as salt and water. To maintain your mental stamina, add as much pleasure in your life as you can. Watch comedy, do the hobbies that relax you and you can still do (i.e. not running) etc.
Also, eat small meals with little carbohydrates (digestion of carbs requires more stress hormones to protect against low blood sugar - it's the source of the 'sugar rush') and large meals require more blood rushing into your intestines instead of your head and muscles thus making the idiopathic hypervolemia worse.
There's a vicious circle of stress hormones causing hypervolemia (low blood volume) and low blood volume causing more stress hormones to be excreted. You need to limit this cycle by little stress and more than regular salt & water intake.
And be realistic. If you have joint hypermobility, your POTS will be harder to kick off (there's an underlying connective tissue disorder preventing your body from regulating blood pressure effectively because of vascular constriction is not functioning normally kicking the stress hormone response resulting in excessive heartbeat). Another thing is to check if you have misalignment in your neck and get it fixed (the upper neck vertibrae misalignment triggers the stress response in the body - but only allow properly trained people to do this). If you suffer from other autoimmune problems, POTS will also be more difficult to kick off, because those conditions maintain the stress response on their own. So, understand what you are battling against and adjust your expectations accordingly.
The good news is that if it is POTS only that you are suffering from and not CFS/ME with POTS, even if caused by a virus, you have a better chance kicking it off particularly if you have the possibility to control your stressors.
All the best with your forced relaxation.
Thank you for sharing your experience. I hope you are doing fine.
I'm going to try it from today, hoping my Pots attack reduce. Again thank you for encouraging 👍🏻
Thank you! I might have cervical Instability and POTS.
Hi. I might have the same thing. Did you find a treatment?
Hi, Molly! I'm so grateful to have found your video. Did you have blood pooling in your legs with your POTS?
I've gotten better with my heart rate and movements like you did, but in addition when I stand too long I get out of breath and I get spots and rashes all over my legs. Especially in heat. 😔 My cardiologist says it's connected to pots.
I'm turning 16 next month and I'm tired of feeling self-conscience and not being able to wear shorts. I'm going to camp this summer, and I'm very scared. I'm sorry to dump all of this on you... Do you have any suggestions?
Thank you so very much for your encouraging video 🙏
Hi! Yes I definitely had blood pooling if standing too long and especially at night for me. Sometimes I still notice it but not every day. I know this might not help but 100% should wear those shorts!! You are so blessed to be feeling better and able to go to camp and enjoy yourself. You deserve to wear shorts!! Make sure you’re staying SUPER hydrated throughout the day especially if you’ll be outdoors. I’m not sure if you’ve ever tried compression stockings but those might help as well. The thigh high stockings worked better for me than the knee length ones never helped much. Hope you continue to feel better and stay positive!🤍
I've had POTS since... forever. But no one knew about it in the early
2000s. I was just fainting amd getting concussions all the time + lazy. 🙄 ive found that compression socks geared towards diabetics are helpful. Some don't have feet if you don't like that. They come in a LOT of colours online, not just target/walmart black, beige. Comrad Socks + viasox have sales a lot and they last awhile if following washing directions. I have ProCompression but the calves are too tight. Brands for diabetics tend to have stretchier calves. Good luck.
Thank you for making this inspiring video 🙏🏻❤️
Dysautonomia for me. High blood pressure & HR when sitting or laying and a huge drop when I stand. 🥴
Did you ever have to get on any meds? Did you have panic attacks/anxiety/depression or high blood pressure?
Thank you for this video - super helpful! Question: at what point did you discontinue your beta blocker?
I dont find ur ig!!!! I admire you so so much. Fighterrrr
Did exercising ever send you into a flare ? I’m currently in one and getting better so now I’m deciding on a new workout that won’t wear me out
How are u now. This pots thing sucks
Not sure if I have this, but if I stand too long (sometimes even a min or two) my feet get red, my toes pulse (kinda like there’s too much blood flow to my feet) and I can’t think properly and get sweaty! Does this sound like pots? I can take hot baths and showers but sometimes feel dizzy after, or if I stand up too fast I do almost pass out (haven’t yet though)
I have a theory that pots is mostly in women due to hormonal
Imbalances! I also read B1 is very helpful!
th-cam.com/video/rBusfMVDPpk/w-d-xo.html
Yes sounds like pots. It’s your ans not working properly. Get a blood pressure cuff and see if you have low blood pressure
Yes definitely sounds like familiar symptoms!!
Hi Molly, thank you for sharing. Did you stop the meds once you healed? How long did it take for you to heal your pots?
Hi! I am still on medication as I continue to heal but I am slowly weaning off of it. It took me about 16 months to see the biggest change. Each day wouldn’t feel like an improvement but if I looked back maybe every 2 months I could see progress.
@@mollyrose2412 this is so good to hear. Thank you!
@@mollyrose2412 i havent seen any new videos are u all the way healed now I hope so as it would give me so much hope
I bought a treadmill. Slowly but surely.
What causes your pots at the first place? And are you completely fine now?
The entire nervous system, sometimes surgery, virus, or trauma triggers it. Mine was triggered by surgery then made worse by getting Covid
How is ur pots now?
Do you think this will help with the blood pooling in knees and ankles form of POTS? I’m so upset this is happening to me
Yes absolutely does!! Stay consistent with it. Sending you positive thoughts & healing!
Thank You so much!*
How is your POTS now? I've been struggling w it for 6 years, hope is running thin :(
Yes girl! 👏
6:29 (note for me)
How are you doing today a year later? Thank you for your time responding.
Did you ever have any uncontrollable hyperventilating attacks where you're breathing is out of whack and you feel like you're having an asthma attack? I had that happen to me twice. It was after I exerted myself. I was at a customer's house doing a moving job. It is scary. Hope you're still doing well.
Something similar but my heart rate would go out of wack not so much breathing. I would uncontrollably shake sometimes it would last hours. Glad you are okay and yes over exertion would cause it sometimes! All a part of the autonomic nervous system so that would make sense yours would happen with breathing. Stay strong!
Do you have joint hypermobility and/or pain?
That’s a goal of mine to take atleast a mile hike
Did you feel like you always had to faint?
Mines is so bad I can’t even stand for to long, I feel like I need a cane. But I have faith things will get better.
Yes I did constantly! Hope you are well 🤍
What specialists sees pots?
6:35
3x10
Is POTS curable?
Pls reply maa'm🙏
Only by healing the nervous system, its a syndrome not a disease
Yes, there are people that got so much better some years later that their symptoms are minimal and don't really bother them.
I think I have pots when I stand up I feel nauseous and my heart rate goes up. I have anxiety and I’m afraid to go to the doctor. :/
How are u now
It's ruining my life.
Just wanted to send you a really big hug. Xxx
Have you had your vitamin d3 levels checked?? That will make pots ten times worse if it’s low.
@@lilly-lk3mp yup… I'm better now
Did you ever experience tremors with pots?
Yes!! Very badly. Full body that would last for hours with high heart rate. I’m over a year without them now!
@@mollyrose2412 omg what helped with that? Currently experiencing them ... They really suck :(
@@crizeldamaldonado9796 a lot of things I basically changed my entire lifestyle & diet. It took time too but it would start happening less frequently. Celery juice, spirulina, magnesium, L-lysine. I know it’s so scary. I’ll keep sharing as much info as I can!
I can't get out of bed did your legs go a red color and blood pooling in calfs I don't know what to do
If all you can do is lay start with just doing some leg lifts throughout the day making sure your heart rate stays at a safe rate & you don’t exhaust yourself too much. But start trying to strengthen those legs to help out with the blood pooling!
@@mollyrose2412 my feet are so cold and I get cramping in them I only been told I have this 2 months ago i have not got out of bed I'm very depressed
Starting is the hardest part. I kept telling myself… “Doing one leg lift is better than doing 0” and “if I want tomorrow to be better I have control over trying”. Just try to lift my toes and point them. So hard… but it’s working.
I’ve been there, stuck in bed. It’s depressing. I was hit by a car and got the bonus gift of POTS with all the other injuries. I thought the traumatic Brain Injury was going to be the worst part but it’s the POTs that put me on my back
What kind of diet changes can help?
Avoid carbs. That’s supposed to help
Low histamine diet
Did u took any meds?
And what's your heart rate
R u able to work?
Plz answer if possible it's will help a lot
How r u now?
@@prathamrballal1229 batter but not good
@@prathamrballal1229 how are u
@@gauravshah1938 same
Was it due to covid?
how are you now?
I am able to work 20 hours a week, still experiencing symptoms but they are manageable rather than debilitating
No one has recovered from this illness, we have to battle till death
@@prathamrballal1229 I have seen people heal but because God healed them. If God wants to he will do it, but if not yea we will have to live with it till death.
Not true. Look into neuroplasticity. Programs like DNRS and the Gupta program have fully healed and transformed life.
@@rachaelenglish348 Yea people heal through DNRS and Guapa program. I do DNRS and its taking time. If its God's will he heals in many different forms but for some people its genetic.
She has not cured, and cant cure for life time.
Yes you can.
How can u say
@@prathamrballal1229 If you do some of your own research, you will find that there are many people who have healed themselves from all kinds of chronic illnesses.
@@lilsammilil do you gave any proof of the existence of god?please show me thanks
@@longcovidriot2675 I didn’t say anything about god.
Hi. I tried to follow you on IG I think you denied me :(. I hope you’re doing amazing
Oh my, so sorry! Send it again would love to chat!🤍🤍
Thank you , i will add you instagram