Women and Girls with Turner Syndrome
ฝัง
- เผยแพร่เมื่อ 23 พ.ค. 2012
- Living with Turners doesn't need to shortchange your ability to have a full and rewarding life. Five women talk about what it means to live with Turners Syndrome. They share candidly about the challenges, the lessons they've learned, their strategies for coping and the truly inspirational accomplishments they've achieved.
DIRECTOR/EDITOR: Marjonneke
CINEMATOGRAPHY: Moussa Faddoul
AUDIO: Ivar Hiort
MUSIC CREDITS:
Daydreaming by Footage Firm
Summer Morning for Music4yourVids
Contemplation by Footage Firm
Answers Inside by Footage Firm
I Like it by Footage Firm
Armistice by Footage Firm
My lovely woman has t.s. and she is the most magnificent, extraordinary, awe inspiring woman I've ever met. She has helped me with my issues and cares for me like no other. She completes me and is my rock. She truly is a blessing and I cherish her more and more every day. I love her with all I am and all I can muster. She is sunshine, my little ray of joy
😭😢😢😢💕💕💕💞
This made me cry! I have T.S and I am now 19. All my life I have been feeling so alone and thought I was the only who has been going through the shots and guys running for the hills. I have never dated anyone and thought that guys didn't think I was beautiful because of my short stature. I'm still single but I know now that's not true. After seeing this video I feel okay with having T.S. I am so glad I found people who understand what I'm going through.
Im 32. And i have a bad bad case of turners syndrome. It has been lonely and painful. But i guess im not alone eh?!!
You girls (women) are beautiful. My girlfriend has turners and I am thankful that she is who she is. I love her!
Hi Rachel, I have mosaic TS, I got married when I was 25 and have a brilliantly happy and full life with everything I need and more.
I'm really glad I took 2 years out of my life to focus on loving me, it really helped me step out of the family I grew up in and find my own way.
Chad Disrud;)
Omg! Seriously?! I am a huge fan of Amy Cimorelli and her sisters!!!!! I am super glad you told me that! And that explains why she's so much shorter than her sisters haha
Watching this video was so inspiring and amazing! I found out I had Turners syndrome when I was 14 and now I am 19 and in college. All this time I thought I was alone! All the struggles you have to deal with mentally and physically. Finally someone understands! Thank you!
There is a person in my class with Turner syndrome and she looks happy and healthy :)
Thank you ladies for the wonderful video! I think what you are doing in bringing awareness to Turner Syndrome is amazing and motivational! Best of luck in your journey and future projects!
I will spare the whole story up to the point today, we learned our unborn grand daughter has high probability of Turner Syndrome. Thank you Lord for this blessing. Yes, blessing...because about a week ago, our hope of our daughter in law delivering her was nearly taken from us. Thank you so much for the video and giving us a glimpse of your life. Our hope is restored. Peace be with all
You women and girls are awesome! What an inspiring video!
you're all amazing .. we all have our imperfections that we need to embrace
i have also a TS i am 32 years old now filipina and married already i keep on searching about my condition and i'm glad that i found this video i hope we can be friends ..salute guys and God bless you all
Great job! Can't wait for my daughter to see this when she gets older!
I CAME TO KNOW ABT THIS SYNDROME TODAY. GET INSPIRED BY U LADIES. A BIG SALUTE TO YOU, STAY BLESSED AND SPREAD HAPPYNESS. GOD BLESS US ALL.
Wow. What a great vid.Nice to know that there are others out there.
this was grate to watch as it had someone about the same age as me going through the same :) x
Hi ts sisters !!! i just want to say im also diagnosed with turner syndrome i think the hardest part for me was going thru the injections alone everynight thinking i wasnt normal and i can relate with thinking every guy will run away from me and i also thought my husband one day will be so dissapointed when i tell him i cant have children one day. i just want to say i know now none off that was ever true we are as normal as anybody else no matter what the obsticles . to my *TS BUTTERFLYS*
Ok so being 4.9 shouldn't be a reason for a female not being able to have a relationship. Neither should not being able to conceive naturally. There are men out here who would gladly have a relationship with a female with TS. I know I'm not alone. 👍👍
Glad I found this channel, I am 45 with Turner's and looking for a support group
My long term girlfriend has Turners. It worries me that someday we might not be able to have children, but i'll stick by her side no matter what. I'll feel bad though when we're 40 and I start to get fat and grey and she still looks young and beautiful :P
How many kids out there who've been neglected NEED loving parents ?
I hate the problems but I like being creative with art and videos.
I have rough times but I am happy when I make a friend happy.
I never gave up and people say I improve my gaols a lot.
@2011TeenageMom I came here from you and i thank you for helping me learn more about Turners. :)
Was that Vanessa and her daughter Lilly who you watched be cause I followed her aswell and miss her videos since she stopped making them. Would love to know how Lilly is getting on.
Great job, TSS Canada!
I dated a girl with turner's syndrome, though I knew about the conditon from a svu episode. The girl who has it is young on the outside but ages faster on the inside. Due to this they have no estrogen and thus need to take estrogen pills to supplant it. Sterlity can also happen as well as heart issues. We grew apart, mostly due to other burdens that were going on between us.
Right, which is why I hate myself. The part where you say we age faster on the inside really hurts. My life was ruined. Sorry. I feel like a freak. However, I have less issues than others.
I'm just wondering if having TS is similar to having dwarfism ? There are similar health issues with both conditions.
Tudor Miller hi I have Turner syndrome and I don't believe Turner syndrome girls have dwarfism because they are put on growth hormone.. but some are very very short and aren't necessarily dwarfs.
@@robinbrl you're not a freak. please dont say that about yourself
@@robinbrl Do we really age faster on the inside though? As far as I've been told, we're more prone to certain health issues but I don't think that means we age faster. Except maybe in our oocytes.
Hang in there Ladies...all of you are smart, brave and beautiful!
very well done, from a TS UK mother x
Great video
Saw this at the conference this year
I have this also. Didn't know I had it until I was in my 40's.
So when you were a kid, did you think you had dwarfism ?
If guys don't stick around, perhaps it's because they aren't the right guy for you. Concentrate on doing the things you enjoy doing and are good at, and they'll come looking for you.
Why do they run?
I have t.s too with short stature out of all other signs. That made me look 16 but I am 24 years
When were you diagnosed ?
I have this
I have a little over 30% mosaic TS. That means I have the XO cells in about a third of my tested blood cells, while the rest are chromosomal complete XX cells.
Mosacism of the XO type can also occur with an XY line, often this results in an entirely outwardly female person, who may have a higher risk for 'ovarian' cancer.
I'm horribly clever but do have some learning difficulties that require taking a little more time over some things, it's termed as Non-Verbal Learning Disorder...on the flip side, I'll remember verbatim years beyond an occurrence.
I'm one of them many who're verbally superior with TS.
I lead an entirely normal life, albeit with many extra Dr appointments, but realistically there isn't any thing I have had to face that isn't possible within the range of the normal human experience of someone with the full chromosomal set.
Additionally, I have few noticeable characteristics and so have to carry my Karyotype (the paper work of the test I had to show my TS) whenever I go to a new Dr, otherwise they think I'm crazy!
I have experienced infertility challenges, premature ovarian failure (this is when you go through something like menopause before the age of 42, I had symptoms since I was 18). I've also had other lymphatic irregularities and mild liver disease which was brought on circumstantially and is almost entirely resolved now.
Is Mosaic TS the most common type of TS ? What percentage of females with TS don't take growth hormone injections ?
💙💚💚💛💛💛💛
😞I'm Australian and have Turner syndrome the closest City able to treat me is 4 hours away and we have no specific Turner syndrome programs
I am treating it through growth hormone,blood tests e.c.t but have nobody I can relate to any tips?
There are online groups like Facebook where all the girls meet new friends and network together. My daughter has TS and we have learned a lot and found a supportive community there. It helps to know that there are many people out there with the same issues. You can learn and feel the same as the other TS girls instead of feeling different from others. Making a connection is helpful. Best wishes to you.
Me too lol I wanted to do research on it and found this video
I too have turner's syndrom i hate this turner' syndrom this always creat problem in my life it really hurts being different from other i am shame of my self i know it will creat problum in my future also bt this is bitter truth of my life
Exactly. It makes me angry because of it.
I have swag salute to all of you👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍
My name is Alexis at time of writing this I'm 34 an I have mosaic ts. Ts affect me any many ways and I try not to let it rule me I would like to connect with other with ts via social media
How many types of TS are there ? Which is the most common ? What percentage of females with TS, can conceive naturally ?
me TOOOOOOOOO!
My little sister might have this and I'm really worried for her 🙁
Does she look like she may have TS ? She could have dwarfism.
me too
I have turners syndrome, its annoying at times... main issues for me are celiacs and needing to take growth hormones
Me too
I have Turner syndrome as well and I hate love the syndrome that I have because I'm the second shortest in my grade
How much taller have you grown with growth hormone injections ? Are they overrated ?
At my school i am the only one that has this. I know because everybody is taller than me.😢
Is there anyone in your school with Dwarfism or Downs Syndrome ?
I have turners syndrome :/
Like if your doing a Project on Turner Syndrome.
hi!!! I have turners, it sucks, i am called cute,(the worst part is you get chubby -_-)I am constantly taking shots. Honestly, I am lucky, I do not have many symtoms, i have a webbed neck, i am not that short, i am (not selfeshly) more attractive than most of these women. But there are some negatives, i am not a normal height, i do have some deformed features. Thanks 4 listenein! -Ani
Your TS, really shouldn't define who you are. It shouldn't stop guys from dating, loving and accepting you. You see all these glamorous females, and you think they've got it all. But deep down they have issues with thier body, thier looks, thier height, skin, breast size, etc. So, really you're OK. 👍👍
i have turner's but few traits only
No webbed neck ? Or low set ears ?
Me too
I have this... I feel quite confused and upset because I don't really understand why it happened to me because other woman are born normally without this genetic disorder... and some are..Really confused more research really has to go into why this occurs. I live a normal life except not being able to have kids doesn't make me feel very normal... The only hope is that IV treatment that is available for me or adoption..adopting a child and making it feel loved.. idk it hurts sometimes i wish i wasn't born :/
+Liz Kang Don't say that. Even though you don't have 2 chromosomes, it doesn't make you any less human. :)
xSonicSeedrian Thanks it hurts so much though I keep seeing all these woman with babies and husbands it hurts my heart so bad that I wish I wasn't born :/
***** I don't want to get married I suppose..Having this syndrome makes me not want to find a husband :/ Hopefully I can adopt as a single parent..
***** Thank you :) I might be trying IVF treatment too but lots of risks apparently so its really disheartening I'm just really sad about my condition..
***** Thank you for your kind words sweet of you I just hope I can become happier I've been really sad lately after seeing ladies after ladies with their babies .-. but yeah I'll try
I have a Daughter 28yrs old she has Turner Syndrome She never met anyone with the same sumthin as hers i wish there was a cure for this. i think this is why it stop her from haveing a boyfriend. if there is someone out there that knews what she going threw with Turner Syndrome please look her up on facebook Laura Chavez
she also went to apply for SSI and they rufesed her. she hard little worker
Well having TS, shouldn't stop any female from having boyfriends or whatever. Many people without TS, can't have children naturally. It really shouldn't define you.
is there a possibility to have kids wth turner syndrome
No, I don't believe so
yoh, owk thanks
inga ndapa The chances are slim but there have been a few cases where woman with turner syndrome giving birth naturally,It mainly depends if the womb is fully formed or not.
sara wakefield thank you so much for sharing that info..
Not at the moment. Because of the lack of ovaries. So only fostering or adoption is an option.
I have Turner syndrome too
Amy Cimoelli sent me here! My little snowflake :(
I have Turner's Syndrome. I made a video on my channel about my life living with TS
I have Turner's syndrome
My baby is with Turner syndrome
I feel that I was shortchanged in life because of the Syndrome. Sorry. I don't really have any life, friends or can't even get date.
I have ts and I felt like this to
Me too
What stopped you from dating and having friends ? Your short stature ? Not everyone is into tall females.
@@tudormiller8898 ability not to have kids small boobs fat stomach we dont look like Kim Kardashian
How do u guys know if u have Turner?
Have u gone for a karyotype test?
If I were to prejudicially make assumptions about people with turners syndrome, I would say they are extremely intelligent, able and productive members of society. They have graduate degrees, contribute more than most people and are not overly tall. Again this is prejudicial as I only know a few people with turners syndrome.
I know one lady....Unfortunately she is covered in hair and moles and is hopelessly unattractive. Never had a boyfriend. VERY short and was unable to walk until 36 months due to her peculiar shape. She is academically very deficient. On the plus side she had heart surgery to prolong her life and works very well with children.
What is this obsession with being taller ? I'm short, and male, I've never really thought of my height being an issue. It's other people that have constantly reminded of my height, with insults, and unfunny jokes.
I hate turners. Its so unfair. Every guy i like runs fir the hills. The worst part is everyone tells you its not that bad. Yeah right.
Why would guys run for the hills when you have TS ? Yeah, some guys are shallow beyond belief. But most of us would gladly date females with TS.
You guys look relatively normal. I think when in 'childhood' you guys look more abnormal. Somehow you guys grow out of some of the features of Turner's condition. Most likely due to estrogen supplementation.
Oh you mean the low set ears, and webbed neck or hands ?
I'm sorry, but this video made me mad in more that one way. Turner syndrome doesn't only mean you have only one X chromosome, it can also mean that just part of one is missing. Also, it sounds TOTALLY staged and for the most part, is boring to watch.
Thank you for saying that I excited about the video I until I watched ...then I was highly irritated they really should not have messed that up
I actually have turners syndrome and agree with you guys (I’m 13)
How many types of TS are there ?