Brother Says Goodbye to Soulmate Sister, VLOG, Mom & Son, Jorde/Madsen, [Overcomer]

#vlog #momsonvlog #overcomers #shorts
Brother Says Goodbye to Soulmate Sister, VLOG, Mom & Son, Jorde/Madsen
Logan Madsen, an artist, had to say goodbye to his soulmate sister, Heather, a writer, on July 23, 2021. Our hope is that by sharing the closure Logan received from seeing his sister's body after her passing, others will be able to better decide if they want to see their loved one's body after they pass.
Heather and Logan's relationship wasn't typical as they were both born with 2 rare syndromes: 1. Miller syndrome, only 30 people in the world, makes their bodies look very different than normal bodies, especially their arms, hands, ears, and faces, and causes chronic pain because it affects the formation of bones and muscles. This made their connection closer than most of us could ever imagine. 2. the severe lung disease, primary ciliary dyskinesia, PCD, which has threatened their lives as long as we can remember...since birth.
We were gifted 44 1/2 years with Heather and are grateful!
You can watch the celebration of Heather’s life on Debbie Jorde TH-cam:
• Full Event: Celebratin...
Learn more about our family on Debbie Jorde TH-cam channel, where you will find videos of talks about accepting and overcoming challenges we’ve given to the general public, medical students, caseworkers at government offices, medical personnel, caregivers, and others. You will find other videos as well, such as a new Mom and Son Vlog, news stories about their family, slide shows of Logan’s art, and more:
Debbie Jorde TH-cam Channel Link
/ @debbiejorde
Visit Debbie Jorde's website for personal stories and tips on how to overcome challenges:
www.debbiejord...
Visit Logan Madsen's website to view and purchase his paints, prints, and greeting cards:
www.loganmadse...
Watch the award-winning documentary LOGAN'S SYNDROME on Amazon and other streaming sites: Amazon link: amzn.to/2TDguhx
Watch Debbie Jorde and Logan Madsen’s Mom and Son Vlog: • VLOG: Mom & Son, Q & A...
Debbie Jorde’s memoir, EIGHT FINGERS AND EIGHT TOES: ACCEPTING LIFE’S CHALLENGES, is available on Amazon.
www.debbiejord...
Watch the trailer to EIGHT FINGERS AND EIGHT TOES: ACCEPTING LIFE’S CHALLENGES : • 2-min Book Trailer, EI...
Every year, for the past 30 years, Debbie, Heather, and Logan speak to the first-year medical students in their human genetics course in Dr. Lynn Jorde's course. They talk about living with 2 rare syndromes, and autism. Debbie shares what their births were like when they were born in 1977 and 1980 before good scans were available to warn her about their disabilities.
Debbie Shares the Births of her 2 Babies with 2 Rare Disabilities in Dr. Lynn Jorde's Genetics. Debbie Jorde
• Mother Shares Births o...
Living with 2 Rare Syndromes & Autism, Logan Madsen, Artist, Speaks in Dr. Lynn Jorde's Genetics
• Living with 2 Rare Syn...
Living with 2 Rare Syndromes & Autism, Heather Madsen, Writer, Speaks in Dr. Lynn Jorde's Genetics
• Living with 2 Rare Syn...
Debbie Jorde is married to Dr. Lynn B. Jorde, Chairman of the Human Genetics Department at the University of Utah. Dr. Jorde describes Miller Syndrome at this link:
• Dr. Lynn Jorde Describ...
They also speak publically about accepting and overcoming challenges. Watch their talks on Debbie Jorde TH-cam playlist, accepting and overcoming challenges: • Accepting & Overcoming...
Debbie's family became the first family ever to have their entire DNA sequenced and the first family documented to have two children born with Miller syndrome, which affects only 30 people worldwide.
KSL News reporter, John Daley, interviewed Dr. Lynn Jorde, Chairman of the Human Genetics Department at the U of U School of Medicine and President of the American Society of Human Genetics for 2011 about sequencing the entire genome of his wife, Debbie Jorde, and her children, Heather and Logan Madsen.
Scientists found the gene that causes Miller syndrome and also the gene that causes Heather and Logan's lung disease, Primary Ciliary Dyskinesia (PCD) answering their 33-year-old question, "Why did this happen?" Heather is a writer. Some of her writings are published in "Eight Fingers and Eight Toes." Logan Madsen is an artist.
Watch the news stories:
• 2 Rare Diseases Miller...
Sadly, Heather Madsen, writer, and public speaker passed from advanced endometrial cancer on July 23, 2021. Although Heather won’t be with us physically to record our vlog videos, she is always in our hearts and we will share stories, writings, and experiences with and about Heather. You can watch the celebration of Heather’s life on Debbie Jorde TH-cam:
• Full Event: Celebratin...
We are all overcoming challenges together! We are overcomers!
Thank you!

[@susangeerdes7653]

Thank you for sharing this. Grief is such a deep and difficult human experience. Treasured siblings.

[@debbiejorde]

Thank you so very much!🌷 I appreciate your message !💕 Sending you love!❤️