Hi there bless you , I hate medicals it is so stressful, I've got pilonidal sinus disease which has damaged my spinal nerves and a prolapsed disc l5 in my back pressing on nerve roots, and a double groin hernia, my legs burn like they are melting inside when I try and walk and I lose my balance sideways and backwards, like a drunk man .I have internal nuropathic itching inside my muscles and tendons in my butt as I fell down stairs and my coccyx tailbone is stuck in my rectum. It has given me anal fistulas which drives me crazy with itching . I cant stand up straight as my gait makes me lean to the right . I'm not looking forward to this pip. I hardly go outside as it's too painfull .
You had a good phone assessor. My assessor was friendly, but she denied me any points whatsoever. Whatever I told her on the phone, she told the opposite. I struggle with vertigo, fatigue etc, told her i struggled to bathe alone, cook alone, walk alone, etc, but even my reconsideration was refused. Struggling all round
We had exactly the same with my daughter. Do fight it. We applied for tribunal. The day after the DWP should have submitted their evidence, they rang me, had a conversation, then changed the award to high rate for both from all zeros! I even got an apology.
@@samiam2603 Sorry a little lost with "the day after the dwp should have submitted their evidence". I applied for tribunal 10 years ago, but it still got denied, I've tried again on this occasion but not holding my hopes. i haven't even got a copy of my assessment to prove what i said x
I’ve been trying to claim for invisible issues (anxiety and migraine) and the lady assessor was really lovely to me too, but also scored me zero points on everything. I’m aware PIP is a scam and they’re told to deny essentially every mental health case, but it’s absolutely soul destroying. I won’t give up though, I simply can’t afford to give up.
I 1st applied for PIP on december 23rd 2019....I was declined then put in for a mandatory reconsideration then got declined for mandatory reconsideration...I left it 3-4months then re applied...the same happend I got declined...then put in for a mandatory reconsideration got declined again . this time I decided to go all the way and got solicitors involved and took it to a tribunal ..the amount of time this took was horrible and shocking ....I actually won my appeal at a tribunal on the 4th November 2022..and was awarded £8,542.00 in back pay I was awarded 345 amonth back dated from my original date of claim in 2019 of December and they also included rate of inflation into my backpay ...this was a horrible horrible process and there utterly shocking ....if any1 is reading this.....If u get declined...TAKE IT TO A TRIBUNAL more than 60% of all claims get over turned .
@@lfc4269 this is really motivating. I haven't yet gotten to the point of involving solicitors and hoping I've got enough evidence to win at tribunal, but definitely would go through that process if it gets to it. Also really glad they back paid you, it's just the money you should've gotten first time around! Not gonna let the those soulless creatures win
@Emma I tried to reply to your msg with my email telling you if you struggle further down the line 2 get intouch.....I got declined every single time by PIP my struggles where with mental health issues I had mountain's of medical evidence from the last 5years ..my solicitors told me It was one of the largest amounts they'd received and I stil got declined everytime ..untill I took it to the tribunal .....plz don't be fooled by them if you have anyway of me been able to give you my details plz let me know and I'll help u out
@@lfc4269 My God. I didn't realise you had to pay for solicitors to go to tribunal. That'll be a no way for me then! I'm horrified. I thought tribunals were free. 😭
Congratulations. It's annoying these assestments are done by healthy people, few years back before I got these problems, I would have probably judged others in this condition just as bad as now they look at me. Hard to know how bad it can get if you haven't experienced it yourself.
It is difficult to know how bad things can get for people, or understand how it impacts someone's life. I guess it must be really hard to assess this especially as like you said if you haven't experienced it.
It's also the fact that they're under qualified & apparently there's been rumours for a while that they are encouraged to turn down cases for financial gain. Isnt it ironic, the ppl accused of "scamming the benefits system for financial gain" are scammed by the people within the benefits system for financial gain
dont be gulable into thinking because they are nice during the assement that is has a difference in the outcome,these are people who you will most likely never see or hear again ,what i do find amazing is when blatant evidence and lies are told by these people on a lot of cases is that they are not held accountable for it after a tribunal ,they should be ,its a criminal offence to falsly claim benefit ,if your denied it because of an assesser lying that should be too
What a lovely video. Thank you so much I have an appointment in a few weeks and it’s nice to know that the people are nice. I have been shown real kindness by the people at DWP over the last few months since I become unwell. I have been able to thank the people that helped me and that is a nice feeling as they need kindness as well. Good luck and I hope all goes well for you.
My mate told the truth and they twisted and lied and only gave her 2 points . Ask yourself why give her pip when it asks if they can understand things ?
Its basically a lottery: Depends on whos lap your case lands on, and what mood their in. Its a very unfair process, but luckily mental health issues are being taken more seroiusly now. Anxiety was the 7th most awarded health issue out of a listed 500- so i think pip claims are getting more fairer as time moves on. Its just a shame for the past claiments that have been over looked. Goodluck to you all though ❤❤
I’ve had one nice assessor who totally understood fibromyalgia. Others have been nice but then wrote awful things in my report. We shouldn’t have to go through this.
Interesting video ...been refused twice for PIP I have a brain injury following surgery for Hydrocephalus which has resulted in epilepsy and cognitive impairment especially my long and short term memory. I feel that I was put on trial by the assessor and I was made to feel worthless and a drain on society. The whole one size fits all matrix tick box system is totally unfit for purpose.
My daughter applied for pip after losing her job as a carer with the NHS she's 31 and has suffered with gynea problems since 15 years of age she was diagnosed with endometriosis a few years ago to look at her any other person would say don't look much wrong with her but to see her suffer with the pain and unable to walk not just that the bleeding and the anxiety it all causes her seniors at work were neither supportive or put recommendations in place for her to continue her work even threatening if her sickness did not improve over 12 months she would be taken to panel and quite possibly dismissed some days she would get up for work in pain and pumped full of pain relief go into work to care for others the decision on her pip assessment was she didn't sound distressed enough or in pain this was a phone assessment and the lady who initially interviewed her said oh I'm sorry you lost your job due to sickness I didn't think the NHS did that well they do and it's not only my daughter that suffered with threats of job loss through a illness and lack of support and duty of care
The first time I applied for dla I was given the lower rate and that’s after I went to court and appealed it. This time I was awarded the higher rate but I do feel like your made to jump through hoops. So very pleased for you Laura it’s amazing! 😊
My son had crital accident 2003 suffered brain injury and collapsed lungs but dwp only give him lowest pip. He will love n care in his life always. Carers need advice before role begins you are left in utter poverty if have mortgaged house.. Basically rent you can't pay.
Been there and even had a tribunal only to have to reapply a few months later. It was so traumatic and the assessor acts one way but denies your pip yeah I have a severe disability. I was so traumatised and at the same time the last 3 years of madness started and I could not face year another appeal and just left it.
I live next to a pip assessor,who has told me me that after stopping being an assessor. They are not fully trained in anything,apart from reading a computer screen. They get £80 per refusal,and that is better for their pockets. Never say sometimes,maybe,or anything they can twist. These people are profiteering,never trust any of them,they try and be friendly,but really after you to make a mistake they can use against you.
I have several health issues ..had the accessment got the lower rate ..at the time I was doing a bit of cleaning job 2 pay my way ..Next it was interview under caution and pip was dragggg off ..I reapply 3 yrs later had d interview accessories on d phone ..and got no pont ...
Few years ago i had a accessment i went there and it was full with people waiting, i was overcome with stress panic anxiety i had to get out of there, i phoned pip told them what happend they reccomenfed a home assessment which iv had helpd me big time fortunate to have understanding pip workers.🎉
I'm also in Wales and lost my PIP application when my condition was worsening. I've decided to use advocacy this time as I just don't have the confidence after the trauma it caused last time. It sounds like you got a more than competent assessor, but so many people are still being turned down unfairly I've read. My main concern about my invisible chronic condition is I don't have anyone to really corroborate my limitations. Last time my consultant and dr wrote they supported my application but they only really confirmed my condition. I don't have a support worker etc. I have endometriosis that has left me unable to walk or sit for long.
Iv had stammering life long..it's a speech problem. Iv always struggled with this, iv had to quit studies on a number of times because of my stammering, iv had to pay for the courses in full even though I quit because of my stammering. This had been causing me severe stress and anxiety life long. It's hard to explain this to anyone. Iv suffered in silence life long.. Is stammering a disability and can I claim pip with this? Iv been out of work for few years. And lost all confidence to engage with people and this stops me from looking for work. No one understands stammering..only people with stammering understand stammering.. It's a physical illness and a psychological illness..
thanks Laura. Wife has an inoperable brain tumour, on the telephone they reduced her points by 50%, I had reported a change of circumstances which generated the telephone interview. Clowns.
I applied for my adult son who has anxiety and agoraphobia.But they casually ignored everything and said he didn't have anxiety as he attended a mainstream school and only got support at primary school.Nothing but mindless subtefuge.
I agree the lady assessment was very patient, but was refused because I sounded competent on the phone and answered all the questions honestly and basically confident and relaxed. Firstly I a qualified telephone sales person and because I was able to prepare for the call I came across well, but that was used against me.
@@lauraironstalksms they do assess on how you sound if you are cognitive and can explain whats causing issues this actually goes against you as you know what you are doing - every question is to trip you up and the assesor doesn't have the final say - its still down to DWP no matter what they write down - also when the assesor writes down answers they are in short hand so 70% get refused
Got my telephone assessment tomorrow so just doing some browsing as to what to expect as I’ve heard some bad stories. I have epilepsy which I’ve had for years but recently have unfortunately been diagnosed with heart failure. Both don’t do well around stress so I’m trying to stay relaxed! 🙏
Ive had Epilepsy since childhood .Been on DLA and then PIP for years. Had PIP stopped a couple of times , fought it and won. Going through it again . Not the assessor or decision maker, this time gp. Disappointed that my award was turned down but I was angry and upset for the reason they gave for stopping it. NO EVIDENCE OF EPILEPSY . GP decided to leave it off the factual report ! DWP have my prescription which has on it my medication for Epilepsy . I really don't know what they're playing at. Of course it's caused more seizures .Hope anyone out there fighting the DWP for anything wins. Good luck !
just ask for a recording off the assessment is the number 1 advice i can give anyone because they lie and if ya dont get a recording then you have no recourse to argue the facts and make complaints and get the right descicion
It's really good that you had a positive experience and there are some really helpful DWP out there now more so I suppose then in the past but it's not true that this happens in every case unfortunately. I have just gone through a pip review which I now have to go through to tribunal and the assessment was 2 hours long and it was like an interrogation. I had a support worker with me on the phone at the time in a similar way to you and she couldn't even stand the whole meeting it was so long and it was literally like a legal courtroom where she looked for any thing that I could slip up on even a minor thing and even falsified some information which I have proof of because I recorded the phone call. Quite considerably actually. I've never had a good experience with the PIP team sadly although I was granted it previously on it mandatory reconsideration but not this time. I've just applied for ADP as well in Scotland and the application form is twice the size of the PIP application with some really ridiculous questions which they agree or ridiculous as they are trying to work them out. However I think it's good just to paint a balanced picture for people that it really depends on who you get on the day and how many assessments they've done if they're worn out etc etc and it can be truly brutal and completely randomly unfair. Previously I've had 0 points and then gone to 8 points to get the award but without any real justification on the points. I've now got to go through my first tribunal and I'm learning about that as I go. But it is a very strange process so far and I have found the tribunals team to be very helpful which has helped. I know you did have a bad experience the first time and I know that my friend did have a good experience recently as well but when it's bad it's very bad 😔
I went through a very similar process. You hear so many horror stories, but mine was entirely positive, although I did find it frustrating having to answer the exact same questions on the phone as on the form (which I did online, my hand writing is illegible, these days) but the assessor was amazingly patient. I was told I'd get a decision within about 6 weeks, but about 12 days later, the "back payment" went into my account, long before I received the "award letter." I was very careful not to access it, until I'd received the official confirmation, just in case there'd been a mistake! 😱😱😉😉
I was in a similar boat, I was recently diagnosed with autism spectrum disorder and needed to apply pip, which I did (went through the whole process, the only that stressed me out was trying to get there on time, otherwise the assessment was calm and the lady that assessed (my god) was so understanding and nice. I easily cooled down. I usually hear mad horror stories about pip, which put me off ever considering it in the past (back then I had no idea I had ASD). Well....my life has done a full fat 360 on me 😅. I have been rewarded with my pip (I'm not sure what my daily rate is...). But I guess patience is key.
I've got my assessment next week sometime over the phone this will be my first assessment since 2018 and I don't remember what I said in the face to face assessment then and I don't remember what I wrote in the paper I sent off a couple months ago I hope this phone call doesn't last long
Had my assessment in January and after a tearful phone call was told I'd hear within 6 to 8 weeks,more like a week and half as my reply landed on the door step on my birthday in february saying zero points on every category
I've got anixeity depression and other illness and on tablets prescribed by doctor and I got assessment done but carnt claim pip it makes me angry when the druggies and aclolics can claim it and get over a thousand pound a month I've worked all my life to pay for there habits
Right now I’m waiting for a text message to come through to say that they’ve got my PIP review form - the wait is that annoying. How long does it bloody take for them to do it? They should not just leave things in piles 🤬🖕, they should show more care and just get the job done. I want to be settled knowing they have it.
With certain diagnosis such as MS and Parkinson’s they should automatically award you yet they still want you to justify and answer many questions...it’s a chronic condition which isn’t going to get any better. My husband has recently been diagnosed with PD although symptoms started at least 2 years before diagnosis, he’s mental decline is far worse than his physical decline... Mr Joe Bloggs doesn’t know that PD is sooo much more than physical... He was awarded high pip for health and low for mobility... this was a year ago, he’s now reapplying ( well I am on his behalf) to try for higher mobility as he really should’ve been awarded it the first time and we should’ve appealed..
It's very difficult all around, I'm with you on that I think chronic conditions that are life long which are not going to get any better (unless they find some miricle cure) should be awarded automatically. But it's like you mentioned PD is much more than physical for your husband and many others out there who have this condition. I'm so sorry that you both have to go through this, it's totally unfair and very stressful for you. I wish you all the best in getting the outcome that you should be entitled to.
Thank you for this information. I have my pip assessment by phone on Tuesday afternoon. I agree people who don’t have apparent physical signs of disability are too easily disregarded and it is so unfair. I have heard some awful experiences about the assessment process and am losing (more than normal) sleep because of it. But you have given me some hope by sharing your journey. Thank you and I wish you health and happiness. Xx
Hi Sally, I'm so sorry to hear that the worry has been causing you sleeping difficulties, it should not be like this at all for you or anyone! The link I suggested is amazing, please look at this before you go into your telephone call, they have a Guide to PIP claims and reviews 108 page guide to PIP claims, medicals and the PIP review form (AR1/1043). New 29 May 2020: now includes 9 pages of detailed guidance on PIP telephone assessments. This is the link again if you need it. www.benefitsandwork.co.uk/personal-independence-payment-pip I did pay a small membership fee to join for advanced info, I think it was £10 or something, but the information they provide is absolutely invaluable. Have a look around the site, and very best of luck to you x
I 1st applied for PIP on december 23rd 2019....I was declined then put in for a mandatory reconsideration then got declined for mandatory reconsideration...I left it 3-4months then re applied...the same happend I got declined...then put in for a mandatory reconsideration got declined again . this time I decided to go all the way and got solicitors involved and took it to a tribunal ..the amount of time this took was horrible and shocking ....I actually won my appeal at a tribunal on the 4th November 2022..and was awarded £8,542.00 in back pay I was awarded 345 amonth back dated from my original date of claim in 2019 of December and they also included rate of inflation into my backpay ...this was a horrible horrible process and there utterly shocking ....if any1 is reading this.....If u get declined...TAKE IT TO A TRIBUNAL more than 60% of all claims get over turned .
Thank you for this, I'm considering giving PIP a go but I'm worried because it's I'm unusual case that seems to slip between all the cracks. Nothing to lose I guess?
For me it was easy, and only took two months. Just had to send a medical record, and explain my current and past history to be approved after 2 months and 4 days. Condition is autism and some other things.
Took 38 hours filling in a form, over days Assessment took half an hour on the phone.( I'd had higher rate for both) Complained to MP. Appealed. 2 and a half hours mandatory reconsideration with a 3 way call. It was horrific. I was reinstated, but it was months of horror, and through lockdown. All our experiences are different. Glad yours was OK.
I have one on Monday I dont think they will help me. Even though I'm really broken lol ( 41yo with ddd) can bearly walk if pip refuse me idk what I will do as financially we as a family are at maximum with out goings
I 1st applied for PIP on december 23rd 2019....I was declined then put in for a mandatory reconsideration then got declined for mandatory reconsideration...I left it 3-4months then re applied...the same happend I got declined...then put in for a mandatory reconsideration got declined again . this time I decided to go all the way and got solicitors involved and took it to a tribunal ..the amount of time this took was horrible and shocking ....I actually won my appeal at a tribunal on the 4th November 2022..and was awarded £8,542.00 in back pay I was awarded 345 amonth back dated from my original date of claim in 2019 of December and they also included rate of inflation into my backpay ...this was a horrible horrible process and there utterly shocking ....if any1 is reading this.....If u get declined...TAKE IT TO A TRIBUNAL more than 60% of all claims get over turned .
I'm really glad it worked out for you in the end. Though you should never have been made to wait that long. Well done fir keeping the fight, I hope your pip/ the back bay has been helpful to you.
@Abigail Barfoot thanks it has so much I'm so grateful for everypenny I got...I can now afford and plan to do things to keep my self occupied and try get out more..I've had 10driving lessons since and been to Spain for a week I'm focusing on getting better ..that money has done so much ..Cheers abigail
@@lfc4269 I'm so pleased I've always been lucky with my pip awards as I've always had help from social workers and professionals who have known me for years. I was diagnosed in 2020 with the sames rare syndrome as my youngest daughter which has its only thanks to advancements in genetic testing that genetisis were able to piece things together and found the changes in nr2f1 genomes that cause bosch boonstra schaff optic atrophy syndrome. It only affects 30 people in the world at present. The gene was only identified in 2016. Two years after my first daughter was stillborn. I have now been awarded the universal credit LWCRA which means I won't need to worry about looking for work ,attending regular work related activity interviews or facing sanction for non attendance as im also the main carer for my daughter. I was recently diagnosed chronic nerve pain, migraines/cluster headaches and focal sensory seizures caused by a visual cortex Benign tumor glioma as well defect caused by syndrome i have. I along having high functioning ASD dyspraxia, suspect complex ptsd/eds (still seeking diagnosis) and being registered blind this mean working would make it stressful for me.
@Abigail Barfoot omg abigail that's alot of stuff....I hope and wish for your life for you and your children to be the best it can be and many wonderfull times coming in the future...I also recive limited capability allowance aswell ..its a nice feeling to have PIP aswell now ...gratefull for everything..and now to mend my mental health...I wish you all the best darling
I ended up getting higher mobility and normal daily living allowance. I’m really pleased and would advise anyone else just to be relaxed and honest during assessment.
Congratulations! I know how much it meant to you. You were very informative in the video and covered a lot of ground and I found it very interesting...so thank you for that. I hope it helps folks out. Best of luck to you and everyone.
A friend of mine just applied she's been diagnosed with a life limiting condition COPD and heart problems too she works and has done all her life and I have never seen her so ill she never had sick off work but now it's constant some days she can't make it in some days she comes in and has to leave 2 hours after being in work after her assessment she was scored low she noticed anomalies in the report contradicting what was said and written I told her to contact her boss at work to get a full report on her sickness and how her condition affects her ability to work it seems that those who assess for pip don't take into account the different levels illness affects people it seems you need full lack of capacity or mobility to qualify .
I've been declined twice now. They really don't want you to have any money, not a penny. This is due to the Governments handling of the process, and how they need to keep scammers from getting free money; and, there are scammers jumping on the band wagon. But I won't give up, as this is something that I need to do. My health has deteriorated so much in the last 4-5 years.
No one can explain why I was denied pip after being om medication for 30yrs with depression and bdd but apparently the fact I turned up for the interview went against me...the fact I got there marked me down. The fact I was made up went against me ( body dismorfic disorder is where you obsessed ti the point of destruction and distress over how you look) 30yrs of doctors reports and hospital reports and even a stay in mental health facility for fear of my life and nope ..it didn't matter because I made it to the interview with make up on. Literally every person from agency's tell me I need to apply but that experience means I have no confidence to apply again
i think you would win, with a no fee solicitors, they would take all the documented evidence you have and overturn them no issue. remember benefits staff are not taking it personal with you, theyre just processing you - so you have to take it up with someone to fight your corner. and they have a vested interest to win for you.....solicitors love clients like you,, you have tons of paperwork.
Laura, I’m so proud to have found you, and wish you well. I’m about to start down the P.I.P. route due to being retired early on health grounds. I’ve become really Ill in recent months, and knowing that I’m not alone helps me. Best wishes. Chris R
Hi Chris, I'm really sorry to hear that you've had to take early retirement because of illness, it's very difficult to accept. You're absolutely not alone, I wish you all the luck with your PIP application. I did a video on how to prepare for your PIP assessment, it might help. Take care and let me know how you get on.
It’s a joke pip is i waited 8 weeks just to be declined I had Suffered slipped disc and struggling to do simple things in life but yet they reckon I don’t need help and live on fresh air and also universe credit don’t get me started they won’t give me penny the way they treated u makes want end it 😞
That just doesn't seem right. I thought the process here in the UK was challenging! Well considering the changes which are happening for you now I really hope that you are able to get some support. I have everything crossed for you.
I am planning on making a video here soon after I see my neurologist to update everyone on my progression it has been a rough year for sure but we will get through it
I fell down my stairs last May and I broke my spine in two places, broke two ribs and I also broke my right shoulder blade. I’ve been claiming PIP for ten years for my depression and very sore, dry hands … My PIP was stopped when I broke my back due due to the hospital saying I was well enough to come home … fortunately they reinstated it but only for my depression and hands, they will not take into consideration that my back was broken, I spent three weeks in an induced coma and I was also on end of life care. This was my first time in hospital and I’m now getting help for PTSD due to my injuries, I’m 62yrs old.
It's still an unfair system. I'm genuinely happy you got the award you deserve, I wish everyone else did too... It's especially hard on those of ethnic minorities etc.
Thanks Daniel, and I do agree with you. I feel very fortunate that I got awarded with PIP (even though I shouldn't have to!) our system should be based on disability not on ethnic minority... Can't comment on this as I don't know the stats 🤷♀️
I went through the M.R. Refused. I wanted to attend Tribunal, but I have really bad episodes of Gout. This saps all the energy out of my body. Tiredness and aching. Because of this I couldn't be "arzd" I have submitted a PIP Review. But eleven months later I got a text saying they were processing my review. Still waiting. To cut a story short. I "will" be going through MR. And then Tribunal. Not because of being greedy, but I want what I am entitled to. Because of the above the DWP have denied me of thousands of pounds to which I am rightfully entitled. I have a Brain Injury that affects me every minute of every day, this both Mentally also Physically. But I look "Normal" to folks. "There's nothing wrong with you" I am told. This infuriates me **Thank you for your clear explanation**
That's the issue when you look OK, but you don't feel OK. I hope everything goes well with your tribunal and that it's not too stressful for you. Good luck and let me know how you get on 🤞
I'm pleased for your successful 😀 outcome 👍 with PIP. I had my face to face meeting 2 weeks ago and now I'm awaiting the outcome . I'm not expecting anything but if I'm awarded a payment that will be helpful 🙂...
@@lauraironstalksms thanks, I'll let you know how I get on. I was diagnosed recently with High Functioning Autism and advised by the health centre to apply. 😊
For my first PIP claim I had to have two assessments after mandatory appeal In my first assessment they scored me zero second assessment I scored 4 went to tribunal where there is a judge because it’s a court a doctor and a disability specialist and scored 28 awarded full PIP never give up it’s what they want
on the pip downloadable notes it says to only scan and upload documents you already have and not to request documents because it will slow down the claim. i have recently started my new medication as do not have my prescription printed out as they are sent directly to the pharmacy , also i do not have any letters from GP etc. can my claim still be accepted without this supporring evidence ?
Hi Laura, many thanks for your informative video clip, I, ve just had my pip video assessment today , it tooks 45 min and at the end of assessment, I have been told that I will receive the letter from dwp by the next 8 weeks, so do u think ,is there any hope to get pip?? Many thanks
A great deal of the process is how questions are answered, both written and verbal. Never say words like 'sometimes', this is a 50/50, we don't have our conditions 'sometimes'. If asked how many minutes you can walk for, your answer, if you have limited mobility, has to be i don't measure my walking in minutes, but steps. You have to bring your conditions into the environment and let them know what it is like 'most of the time'. The 'enemy' is not the assessor, but the person with no medical background who issues the points for each of the descriptors, from the information provided. Under all circumstances, get a brief summary from your GP's practice manager, this is free and legally should be made available to you and takes no more than a day or 2 to collect. The DWP will not contact your GP, or any other medical team, regardless of what the GP receptionist tells you. If you have no medical papertrail, you will receive 0 points
I applied in past was declined now InshAallah going to fill in form online to best of my knowledge n hope n pray that they deal fairly it’s not about money it’s about being treated fairly n if their is extra support available why not take chance, I have severe depression anxiety n fibromyalgia under GP n well being so I am not sure how they will score n what u have to say or do they notice ur body language or they think u talking fine so ur fine I don’t lie so I be honest but I need help as I am struggling with 3 kids n partner helps out as well does that help score if he does most things for me?? Also I am on UC n LCWRA I don’t know if that all helps… and also is it better to have over the phone, video or face to face in UK
@@lauraironstalksms because I have nothing wrong with me clearly it's all a lie, the NHS lied the royal navy lied...but the DWP speak the truth.... It's a crap stressful process which as you can see gets me angry I've been consistent for 10 years they have not been, I've had different decisions each time
I was transferred from DLA to PIP in 2019.I have MS and was diagnosed in 1992.I was on high rate care and high rate mobility on DLA for years,when i had to transfer i had my assessment at home.The assessor was a nurse and had no idea about my MS she made out i was faking it,and i knew i would get marked low,i did and i lost my mobility and just went down to standard care. I was too ill to fight it and could not ask for a mandatory reconsideration as i was too ill and did not want any more stress,so i just accepted the award of standard care PIP. I asked for the report and she lied about most of the assessment.She said to me i will not ask you to walk as i can see you are exhausted.... she put on the report that i refused to walk and she said i could walk 50metres when i told her i couldn't walk more than a few steps. So when my PIP review was due last year i was worried to death...my assessment was in January this year and i phoned PIP when i got the letter of the appt day and told them i wanted it recorded by them,so they said your appt will have to be 2 week later which i agreed to,has they needed to find an assessor that recorded because not all of them like to🤔so my appt day came and i got the nicest nurse,she listened and was very polite and did not try to trick me like the last one did.They also sent me a copy of the recording,by courier and i also asked for the report,which came 3 days after my assessment😮I could work out how many point i had and it was enough for enhanced care and enhanced mobility🎉 i was so pleased,she had reccomended the award for 5 years,but the DWP case manager has awarded me it for 10 year🎉 so i would advise anyone to ask for the assessment to be recorded and ask in good time before your appt.
Hi Laura...thank you for your bravery...honesty...and beauty....your post must have helped hundreds...I claim pip's..due to epilepsy...and..like you...went through the whole procedure on my own...the secret is being honest..not just with them...but with yourself ❤
Hi Patrick, thank you for taking the time to write such a lovely comment. You are right about the secret 😊.. And in life there is no better honesty than with yourself ❤️
Hi Laura...No!!...May I thank you for your lovely responding reply... since 2009..(after I fainted and cracked my head open )....I was totally fine....it took 12 yrs to swallow my pride to apply for this benefit .... I now try to help others who went through the stress and worries...but with you posting this lovely unselfish post you've help so many... I came across your post by accident....I'm very glad I did....please take care and look after your beautiful smile and kind heart ❤️
As you know Laura...in life....there's givers and takers...you truly..(like me )...a givers.... you are creative (but the way you talk) and...very caring...and true...I have been honoured communicating with you.... and my favourite song ...May I dedicate to you...(please listen to "something inside so strong" )...please take care x
Hi, I have ruematoid Arthritis, today i attended assessment. The lady was nice ,i told her exactly how i felt at one point i just broke down & started crying as i was telling my pain. I also have Dislyaxiya & tinnitus last week i also found out i have fibromialgia. I really struggled a lot of things & there are times i spent most of the time on my bed as i have no energy & very tired. My husband helped me with everything like giving leg massage, house work & more. I am a carer for my Autistic daughter . Do not know what the outcome will come.
I've got very bad asthma n sciatica now .but they will now expect it n I'm going to court soon as I've have to get someone to help me now .I'm now counting the days down now till it goes there now ??😮
I was same, filled in my forms myself and didn’t sugar cat it, just told her my difficulties. The lady who did my video assessment was so lovely too, she made me feel listened to and validated,
That's so lovely to hear. I do personally feel that filling my own forms in was better as I know what's going on with me! You just need to be as honest as possible about how your condition affects you.
May I please ask you a few questions please? I'd like it to be private, ( an assessment question ) but don't know how to send a direct message. Thank you so much for these video's. You are inspiring.
I am at the early stages of my diagnosis with possible primary progressive ms. My full diagnosis should be confirmed in the next couple of months. I am still working full time. My main issues at the moment is my balance and trips. Although I have other symptoms they are not affecting aggressively just yet. Do you think it is worth me making a PIP application once I have a confirmed diagnosis
Hi Shahanara, I think that applying for PIP is all based around how your condition affects you and your daily living. I think it's wonderful that you are still working full time, however with MS you never know when that might change. My opinion on the PIP approach is apply if you feel that your condition affects your everyday life and therefore you need the help financially to be able to assist you in ways to help with your independence - whether that is buying aids, or helping to be self sufficient if needing to leave work. In my case I lived without PIP for 14 years but now I am at a point in my life with my MS where it affects my everyday living. I think if it affects you with your balance etc, then yes this is a consideration for applying for PIP. I wish you all the best.
@@lauraironstalksms thank you Laura for replying so promptly. I may reach out to you again for support in the future as it’s really difficult to connect with individuals whom are based in the UK. I hope that is OK?
Great you had a fair assessment 👍 There’s been times over the past few years I’ve been advised to apply for PIP but I resisted the urge. Couldn’t predict I’d be better or worse after going through it all 20 years ago - MS related. Hear bad experiences which just reminded me of then, I also did get the legacy award so there’s no updates required unless personal health deteriorates. Current advice seems to be for Scot’s to hold off if they are in my shoes. Benefits are being devolved to Scottish government next year I think. Renamed - Scottish Disability payment (I think). there’s never been any factual data releases of everything but there’s some promises and some brief press released info. 1 to keep an eye on. Il prob be amongst the 1st gen of Scot’s to experience that so I can only hope lol My brother and his wife are both employees in civil service at pensions dept and they be going through the switchover too. Not something we talk of much a) u don’t wanna talk of work b) I don’t wanna talk of his work. But he has some tales to tell & can sometimes give passing advice Honestly in jobcentres etc there’s been a completely different vibe for the past couple years also up in Scotland but too many other factors to conclude it’s just in Scotland Parliament in England + elsewhere have no doubt taken note and concluded it would be better to follow suit. Politicians just never wanna be bettered in ethical standards in modern day
Hi John, thanks very much. Yes I agree, you almost have to weigh up the pros and cons of going making that initial decision to go through the PIP process because it isn't easy - and I mean it takes a toll on your mental health, I don't say that lightly either. Anyone who's been through a 'bad experience' will know what I'm taking about. If how you are at the moment is OK for you, then don't change it. I did read that Scottish rules are different now with the PIP process, but I have to admit that I don't truly understand why? Yes, I can understand that the last thing you want to discuss is work, albeit probably quite interesting!! When it comes to benefits like PIP I do understand that there's a duty to make sure that it's awarded correctly and fairly, but even I can see that there MUST be a better way around assessments than how they currently carry them out? After all these years, you'd think that someone wouid come up with a better plan and be a little more organised. It really shouldn't be that genuine people have to worry about such things and cause them more stress /worry /anxiety than they already might have. It's just plain wrong in my eyes. What can I do to change it?? 🤔😬😳🙄
@@lauraironstalksms I don’t think anybody is aware of how it will be in Scotland, so don’t worry about lack of understanding. Same for us Scot’s. Personally I don’t like the burden of being in a health assessment with non medical people who are ticking boxes. It’s a pretty dehumanising process. Having someone nice & understanding to do the assessment can be fair and pleasant, doesn’t make the experience less dehumanising in my view. With actual medical records - people should not have to relive bad experiences in their life to add testimony for a computer system. Medical records - applicant shares their personal medical records and should always be enough information. Only time the disputes would occur is not giving the necessary authorisation to access these records & providing basic other information. Address etc. Couldn’t be more simple really. Just my own thoughts on that matter
@@johna9543 doctor's or nurses don't write great in depth nuances of your illness. They might write 'difficulty walking', but not what that means. One person's 'difficulty walking' might mean they use a stick and still walk 3 miles a day. Another's might be they can walk from the wheelchair to the front door. Medical records are by necessity written in professional language and short.
@@KJ-lb4tj a very unique difficult situation has arrived on my personal situation the past few years. Anyway that’s another story. difficulty I have with ms is it affects my upper body. From what I’ve grew to understand is - ms generally affects the legs, walking etc. when it’s your arms, you are kind of stuffed trying to explain to anyone. True definition of invisible disability. My last capability to work assessment was difficult. They didn’t use medical notes and work from a scripted set of questions, none applied to my circumstance leaving myself baffled trying to explain & them because they are not medically qualified. It’s difficult typing or using a pen for folks like me half the week. Knifes in kitchen I stay away lol. Just small examples of personal difficulties that I just can’t connect with a lot of msers on. Imagine wearing a pair of invisible marigolds permanently is all I can say to a neutral. Last time I went to local revive centre, they had never met a real life person who had upper body difficulties - conversations hit a brick wall in their treatments. Everything was focused on lower body strength. Still participated but the exercise focus I needed was upper body not lower body & just couldn’t leave with a good lasting impression. That’s just me I will add. I been living with ms since age 20 & now age 42. Medical world for people like me didn’t want to help folk with ms at the time so I was left baffled and only grew to understand ms over the past few years since a relapse in 2019. When something happens again 20 years later it’s hard explaining all that. Was a different world back then for people like me & honestly it hasn’t changed much in reflection. Just my own point of view on the matter. I was recently interviewed for a book, so had time to think things over to compare. Just won’t meet many in my shoes having to be diagnosed twice because doctors files/notes got archived so deep they lost all my medical records from over 20 years ago 🤯. Yes that can happen in the uk, got the proverbial T-shirt as souvenir lol. Still ongoing to this very day with others. Real fact - nobody told me what type of ms I had till 2021. Original diagnosis 2001. Written as multiple sclerosis by a neurologist without further correspondence after the steroid treatment finished lol Crazy world we are in
I am going to have my PIP telephonic assessment. I have a physical disability and wondering how they could access this via telephone " Also how long is it going to take?
Hi im currently having test to see if i got parkinsons i have mental health acute psychosis and they think its my anticicotics that caused the induced parkinsons ive applied for pip before and got turned down and i never went back in for it but ive been told to go all the way this time
Thanks Laura for your helpful advice on a pip assessment. I have mine tomorrow and am to say the least anxious and nervous. Nice bit of Welsh there Cariad 👏👏👍
Croeso a diolch yn fawr, ond mae dal rhaid i fi ymarfer siarad mwy! I say to everyone don't be anxious or nervous (easier said than done) it's not an exam or a test, it's you trying to get across how your condition makes you feel and how it impacts your everyday living - so just be sure to make that hour count. Don't forget, they haven't got a clue about you or how it makes you feel, they only have the paperwork in front of them. All your doing is telling your story, nothing else. As they say in Turkey, iyi sanslar! Good luck. Let me know how you get on
Laura fach thank you so much for that advice. I had my assessment this morning and it went well. It took over an hour and a half. Have to wait up to eight weeks now for decision. Many thanks again Diolch x
I worry that because I’m in remission with my colitis I will get rejected and my last hospital records are dated 2013 even though I suffer still every day :(
Applied twice and got knocked back twice, three points short the first time and six the second time even though my breathing had worsened, appealed the decision and got an ex paramedic who had no idea of types of epilepsy, essential tremors, asthma and anxiety or depression and admitted it on the phone, so the usual standard of ignorant personal who are paid by the refusal rate, no wonder it's impossible to actually get what you qualify for if the staff are making judgements on what they don't know.
Hi everyone . i recently had my PiP application accepted , what was supprising was , I didnt have an assessment , This was because I supplied a large amount of medical documents/reports etc. to prove my conditions .
What if "The [very]_dis_ABLED:_ -Comm-unity"/Dis_ABLED: People; just -generally: "Monetized"/Made-money; off/from: TH-cam -etc.??-M.K.S. Dis_ABLED People; can!! -M.K.S.
@@lauraironstalksms if dis_ABLED People; support/help each others channel's and then; we could: -earn our own_money and not need/require Benefit's?? (Thus saving the [very] Government (/TAX -Payer's): money??). I Hope; this makes -sense!? **"#DisABILITY_EmPOWERMent; through: TH-cam/"Social_Media!?"!!!!**??
@@lauraironstalksms I have been trying, for about 3-4. I Suppose; that: my Interest's/hobby's, etc.: are: "Unique"; so therefore; it is rather -difficult; T.B.H.!! Will: "share" some of your very -vid's. :) :) ;) ;)
I wanted to say a big thank you for this video, i watched this a couple of times before i applied for PIP, I also filled out my form myself and had a telephone assessment, I was told by others expect to appeal i was honest about my condition and i was awarded pip.
Thank you for putting together such informative video! Much appreciated! Look after yourself! I’ve just received my message confirming I’ve been awarded PIP and I’m incredibly happy. I have suffered a severe life changing injury and this will help me massively! Thank you! 🤗
My experience going through the PIP process for the second time, what I've learnt and the outcome of the whole process
Hi there bless you , I hate medicals it is so stressful, I've got pilonidal sinus disease which has damaged my spinal nerves and a prolapsed disc l5 in my back pressing on nerve roots, and a double groin hernia, my legs burn like they are melting inside when I try and walk and I lose my balance sideways and backwards, like a drunk man .I have internal nuropathic itching inside my muscles and tendons in my butt as I fell down stairs and my coccyx tailbone is stuck in my rectum. It has given me anal fistulas which drives me crazy with itching . I cant stand up straight as my gait makes me lean to the right . I'm not looking forward to this pip. I hardly go outside as it's too painfull .
@@rab-cnesbit4181 Bless you too, you deserve a medal going through that. Mine seems nothing compared with yours
Please could I have a quick chat with you I’m so overwhelmed with everything x
You are absolutely stunning ❤
You had a good phone assessor. My assessor was friendly, but she denied me any points whatsoever. Whatever I told her on the phone, she told the opposite. I struggle with vertigo, fatigue etc, told her i struggled to bathe alone, cook alone, walk alone, etc, but even my reconsideration was refused. Struggling all round
We had exactly the same with my daughter. Do fight it. We applied for tribunal. The day after the DWP should have submitted their evidence, they rang me, had a conversation, then changed the award to high rate for both from all zeros! I even got an apology.
@@samiam2603 Sorry a little lost with "the day after the dwp should have submitted their evidence". I applied for tribunal 10 years ago, but it still got denied, I've tried again on this occasion but not holding my hopes. i haven't even got a copy of my assessment to prove what i said x
The government obviously aren’t saving money by dealing with disability claims this way.
I’ve been trying to claim for invisible issues (anxiety and migraine) and the lady assessor was really lovely to me too, but also scored me zero points on everything. I’m aware PIP is a scam and they’re told to deny essentially every mental health case, but it’s absolutely soul destroying. I won’t give up though, I simply can’t afford to give up.
I 1st applied for PIP on december 23rd 2019....I was declined then put in for a mandatory reconsideration then got declined for mandatory reconsideration...I left it 3-4months then re applied...the same happend I got declined...then put in for a mandatory reconsideration got declined again . this time I decided to go all the way and got solicitors involved and took it to a tribunal ..the amount of time this took was horrible and shocking ....I actually won my appeal at a tribunal on the 4th November 2022..and was awarded £8,542.00 in back pay I was awarded 345 amonth back dated from my original date of claim in 2019 of December and they also included rate of inflation into my backpay ...this was a horrible horrible process and there utterly shocking ....if any1 is reading this.....If u get declined...TAKE IT TO A TRIBUNAL more than 60% of all claims get over turned .
@@lfc4269 this is really motivating. I haven't yet gotten to the point of involving solicitors and hoping I've got enough evidence to win at tribunal, but definitely would go through that process if it gets to it. Also really glad they back paid you, it's just the money you should've gotten first time around! Not gonna let the those soulless creatures win
@Emma I tried to reply to your msg with my email telling you if you struggle further down the line 2 get intouch.....I got declined every single time by PIP my struggles where with mental health issues I had mountain's of medical evidence from the last 5years ..my solicitors told me It was one of the largest amounts they'd received and I stil got declined everytime ..untill I took it to the tribunal .....plz don't be fooled by them if you have anyway of me been able to give you my details plz let me know and I'll help u out
I would say appeal it! I have anxiety and was awarded today by text
@@lfc4269 My God. I didn't realise you had to pay for solicitors to go to tribunal. That'll be a no way for me then! I'm horrified. I thought tribunals were free. 😭
Congratulations. It's annoying these assestments are done by healthy people, few years back before I got these problems, I would have probably judged others in this condition just as bad as now they look at me. Hard to know how bad it can get if you haven't experienced it yourself.
It is difficult to know how bad things can get for people, or understand how it impacts someone's life. I guess it must be really hard to assess this especially as like you said if you haven't experienced it.
It's also the fact that they're under qualified & apparently there's been rumours for a while that they are encouraged to turn down cases for financial gain. Isnt it ironic, the ppl accused of "scamming the benefits system for financial gain" are scammed by the people within the benefits system for financial gain
dont be gulable into thinking because they are nice during the assement that is has a difference in the outcome,these are people who you will most likely never see or hear again ,what i do find amazing is when blatant evidence and lies are told by these people on a lot of cases is that they are not held accountable for it after a tribunal ,they should be ,its a criminal offence to falsly claim benefit ,if your denied it because of an assesser lying that should be too
Thank you for sharing your experience and the website. I support people to apply for PIP so this is very useful to know
What a lovely video. Thank you so much I have an appointment in a few weeks and it’s nice to know that the people are nice. I have been shown real kindness by the people at DWP over the last few months since I become unwell. I have been able to thank the people that helped me and that is a nice feeling as they need kindness as well. Good luck and I hope all goes well for you.
How long did it take for them to contact you after you first applied
My mate told the truth and they twisted and lied and only gave her 2 points . Ask yourself why give her pip when it asks if they can understand things ?
Maybe it might ease your mind and help you sleep better if you knew I was awarded 0 points on communicating verbally.
Its basically a lottery: Depends on whos lap your case lands on, and what mood their in. Its a very unfair process, but luckily mental health issues are being taken more seroiusly now. Anxiety was the 7th most awarded health issue out of a listed 500- so i think pip claims are getting more fairer as time moves on. Its just a shame for the past claiments that have been over looked. Goodluck to you all though ❤❤
That is absolutely true 👍
It’s unfair. People with anxiety shouldn’t get pip
@@sb_2378Why?
I’ve had one nice assessor who totally understood fibromyalgia. Others have been nice but then wrote awful things in my report. We shouldn’t have to go through this.
Having to discuss my toilet troubles to a stranger is totally embarrassing
@@salmissra__ 😢
My 1st assessor understood my hell with fibro. 2nd assessor nice to my face and lied in report. Dreading next one.
Interesting video ...been refused twice for PIP
I have a brain injury following surgery for Hydrocephalus which has resulted in epilepsy and cognitive impairment especially my long and short term memory.
I feel that I was put on trial by the assessor and I was made to feel worthless and a drain on society.
The whole one size fits all matrix tick box system is totally unfit for purpose.
My daughter applied for pip after losing her job as a carer with the NHS she's 31 and has suffered with gynea problems since 15 years of age she was diagnosed with endometriosis a few years ago to look at her any other person would say don't look much wrong with her but to see her suffer with the pain and unable to walk not just that the bleeding and the anxiety it all causes her seniors at work were neither supportive or put recommendations in place for her to continue her work even threatening if her sickness did not improve over 12 months she would be taken to panel and quite possibly dismissed some days she would get up for work in pain and pumped full of pain relief go into work to care for others the decision on her pip assessment was she didn't sound distressed enough or in pain this was a phone assessment and the lady who initially interviewed her said oh I'm sorry you lost your job due to sickness I didn't think the NHS did that well they do and it's not only my daughter that suffered with threats of job loss through a illness and lack of support and duty of care
The first time I applied for dla I was given the lower rate and that’s after I went to court and appealed it. This time I was awarded the higher rate but I do feel like your made to jump through hoops. So very pleased for you Laura it’s amazing! 😊
My son had crital accident 2003 suffered brain injury and collapsed lungs but dwp only give him lowest pip. He will love n care in his life always.
Carers need advice before role begins you are left in utter poverty if have mortgaged house.. Basically rent you can't pay.
Been there and even had a tribunal only to have to reapply a few months later. It was so traumatic and the assessor acts one way but denies your pip yeah I have a severe disability. I was so traumatised and at the same time the last 3 years of madness started and I could not face year another appeal and just left it.
I live next to a pip assessor,who has told me me that after stopping being an assessor. They are not fully trained in anything,apart from reading a computer screen. They get £80 per refusal,and that is better for their pockets.
Never say sometimes,maybe,or anything they can twist. These people are profiteering,never trust any of them,they try and be friendly,but really after you to make a mistake they can use against you.
Aw I’m very happy it went well for u sounds like u deserve it not all of them are that nice lucky u take care thanks for sharing 🥰🥰😎🙏
I have several health issues ..had the accessment got the lower rate ..at the time I was doing a bit of cleaning job 2 pay my way ..Next it was interview under caution and pip was dragggg off ..I reapply 3 yrs later had d interview accessories on d phone ..and got no pont ...
Few years ago i had a accessment i went there and it was full with people waiting, i was overcome with stress panic anxiety i had to get out of there, i phoned pip told them what happend they reccomenfed a home assessment which iv had helpd me big time fortunate to have understanding pip workers.🎉
I'm also in Wales and lost my PIP application when my condition was worsening. I've decided to use advocacy this time as I just don't have the confidence after the trauma it caused last time. It sounds like you got a more than competent assessor, but so many people are still being turned down unfairly I've read. My main concern about my invisible chronic condition is I don't have anyone to really corroborate my limitations. Last time my consultant and dr wrote they supported my application but they only really confirmed my condition. I don't have a support worker etc. I have endometriosis that has left me unable to walk or sit for long.
Iv had stammering life long..it's a speech problem.
Iv always struggled with this, iv had to quit studies on a number of times because of my stammering, iv had to pay for the courses in full even though I quit because of my stammering.
This had been causing me severe stress and anxiety life long.
It's hard to explain this to anyone. Iv suffered in silence life long..
Is stammering a disability and can I claim pip with this?
Iv been out of work for few years.
And lost all confidence to engage with people and this stops me from looking for work. No one understands stammering..only people with stammering understand stammering..
It's a physical illness and a psychological illness..
thanks Laura. Wife has an inoperable brain tumour, on the telephone they reduced her points by 50%, I had reported a change of circumstances which generated the telephone interview. Clowns.
I applied for my adult son who has anxiety and agoraphobia.But they casually ignored everything and said he didn't have anxiety as he attended a mainstream school and only got support at primary school.Nothing but mindless subtefuge.
I agree the lady assessment was very patient, but was refused because I sounded competent on the phone and answered all the questions honestly and basically confident and relaxed. Firstly I a qualified telephone sales person and because I was able to prepare for the call I came across well, but that was used against me.
You're not being assessed on how you sound, it's the content of what you say. That's important.
@@lauraironstalksms they do assess on how you sound if you are cognitive and can explain whats causing issues this actually goes against you as you know what you are doing - every question is to trip you up
and the assesor doesn't have the final say - its still down to DWP no matter what they write down - also when the assesor writes down answers they are in short hand so 70% get refused
Got my telephone assessment tomorrow so just doing some browsing as to what to expect as I’ve heard some bad stories. I have epilepsy which I’ve had for years but recently have unfortunately been diagnosed with heart failure. Both don’t do well around stress so I’m trying to stay relaxed! 🙏
I have epilepsy and heart problems too
Good luck. My heart is with you.
Ive had Epilepsy since childhood .Been on DLA and then PIP for years. Had PIP stopped a couple of times , fought it and won. Going through it again . Not the assessor or decision maker, this time gp. Disappointed that my award was turned down but I was angry and upset for the reason they gave for stopping it. NO EVIDENCE OF EPILEPSY . GP decided to leave it off the factual report ! DWP have my prescription which has on it my medication for Epilepsy . I really don't know what they're playing at. Of course it's caused more seizures .Hope anyone out there fighting the DWP for anything wins. Good luck !
just ask for a recording off the assessment is the number 1 advice i can give anyone because they lie and if ya dont get a recording then you have no recourse to argue the facts and make complaints and get the right descicion
It's really good that you had a positive experience and there are some really helpful DWP out there now more so I suppose then in the past but it's not true that this happens in every case unfortunately. I have just gone through a pip review which I now have to go through to tribunal and the assessment was 2 hours long and it was like an interrogation. I had a support worker with me on the phone at the time in a similar way to you and she couldn't even stand the whole meeting it was so long and it was literally like a legal courtroom where she looked for any thing that I could slip up on even a minor thing and even falsified some information which I have proof of because I recorded the phone call. Quite considerably actually. I've never had a good experience with the PIP team sadly although I was granted it previously on it mandatory reconsideration but not this time. I've just applied for ADP as well in Scotland and the application form is twice the size of the PIP application with some really ridiculous questions which they agree or ridiculous as they are trying to work them out. However I think it's good just to paint a balanced picture for people that it really depends on who you get on the day and how many assessments they've done if they're worn out etc etc and it can be truly brutal and completely randomly unfair. Previously I've had 0 points and then gone to 8 points to get the award but without any real justification on the points. I've now got to go through my first tribunal and I'm learning about that as I go. But it is a very strange process so far and I have found the tribunals team to be very helpful which has helped. I know you did have a bad experience the first time and I know that my friend did have a good experience recently as well but when it's bad it's very bad 😔
I went through a very similar process.
You hear so many horror stories, but mine was entirely positive, although I did find it frustrating having to answer the exact same questions on the phone as on the form (which I did online, my hand writing is illegible, these days) but the assessor was amazingly patient.
I was told I'd get a decision within about 6 weeks, but about 12 days later, the "back payment" went into my account, long before I received the "award letter."
I was very careful not to access it, until I'd received the official confirmation, just in case there'd been a mistake! 😱😱😉😉
I was in a similar boat, I was recently diagnosed with autism spectrum disorder and needed to apply pip, which I did (went through the whole process, the only that stressed me out was trying to get there on time, otherwise the assessment was calm and the lady that assessed (my god) was so understanding and nice. I easily cooled down.
I usually hear mad horror stories about pip, which put me off ever considering it in the past (back then I had no idea I had ASD).
Well....my life has done a full fat 360 on me 😅. I have been rewarded with my pip (I'm not sure what my daily rate is...). But I guess patience is key.
how can i get in touch with you so I can explain what my wife is going through with pip it as been 1 year now and we r still fighting for pip
I've got my assessment next week sometime over the phone this will be my first assessment since 2018 and I don't remember what I said in the face to face assessment then and I don't remember what I wrote in the paper I sent off a couple months ago I hope this phone call doesn't last long
Had my assessment in January and after a tearful phone call was told I'd hear within 6 to 8 weeks,more like a week and half as my reply landed on the door step on my birthday in february saying zero points on every category
Appeal, the same happened to me zero points Appealed and received it.
Its a disgusting institution. 😢
I've got anixeity depression and other illness and on tablets prescribed by doctor and I got assessment done but carnt claim pip it makes me angry when the druggies and aclolics can claim it and get over a thousand pound a month I've worked all my life to pay for there habits
I am glad you found a honest assessor. I only found one to be all the others wrote completely fabricated reports about my assessment
Sorry to hear that you had a poor experience 😞
Hi sweet heart I've just done my assessment on Tuesday I had the same from a nice guy called mat God bless take care thanks Jim.😊
Most helpful video I have seen on this, being validated is the best thing ever for everyone and for their mental health.
Right now I’m waiting for a text message to come through to say that they’ve got my PIP review form - the wait is that annoying. How long does it bloody take for them to do it? They should not just leave things in piles 🤬🖕, they should show more care and just get the job done. I want to be settled knowing they have it.
i had open heart surgery in 2021 double bypass and got turned down twice so i gave up
I had a paper based assessment & was awarded enhanced on both with no interview.
Hi if you dont mind saying, what did you put down that you had please.
@@JacobSmith-ik1vj I sent in all my hospital notes & paid to get the doctor to write me a letter
With certain diagnosis such as MS and Parkinson’s they should automatically award you yet they still want you to justify and answer many questions...it’s a chronic condition which isn’t going to get any better. My husband has recently been diagnosed with PD although symptoms started at least 2 years before diagnosis, he’s mental decline is far worse than his physical decline... Mr Joe Bloggs doesn’t know that PD is sooo much more than physical... He was awarded high pip for health and low for mobility... this was a year ago, he’s now reapplying ( well I am on his behalf) to try for higher mobility as he really should’ve been awarded it the first time and we should’ve appealed..
It's very difficult all around, I'm with you on that I think chronic conditions that are life long which are not going to get any better (unless they find some miricle cure) should be awarded automatically. But it's like you mentioned PD is much more than physical for your husband and many others out there who have this condition. I'm so sorry that you both have to go through this, it's totally unfair and very stressful for you. I wish you all the best in getting the outcome that you should be entitled to.
Thank you for this information. I have my pip assessment by phone on Tuesday afternoon. I agree people who don’t have apparent physical signs of disability are too easily disregarded and it is so unfair. I have heard some awful experiences about the assessment process and am losing (more than normal) sleep because of it. But you have given me some hope by sharing your journey. Thank you and I wish you health and happiness. Xx
Hi Sally, I'm so sorry to hear that the worry has been causing you sleeping difficulties, it should not be like this at all for you or anyone!
The link I suggested is amazing, please look at this before you go into your telephone call, they have a Guide to PIP claims and reviews
108 page guide to PIP claims, medicals and the PIP review form (AR1/1043). New 29 May 2020: now includes 9 pages of detailed guidance on PIP telephone assessments.
This is the link again if you need it.
www.benefitsandwork.co.uk/personal-independence-payment-pip
I did pay a small membership fee to join for advanced info, I think it was £10 or something, but the information they provide is absolutely invaluable.
Have a look around the site, and very best of luck to you x
I 1st applied for PIP on december 23rd 2019....I was declined then put in for a mandatory reconsideration then got declined for mandatory reconsideration...I left it 3-4months then re applied...the same happend I got declined...then put in for a mandatory reconsideration got declined again . this time I decided to go all the way and got solicitors involved and took it to a tribunal ..the amount of time this took was horrible and shocking ....I actually won my appeal at a tribunal on the 4th November 2022..and was awarded £8,542.00 in back pay I was awarded 345 amonth back dated from my original date of claim in 2019 of December and they also included rate of inflation into my backpay ...this was a horrible horrible process and there utterly shocking ....if any1 is reading this.....If u get declined...TAKE IT TO A TRIBUNAL more than 60% of all claims get over turned .
Helped me a lot...thanks
😢😢😢😢can you start work on pip do you have to tell those nosey beggars thanks in advance 😢😢😢😢
Thank you for this, I'm considering giving PIP a go but I'm worried because it's I'm unusual case that seems to slip between all the cracks. Nothing to lose I guess?
I am completely deaf in my right ear from childhood, should this qualify me for pip 🤔
For me it was easy, and only took two months.
Just had to send a medical record, and explain my current and past history to be approved after 2 months and 4 days.
Condition is autism and some other things.
Good news Jack 👍
Took 38 hours filling in a form, over days
Assessment took half an hour on the phone.( I'd had higher rate for both) Complained to MP. Appealed. 2 and a half hours mandatory reconsideration with a 3 way call. It was horrific. I was reinstated, but it was months of horror, and through lockdown. All our experiences are different.
Glad yours was OK.
I have one on Monday I dont think they will help me. Even though I'm really broken lol ( 41yo with ddd) can bearly walk if pip refuse me idk what I will do as financially we as a family are at maximum with out goings
I 1st applied for PIP on december 23rd 2019....I was declined then put in for a mandatory reconsideration then got declined for mandatory reconsideration...I left it 3-4months then re applied...the same happend I got declined...then put in for a mandatory reconsideration got declined again . this time I decided to go all the way and got solicitors involved and took it to a tribunal ..the amount of time this took was horrible and shocking ....I actually won my appeal at a tribunal on the 4th November 2022..and was awarded £8,542.00 in back pay I was awarded 345 amonth back dated from my original date of claim in 2019 of December and they also included rate of inflation into my backpay ...this was a horrible horrible process and there utterly shocking ....if any1 is reading this.....If u get declined...TAKE IT TO A TRIBUNAL more than 60% of all claims get over turned .
I'm really glad it worked out for you in the end. Though you should never have been made to wait that long. Well done fir keeping the fight, I hope your pip/ the back bay has been helpful to you.
@Abigail Barfoot thanks it has so much I'm so grateful for everypenny I got...I can now afford and plan to do things to keep my self occupied and try get out more..I've had 10driving lessons since and been to Spain for a week I'm focusing on getting better ..that money has done so much ..Cheers abigail
@@lfc4269 I'm so pleased I've always been lucky with my pip awards as I've always had help from social workers and professionals who have known me for years. I was diagnosed in 2020 with the sames rare syndrome as my youngest daughter which has its only thanks to advancements in genetic testing that genetisis were able to piece things together and found the changes in nr2f1 genomes that cause bosch boonstra schaff optic atrophy syndrome. It only affects 30 people in the world at present. The gene was only identified in 2016. Two years after my first daughter was stillborn. I have now been awarded the universal credit LWCRA which means I won't need to worry about looking for work ,attending regular work related activity interviews or facing sanction for non attendance as im also the main carer for my daughter. I was recently diagnosed chronic nerve pain, migraines/cluster headaches and focal sensory seizures caused by a visual cortex Benign tumor glioma as well defect caused by syndrome i have. I along having high functioning ASD dyspraxia, suspect complex ptsd/eds (still seeking diagnosis) and being registered blind this mean working would make it stressful for me.
@Abigail Barfoot omg abigail that's alot of stuff....I hope and wish for your life for you and your children to be the best it can be and many wonderfull times coming in the future...I also recive limited capability allowance aswell ..its a nice feeling to have PIP aswell now ...gratefull for everything..and now to mend my mental health...I wish you all the best darling
I did exactly the same . 100% honest and had a phone assessment. Been awarded but waiting to see how much !
I ended up getting higher mobility and normal daily living allowance. I’m really pleased and would advise anyone else just to be relaxed and honest during assessment.
@@gmanlee575 4 yrs
@Mod-rw9cw is it possible they only award one component ?
@@dicesquaresuk yes
Congratulations! I know how much it meant to you. You were very informative in the video and covered a lot of ground and I found it very interesting...so thank you for that. I hope it helps folks out. Best of luck to you and everyone.
Unfortunately I think that is probably a rare experience. Though hope that in my review I will be given that kind of treatment. Thanks for sharing
A friend of mine just applied she's been diagnosed with a life limiting condition COPD and heart problems too she works and has done all her life and I have never seen her so ill she never had sick off work but now it's constant some days she can't make it in some days she comes in and has to leave 2 hours after being in work after her assessment she was scored low she noticed anomalies in the report contradicting what was said and written I told her to contact her boss at work to get a full report on her sickness and how her condition affects her ability to work it seems that those who assess for pip don't take into account the different levels illness affects people it seems you need full lack of capacity or mobility to qualify .
I've been declined twice now. They really don't want you to have any money, not a penny. This is due to the Governments handling of the process, and how they need to keep scammers from getting free money; and, there are scammers jumping on the band wagon.
But I won't give up, as this is something that I need to do. My health has deteriorated so much in the last 4-5 years.
No one can explain why I was denied pip after being om medication for 30yrs with depression and bdd but apparently the fact I turned up for the interview went against me...the fact I got there marked me down. The fact I was made up went against me ( body dismorfic disorder is where you obsessed ti the point of destruction and distress over how you look) 30yrs of doctors reports and hospital reports and even a stay in mental health facility for fear of my life and nope ..it didn't matter because I made it to the interview with make up on. Literally every person from agency's tell me I need to apply but that experience means I have no confidence to apply again
i think you would win, with a no fee solicitors, they would take all the documented evidence you have and overturn them no issue. remember benefits staff are not taking it personal with you, theyre just processing you - so you have to take it up with someone to fight your corner. and they have a vested interest to win for you.....solicitors love clients like you,, you have tons of paperwork.
Laura, I’m so proud to have found you, and wish you well. I’m about to start down the P.I.P. route due to being retired early on health grounds. I’ve become really Ill in recent months, and knowing that I’m not alone helps me.
Best wishes.
Chris R
Hi Chris, I'm really sorry to hear that you've had to take early retirement because of illness, it's very difficult to accept. You're absolutely not alone, I wish you all the luck with your PIP application. I did a video on how to prepare for your PIP assessment, it might help. Take care and let me know how you get on.
It’s a joke pip is i waited 8 weeks just to be declined I had
Suffered slipped disc and struggling to do simple things in life but yet they reckon I don’t need help and live on fresh air
and also universe credit don’t get me started they won’t give me penny the way they treated u makes want end it 😞
Congratulations Laura!!! It’s hard to go through these things I am currently going thru this as well. I’m glad things are looking up for you!
Good luck with the process Jay, is it similar to the UK?
@@lauraironstalksms they make it very hard for individuals in the USA to get this. It’s a long drawn out process could take years.
That just doesn't seem right. I thought the process here in the UK was challenging! Well considering the changes which are happening for you now I really hope that you are able to get some support. I have everything crossed for you.
I am planning on making a video here soon after I see my neurologist to update everyone on my progression it has been a rough year for sure but we will get through it
Look forward to seeing it, sorry its been a difficult time, sometimes that's just the way 😞. Here's hoping that it starts getting better for you 🍀
I have an appeal this Thursday and I'm so anxious. I suffer with anxiety and long covid with chronic fatigue. I'm absolutely dreading it.
Good luck. May god be with you. 🤞
I fell down my stairs last May and I broke my spine in two places, broke two ribs and I also broke my right shoulder blade. I’ve been claiming PIP for ten years for my depression and very sore, dry hands … My PIP was stopped when I broke my back due due to the hospital saying I was well enough to come home … fortunately they reinstated it but only for my depression and hands, they will not take into consideration that my back was broken, I spent three weeks in an induced coma and I was also on end of life care. This was my first time in hospital and I’m now getting help for PTSD due to my injuries, I’m 62yrs old.
It's still an unfair system. I'm genuinely happy you got the award you deserve, I wish everyone else did too... It's especially hard on those of ethnic minorities etc.
Thanks Daniel, and I do agree with you. I feel very fortunate that I got awarded with PIP (even though I shouldn't have to!) our system should be based on disability not on ethnic minority... Can't comment on this as I don't know the stats 🤷♀️
I went through the M.R. Refused. I wanted to attend Tribunal, but I have really bad episodes of Gout. This saps all the energy out of my body. Tiredness and aching.
Because of this I couldn't be "arzd"
I have submitted a PIP Review.
But eleven months later I got a text saying they were processing my review. Still waiting. To cut a story short. I "will" be going through MR. And then Tribunal. Not because of being greedy, but I want what I am entitled to.
Because of the above the DWP have denied me of thousands of pounds to which I am rightfully entitled.
I have a Brain Injury that affects me every minute of every day, this both Mentally also Physically. But I look "Normal" to folks.
"There's nothing wrong with you" I am told. This infuriates me
**Thank you for your clear explanation**
That's the issue when you look OK, but you don't feel OK. I hope everything goes well with your tribunal and that it's not too stressful for you. Good luck and let me know how you get on 🤞
@@lauraironstalksms Thanking you🙏
@@lauraironstalksms 🙏
I'm pleased for your successful 😀 outcome 👍 with PIP. I had my face to face meeting 2 weeks ago and now I'm awaiting the outcome . I'm not expecting anything but if I'm awarded a payment that will be helpful 🙂...
@@lauraironstalksms thanks, I'll let you know how I get on. I was diagnosed recently with High Functioning Autism and advised by the health centre to apply. 😊
For my first PIP claim I had to have two assessments after mandatory appeal In my first assessment they scored me zero second assessment I scored 4 went to tribunal where there is a judge because it’s a court a doctor and a disability specialist and scored 28 awarded full PIP never give up it’s what they want
on the pip downloadable notes it says to only scan and upload documents you already have and not to request documents because it will slow down the claim. i have recently started my new medication as do not have my prescription printed out as they are sent directly to the pharmacy , also i do not have any letters from GP etc. can my claim still be accepted without this supporring evidence ?
Hi Laura, many thanks for your informative video clip, I, ve just had my pip video assessment today , it tooks 45 min and at the end of assessment, I have been told that I will receive the letter from dwp by the next 8 weeks, so do u think ,is there any hope to get pip?? Many thanks
What was your outcome? I hope it went okay for you. ♡
@lightbulb6293 My application for pip was rejected.but I hope you get it.
A great deal of the process is how questions are answered, both written and verbal. Never say words like 'sometimes', this is a 50/50, we don't have our conditions 'sometimes'. If asked how many minutes you can walk for, your answer, if you have limited mobility, has to be i don't measure my walking in minutes, but steps. You have to bring your conditions into the environment and let them know what it is like 'most of the time'. The 'enemy' is not the assessor, but the person with no medical background who issues the points for each of the descriptors, from the information provided. Under all circumstances, get a brief summary from your GP's practice manager, this is free and legally should be made available to you and takes no more than a day or 2 to collect. The DWP will not contact your GP, or any other medical team, regardless of what the GP receptionist tells you. If you have no medical papertrail, you will receive 0 points
I applied in past was declined now InshAallah going to fill in form online to best of my knowledge n hope n pray that they deal fairly it’s not about money it’s about being treated fairly n if their is extra support available why not take chance, I have severe depression anxiety n fibromyalgia under GP n well being so I am not sure how they will score n what u have to say or do they notice ur body language or they think u talking fine so ur fine I don’t lie so I be honest but I need help as I am struggling with 3 kids n partner helps out as well does that help score if he does most things for me?? Also I am on UC n LCWRA I don’t know if that all helps… and also is it better to have over the phone, video or face to face in UK
I have a assignment tomorrow morning and I am scared and my anxiety is taking me over already . Could I please speak to u if possible .
I have my appeal today, in person
I have brain injuries, deaf in one ear, tinnitus, vertigo on and off, irlen syndrome, autism spectrum disorder
@@lauraironstalksms because I have nothing wrong with me clearly it's all a lie, the NHS lied the royal navy lied...but the DWP speak the truth....
It's a crap stressful process which as you can see gets me angry
I've been consistent for 10 years they have not been, I've had different decisions each time
@@lauraironstalksms I won, finally after 2 years but only back dated to the start of this claim
Standard daily and mobility
I was transferred from DLA to PIP in 2019.I have MS and was diagnosed in 1992.I was on high rate care and high rate mobility on DLA for years,when i had to transfer i had my assessment at home.The assessor was a nurse and had no idea about my MS she made out i was faking it,and i knew i would get marked low,i did and i lost my mobility and just went down to standard care. I was too ill to fight it and could not ask for a mandatory reconsideration as i was too ill and did not want any more stress,so i just accepted the award of standard care PIP. I asked for the report and she lied about most of the assessment.She said to me i will not ask you to walk as i can see you are exhausted.... she put on the report that i refused to walk and she said i could walk 50metres when i told her i couldn't walk more than a few steps. So when my PIP review was due last year i was worried to death...my assessment was in January this year and i phoned PIP when i got the letter of the appt day and told them i wanted it recorded by them,so they said your appt will have to be 2 week later which i agreed to,has they needed to find an assessor that recorded because not all of them like to🤔so my appt day came and i got the nicest nurse,she listened and was very polite and did not try to trick me like the last one did.They also sent me a copy of the recording,by courier and i also asked for the report,which came 3 days after my assessment😮I could work out how many point i had and it was enough for enhanced care and enhanced mobility🎉 i was so pleased,she had reccomended the award for 5 years,but the DWP case manager has awarded me it for 10 year🎉 so i would advise anyone to ask for the assessment to be recorded and ask in good time before your appt.
Hi Laura...thank you for your bravery...honesty...and beauty....your post must have helped hundreds...I claim pip's..due to epilepsy...and..like you...went through the whole procedure on my own...the secret is being honest..not just with them...but with yourself ❤
Hi Patrick, thank you for taking the time to write such a lovely comment. You are right about the secret 😊.. And in life there is no better honesty than with yourself ❤️
Hi Laura...No!!...May I thank you for your lovely responding reply... since 2009..(after I fainted and cracked my head open )....I was totally fine....it took 12 yrs to swallow my pride to apply for this benefit .... I now try to help others who went through the stress and worries...but with you posting this lovely unselfish post you've help so many... I came across your post by accident....I'm very glad I did....please take care and look after your beautiful smile and kind heart ❤️
A great thing that you are doing too, helping others is a true gift 😊😘
As you know Laura...in life....there's givers and takers...you truly..(like me )...a givers.... you are creative (but the way you talk) and...very caring...and true...I have been honoured communicating with you.... and my favourite song ...May I dedicate to you...(please listen to "something inside so strong" )...please take care x
Please can you tell me the website you referred to - I can't see the link. Thank you
My application was successful from the first time. I was honest
Money will never bring my health back 😢😢😢
Money won't bring back anyone's good health
Hi, I have ruematoid Arthritis, today i attended assessment. The lady was nice ,i told her exactly how i felt at one point i just broke down & started crying as i was telling my pain.
I also have Dislyaxiya & tinnitus last week i also found out i have fibromialgia. I really struggled a lot of things & there are times i spent most of the time on my bed as i have no energy & very tired. My husband helped me with everything like giving leg massage, house work & more.
I am a carer for my Autistic daughter .
Do not know what the outcome will come.
I've got very bad asthma n sciatica now .but they will now expect it n I'm going to court soon as I've have to get someone to help me now .I'm now counting the days down now till it goes there now ??😮
after the appeal, the judges require formal complaint for negligence and causing unnecessary appel
I was same, filled in my forms myself and didn’t sugar cat it, just told her my difficulties. The lady who did my video assessment was so lovely too, she made me feel listened to and validated,
That's so lovely to hear. I do personally feel that filling my own forms in was better as I know what's going on with me! You just need to be as honest as possible about how your condition affects you.
@@lauraironstalksms I agree, I’d heard the horror stories and was not looking forward to the process but it was very stress free
May I please ask you a few questions please? I'd like it to be private, ( an assessment question ) but don't know how to send a direct message. Thank you so much for these video's. You are inspiring.
I am at the early stages of my diagnosis with possible primary progressive ms. My full diagnosis should be confirmed in the next couple of months.
I am still working full time. My main issues at the moment is my balance and trips. Although I have other symptoms they are not affecting aggressively just yet.
Do you think it is worth me making a PIP application once I have a confirmed diagnosis
Hi Shahanara, I think that applying for PIP is all based around how your condition affects you and your daily living. I think it's wonderful that you are still working full time, however with MS you never know when that might change.
My opinion on the PIP approach is apply if you feel that your condition affects your everyday life and therefore you need the help financially to be able to assist you in ways to help with your independence - whether that is buying aids, or helping to be self sufficient if needing to leave work.
In my case I lived without PIP for 14 years but now I am at a point in my life with my MS where it affects my everyday living.
I think if it affects you with your balance etc, then yes this is a consideration for applying for PIP.
I wish you all the best.
@@lauraironstalksms thank you Laura for replying so promptly.
I may reach out to you again for support in the future as it’s really difficult to connect with individuals whom are based in the UK. I hope that is OK?
Sure, no problem
Great you had a fair assessment 👍
There’s been times over the past few years I’ve been advised to apply for PIP but I resisted the urge. Couldn’t predict I’d be better or worse after going through it all 20 years ago - MS related. Hear bad experiences which just reminded me of then, I also did get the legacy award so there’s no updates required unless personal health deteriorates.
Current advice seems to be for Scot’s to hold off if they are in my shoes. Benefits are being devolved to Scottish government next year I think. Renamed - Scottish Disability payment (I think). there’s never been any factual data releases of everything but there’s some promises and some brief press released info. 1 to keep an eye on. Il prob be amongst the 1st gen of Scot’s to experience that so I can only hope lol
My brother and his wife are both employees in civil service at pensions dept and they be going through the switchover too. Not something we talk of much a) u don’t wanna talk of work b) I don’t wanna talk of his work. But he has some tales to tell & can sometimes give passing advice
Honestly in jobcentres etc there’s been a completely different vibe for the past couple years also up in Scotland but too many other factors to conclude it’s just in Scotland
Parliament in England + elsewhere have no doubt taken note and concluded it would be better to follow suit. Politicians just never wanna be bettered in ethical standards in modern day
Hi John, thanks very much. Yes I agree, you almost have to weigh up the pros and cons of going making that initial decision to go through the PIP process because it isn't easy - and I mean it takes a toll on your mental health, I don't say that lightly either. Anyone who's been through a 'bad experience' will know what I'm taking about.
If how you are at the moment is OK for you, then don't change it. I did read that Scottish rules are different now with the PIP process, but I have to admit that I don't truly understand why?
Yes, I can understand that the last thing you want to discuss is work, albeit probably quite interesting!!
When it comes to benefits like PIP I do understand that there's a duty to make sure that it's awarded correctly and fairly, but even I can see that there MUST be a better way around assessments than how they currently carry them out? After all these years, you'd think that someone wouid come up with a better plan and be a little more organised. It really shouldn't be that genuine people have to worry about such things and cause them more stress /worry /anxiety than they already might have. It's just plain wrong in my eyes.
What can I do to change it?? 🤔😬😳🙄
@@lauraironstalksms I don’t think anybody is aware of how it will be in Scotland, so don’t worry about lack of understanding. Same for us Scot’s.
Personally I don’t like the burden of being in a health assessment with non medical people who are ticking boxes. It’s a pretty dehumanising process. Having someone nice & understanding to do the assessment can be fair and pleasant, doesn’t make the experience less dehumanising in my view. With actual medical records - people should not have to relive bad experiences in their life to add testimony for a computer system. Medical records - applicant shares their personal medical records and should always be enough information. Only time the disputes would occur is not giving the necessary authorisation to access these records & providing basic other information. Address etc. Couldn’t be more simple really. Just my own thoughts on that matter
@@johna9543 doctor's or nurses don't write great in depth nuances of your illness. They might write 'difficulty walking', but not what that means. One person's 'difficulty walking' might mean they use a stick and still walk 3 miles a day. Another's might be they can walk from the wheelchair to the front door. Medical records are by necessity written in professional language and short.
@@KJ-lb4tj a very unique difficult situation has arrived on my personal situation the past few years.
Anyway that’s another story.
difficulty I have with ms is it affects my upper body. From what I’ve grew to understand is - ms generally affects the legs, walking etc. when it’s your arms, you are kind of stuffed trying to explain to anyone. True definition of invisible disability. My last capability to work assessment was difficult. They didn’t use medical notes and work from a scripted set of questions, none applied to my circumstance leaving myself baffled trying to explain & them because they are not medically qualified. It’s difficult typing or using a pen for folks like me half the week. Knifes in kitchen I stay away lol. Just small examples of personal difficulties that I just can’t connect with a lot of msers on. Imagine wearing a pair of invisible marigolds permanently is all I can say to a neutral. Last time I went to local revive centre, they had never met a real life person who had upper body difficulties - conversations hit a brick wall in their treatments. Everything was focused on lower body strength. Still participated but the exercise focus I needed was upper body not lower body & just couldn’t leave with a good lasting impression. That’s just me I will add. I been living with ms since age 20 & now age 42. Medical world for people like me didn’t want to help folk with ms at the time so I was left baffled and only grew to understand ms over the past few years since a relapse in 2019. When something happens again 20 years later it’s hard explaining all that. Was a different world back then for people like me & honestly it hasn’t changed much in reflection. Just my own point of view on the matter. I was recently interviewed for a book, so had time to think things over to compare. Just won’t meet many in my shoes having to be diagnosed twice because doctors files/notes got archived so deep they lost all my medical records from over 20 years ago 🤯. Yes that can happen in the uk, got the proverbial T-shirt as souvenir lol. Still ongoing to this very day with others. Real fact - nobody told me what type of ms I had till 2021. Original diagnosis 2001. Written as multiple sclerosis by a neurologist without further correspondence after the steroid treatment finished lol
Crazy world we are in
I am going to have my PIP telephonic assessment. I have a physical disability and wondering how they could access this via telephone " Also how long is it going to take?
If someone wants to stop getting paid pip, will they stop paying straight away or keep paying you a little longer??
Yes, that’s a great website. It does cost £20 (I think) but yes, worth it.
Great video. I'm currently applying, so fingers crossed. P.s you have a lovely face.
Good luck Colin, hope all goes really well for you 🤞🍀
I was declined. They gave me zero points. I'm going through the mandatory reconsideration process now.
Sorry to hear. Good luck with the MRP
Wish me luck I'm Going soon for the first time , after nearly 2 years
Hi im currently having test to see if i got parkinsons i have mental health acute psychosis and they think its my anticicotics that caused the induced parkinsons ive applied for pip before and got turned down and i never went back in for it but ive been told to go all the way this time
Please share with me every material you have.. I want to know more thanks
tell them about your worst day! That`s what they want to hear,and it IS better to have social worker or somesuch! It`s a horrible experience!
This is absolutely the wrong advice.
Good advice Laura 👍
Thanks Laura for your helpful advice on a pip assessment. I have mine tomorrow and am to say the least anxious and nervous. Nice bit of Welsh there Cariad 👏👏👍
Croeso a diolch yn fawr, ond mae dal rhaid i fi ymarfer siarad mwy!
I say to everyone don't be anxious or nervous (easier said than done) it's not an exam or a test, it's you trying to get across how your condition makes you feel and how it impacts your everyday living - so just be sure to make that hour count. Don't forget, they haven't got a clue about you or how it makes you feel, they only have the paperwork in front of them. All your doing is telling your story, nothing else. As they say in Turkey, iyi sanslar! Good luck. Let me know how you get on
Diolch yn fawr iawn. Yma o hyd 🤪👍
Dafydd Iwan!? ⚽
West is best as old Grav used to say. Yma o hyd Llanelli scarlets anthem for years
Laura fach thank you so much for that advice. I had my assessment this morning and it went well. It took over an hour and a half. Have to wait up to eight weeks now for decision. Many thanks again Diolch x
They are always polite but will still try to refuse your benefit, dont be taken in by the nicely nicely approach one bit
I worry that because I’m in remission with my colitis I will get rejected and my last hospital records are dated 2013 even though I suffer still every day :(
I'm in remission with my MS.... It shouldn't be a factor if you are suffering with symptoms every day
Has anyone been successful if still working please I have long term stroke fatigue and anxiety and need to reduce my hours at work xx
I have a call assignment tomorrow and I'm really nervous... I got knocked down by a car and damaged me hip and knee, hopefully I can "pass"...
@@lauraironstalksms thanks, just had the call, it was good, got to wait up to 8 weeks now :)
Hi after assessment how long to get pay ? I don't whas mean 8 wees
Thank you
Applied twice and got knocked back twice, three points short the first time and six the second time even though my breathing had worsened, appealed the decision and got an ex paramedic who had no idea of types of epilepsy, essential tremors, asthma and anxiety or depression and admitted it on the phone, so the usual standard of ignorant personal who are paid by the refusal rate, no wonder it's impossible to actually get what you qualify for if the staff are making judgements on what they don't know.
Hi everyone . i recently had my PiP application accepted , what was supprising was , I didnt have an assessment , This was because I supplied a large amount of medical documents/reports etc. to prove my conditions .
What if "The [very]_dis_ABLED:_ -Comm-unity"/Dis_ABLED: People; just -generally: "Monetized"/Made-money; off/from: TH-cam -etc.??-M.K.S. Dis_ABLED People; can!!
-M.K.S.
I don't understand your question sorry?
@@lauraironstalksms if dis_ABLED People; support/help each others channel's and then; we could: -earn our own_money and not need/require Benefit's??
(Thus saving the [very] Government (/TAX -Payer's): money??).
I Hope; this makes -sense!? **"#DisABILITY_EmPOWERMent; through: TH-cam/"Social_Media!?"!!!!**??
@@lauraironstalksms I have been trying, for about 3-4.
I Suppose; that: my Interest's/hobby's, etc.: are: "Unique"; so therefore; it is rather -difficult; T.B.H.!! Will: "share" some of your very -vid's. :) :) ;) ;)
I wanted to say a big thank you for this video, i watched this a couple of times before i applied for PIP, I also filled out my form myself and had a telephone assessment, I was told by others expect to appeal i was honest about my condition and i was awarded pip.
well done its a hard thing to do getting pip
A person with MS having to go through that enrages me,good luck young lady 💙
How long time pip take for answer you and claim decision
Thank you for putting together such informative video! Much appreciated! Look after yourself! I’ve just received my message confirming I’ve been awarded PIP and I’m incredibly happy. I have suffered a severe life changing injury and this will help me massively! Thank you! 🤗