Pregnant With Multiple Sclerosis
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- เผยแพร่เมื่อ 4 ก.ย. 2024
- This video discusses what it's been like being pregnant while having Multiple Sclerosis. I also discuss what the plan is after I have my baby and how I plan on dealing with future relapses. Thanks for watching!
Thank you for the video. I was just diagnosed with MS and started Copoxone next week and I am trying to plan a family. This helps a lot. Thanks for posting.
I had an awesome pregnancy with Ms my baby was so good to me thank god for that! I wasn’t on my meds at all when I was preggo also but got right on it about another two months cause I was trynna breast feed my baby for about a month and a half after I got my infusions again I stopped breast feeding me baby I saved as much as I could also this was in 2019 I had my beautiful boy today he is 4 years old going on 5 smart ass ever I’m blessed and just taking care of me! ❤❤❤
So I’m 21 weeks pregnant now I have MS and I’ve been diagnosed by two years ago kind of similar to yourself but pregnancy is like you said kind of good for it but my doctors realistic with me about the risk of relapse after birth and we’re taking out the cautions we can but it is scary and there’s very little contact on here about women with their pregnant with a ms . My doctor is making sure I induced at 34 weeks they can give me an assisted birth and try to avoid caesarean so that I can be back on the medication quickly to avoid relapse as much as we can. I’m not gonna lie it’s super scary I’m very grateful to have your contact here it really helps to hear from another mom😊
Well I'm so glad that you found my channel, it can feel kinda lonely when you're going through it. The only time I've relapsed after giving birth was when I had a miscarriage. I was fine after my last baby, but I believe it was because I was breastfeeding. Hang in there mama! You're amazing and all will be ok! Keep me posted! 😘
Thank you for sharing,., I’ve recently have been diagnosed with since 1 month ago but have symptoms for 3-+ years after having my first child and it’s lan to get pregnant soon
Diagnosed at 18 now 22 and pregnant 🤰
Thankyou so much for making this video. Hope you're doing well. I'm almost 39 weeks pregnant and having my membranes swept during an appointment today. I was diagnosed with MS 9 years ago and am 33 now. This is my first pregnancy after trying for 6 years. I've been on 5 different treatments but was on Tysabri when I found out I was expecting and changed to Copaxone. No symptoms during these last 9 months besides fatigue which is already a norm. I will be breastfeeding as well. What have you experienced since delivery?
Thank you for reaching out to me, I love talking with other people in similar situations! I am so thrilled for you Sarah! 6 years is a long time to wait for that special gift, and I am so happy you haven't had symptoms while pregnant, what a sweet relief! Was Tysabri working well for you before the switch? Things have been going well for me, I am going to make a new video going over all of that! Thanks for watching and good luck with that new little one, praying for a smooth delivery!!!
Making Lemonade Actually Tysabri is the first of 5 treatments I've taken that has actually worked. Started with Betaseron, then Copaxone, Tecfidera, Gilenya, and finally Tysabri which is a type of chemotherapy. My last MRI showed no new lesions or activity then found out I was pregnant 😂 Found out soon enough that no infusions were given while I was.
+Sarah Mates wow! I've only been diagnosed for 2 years, and half that time I was pregnant, (I had a miscarriage before this last baby) so I've only tried copaxone so far, after I'm done breastfeeding then my Dr. wants to try something new.
Making Lemonade I just had a rough time finding one that worked. I've been doing Copaxone during these 9 months because it's the only one that's safe for pregnant women. As for something long term I never wanted to do injections daily but I did to have a smaller chance of a relapse. But my neurologist wants me to stop it all when I give birth and while I BF. It's always changing the drugs on the market for MS. I'm just hoping the membrane sweep works that I had today with my OB. I'm tired of being pregnant😢
Sarah Mates oh girl I hear ya!!! Those last couple of weeks are so long and hard! 🤞🤞🤞 that it works for you!!! 💜
Im on a pill now it's a new one called tecfidera and if only had three im 21-year-old and 9 months im really scared of what could happen but now im ok because of you thanks
Don't be scared, just take it one day at a time! Good luck with your new addition! Prayers for you!
Hi my name is Erika I was diagnosed with MS when I was in early 20’s now am 31 and am married am planning to have a baby .. I saw your video and you gave me hope to continue my life as normal as possible, I understand that everyone with ms has different symptoms, am taking tysabri at the moment, my doctor gave me the green light to have a baby, now my question for you is that where you in any pre-treatment before conception? Have a good day. Hope to hear from you soon..
Hi Erika! Thanks so much for reaching out, I am so glad my video could give you a bit of hope! Before I got pregnant I was taking Copaxone, once I was pregnant, my doctor took me off while I was pregnant and breastfeeding. Hope that answers your question, let me know if you have any more! Much love to you!!
I don’t know if this is a coincidence but we’re having a little boy and his name is going to be Bo as well that’s hilarious😂
Wow!! It was meant to be!
Hey. I have MS and I know everyone with it is different. I am currently 30 weeks pregnant and I'm super exhausted all the time and my legs still bother me which is something my dr told me would happen but nothing new. I was also told that I will have to be on medical watch for up to 6 months. Also that I may not be able to breastfeed for too long depending on what happens after. After having your baby what were some things that happened to you? Were you ok for a while or did the symptoms come right back? I hear so many different things from people and drs
Hi there! My heart goes out to you. I was fine after having my baby. I did have problems after having a miscarriage, mostly just face numbness, but that went away with a steroid infusion. Lots of love to you and your family.
@@CapturingChaos Thank you for responding. How long were you able to breastfeed for after having your baby before going back on your meds? How did you feel after
@@carlahemans-gordon8346 I was able to breastfeed him for a year, and then decided I was ready to be done, not because of health reasons. Thankfully I didn't have any disease progression that whole time I wasn't taking my meds.
@@CapturingChaos ok thank you so much for responding. I appreciate the info.
Did you stop Copaxone after you found out you were pregnant or long before ?
I stopped after I found out. My Dr took me off. Some people keep taking it while they're pregnant though.
Thanks for d vedio.I m also a Ms patient.My name is Klisha.My disease was detected in 2016.already 4 yrs.crossed.I have a daughter.but I want one baby more.Is it safe that a Ms patient want to concieve.can I stop medicines during pragnancy.hope u will rply.can u give ur contact no.