I am 78 next month and cant even get to talk to my GP. I am affected all down my left side with violent chronic painful tremors which stop me walking, getting in and out of bed, eating using a knife and fork and most important sleeping. I have had FND for years am on strong painkillers and 7 sleeping tablets a day. I have telephone consultations once a year with a neurologist and live alone. I do have carers popping in 3 times a day to make sure I am OK, I have lots of equipment including a stairlift, 2 walkers and a wheelchair which I cant use on my own, my left side is too weak to turn the wheels... Watching the way you have treated your symptoms is encouraging me to try. Already the dot is on the wall and my knees have managed to rise alternately about 1" off the floor...Thank you for sharing your treatment. You have given me hope...
Thank you for sharing the difficult things you’re going through. Where abouts do you live? There might be a practitioner like Dr. Redfern who can help near where you are
THANK YOU so much, I wish I could like this 1000 times. On my 6th week post dx of shingles in the ear, I can now read, walk about the house, eat regular food, but my face still looks droopy on the right side and my balance is iffy at best, so no driving or jogging these days. The only good thing about being ill is that I lost about 15kg and my appetite for beer and wine. I live in the US, so I will have to ask around the local physiotherapy and neurology clinics about this type of treatment. Wish you the best on your full recovery. THANKS!!
cristobal garza I have a link the description where you can find dr.s in your area. You may have to go a state over from where you live (I had to do that in Canada) but it was well worth it. If you don’t find anything you can always email dr. Redfern - the balance issues in time I think can be helped (they’re gone for me which is great!)
I still have FND. I will start up keto again soon. Still covid in our home, but once thats over. Thank you for sharing your treatment information! I also started a youtube channel and some is about FND
Yes I agree, it’s still at the point luckily where it does not affect my day to day, I’m able to work full time, the chronic fatigue has never set back in to where it was years ago. I am fortunate that way. The arm tremor is still there but isn’t constant. That’s basically the main thing that can be present here and there. I still have to be careful with sound but that is mostly due to my previous condition RHS and the shingles have been reactivated 3 times since this video.
This is my story. A few differences - different pain, different tremors, different ignorant doctors, but .... this is my story. I was in my early 40's. Was visiting my parents, had my young children with me. Woke up in the middle of the night and had the paralysis - thought I was having a stroke. For weeks prior I ignored the painful spots where the blisters were. I had a shingles spot on my ear, iI also had one on my palette, roof of my mouth, back of my throat, deep in my ear canal. I went to the emergency room and was diagnosed "ear infection." No anti-virals given. Got worse, obviously. Diagnosed myself with the help of google. Went to a neurologist - he had never seen Ramsey Hunt and he dismissed it. Did nothing, basically nothing. Weeks passed, I was dying. Finally got to my home, couldn't walk, eat, talk or do anything other than vomit. Got to my nurse practitioner and she got me to an ENT and put me in ICU.... It's been over 10 years now. I have partial and I consider myself lucky. I have given up on any further treatment - I'm either not sever enough, didn't have a stroke, it's just too rare. I just received this link - from a friend. She's a massage therapist but had never heard of RHS or FND. This video is helpful, hopeful and reassuring. I thought a lot of the symptoms were just my issues. I see that they are not. I have never spoken of many of these resulting symptoms and problems. THere did not seem to be much of a point. Thank you for stepping out there and sharing your story. I'm very appreciative and grateful. I am very sorry this happened to you. Your recovery is inspiring and I am appreciative of your video and this disclosure of information. I am hopeful there is a tidbit of something that may help me as well.
Pamela Jensen thank you for sharing your story. It’s been a difficult road. Here’s a link where you can find a doctor that’s a part of the same association as OPC. They deal in functional neuroscience. Under keyword search or state/province (whichever works) type where you’re looking. You may have to look a state or province over from where you are if there are no options (I had to do that in my case) iafnr.org/member-referral-directory/
Tanya!!! This is so amazing and I am so happy for you. To God be the glory and may He keep blessing you both. What a hopeful season you're in. Also, is nobody gonna comment on how good looking the gentlemen is... lol😂.
This will take a bit of time to write out lol. Tremors in hands/arm, gait issues, hypersensitive hearing, chronic fatigue, numbness in limbs- it was starting to progress, facial twitching, neuralgia due to shingles not being treated on time, nervous system constantly overloaded, stutter. Couldn’t work because of all of this. There might be more symptoms missing but anyways.
Dr. Redfern is a part of an association called the interdisciplinary association of functional neurosciences and rehabilitation are any of these near where you live? www.tuncurrynaturalhealthclinic.com www.theconnectedbrain.com.au If not they may know of other resources in your area I got this info from the IAFNR website www.iafnr.org/practitioner-database
This treatment changed my life completely. I’m at 98% recovered, no relapse whatsoever in symptoms, able to work full time again! Please let me know if you have any questions
This is amazing, thank you for sharing this information, this will help many people. About the diet - was it just a basic keto diet or something more specific?
Michael Mc Cormick I had shingles in my ear which caused facial paralysis (Ramsay Hunt Syndrome) which led to hyperacusis and tinnitus. (Not fun at all haha)
Michael Mc Cormick the hyperacusis was related to all noises, however this treatment removed my hearing sensitivities which was very surprising and amazing. Now I am getting used to environments that have a lot of sound as I have not been around those places for the last 2+ years. I’ll be putting out a video on where I’m at with things now on Saturday.
Даниил Степанов Hi! No I did not have hearing loss accompanied by hyperacusis or tinnitus. I only had hyperacusis and tinnitus because of shingles in my ear. It got a bit better after 2 and a half years but I was not able to live a normal life. Whenever I’d be in a public setting I had to wear noise cancelling headphones. I have not used them since the 23rd of October, and my hearing has returned to normal. I am now integrating myself back into normal situations slowly.
I am 78 next month and cant even get to talk to my GP. I am affected all down my left side with violent chronic painful tremors which stop me walking, getting in and out of bed, eating using a knife and fork and most important sleeping. I have had FND for years am on strong painkillers and 7 sleeping tablets a day. I have telephone consultations once a year with a neurologist and live alone. I do have carers popping in 3 times a day to make sure I am OK, I have lots of equipment including a stairlift, 2 walkers and a wheelchair which I cant use on my own, my left side is too weak to turn the wheels...
Watching the way you have treated your symptoms is encouraging me to try. Already the dot is on the wall and my knees have managed to rise alternately about 1" off the floor...Thank you for sharing your treatment. You have given me hope...
Thank you for sharing the difficult things you’re going through. Where abouts do you live? There might be a practitioner like Dr. Redfern who can help near where you are
@@TanyatasticTalks I am in the UK. Impossible to get any help.
In UK to any better at all@@Rozrr
Great detail in this video. Happy for you to have recovered so well. I never knew to take a look at FND. Thank you!
THANK YOU so much, I wish I could like this 1000 times. On my 6th week post dx of shingles in the ear, I can now read, walk about the house, eat regular food, but my face still looks droopy on the right side and my balance is iffy at best, so no driving or jogging these days. The only good thing about being ill is that I lost about 15kg and my appetite for beer and wine. I live in the US, so I will have to ask around the local physiotherapy and neurology clinics about this type of treatment. Wish you the best on your full recovery. THANKS!!
cristobal garza I have a link the description where you can find dr.s in your area. You may have to go a state over from where you live (I had to do that in Canada) but it was well worth it. If you don’t find anything you can always email dr. Redfern - the balance issues in time I think can be helped (they’re gone for me which is great!)
cristobal garza under keyword search type the state you’re in
@@TanyatasticTalks THANK YOU SO MUCH!!!
I very happy for you, I liked that you can manage the sounds in restaurants, this bring me hope to me with my hiperacusis, thanks for sharing Tanya!!!
I recovered to Ap 80% functioning a year ago. I'm working on recovery a 2nd time.
Do you have much pain with it do you ni what caused relapse
How please ?
@@jeah1827 do you have hypomobility?
This is good news Tanya! I'm happy for you! Thanks a lot for sharing this.
Do you have hypomobility there is a link with hypy
I still have FND. I will start up keto again soon. Still covid in our home, but once thats over.
Thank you for sharing your treatment information!
I also started a youtube channel and some is about FND
Hi there
I am from Toronto and really am looking for a healing for my FND
You can contact the centre Ottawa Performance Care, or in Toronto: danieldemian.com
I don’t think it’s ever truly ‘gone’ as such , but you may have long periods with very little symptoms. It’s a fluctuating condition.
Yes I agree, it’s still at the point luckily where it does not affect my day to day, I’m able to work full time, the chronic fatigue has never set back in to where it was years ago. I am fortunate that way. The arm tremor is still there but isn’t constant. That’s basically the main thing that can be present here and there. I still have to be careful with sound but that is mostly due to my previous condition RHS and the shingles have been reactivated 3 times since this video.
What is rhs@@TanyatasticTalks
@@Truerealism747 Ramsay Hunt Syndrome - shingles in the ear and facial paralysis
This is my story. A few differences - different pain, different tremors, different ignorant doctors, but .... this is my story. I was in my early 40's. Was visiting my parents, had my young children with me. Woke up in the middle of the night and had the paralysis - thought I was having a stroke. For weeks prior I ignored the painful spots where the blisters were. I had a shingles spot on my ear, iI also had one on my palette, roof of my mouth, back of my throat, deep in my ear canal. I went to the emergency room and was diagnosed "ear infection." No anti-virals given.
Got worse, obviously. Diagnosed myself with the help of google. Went to a neurologist - he had never seen Ramsey Hunt and he dismissed it. Did nothing, basically nothing. Weeks passed, I was dying. Finally got to my home, couldn't walk, eat, talk or do anything other than vomit. Got to my nurse practitioner and she got me to an ENT and put me in ICU.... It's been over 10 years now. I have partial and I consider myself lucky. I have given up on any further treatment - I'm either not sever enough, didn't have a stroke, it's just too rare.
I just received this link - from a friend. She's a massage therapist but had never heard of RHS or FND. This video is helpful, hopeful and reassuring. I thought a lot of the symptoms were just my issues. I see that they are not. I have never spoken of many of these resulting symptoms and problems. THere did not seem to be much of a point. Thank you for stepping out there and sharing your story. I'm very appreciative and grateful. I am very sorry this happened to you. Your recovery is inspiring and I am appreciative of your video and this disclosure of information. I am hopeful there is a tidbit of something that may help me as well.
Pamela Jensen thank you for sharing your story. It’s been a difficult road. Here’s a link where you can find a doctor that’s a part of the same association as OPC. They deal in functional neuroscience. Under keyword search or state/province (whichever works) type where you’re looking. You may have to look a state or province over from where you are if there are no options (I had to do that in my case) iafnr.org/member-referral-directory/
Tanyatastic Talks - thank you I will pursue now I have helpful information. Thank you - do you have more information online in addition to TH-cam?
Tanya!!! This is so amazing and I am so happy for you. To God be the glory and may He keep blessing you both. What a hopeful season you're in. Also, is nobody gonna comment on how good looking the gentlemen is... lol😂.
How much time passed from when you had symptoms til the time you got treatment at this clinic? Did you say 2.5 years?
@@jeah1827 exactly, yes
@@jeah1827 and my symptoms are still 90% resolved just from that 5 day treatment
What was your full set of symptoms?. Thanks.
This will take a bit of time to write out lol. Tremors in hands/arm, gait issues, hypersensitive hearing, chronic fatigue, numbness in limbs- it was starting to progress, facial twitching, neuralgia due to shingles not being treated on time, nervous system constantly overloaded, stutter. Couldn’t work because of all of this. There might be more symptoms missing but anyways.
Awesome!! 💪
I live in northern Australia, may I ask the type of treatment this is called so I can try and locate a practioner here?
Dr. Redfern is a part of an association called the interdisciplinary association of functional neurosciences and rehabilitation are any of these near where you live?
www.tuncurrynaturalhealthclinic.com
www.theconnectedbrain.com.au
If not they may know of other resources in your area
I got this info from the IAFNR website www.iafnr.org/practitioner-database
This treatment changed my life completely. I’m at 98% recovered, no relapse whatsoever in symptoms, able to work full time again! Please let me know if you have any questions
This is amazing, thank you for sharing this information, this will help many people. About the diet - was it just a basic keto diet or something more specific?
@TanyatasticTalks how much was the program approximately?
How did you get your hyperacusis and tinnitus? Hyperacusis is awful
Michael Mc Cormick I had shingles in my ear which caused facial paralysis (Ramsay Hunt Syndrome) which led to hyperacusis and tinnitus. (Not fun at all haha)
@@TanyatasticTalks hi,does all noises bother you with your hyperacusis or just some?
Michael Mc Cormick the hyperacusis was related to all noises, however this treatment removed my hearing sensitivities which was very surprising and amazing. Now I am getting used to environments that have a lot of sound as I have not been around those places for the last 2+ years. I’ll be putting out a video on where I’m at with things now on Saturday.
@@TanyatasticTalks Hi Tanya! Did you have hearing loss as well as tinnitus and hyperacusis? If yes, did it keep getting better, long-term?
Даниил Степанов Hi! No I did not have hearing loss accompanied by hyperacusis or tinnitus. I only had hyperacusis and tinnitus because of shingles in my ear. It got a bit better after 2 and a half years but I was not able to live a normal life. Whenever I’d be in a public setting I had to wear noise cancelling headphones. I have not used them since the 23rd of October, and my hearing has returned to normal. I am now integrating myself back into normal situations slowly.
Ive tried all the supplements and they were a load of rubbish
They didn't help me at all either. She's lucky
Awesome God is good