My child had MLD he was diagnosed at the age of 6 months and we didnt knew the treatment, after 5 months of suffering he died due to respiratory failure Inna lillah wa inna ilaihi rajioon
Have amn diagnosed 2yrs ago use a wheelchairs. Didn't get symptoms till age 45 now 60. It affects only my legs. My son age 32 also has. He started to get symptoms age 28 so he knows he can get worse. I have no idea how I got this both parents walked fine. Enjoy learning all I can.
@@barbaramuro3961 Rose Mary Parker i have MLD too do you guys have links or known somewhere i can lern more about it? and do we have till treatment till now?
My child had MLD he was diagnosed at the age of 6 months and we didnt knew the treatment, after 5 months of suffering he died due to respiratory failure Inna lillah wa inna ilaihi rajioon
I have leukodystrophy it attacked me before I was born and after I was born so 30% of my brain is damaged but I'm still alive
i am a Carrier of the gene MLD MetaCromatic Leukodistrophy
What treatment did you get?
Have amn diagnosed 2yrs ago use a wheelchairs. Didn't get symptoms till age 45 now 60. It affects only my legs. My son age 32 also has. He started to get symptoms age 28 so he knows he can get worse. I have no idea how I got this both parents walked fine. Enjoy learning all I can.
Rose Mary Parker hello Mary is there a you tube channel where you share a bit more or one can ask questions??
@@barbaramuro3961 Rose Mary Parker i have MLD too do you guys have links or known somewhere i can lern more about it? and do we have till treatment till now?
Very helpful thank you 🤗
thank you
ALD Ka ilaj ho Sakta he
I am 30 year old
Please information in hindi language 🙏🙏🙏🙏🙏sir