This makes me wish I had vlogged my journey. I did althrough IVF and made so many connections but I so sick during my process I literally couldn't. Everything started for me with a stomach infection after a surgery so I was not able to eat anything and it was wicked horrible. I had the same expereince as you too where there was extra on top of the CSID. I am also lactose intolerant and a vegetarian- then we found out I dont tolerate fructose so we did allergy testing to see why I was struggling so much and I am allergic to meat and alot of things that should be safe but I am taking Fructaid, Digest Gold and Starch Way in addition to Sucraid depending on what I eat - and finally have balanced out and found what I can eat and what enzyme I need to eat them. My daughter was diagnosed with a corn allergy on 2 months before all this started for me and that is far worse then any of this... Corn is in EVERYTHING. She is also allergic to onion and my husband is allergic to garlic haha so I feel your pain there with that... my daughter is allergic to pepper so we cook with... basically salt. and avocado oil. We are a fun household to eat with haha. Anyway it was so validating when you said how draining it is emotionally to just have to think about what you eat and how it makes you feel. It becomes a full time job. Something other people can't really understand and your not getting the calories and energy you need Its so exhausting.
Thank you for sharing your journey with me. I am on the same long, challenging journey and it's comforting to see someone else with whom I can relate. Most people who do not have these issues really don't understand the complexities of food intolerances and how damaging it can be to your health and lifestyle.
I look forward to checking out all your videos on GI issues. By the way, I have Sucrose Intolerance, Fructose Malabsorption, Pancreatic Insufficiency, and probably SIBO, I totally understand where you are coming from!
Hi Jenny, I was diagnosed yesterday with the CSID. I’m an old lady and I have been sick for 2 years. I’m trying to figure out what to eat and get some sucraid. I am doing research on line about natural alternatives. On Amazon there are many natural digestive enzymes. What kind of test did you take for SIBO? Were you positive? Wondering if I too have SIBO. I hope you are finding answers as this is very frustrating.
Hi! I hope your new diagnosis gives you some answers as it did me! I've found a low sucrose diet works best for me long-term, and if I do want to eat something with higher sucrose I recently found Starchway by Intoleran on Amazon to be a great alternative to Sucraid, which still doesn't work well for me. I was positive for SIBO, twice, and was treated both times. It provided some relief but not as much as I had hoped. This is all very frustrating, and I wish you all the best too! If you have any more questions don't hesitate to ask :)
My 13 year old daughter was diagnosed with csid last year. Been on Sucraid for about 10 months. She hates the med- complains it makes her feel “weird” high, loopy, and confused. She is a kid so she sneaks sugar a lot- and pays for it…. She is frustrated and feels like she can’t eat anything
I talk about this in an update video coming soon, but I tried Intoleran Starchway and found it worked better for me than Sucraid! It's so tough, I'm sorry you both are going through this. If you have any questions please let me know!
It’s interesting that onions are okay, but not garlic. They’re both alliums, and so are chives & leeks & scallions. Does raw vs. cooked make a difference?
Fwiw, I still occasionally screw up medication instructions. With one that expensive, I’d imagine they’d ask about it more often, as annoying as it is.
This makes me wish I had vlogged my journey. I did althrough IVF and made so many connections but I so sick during my process I literally couldn't. Everything started for me with a stomach infection after a surgery so I was not able to eat anything and it was wicked horrible. I had the same expereince as you too where there was extra on top of the CSID. I am also lactose intolerant and a vegetarian- then we found out I dont tolerate fructose so we did allergy testing to see why I was struggling so much and I am allergic to meat and alot of things that should be safe but I am taking Fructaid, Digest Gold and Starch Way in addition to Sucraid depending on what I eat - and finally have balanced out and found what I can eat and what enzyme I need to eat them. My daughter was diagnosed with a corn allergy on 2 months before all this started for me and that is far worse then any of this... Corn is in EVERYTHING. She is also allergic to onion and my husband is allergic to garlic haha so I feel your pain there with that... my daughter is allergic to pepper so we cook with... basically salt. and avocado oil. We are a fun household to eat with haha. Anyway it was so validating when you said how draining it is emotionally to just have to think about what you eat and how it makes you feel. It becomes a full time job. Something other people can't really understand and your not getting the calories and energy you need Its so exhausting.
Thank you for sharing your journey with me. I am on the same long, challenging journey and it's comforting to see someone else with whom I can relate. Most people who do not have these issues really don't understand the complexities of food intolerances and how damaging it can be to your health and lifestyle.
I look forward to checking out all your videos on GI issues. By the way, I have Sucrose Intolerance, Fructose Malabsorption, Pancreatic Insufficiency, and probably SIBO, I totally understand where you are coming from!
Hi Jenny, I was diagnosed yesterday with the CSID. I’m an old lady and I have been sick for 2 years. I’m trying to figure out what to eat and get some sucraid. I am doing research on line about natural alternatives. On Amazon there are many natural digestive enzymes. What kind of test did you take for SIBO? Were you positive? Wondering if I too have SIBO. I hope you are finding answers as this is very frustrating.
Hi! I hope your new diagnosis gives you some answers as it did me! I've found a low sucrose diet works best for me long-term, and if I do want to eat something with higher sucrose I recently found Starchway by Intoleran on Amazon to be a great alternative to Sucraid, which still doesn't work well for me. I was positive for SIBO, twice, and was treated both times. It provided some relief but not as much as I had hoped. This is all very frustrating, and I wish you all the best too! If you have any more questions don't hesitate to ask :)
My 13 year old daughter was diagnosed with csid last year. Been on Sucraid for about 10 months. She hates the med- complains it makes her feel “weird” high, loopy, and confused. She is a kid so she sneaks sugar a lot- and pays for it…. She is frustrated and feels like she can’t eat anything
I talk about this in an update video coming soon, but I tried Intoleran Starchway and found it worked better for me than Sucraid! It's so tough, I'm sorry you both are going through this. If you have any questions please let me know!
It’s interesting that onions are okay, but not garlic. They’re both alliums, and so are chives & leeks & scallions.
Does raw vs. cooked make a difference?
Fwiw, I still occasionally screw up medication instructions. With one that expensive, I’d imagine they’d ask about it more often, as annoying as it is.
your beautiful