My CIDP story and 1st year of recovery

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  • เผยแพร่เมื่อ 22 ธ.ค. 2024

ความคิดเห็น • 104

  • @brothermaynardsbrother
    @brothermaynardsbrother ปีที่แล้ว +3

    Greetings. I was fortunately just recommended this video by TH-cam. I, too, have that four letter acronym as a constant companion but I am nowhere near as cruelly impacted as you were. I am very sorry that you had to suffer so tremendously for so long. Your recovery is absolutely remarkable. You possess levels of fortitude and determination that are far statistical outliers. You are one of those rare folks that possesses true grit. I applaud you most heartily on being so steadfast. You are undeniably a Superwoman.
    Please do continue to thrive. Smile often and be of excellent cheer.

  • @vincerademacher8013
    @vincerademacher8013 5 ปีที่แล้ว +11

    You are an incredible inspiration for all people dealing with a devastating neurological disease like CIDP! I was recently diagnosed with CIDP and MGUS in October and it has progressed so quickly it has been scary. I came across this video trying to educate myself on what I should expect. Now anytime I start to get depressed about it or begin to lose hope, I re-watch your video and it inspires and humbles me at the same time. Thank you so much for sharing your story. You are an amazing person!

    • @mirdhainspired
      @mirdhainspired 5 ปีที่แล้ว +1

      I am diagonosed with SIDP from Nov 2019 and it's progressive.my legs becoming weak day by day, doctors gave me steroids ivs but condition is not changing so far.hoping for speedy recovery.

  • @keyvanshirzadi9996
    @keyvanshirzadi9996 5 ปีที่แล้ว +6

    God bless you. Beautiful video. I went through the same thing in 2017 through to 2018. 8 months in hospital 6 months in icu. With good support and resilience i made a full recovery. Stay stong💪❤🙏

  • @ellebi19
    @ellebi19 5 ปีที่แล้ว +9

    Wow Courtney, I am super impressed how you recovered from that devastating condition. I feel your pain, I went through GBS, which I always thought was CIDP and know exactly how frustrating is for someone full of live and love. Always stay positive and smile like you did on the video. I truly love the fact that many people think that life stopped still and was over at the moment they were diagnosed and experienced the symptoms. But, you did went above and beyond to recover and get better, and never stopped smiling at life. I was diagnosed in 2011 when was still very uncommon and no Doctor knew how to well treat the condition. I have overcome bad depressions for not being capable to do the same things I used to do. But, looking at your video today is big proof of faith and motivation for me to never think that nothing is impossible. Shears and please never stop smiling!!

  • @justhavefun2640
    @justhavefun2640 5 ปีที่แล้ว +6

    what you said about forgiving yourself for not achieving an unrealistic goals hit me so hard.
    thank you .

    • @joans6047
      @joans6047 5 ปีที่แล้ว +1

      Yasss oh my goodness yass! Saw a quote today that ties in with this. "Be GENTLE with yourself ... you're doing the BEST that you CAN!" ~ source unknown ~

  • @kammytsfrenchlife2202
    @kammytsfrenchlife2202 5 ปีที่แล้ว +6

    I live in South of France and today is Friday may 17th, 2019 and I comment from my hospital bed suffering from a miscarriage which started from monday, 3 days after my husband and I found out that the pain he has been feeling since September 2018 is CIDP. We started researching and voila. Your video has giving me new hope and renewed my faith. Thank you for sharing.

  • @JB-cx6nw
    @JB-cx6nw 5 ปีที่แล้ว +1

    Hi Courtney, my wife and I just watched your video. YOU are AMAZING!! I was diagnosed with CIDP in 2016 and have been struggling with the adjustments that must be made. I was pretty active, and I miss all my outdoor activities. I continue to workout, when I have the energy, in hopes of going back to work and resuming activities. Thank you fore your transparency and willingness to make and share this video. You are a beautiful woman inside and out!! God bless you Courtney!! Sincerely, Jack B.

  • @billbayh5179
    @billbayh5179 6 ปีที่แล้ว +4

    My, my, Courtney, your words are magnificently true. I laughed and cried (a little) for the first half of your video. '...yes to dance beneath the diamond sky with one hand waving free'. You made it! You've given the absolute best of yourself; you recognize the beauty of your opportunity to see people at their very best. Understanding, seeing and feeling unconditional love...look at you now. Congratulations!

  • @Zoe_844
    @Zoe_844 4 ปีที่แล้ว +2

    I’m crying! How beautiful you are. You’re a strong lady and even through what you’ve been through you still find positives. May you live a very happy beautiful life. ♥️

  • @giasony99
    @giasony99 4 ปีที่แล้ว +1

    I love your message. Thank you for sharing and I wish you all the best.

  • @asaschouten3911
    @asaschouten3911 3 หลายเดือนก่อน

    Thank you so much for your story! I love how you were able to mentally stay strong. Im struggling with that the most more than physically. I have lost everything and I don’t know where/how to rebuild.

  • @soylomasawesomeunamadre4347
    @soylomasawesomeunamadre4347 4 ปีที่แล้ว +1

    You are a beautiful in side and out. God bless you.

  • @LectronCircuits
    @LectronCircuits 5 ปีที่แล้ว +3

    Through it all, you never lost your incredibly high cuteness factor. Cheers!

  • @Loganinmortal
    @Loganinmortal 5 ปีที่แล้ว +2

    You're a wonderful woman. and an inspiration for many people who are going through the same thing.

  • @delnita2064
    @delnita2064 5 ปีที่แล้ว +1

    I love your strength and you Courtney. You have given me the strength to fight and make my physical body better. I thank for that. You made me love life again after watching you.

  • @victorortiz7616
    @victorortiz7616 4 ปีที่แล้ว +1

    Hoy te conocí por medio de estos videos y estoy muy feliz de haberlo hecho, no sé si haya alguien con tu fuerza, tu energía y tu valor te admiro y te agradezco sinceramente espero algún día poder saludarte.. Eres increíble. Un abrazo

  • @melrineholt906
    @melrineholt906 5 ปีที่แล้ว +5

    You look so pretty Courtney you have come a long way since I met you Hope you get everything you want you're a super beautiful woman

  • @RUNIHearBanjoMusic
    @RUNIHearBanjoMusic 4 ปีที่แล้ว +1

    Just found this. Beautiful. Thank you for putting it out there. Your friend. David B. 😉

  • @trailgoodsco
    @trailgoodsco 5 ปีที่แล้ว +1

    You are my inspiration Court! I can't wait to see you hike the Camino!

  • @772doglover
    @772doglover 4 ปีที่แล้ว +1

    I’m currently recovering from CIDP, I got diagnosed officially on June 8 but I had started to notice weakness in my legs since March. My upper body was not really effected much which I am so grateful for and seeing your recovery is incredibly humbling and emotional. I am so in awe of the strength you had to recover from such a difficult condition and with so much positivity. It is a great reminder to me to not be so hard on myself and get frustrated with the rate of my recovery, I feel determined to make a full recovery and your video has brought me a new found motivation thank you so much for sharing your story

  • @superduper6532
    @superduper6532 4 ปีที่แล้ว +1

    You are awesome Courtney. You give hope to struggling people. Great video documentation and inspiration. Had the nerve test and am awaiting the spinal tap, truly scares me as this dizzy deadness is progressing.

    • @CourtneyRunyonUnicort
      @CourtneyRunyonUnicort  4 ปีที่แล้ว +1

      first of all... super duper is the coolest name ever. second, youll be ok. it never feels that way in the beginning, but you will. i post waaaay more on my unicort FB page if youre interested and i have a FB group called "we are greater than" that's pretty uplifting if you want to join

    • @superduper6532
      @superduper6532 4 ปีที่แล้ว

      Thanks for the encouragement! May just have to get on board with FB and the group. Physical Therapy..day one, here we go.

  • @carlogambino2160
    @carlogambino2160 5 ปีที่แล้ว +1

    God bless this woman she is so awesome and she’s a fighter. Your a great person and a inspiration much love from Kentucky

  • @joans6047
    @joans6047 5 ปีที่แล้ว +3

    You are such a beautiful, radiant person, inside and out! I just came from a drs appt where CIDP was mentioned as a suspected culprit for my weakness, numbness, tingling, unsteadiness, etc. and now we're working on getting Lumbar Puncture procedure set up for next few days or week... I'm honestly terrified. Never even heard of CIDP ... thought I was going in for 4th MRI today, so I was blindsided and overwhelmed. I found your video on TH-cam, and I just fell in love with you! You give me hope and courage, Courtney. I felt like you were talking directly to me when you said if you are living your life thinking about what could have been, or focusing on what you're missing, you're not getting it. You're missing out on your life now! Oh my gosh -- what an ephiphany moment that was for me. You're EXACTLY RIGHT... and I have been stuck in this rut for over a year.
    Sorry to write you a novella instead of a brief comment, but I had to thank you, Courtney. God bless you and keep you strong and thriving. I subscribed to your channel. ❤❤❤❤ Looking forward to more videos.

    • @CourtneyRunyonUnicort
      @CourtneyRunyonUnicort  5 ปีที่แล้ว +1

      Joan Steakley girl, you are going to be ok! This is going to give you what everyone is craving in life - strength, meaning, substance, and purpose. I post much more on Facebook if you want to find me there. My name is Courtney Runyon ❤️

    • @joans6047
      @joans6047 5 ปีที่แล้ว +2

      @@CourtneyRunyonUnicort Yes, Miss Unicort, I found you and followed you on fb already! Thanks for the sweet reply and for the inspiration! Much love!

  • @TheonlyViera
    @TheonlyViera 3 ปีที่แล้ว

    you are my new inspiration, just being diagnosed today, not fully but the neuro is 95% positive just needs the confirmation that i have CIPD. but seeing you come this far, inspires me. i was literally in tears watching this!

  • @rosebud6485
    @rosebud6485 5 ปีที่แล้ว +2

    Bless your heart. You are one strong woman!! I actually have a neighbor who was diagnosed with this and then unbelievably, her husband was just did agnosed with it about a week ago. So rare for husband and wife to have both been diagnosed. I believe about four years apart.

  • @AuntSnazzy
    @AuntSnazzy 4 ปีที่แล้ว

    Hi Courtney,
    You are SO STRONG. I'm very grateful I found your video!
    I'm 33 and today my feet are flippers. No confirmed diagnosis yet, but my neuro explained to me what CIDP is and the symptoms line up too well.
    I want to tell you, Courtney, that even if my situation never progresses to the extent of yours, I hope with all my heart that I can have a fraction of your grace.
    Thank you 💜

  • @angelinawilliamson6841
    @angelinawilliamson6841 ปีที่แล้ว

    Thank you for sharing your story what a miracle you are blessing dear AMAZING so much to be thankful for sure

  • @bymarisadeoliveira
    @bymarisadeoliveira 6 ปีที่แล้ว +2

    like number five from Brazil. Follow you. Very proud of you. Keep going. Good vibes from my tropical country

  • @DroRapsOfficial
    @DroRapsOfficial 3 ปีที่แล้ว

    I was diagnosed with CIDP 3 days ago. You give me the courage that I desperately need right now. I also have the swallowing and difficulty speaking symptoms like you, and seeing you be able to speak normally and walk again really fills me with hope. Thank you for sharing.

  • @reesealexandrea
    @reesealexandrea 5 ปีที่แล้ว +2

    I also have cidp and I've had it for 8 years now and it SUCKS!
    Thank you for sharing your story you are such an amazing human being and God bless your soul!

    • @coreybradley7637
      @coreybradley7637 5 ปีที่แล้ว +2

      I also was diagnosed 1 year ago, but had symptoms for about 4 years prior to that. So far I haven't responded well to the treatments. Thank you for the inspiration to keep going!

  • @GTschumacher
    @GTschumacher 5 ปีที่แล้ว +1

    You're incredible...
    Great story

  • @multitoolish
    @multitoolish 5 ปีที่แล้ว +1

    Hello, my 4yo got cidp when he was 3. He lost control of his feet. With ivig he's slowly getting back where he can walk with braces. His left foot came back and it was bent over stiff. He had surgery on his Achilles tendon so his foot would fit into a brace well. Thank you sooooo much for sharing!!! Your an inspiration!!!

  • @carlogambino2160
    @carlogambino2160 5 ปีที่แล้ว +1

    Freakin awesome!!! I’m speechless You are doing so good I’ve said it to you before your so inspirational! Keep fighting

  • @dr.dobaiattila2209
    @dr.dobaiattila2209 5 ปีที่แล้ว +2

    You are so so SWEET:-) GOD BLESS U !

  • @mariavalore6682
    @mariavalore6682 8 หลายเดือนก่อน

    I love this! Thanks for sharing ❤️❤️❤️❤️❤️
    God Bless you!

  • @sgonz007
    @sgonz007 5 ปีที่แล้ว +2

    Thank you for the video & speech in the end.

  • @ramonare6579
    @ramonare6579 6 หลายเดือนก่อน

    ❤ you are a rock star babe. Stay strong CIDP sista ❣️

  • @steelcurtin72
    @steelcurtin72 5 ปีที่แล้ว +3

    Your Awesome!!!!
    Stay Strong!!
    I have a friend going through the same thing gonna show him you video..

  • @melrineholt906
    @melrineholt906 5 ปีที่แล้ว +3

    Hope you're feeling alright haven't heard from you in a couple months You do look super pretty

  • @sheilacallahan1056
    @sheilacallahan1056 2 ปีที่แล้ว

    You are an inspiration and such a nice person

  • @keithcrosby1
    @keithcrosby1 2 ปีที่แล้ว

    Thank you for the video… I am 6 months into my ‘treatments’ for CIDP. I am transitioning from IVIG to Rituxan because the monthly infusions of IVIG aren’t getting the job done. My symptoms aren’t as severe as yours. I can sort of walk. But thank you for the encouragement.

  • @lachenmetjanus
    @lachenmetjanus 5 ปีที่แล้ว +2

    Hi, thank you for your beautiful post. I am fighting through CIDP as we speak. After recovering a bit I just had a setback and whas mentally at an all time low. Just saw your video and I feel motivation to not give up again. I hope 2019 will be as great as you hope it is in the end of your video. All the best

  • @billbayh5179
    @billbayh5179 5 ปีที่แล้ว +3

    You are an incredibly blessed woman with an incredible family. Your experience has enriched you with an appreciation of real love. The mountain you've climbed 10,000 times is nothing more than a hill soon and your story is a blessing to everyone who have followed your progress. I wish you receive everything - the desires of your heart, for sharing your amazing story.

  • @montrealdublin
    @montrealdublin ปีที่แล้ว

    Thanks congratulations for your courage and fight....

  • @Jay-bf2cg
    @Jay-bf2cg ปีที่แล้ว

    Wow very inspirational story!!

  • @OPETH_OPETH
    @OPETH_OPETH 4 ปีที่แล้ว

    I cried during watching the video. I understand how hard it’s to lose everything around you, when you feel yourself abnormal anymore. I’m a CIDP patient for 14 months right now and i don’t know how and when I’ll go back to normal life again.

  • @farah-xh4vd
    @farah-xh4vd 5 ปีที่แล้ว +1

    I’m 16 and I have cidp since I was 11. My cidp always relapsing every 1-4 months after ivig until now. I love your inspiration story so much! thank you for sharing this 🙆🏻‍♀️ (sorry for my english)🇲🇾

  • @AmandaLubyk
    @AmandaLubyk 5 ปีที่แล้ว +1

    Thank you for this video - I can personally relate as this is also my story.

  • @CandeK3908
    @CandeK3908 5 ปีที่แล้ว +1

    Hola Courtney ! Te envío un fuerte abrazo desde Monterrey, Nuevo León, México. Fui diagnosticada con CIDP en enero de este año y estoy en tratamiento con Inmonoglobulina. Mi puercazo (Así le llamo de cariño a mi cuerpo😁), me advirtió que algo pasaba y gracias a Dios me trataron en la etapa inicial por llamarlo así. Como mencionas, tuve un año 2018 de mucho estrés y el CIDP me hizo reflexionar sobre demasiadas cosas de mi vida. Te envío muchas bendiciones, eres hermosa, una guerrera y tu actitud es lo mejor. Me tomaré el atrevimiento de compartir tu video en mi face. Un abrazo 🤗. Bendiciones 🙏

    • @arturocastro6635
      @arturocastro6635 4 ปีที่แล้ว

      Sandra soy de Monterrey también y me diagnosticaron Cdip, me gustaría platicar con alguien con mi misma enfermedad

  • @sofianehra5193
    @sofianehra5193 ปีที่แล้ว

    Sailing in the same boat dear...Big hug from India....❤❤

  • @yenglee4638
    @yenglee4638 5 ปีที่แล้ว +1

    You recover so fast. I can't wait until I walk again. I'm a paraplegic. One leg is weaker then the other

    • @CourtneyRunyonUnicort
      @CourtneyRunyonUnicort  5 ปีที่แล้ว

      yeng lee From autoimmune or spinal cord injury?

    • @yenglee4638
      @yenglee4638 5 ปีที่แล้ว

      @@CourtneyRunyonUnicort I'm not sure you have both?

  • @CorieJo
    @CorieJo 3 หลายเดือนก่อน

    I cried throughout your entire video. Newly diagnosed with CIDP. This is the scariest thing I've ever been through. Your video is inspiring.
    Question tho. You said your disease was caused by stress. Can you tell me more about that? It would definitely make sense for me as well. But unfortunately I haven't received many answers to my multiple questions.

  • @esthelacazaresflores9938
    @esthelacazaresflores9938 4 ปีที่แล้ว +1

    Hola este video es de mucho valor y ayuda para los que tenemos CIDP, solo quisiera pedir de favor si se puede, que se ponga la opcion de traducir al español.. para ayuda de los que no sabemos muy bien ingles... muchisimas gracias.

  • @ILV2597
    @ILV2597 11 หลายเดือนก่อน

    I love your story, I have CIDP and live in Nevada. I’d love to talk with you if you have a little time.

  • @maher1818
    @maher1818 4 ปีที่แล้ว +1

    hello I was diagnosed in 2016 after 8 months and 23 days in USC and I am 90 % Curd thank God . But I still have norathapy in my feet and I can’t pend ( squat down ) I know how hard it is god bless u

  • @gashacker1
    @gashacker1 8 หลายเดือนก่อน

    I have suffered two bouts of Guillain Barre. (43 days on a ventilator). I am doing well now. I hope you are also doing well.......

  • @mariac4729
    @mariac4729 5 ปีที่แล้ว +8

    Hi, my best friend is actually going through the same thing she was diagnosed in the end 2017 going into 2018. She had lost all feeling in her hands first then in her legs. It has been over a year since she had been diagnosed. She has regain some function in her legs, she has to walk with braces and canes. She still can really lay her feet flat on the heel because her nerves aren't recovered. With pt she gained the use of her hands again. Everything so far with her plasma treatments it has been helping her make her recovery. But lately she has been depressed and so frustrated, I keep telling her that everything is going to be okay you've come this far. But it's just not working is there anything that you recommend for her to do or for me to help her do? Thanks

    • @CourtneyRunyonUnicort
      @CourtneyRunyonUnicort  5 ปีที่แล้ว +1

      Maria C Is she still improving? Or is it up-and-down? Find me on Facebook. I check the messages there much more often - “Unicort” is the name of my page

  • @billwithers9013
    @billwithers9013 5 ปีที่แล้ว +1

    You are my hero.

  • @terrys8808
    @terrys8808 6 ปีที่แล้ว +2

    I love your spirit. I am a girl going through some hardships and can relate to health struggles. I hope you are so proud of yourself. You are amazing. Your figure is absolutely beautiful too. I wish you happiness and continued healing in 2019.🌸

  • @honerdcouster8723
    @honerdcouster8723 5 ปีที่แล้ว +1

    How do your arms feel an update please?

  • @AlmondToy
    @AlmondToy 4 ปีที่แล้ว +1

    What’s the name of song?

  • @chronicallypep5
    @chronicallypep5 4 ปีที่แล้ว

    So inspiring!! ❤️

  • @argylemontzis5474
    @argylemontzis5474 4 ปีที่แล้ว

    Hi my name is Argy I’m 19 and suffer from a brain injury that affects my daily functioning do you have any tip on keeping my thoughts straight on what my goals are

  • @granjitaenconstruccion3496
    @granjitaenconstruccion3496 4 ปีที่แล้ว

    Fuera excelente que pudiera subtitularlo al español, tengo este diagnostico y lamentablemente en mi pais hay muy poca información. Me siento sola 😞

  • @carmennichting8468
    @carmennichting8468 ปีที่แล้ว

    Your story sounds like you had GBS..... because I had it, with the exact symptoms..... in 2007. I 'fully' recovered, but now, 15 years later I am developing the same symptoms, slower progression thought. How long did it take for your symptoms to get worse...? days? weeks?

  • @erkutyunus5003
    @erkutyunus5003 5 ปีที่แล้ว +1

    Hi ! Did you recover totaly ?

  • @ILV2597
    @ILV2597 11 หลายเดือนก่อน

    You are so strong

  • @davidxu2684
    @davidxu2684 5 ปีที่แล้ว +1

    不错,加油

  • @kakakka4511
    @kakakka4511 5 ปีที่แล้ว +1

    Mi padre el 2013 fue diagnosticado, con esta enfermedad, y su esfuerzo , fe en Dios, trabajo medico , ahora hace su vida , prácticamente normal, con sus medicamentos al día y sus controles lleva su vida casi normal, es una enfermedad muy terrible, pero se puede llevar.

  • @honerdcouster8723
    @honerdcouster8723 5 ปีที่แล้ว +1

    I bet your therapist's consider you the hi lite of their careers fearless joyfulness in one package

  • @JuliusCrawley-m6w
    @JuliusCrawley-m6w ปีที่แล้ว

    Was diagnosed with CIDP last week at age 74

  • @rogerruelas8206
    @rogerruelas8206 4 หลายเดือนก่อน

    I have some questions can you help

  • @SuprinaTamang047
    @SuprinaTamang047 4 ปีที่แล้ว +1

    Hi Ma'am my Husband is suffering from CIDP since 2015.He have still footdrop in both legs and lower limbs..He used a couple of year Predisolone And he got little bit recovery ...Can You suggest me the best Exercise for these diseases if Then Help me🙏🙏🙏🙏❤❤❤❤ You are really amazing
    Inspiring women I am From Nepal

  • @meghanandfood6239
    @meghanandfood6239 5 ปีที่แล้ว +1

    I was diagnosed with CIDP when I was 12 years old, now I'm almost 20 years. And I walk with AFOS since then. In my case it's impossible to fully recover from it.

  • @mhandrexariola7039
    @mhandrexariola7039 5 ปีที่แล้ว +1

    hi can i ask a question?

  • @mhandrexariola7039
    @mhandrexariola7039 5 ปีที่แล้ว +1

    I ask a question because i have cidp ,and my hand i cant move and my feet

    • @maher1818
      @maher1818 4 ปีที่แล้ว

      Rex1014 GT if u have any questions please ask me I want through hill but I’m 90 % Curd God bless your soul

  • @jaycurb1325
    @jaycurb1325 5 ปีที่แล้ว +2

    Did you ever have dropped feet

  • @mhandrexariola7039
    @mhandrexariola7039 5 ปีที่แล้ว +1

    your hand have spastisity?

  • @michellelongo5587
    @michellelongo5587 4 ปีที่แล้ว +1

    Did you have where your feet turn blue and purple

    • @CourtneyRunyonUnicort
      @CourtneyRunyonUnicort  4 ปีที่แล้ว

      Michelle Longo I can’t remember, but I don’t think so. My feet got swollen sometimes and my hands. And they would get cold from bad circulation. I’ve heard of peoples feet turning blue though

    • @michellelongo5587
      @michellelongo5587 4 ปีที่แล้ว +1

      Thank you replying It was nice to see that my brother condition was something out there, his onset had been slow but he has his up and downs happens to be back in hospital getting a plasma treatment

  • @nettynoodle8336
    @nettynoodle8336 3 ปีที่แล้ว

    You... Just you ❤️💋kin titanium

  • @vengaboyfarow6487
    @vengaboyfarow6487 5 ปีที่แล้ว +1

    I hawe cidp thanks for movie it s beter