How is it that many medical schools have not assimilated the information and experience that Dr Papernik and other ME/CFS specialists have amassed on this illness? Why is it that they instead either ignore the illness entirely or assume that it is psychosomatic or not a real illness? Many thanks to Dr Papernik for making an effort to educate the medical community.
There is no cure. These doctors don't know what they are doing or what they are dealing with. No one knows the answer. They just keep making money pretending they know how to cure something that no one knows how to cure. Doctors make me sick. They are like the guys who come to fix your roof and after they leave the roof is still leaking and you have lost a load of money for nothing.
@@maryjenkins1939 If he's been researching this since the 1980s he's wasted 40 years of his life because he's come up with nothing except a great income for himself and his family. What have I done since the 1980"s? I created a global manufacturing company that I sold twenty years ago when I was 50 giving me enough money to last for eternity. I've spent the last 5 years caring for my adolescent son who had very severe ME/CFS, but now he is 80% recovered and I estimate that within a year he will be 100% recovered. Needless to say I cured my son myself and I ignored and fired all the stupid ME/CFS specialists who know next to nothing about this illness.
@@JohnBedson well if you have a cure, by all means please share it. I never claimed Dr. Papernik had a cure. But I know him enough to know it’s not about money. We are done here because you are just spewing hatred.
This Doctor saved my life. I will forever respect and feel great gratitude for having met him. You won’t find a better Doctor. They don’t make them like him. He’s compassionate and has a great sense of humor. He teaches which is crucial.
@@JohnBedson he actually saved my life from Covid. I have 2 autoimmune diseases that only he seems to truly understand! The ER gave me an infusion that should have not been given to someone with an over reactive immune system. Senitas medical center really stinks! Would not put the calls through to him, even though he directed me to contact him immediately if I caught Covid. He is the smartest doctor everyone in my family ever met. He has improved the quality of my life, I live w chronic pain also).
@@maryjenkins1939 I agree! There aren’t many as knowledgeable about so many different significant areas that make our bodies function. And when he isn’t sure about something, he knows exactly where to look, right there on his laptop in front of you. He started as my autoimmune specialist, and now he’s my general practitioner too. He’s the doctor we trust with all the parts of my care. We care about this wonderful man like a family member. He listens, he cares, he’s thorough, he answers all of your questions. He understands how CFS & FM + chronic pain injuries interferes with life, and figured out to improve the quality of my life. I wish he would go into private practice in the Farmington Valley. We haven’t been impressed with Senitas medical center, but are so glad we are still able to do virtual appointments or see him in the Newington office.
Thank you for helping to raise awareness of this illness among the wider medical community. Highlighting that there is a dearth of training and awareness in formal medschool programs is so important because in this day and age for a medical practitioner to claim it's an illness that's all in the mind remains a disgrace and inexcusable with the evidence out there. Hopefully the next generation of sufferers will be better respected by physicians.
Dr. Papernik, really helped me. He actually acknowledged that what I was feeling was real. We moved to Kentucky, since and finding a doctor to listen and help is not easy!! Thank you, Dr. Papernik!
This is the best doctor I have ever had the privilege of seeing! Dr. Papernik has improved the quality of my life so much since I found him and have been under his care. He is a wonderful human being too. He’s caring, listens and has never been stumped by any question I’ve (or my husband) had. He truly cares about his patients.
fibrozombie He hasn’t abandoned us. My guess is he’s looking for an office where rushing patients in/out to be able to bill more (and make the practice more money) isn’t more important than spending all the time you need with your patient is. Dr. Papernik was thorough & never rushed patients. He always answered every one of our questions (& sometimes I had a written list).
Mister Crazy Bear I believe he’s still looking for an office that’s a better fit. I’m still having my prescriptions filled by the Prohealth office so far. Maybe your general md or pain management doctor would take over your pain medicine prescriptions?
@@ThePaperCraftLady He had me on so many narcotics if I hadn't made it to pain management I could have died. I'm tapering off of them right now. My MME number was 3 times higher than it should be. He left a bunch of his patients to suffer and die. I doubt he'll be back.
I’m to blessed to have him as my primary doctor thanks to his experience he discovered my illness ;now I’m looking we’re he is working to continue with him; if someone knows please let me notes.thanks.
Thank you Dr. Papernik. My 5 year old son got a severe case of ( lab documented ) EBV in spring 1986 - 104 fever at night for a week. A multitude of neurological symptoms, classic for Chronic Fatigue Syndrome, followed. He still has symptoms, and fatigue. Yes, research shows EBV can cause autonomic neuropathy, thyroiditis, and more. There has also been research ( at least early on ) looking at EBV as a potential bioweapon and as a potential agent to deliver genes into the cell nucleus. It might be very interesting to look carefully at the early research on this virus. I find it interesting that the outbreaks occurred in 2 rather remote areas. I have read about Operation Sea Spray, Operation Drop Kick, Operation Big Itch, and more. Hmmm.
I'd never heard of those experiments, thank you. I looked them all up and also found out "green energy" doesn't make environmentally friendly, it means radioactive.
@@maryjenkins1939 And there is another aspect to this strange dilemma. Why are some people ( especially women ! ) susceptible ? Perhaps the blood brain barrier is leaky - influenced by an unstable pelvis and/or neck.
@@maryjenkins1939 But you falsely claimed that this doctor "saved my life" earlier on. Now you agree with me that there is "no test or relief." Make up your mind. Does this doctor have anything to offer ME patients, or is he just another of the thousands of other doctors conning ME patients out of their money while offering "no test or relief."
Then why did you abandon your patients in September 2019 and leave them on narcotics leaving them to go into withdrawal? This man put me on an enormous amount of opiods at 21 and until I got to the Hartford Healthcare Pain Management Center. I finally got someone to let me know how much narcotics I was on. The recommend amount of MMEs are between 90 and 120. He had me on almost 4 times that amount at times. I am now weaning off the opiods and going to figure out a safer way to treat my pain.
There are good reasons why he walked out of Griffin. He wasn’t allowed to practice in the manner he’s accustomed. They blindsided him. Good luck finding a more compassionate kind and experienced human these days.
@@JohnBedson He answers every question his patients have. He doesn’t rush anyone. He cares. Taking your time with patients isn’t good for business. I assume they wanted him to spend a lot less time with his patients.
How is it that many medical schools have not assimilated the information and experience that Dr Papernik and other ME/CFS specialists have amassed on this illness? Why is it that they instead either ignore the illness entirely or assume that it is psychosomatic or not a real illness? Many thanks to Dr Papernik for making an effort to educate the medical community.
I have known him for many years. He’s been teaching from all universities.
God, how do you get us better?....this is an awful illness....Oliver from England. Thank you for being open minded and having compassion.
There is no cure. These doctors don't know what they are doing or what they are dealing with. No one knows the answer. They just keep making money pretending they know how to cure something that no one knows how to cure. Doctors make me sick. They are like the guys who come to fix your roof and after they leave the roof is still leaking and you have lost a load of money for nothing.
@@JohnBedson he’s been researching this since the 80s - what have you done?
@@maryjenkins1939 If he's been researching this since the 1980s he's wasted 40 years of his life because he's come up with nothing except a great income for himself and his family. What have I done since the 1980"s? I created a global manufacturing company that I sold twenty years ago when I was 50 giving me enough money to last for eternity. I've spent the last 5 years caring for my adolescent son who had very severe ME/CFS, but now he is 80% recovered and I estimate that within a year he will be 100% recovered. Needless to say I cured my son myself and I ignored and fired all the stupid ME/CFS specialists who know next to nothing about this illness.
@@JohnBedson well if you have a cure, by all means please share it. I never claimed Dr. Papernik had a cure. But I know him enough to know it’s not about money. We are done here because you are just spewing hatred.
Irrelevant. John asks a valid question
@@maryjenkins1939
This Doctor saved my life. I will forever respect and feel great gratitude for having met him. You won’t find a better Doctor. They don’t make them like him. He’s compassionate and has a great sense of humor. He teaches which is crucial.
He "saved your life"? That CANNOT be true. Stop exaggerating and tell us the truth. Apart from listening to you, what did he actually do to cure you?
I agree 100%
@@JohnBedson he actually saved my life from Covid. I have 2 autoimmune diseases that only he seems to truly understand! The ER gave me an infusion that should have not been given to someone with an over reactive immune system. Senitas medical center really stinks! Would not put the calls through to him, even though he directed me to contact him immediately if I caught Covid. He is the smartest doctor everyone in my family ever met. He has improved the quality of my life, I live w chronic pain also).
@@ThePaperCraftLady it’s nice to hear from someone who understands him like I do.
@@maryjenkins1939 I agree! There aren’t many as knowledgeable about so many different significant areas that make our bodies function. And when he isn’t sure about something, he knows exactly where to look, right there on his laptop in front of you. He started as my autoimmune specialist, and now he’s my general practitioner too. He’s the doctor we trust with all the parts of my care. We care about this wonderful man like a family member. He listens, he cares, he’s thorough, he answers all of your questions. He understands how CFS & FM + chronic pain injuries interferes with life, and figured out to improve the quality of my life. I wish he would go into private practice in the Farmington Valley. We haven’t been impressed with Senitas medical center, but are so glad we are still able to do virtual appointments or see him in the Newington office.
I'm incredibly blessed to have this man as my physician.
Can you please tell me the name/location of his office? I can't find it online. Thanks!
@@gabby9947Internal Medicine of Greater New Haven
@@gabby9947Internal Medicine of Greater New Haven
Thank you for helping to raise awareness of this illness among the wider medical community. Highlighting that there is a dearth of training and awareness in formal medschool programs is so important because in this day and age for a medical practitioner to claim it's an illness that's all in the mind remains a disgrace and inexcusable with the evidence out there. Hopefully the next generation of sufferers will be better respected by physicians.
Dr. Papernik, really helped me. He actually acknowledged that what I was feeling was real. We moved to Kentucky, since and finding a doctor to listen and help is not easy!! Thank you, Dr. Papernik!
This is the best doctor I have ever had the privilege of seeing! Dr. Papernik has improved the quality of my life so much since I found him and have been under his care. He is a wonderful human being too. He’s caring, listens and has never been stumped by any question I’ve (or my husband) had. He truly cares about his patients.
Then why did he abandon us?
fibrozombie He hasn’t abandoned us. My guess is he’s looking for an office where rushing patients in/out to be able to bill more (and make the practice more money) isn’t more important than spending all the time you need with your patient is. Dr. Papernik was thorough & never rushed patients. He always answered every one of our questions (& sometimes I had a written list).
Mister Crazy Bear I believe he’s still looking for an office that’s a better fit. I’m still having my prescriptions filled by the Prohealth office so far. Maybe your general md or pain management doctor would take over your pain medicine prescriptions?
@Mister Crazy Bear Pain Management Center in West Hartford. Dana an APRN there is amazing.
@@ThePaperCraftLady He had me on so many narcotics if I hadn't made it to pain management I could have died. I'm tapering off of them right now. My MME number was 3 times higher than it should be. He left a bunch of his patients to suffer and die. I doubt he'll be back.
Thanks for this great video!
I’m to blessed to have him as my primary doctor thanks to his experience he discovered my illness ;now I’m looking we’re he is working to continue with him; if someone knows please let me notes.thanks.
Internal Medicine of Greater New Haven
Thank you Dr. Papernik. My 5 year old son got a severe case of ( lab documented ) EBV in spring 1986 - 104 fever at night for a week. A multitude of neurological symptoms, classic for Chronic Fatigue Syndrome, followed. He still has symptoms, and fatigue. Yes, research shows EBV can cause autonomic neuropathy, thyroiditis, and more. There has also been research ( at least early on ) looking at EBV as a potential bioweapon and as a potential agent to deliver genes into the cell nucleus. It might be very interesting to look carefully at the early research on this virus. I find it interesting that the outbreaks occurred in 2 rather remote areas. I have read about Operation Sea Spray, Operation Drop Kick, Operation Big Itch, and more. Hmmm.
I'd never heard of those experiments, thank you. I looked them all up and also found out "green energy" doesn't make environmentally friendly, it means radioactive.
That’s interesting
@@maryjenkins1939 And there is another aspect to this strange dilemma. Why are some people ( especially women ! ) susceptible ? Perhaps the blood brain barrier is leaky - influenced by an unstable pelvis and/or neck.
Do you liase with The Open Medicine Foundation. Doing some good work in collaboration with standford and Bob naviaux amongst others?
Still no test or relief
Sadly true.
@@maryjenkins1939 But you falsely claimed that this doctor "saved my life" earlier on. Now you agree with me that there is "no test or relief." Make up your mind. Does this doctor have anything to offer ME patients, or is he just another of the thousands of other doctors conning ME patients out of their money while offering "no test or relief."
Then why did you abandon your patients in September 2019 and leave them on narcotics leaving them to go into withdrawal? This man put me on an enormous amount of opiods at 21 and until I got to the Hartford Healthcare Pain Management Center. I finally got someone to let me know how much narcotics I was on. The recommend amount of MMEs are between 90 and 120. He had me on almost 4 times that amount at times. I am now weaning off the opiods and going to figure out a safer way to treat my pain.
There are good reasons why he walked out of Griffin. He wasn’t allowed to practice in the manner he’s accustomed. They blindsided him. Good luck finding a more compassionate kind and experienced human these days.
@@JohnBedson stop stalking me
@@JohnBedson He answers every question his patients have. He doesn’t rush anyone. He cares. Taking your time with patients isn’t good for business. I assume they wanted him to spend a lot less time with his patients.
Lipopolysaccharids or other free radicals slipped in through the tight junctions in the blood brain barrier causing neuro-inflammation.