My Shocking Diagnosis: MYOPIC MACULAR DEGENERATION

This video is about how I was diagnosed with Myopic Macular Degeneration (MMD), a sight-threatening condition resulting from high or pathological myopia. It is sometimes called degenerative myopia It is the second most common cause of blindness in the developed world, after age-related macular degeneration (AMD). Patients are typically diagnosed between the ages of 20 to 50, directly affecting their ability to contribute to society.
It is all too often considered a rare disease and is therefore woefully under-researched and often under-diagnosed. Its incidence is nonetheless rapidly increasing around the world, with an estimated 40 million people currently suffering from it, a figure that is predicted to rise to 100 million within the next 25 years.
Patients are often mis- or partially diagnosed, left-as I was-to fill the gaps online at the risk of finding inaccurate or misleading information.
There needs to be a drastic change in how patients with MMD are diagnosed and treated. And needless to say, there needs to be active research for a cure. I hope to raise awareness about this by sharing my story.
MORE ABOUT MMD
www.myopicmaculardegeneration.com
www.macularsociety.org/macula...
SUPPORT GROUPS
groups/92029...
share/2uNnR3...

[@staceycv]

Hi, I have multiple layers of eye diseases. Including wet macular degeneration in my right eye called retinaophy. I was diagnosed at 39 years old & treated with photodynamic laser treatment in 2002 to stop the progression of blindness. I was told this could affect my right eye as well.
Every year I have check ups at Wilmer Eye Institute and regularly use an ambler eye grid plus eye supplements.
Support has been lacking for me and have to remind my family about this often.

[@senjidog]

Thank you for posting the short on your appointment to get the shots. My appointment is next Monday. I manage to put the appointments out of my mind between them, but last night I got a text reminding me of it and yes, it does just leave me sad. I'm grateful, but still, since I definitely know there has been progression in my right eye, I am sad.

[@Ihavemmd]

I feel you and hope your appointment goes as well as possible. Big hugs.

[@estelleschneider9033]

I have not hears of shots for macular degeneration ❤❤

[@Ihavemmd]

They are the standard treatment for wet (bleeding) macular degeneration. Shots for dry MD have just been approved in the UK as well.

[@vha3742171]

My doctor didn't tell me I had amd. I had two shots that didn't help. Why doctors dont talk

[@Ihavemmd]

I am so sorry. I agree with you, doctors should be trained to be transparent with their patients. All too often, they just see us as walking retinas and not much more!

[@superstrangevideo]

Then you have a very lousy healthcare system. If a doctor here in the US refused to tell a patient he had something as serious as AMD, he'd be sued and not allowed to practice medicine again. Like why would your doctor refuse to tell you this?

[@Ihavemmd]

@@superstrangevideo Thank you for your comment. Please remember to keep comments courteous and constructive, as this channel is meant as a supportive community. Thanks! 😊

[@estelleschneider9033]

God Bless you
Jesus saves, heals, delivers and restores. ..
Call upon Jesus ❤❤❤
When my doctors did not inform me I felt betrayed by them
Losy trust.
W
But Why would they do this??
They are trained professionals
They know better..
😥😢