GOING OFF MY INSULIN PUMP AFTER 12 YEARS?! // type 1 diabetes day in the life
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- เผยแพร่เมื่อ 20 ต.ค. 2024
- Make sure to watch my Insulin Pump Break Experience Video to see how this "pump vacation" ended up working out for me: • INSULIN PUMP BREAK // ...
I’m off my insulin pump for the next couple weeks (short pump vacation), and the transition to multiple daily injections (MDI) has been quite challenging after 12 years on an insulin pump. In this vlog, I chat about my first few days off the pump and how I’m doing with the change. Of course I have to mention that just because I’m taking a bit of time away from my pump doesn’t mean I am not incredibly grateful for having access to an insulin pump. I love my t:slim and will be happy to go back on it after my short break :D !
DISCLAIMER: The insulin doses I take in this video are my own personal insulin doses prescribed by my diabetes team. I am not a healthcare professional. Please consult your diabetes team if you need help with transitioning to/from the pump or with your insulin doses.
Follow my T1D journey on Instagram: @miche_lo
music: www.epidemicsound.com
I just got diagnosed with type 1 diabetes and this just helps so much
Ella Wilson I was diagnosed 4 months ago and her videos are so helpful!
I was diagnosed 7 years ago you got this!! 💓
@@jjgguk2520 same I got diabetes 7 yrs ago to
Hey! So a I have a lot of the symptoms and they're progressively getting worse. I was wondering how you got diagnosed and what was it like before you got diagnosed
@@octoberraven671 Was it diabetes?
I hope you guys enjoy today’s vlog! I've never taken a pump break before, so this was a big change for me and hard to share. I have been feeling the need to take a pump break for over a year now, and finally had the courage to do it. I’m doing well so far, but I definitely miss my t:slim and will be happy to go back to it after my break (aiming for a 2-3 week pump holiday) :D! Thanks for all your support and encouragement as always! Love you all
Tresiba is an awesome basal insulin. Its big advantage (super long acting time) leads to its super flat profile, but it also leads to its main disadvantage: Dosage changes take a LONG time, about 4-5 days at least. If you want to change the dosage, do this slowly, one unit at a time, and be patient, otherwise you won't succeed.
Which do you prefer? I've been type 1 for 22 years and recently have been thinking about switching to the pump
@@dvdv7777 Thank you so much for the tip! My nurse said the same thing, so I will be patient. I really appreciate the advice :)
@@cavemankent7488 I have only been on MDI for a week vs. 12 years on the pump, so I really can't say at this point. Sorry!
I think I would prefer using Lantus for long acting, as seems to me easier to control, as lasts 24 hrs not 42 , so next day if wasn't correct dose, can start fresh by upping or lowering by a unit.
Hi Michelle! I simply would like to thank you for doing what you're doing with this channel. I've been diagnosed with type 1 Diabetes 1 month and a half ago and it has been hard to say the least. Not knowing anyone with T1D and being thrown all that information at in the hospital felt so overwhelming. Your videos have helped me so much in terms of tips and tricks on how to deal with the permanent struggle of the illness. You have seriously contributed to me feeling less isolated and scared. Your videos are helping me everyday to learn new things I didn't even know were a thing for T1 Diabetics. You have probably heard this from freshly diagnosed Diabetics before, but I hope you are aware of how far the work you put into your videos goes, all the way to a 21 year old guy living in London. Thank you once again.
Sebastien
I hope that youre adjusting well to T1D! I know its super scary at first, but you will get better at managing it! I was diagnosed 5 years ago and I was terrified, but finding the support of the t1d community in real life and online has helped me out so much! :)
UPDATE: After almost two weeks of my pump holiday, I decided to go back on my insulin pump. This two week period on multiple daily injections provided me with the time I needed to feel "disconnected". Doing this pump break gave me a new perspective on my diabetes care and made me more mindful about my everyday decisions. I now know that multiple daily injections are an option for me if I ever want to go that route in the future, and that it is totally possible to achieve great blood sugar control on injections. However, at this point in my life, the insulin pump is what works best for me, so that's what I will continue to use. Watch this video to hear my pros & cons of taking a pump break: th-cam.com/video/CRPzGzhtL50/w-d-xo.html
Hi. I don't tend to comment on viedios but I thought today I will. I really do love your videos. Im 15 years old and was diagnosed with type 2 when I was 13. I understand that your videos are from experience of being type 1 but there are people with type 2 that watch you too. That are on insulin too. That are on pumps too. I don't understand how I'm type 2 but apparently I am. I apresheate what you do loads and am actually a subscriber. I just want you to realize that type 2 at a younge age is very similar treatment and just that every time you say type 1 it makes me feel like I shouldn't be here it's weird but true. If you do read this or do reply. I'm not trying to hate as I said I'm a subber and I really do love what you do. Btw id appreciate a reply
Love from UK xxx
Atiya Begum Thank you for letting me know. I will try to be more sensitive about this in future videos. I’m a type 1 diabetic, so that’s why I always say “type 1” in my videos. It is honestly nothing against type 2 and I’m not trying to exclude anyone. I appreciate your comment.
Hello, I am also type 1 diabetic. I’m looking that king of watch to check my blood sugar, where could I buy one? I really need that watch
Hi. 61 years with type 1 Doug here. Thanks for always being straight forward and so GREAT at showing our daily, endless, pieces of the type 1 puzzle. As you know, after 23 years on the pump, I finally reached infusion set absorption problems. Tresiba, Fiasp pens, and the Dexcom sensor are doing very well for me. Keep us posted and know that your vlogs take courage.
Doug Klein good on you for fighting the good fight for so long ❤️
61 years. Man that is awesome. I am a 46 yearer. The young people will never know the real struggle. If the worst thing is having to deal with an insulin pump then they should have walkerd in our shoes. HaHa.
Michelle: so I'm gonna take 1 unit for corrections and 3 for breakfast and 8 units of my long acting
Me: okay I'm going to take 36 units of long acting and 21 units for breakfast plus the additional 3 units for high bloodsugar and 3 for ketones
Mercedes Herber that’s me
I take 20 for breakfast,24 for lunch and dinner and
24 units of long acting insulin at night
FINALLY MY PEOPLE, I WAS LIKE how do you only take 3 units for 30 grams, I would take 14!
Naomi Attalla I take 2 for 30 grams😳
True...i take 10 for breakfast 10 for lunch and 8 for dinner and 10-12 units for long acting...i also a dka survivor ...it's the worst ive experienced in my life
In my group, the number 1 reason for people to dump the pump is that they went to a 1 basal injection a day with Tribeca, for mealtime insulin they switched to an inhalable insulin called Afrezza. You inhale it like an asthma bottle. It's taken me a couple of months to get used to it, but once you get the timing and dosage down, there's never a reason to have high or low blood sugars anymore. It gets in, starts working in 12 minutes, and is done working in about 1 hour. The other day I was hungry. I ate a whopper with cheese, a double whopper with cheese and onion rings. I stayed in the normal range the next 3 hours with my spike going only to 106. I love the Afrezza! It seems to be the closest thing that we have so far for a diabetic to not feel like their diabetic.
Congratulations on the nomination, Michelle!!! SO WELL DESERVED!!!! 🍾♥️ I’ve voted (lots!!) and have everything crossed for you!! Well done to you for being brave and sharing your insulin pump break journey! I took a pump holiday last summer and it was a wonderful break but I was so glad to be reunited with my pump at the end of it! Sometimes getting that little break is all you need - (at least all I needed!)🌻🥂👏🏻
Thank you so much Andrea💞! I remember watching about your pump break last summer, and we have a lot of the same feelings about it. It was a good little break, but I definitely missed my pump :)
Congrats! Voted 👍 Going back to injections is scary! 8 year pump, 12 year pens for me. I don't like the idea of returning to 5 pens 😬 I totally understand the feeling of freedom when detached, especially if cables get in the way. But I think being attached offers more lifestyle freedom & flexibility. Good luck and get fixed soon!💃
Thanks for voting!! Yes I totally agree with you, being detached is such a great feeling, but you definitely lose a bit of flexibility being on MDI ... at least that's how I feel haha. Thanks so much for the support😊!
Thankyou ,my son (15 years old ) has only just gone onto a pump after 3 years using multiple injections and long acting at night since he was diagnosed ,the pump has unbelievably improved his lifestyle but also mine ,so thankyou for posting and its great to see younger people getting confident with their diabetes
You’re so pretty, and you give me smiles while I feel sad (:
Aww that is really sweet, thank you ❤️
ur probably sad because you write ur smileys like this (:
I've only been on a pump for less than a year, after about 30 years of MDI, so not quite ready for a pump holiday myself. That said, might do one in a few years. We'll see!
I figured you were back on the pump, you have a sensor on your left arm, never thought about getting off pump. I have type 1 for 28 yrs and twelve years on the pump, pump has save my life! I feel for you being so young and having type 1 diabetes, I was diagnosed at 45 and now 73, and doing very well, do to the pump. Wish you the best!
OMG I had the same exact breakfast today too:) I love the peanut butter too. I've had diabetes for over 25 years and can never get excited over the pump. I luv to control it myself and luv the freedom of no attachments to my body. Although I recently got talked into dexcom g6 and I don't seem to mind that. All the best to you and I don't subscribe to much but I just did to yours:):):)
I am so happy seeing someone do injections. I don’t know many people who also have diabetes with my age, so this gives me the idea I am not the only one hihi. Good luck!
I am on injections.On balance it is a better option for me too.
No worries, lots of us still do injections.
You are definitely not the only one! So many of my friends with T1D have been on injections for years! It is a great option for a lot of people and works well :)
I'm on injection too .. i'm actually using apidra inusline and lantus insuline
When I first got the notification on my phone of this video, I was so surprised because literally the past couple days I've been using your videos for reference for the insulin pump since I'm planning to get one and stop using insulin pens! It's cool to see that you're taking a break!! Insulin pens are difficult and my cgm graphs look exactly like the one you showed! ; ; GOOD LUCK~~ I hope you enjoy your pump holidays~ :DD
Loved this video! The reason you took a pump break is the same reason why I’ve been hesitant to go on the pump. My Dex is enough for me to feel like a robo-girl. I’m excited to see how you do for the next few weeks and just know I’m rooting you on for doing this!
Haha I totally get it! I feel quite robotic on the pump and dexcom 😊. Thanks so much 💓
for me rn... we are trying to move to a pump..i live in canada! So finding you was the best thing ever..and i was diagnosed in october2019 right befor holloween.. so it was.. hard.. but having another diabetic to listen to was the best thing for me...
Right now i am trying to get to just fast acting..so i can proseed to the pump..thanks for the insparation!
Your vlogs are so helpful, I would NEVER "hate on you". I have been a T1D for 6 years. I have only used pens. A pump is kind of "icky" to me. You and other T1Ds vlogers have helped me switch from finger sticks to a Dexcom G6 CGM. That has help me better control my T1D.
Please stay healthy! :)
JDF
Having T1D for 35+ years I have never had the courage to switch to the pump! It's always on.my mind just never made the leap of faith. I commend you on your discipline #insulinisnotacure
Do it if you havent..I'd recommend Omnipod if Tube tethered is an issue for you
Loved this video!! My 6 year old son was diagnosed 2.5 years ago and we’ve been MDI the whole time. I really enjoyed watching this video and feeling like we (I) could relate to it a bit more. Please do another video during your pump break! Good luck with your break too - you’ll do great!
I'm so glad you could relate to this! I will try to do another video during my break, but I'm not sure how long my break will be :). I will keep everyone updated of course!
hey, glad you did this blog because it made me not feel like i was crazy! i had been on a pump for only 6-7 years and the last year took a break. i experienced some of the same things you did! it was a bit of a difficult adjustment, but i ended up going on the freestyle libre and continue to take shots. i probably missed it in your blog so im not sure how long your pump holiday will be, but mine is going on 2 years and im not sure i want to go back.
Hey! That is so interesting that your pump holiday has lasted for 2 years! I guess it's more of an extended vacation at this point :). I plan to take a break for about 2-3 weeks... depending on how things go and how I feel.
Thanks for sharing that with us. I was on injections (syringe + vial) for about 20 years, then a pump for 5, then pens for about 8. Switched back to a pump this past December and have though about taking a break, but the situation didn’t present itself this summer. Good luck! Totally, TOTALLY understand wanting to not be connected to someone for a bit. 100%
I totally understand you wanting a pump holiday and that is amazing ! I was the same way , I took my long overdue pump holiday over Thanksgiving break and it was amazing , definitely helped me gain clarity and a bit of freedom ! Thanks for sharing your story , Michelle ! As always , amazing videos 👏🏼
Thank you so much Dave! You are such an amazing and supportive friend to have! I completely agree with you when you say that your pump break gave you clarity and freedom. I have enjoyed being disconnected and it has really made me more mindful about my choices. However, I'm definitely looking forward to getting back on the t:slim soon :)
Michelle Lord of course ! I absolutely love your videos ! Yes , a pump holiday is so good for the mind and body all together ! Haha I also was excited to going back on my pump after a few days off of it , but it’s nice we can still have options !
Injections since 94'. Never pumped. Thanks for sharing your experience.
Brother tell me everything about your shots , I really wanna know , suggest me what to do brother
Today I finally set up my Dexcom g6 and I’m super excited! I’m so amazing on how I can specially track my glucose and use my phone as well
Ahhh so exciting!! I've heard nothing but great things about the G6! I'm so eager for it to be available in Canada :)
Hey girl!! i just found. you and holy cow! you seriously have just helped me so much. Im on humalog and using the omnipod and am taking a pump holiday so knowing that you and so many others take pump holidays make me feel really good
@9:35 I have never bolused into my arm as I could never work out the logistics of it but you made it look so simple... I might even give my belly a rest and give it a go!
You are doing a great job! Your videos are so informative and real. I was just diagnosed at age 46 and am MDI on Fiasp and Tresiba too. Sending positive vibes your way!! 🙌
Thank you so much!! :)
i just got diagnosed with type 1 like two weeks ago i was in the hospital for a week which was good considering how sick i was but you are really inspiring to me i’m counting down the months until i can get an insulin pump but thanks so much for this video it helps a lottttt❤️❤️
Thanks so much for sharing your decision, your journey and experience. I really appreciate your videos and have learned a lot. I also loved how you shared your day with us and watching your makeup routine and physio exercises. Looking forward to your next one.
Thank you so much! That makes me so happy to hear that you liked this style of video! It's nice to get some feedback so that I know what to make more of :)
You’re adorable and I love you so much. You’re really inspirational and I am glad to be a member of your squad
Wow, daily shots seem so complicated, how you do all of that math in the morning, and even during the day is beyond me.
I don't have diabetes, but I understand the need to be free from devices, even if it's a medical one. The good thing is that you can go back to it whenever you want.
I hope this pump break is going well for you!
Much love ❤️
@@dinkster1729 Maybe, thankfully we also have different languages for those of us who have more letters than numbers brains :)
I've had diabetes ever since I've been 7or 8. I have T-slimx2 and I have a Dexcom g6. I really enjoy videos like these bc they are so helpful to show me what is was like be back on Pens.
Crazy how we become so used to a new routine that we forget our old one. Funny you had to relearn how to use the pens! It is nice to take a break sometimes!
Hello Michelle, I usually don't comment on these things but here we go. I am also a T1 and use Tresiba, Fiasp and am also a Dexcom G6 user. I think as you get comfortable using the 2 in combination you will be very happy with the results, I currently have a a1c of 5.1 (US). The G6 is so much more accurate for me than the G5 was that it enables me to correct for bolus errors quickly and make those graphs smooth out. Hang in there, you may find that you enjoy not having another device to worry about all the time. Best wishes....
Hi Mark! Thanks so much for this comment! I'm so happy to hear that you have achieved such awesome control with the combination of Tresiba, Fiasp and the G6! Well done :)! I'm still waiting on the G6 here in Canada haha.
You can get a half unit pen for fiasp..if you want to give a small correction or just bolus in half units..I used it before starting my pump..it's made by novonordisk ..called the novopen Echo and it takes cartridges..thanks for another great video!!
Yes, I think I need a half unit pen because I'm pretty sensitive to insulin. Thanks so much for the great tip :)!
@@MichelleLord no problem I thought of that when you were taking your correction dose and was thinking 1 unit may be too much..good luck :)
Quickly approaching 1 year of pens/being t1d but excited/nervous to go on my first pump in Oct! I was about to ask about your activity balance on the pen when I hit that part in the video. That was a huge part of my learning curve. Thanks for this video, more or less describing some of our days.
I just got my pump a few weeks ago!! Love pumping!!!
@Sarah Garrett my pdm(controller) is $800 and the pods are $300 per box of 10(each pod is to last 3 days so 1 box is a 30 day supply)
@Sarah Garrett you only buy the pdm once but the pods are monthly(I do get cheaper ones in some Facebook groups)
Kudos to you Michelle for being brave to go back to MDI! I was watching and thinking... omg I don't think I could do that right now. I've heard a lot of good about Fiasp! Went on a boat cruise in Toronto and a lady came up to me and she was on Fiasp and loves it uses Lantus instead of Tresiba because she didn't like how she felt on Tresiba. I'm very curious when/if you go back to the pump to see what your thoughts will be about MDI and pump breaks. I feel like the pump break has become a more popular recently as well...meanwhile I'm CLUTCHING my pump and reassuring it I won't leave it haha :P
Thank you Angelica!! It took me almost 12 years to really feel like I needed a break. Before that, I had no interest at all. I agree, I've seen a lot of T1Ds take pump breaks recently, especially in the summertime! I will definitely do a video once I'm done my break to summarize the experience and perhaps also go over some pros and cons :).
Lots of options. As long as blood sugars are controlled it is good. I have a pump but not everyone can afford or wants one.
Hey, I've been diagnosed with type 1 22 years ago and I have so much trouble with myself.
At 7 I almost died while having a hypo that paralized my whole body. Ever since I've been traumatized and scared to death.
The fear of experiencing a hypo is so big that I've become addicted to Opiates and other drugs and never let my blood sugar levels drop below a certain point as where I feel safe. I'm 28 now and its now or never for my physical condition.
This video is the first step in my process to accept this disease and make a change.
While watching this video and typing this comment, I've become to realize that I really need someone to talk to about type 1.
Is there anyone that wanna have a chat? it would mean so much to me.( I'm Dutch btw)
Thomas
You need to talk to your endocrinologist about a closed loop insulin pump. It uses a CGM (continuous glucose monitoring) to change your basal rate which lower hypoglycemia reactions. It also has alarms to let you know when your blood sugars are low. You still have to manually put in the bolus insulin or insulin to cover meals. It is called the artificial pancreas.
I voted. Your amazing and deserve to get the award
Very cool Michelle! I don't have time to really get into it now but I'm very curious about your future posts and have some questions for you about the types of insulin you are using in the pens.
Thanks for the post! :-)
Jason
Such a great video Michelle! I was off my pump for a whole year, and finally just got back on October 1st! I forgot how awesome it was :)
I am very inspired by you because I am also Diabetic. Before I saw your videos I was very angry and disappointed at myself but you actually showed me how to cope with my diabetes now I am a happy girl. Thank you very much
#Diabetic and happy.
Thanks for sharing this! I took shots for my first two years of diagnosis and have been on my pump for 5 years and haven’t taken a pump holiday yet, but sometimes I get really anxious about my pump sites and wonder what it would be like. My pump device broke once and the day I had to be on back shots was so nerve-wracking! I had the same trouble adjusting my slow acting basal. I hope it’s a good experience for you!! You’ve got this!!
That's scary to go back on shots with no warning! Thanks for the encouragement :)!!
I really like the Fiasp and it works well for me. Waiting to see how Lilly’s version of Fiasp will perform. Also, InPen is amazing for managing corrections and helping mitigate insulin stacking.
I was able to be part of medical studies for Lilly's new version of fast acting Humalog. I went on Fiasp after using Lilly's product. ( I had used Humalog since it was introduced. Due to insurance Novolog was also tried, it does not work well for me.) Lilly's product works faster and gets the higher sugar down faster. After taking insulin for Carbs it levels out faster. My experience with Novo Nordisk products has been acceptable results but Lilly's are definitely better.
I took a pump holiday after a decade and actually never went back! I think i may in the future, but for me it's helping right now to have less data - related to my eating disorder. I would love to be in a place i can go back to the pump with confidence i won't obsess over the data available!
I've been a pumper for 8.5 years....you are brave taking a break from your pump, don't know that I could do it. Just got the dexcom, so still trying to figure that out. I went from the Animas pump to Omnipod, waiting for the dash to come out so its less bulky. Starting to watch more of your videos, hello from BC
Thanks for the info but your attitude is the best. Makes my struggle so much easier. Keep up the good work.
Only good thing about not being on the pump you can use two types of insulin such as Lantis and Humalog and reduced chance if any of acid ketosis. I've been on the pump for 3 years and controll is great, add the FreeStyleLibre to that and it's s game changer. But I get your reason for the holiday.
One other thing after sticking myself 8 plus time a day practicing tight controll I can mentally calculate my boluses without a 2nd thought. Old school still works and you don't have to rely on technology but rather experience. On a Medtronic 670 G after Animas bailed on insulin pumps. It's OK but prefer to use the FreeStyleLibre with a 14 day application VS a 6 day Medtronic sensor.
Good video thanx for sharing.....
@@dinkster1729 just replying to your comment on losing the scanner.
I have the freestyle libre program on my phone. Much better display and less likely to forget where I have put my phone.
I fell like everyone is taking a pump brake! I don't think I could go off mine for now. But I hope all goes well for you!
Totally fair! I went 12 years without feeling the need to take one haha. Everyone is different :)! Thank you for your support!
TOO much like the old bad days. . . i love my pump!!!!! ;-)
Haha!! I'm glad you like your pump! I'm starting to miss mine 😊
Hey I've got the same pens as you! :D I used to be on Lantus and Novorapid, but switched two years ago... It's such a big improvement. Get a lot quicker response with Fiasp. But now after 14 years of injections I'm going on my first pump ever. A MiniMed 780G... So excited about the auto correcting boluses and automatic basal rate. I hope it will make me think like 50% less about blood sugar arrows all the time... peace from Sweden
I have always wanted to take a pump break but I’m afraid of not remembering! Also I feel like it’s a lot to deal with , like bringing everything around with me in my bag. I also feel like when u are in public it is a lot more steps when giving insulin than pressing a few buttons.
All of these things are definitely true! MDI isn't as "convenient" as the pump, but it is something that you get used to :)
@18 Secs I’ve never pumped (MDI) but I really think I’d struggle trying to stay attached to a medical device on me that was more complicated or distant from my body than a Dexcom or a Libre, something with tubing, sites and a device added into the equation. I sleepwalk on occasions (Don’t ask, it can end up a total sh*tshow sometimes (Sleepwalked out of a hotel room on 2 occasions and had to ask reception for a key to my own room that I had locked myself out of!? Fell down my stairs while sleepwalking twice, tried to climb into my wardrobe thinking it’s the toilet and thank god I found my way out and actually found the toilet otherwise that would be a whole new nasty story!) As you have probably recognised I’m not always the most rested sleeper so I don’t think a pump would be great for me right now even though I have seriously thought about it. x
I have never used a pump in the 6.5 years of being a t1d. I use one pen for short acting insulin. (NovoLog 6-8+ units per meal or snack/juice/soda) And, one pen for long lasting insulin. (Lantus 42 units once in the evening). I drink a lot water as well.
I just feel uneasy about a pump. I quess rhat is enough of a reason to keep using pens.
Stay healthy and safe in such uncommon times.
Loved this vlog and the painstakingly math we have to guesstimate every time we eat. I prefer injections and now only pump for convenience, ‘untethered’ is how I roll with my Omnipod pump.
There is so much more math with MDI than with the pump! I'm glad you are happy on your Omnipod :)
I went off my minimed 725 pump for two months. I was placed on 84 units of Lantus twice a day and a sliding scale for fast acting Novolog. My Bg climbed to 450-500 and would not come down. I got so fed up with the experiment I took myself off the lantus, re booted my pump and two days later my Bg's are back to normal (75-130 range)
Watching this reminded me of my time on MDI! I’ve spent more time as a diabetic on MDI rather than a pump but I totally forgot how big a commitment I felt when bolusing for meals. And how mad I felt for wasting a needle and 2 units when I had to correct a high! I do miss the fun clicks and being detached but I don’t miss people looking at me like a weirdo for standing so still to hold the needle in me for 15 seconds lol. Maybe after being on a pump for a few years I’ll take a break!! I’m sure the transition is a little scary since it’s unknown so I hope these few weeks work out for you :)
There are definitely pros and cons to both the pump and MDI! Being detached has been a great feeling, but it comes with its challenges :). Perhaps in a few years you will feel like you need a break too. Thank you so much for your support
My daughter is 17 she was diagnosed at 12 so 5 years and had great control with pens. Got the pump a few mos ago and she absolutely hates it.. 🤷🏼♀️ said she wants to go back to pens. It was less complicated..
I am a T1D for 50 years. I have been pumping for the last 28 of those 50 years and I am so glad to be rid of basal insulin. You never know when it is going to peak. It's very unpredictable. Also, with the pump you can bolus 1/10ths units. I don't believe you can get that kind of accuracy with a pen. Ok, so the inconvenience of having a pump attached 24/7 I don't find to be such a big deal compared to the advantages of pumping. My A1c' over the past 4-5 years range from 5.9% to 6.8%. I would like to know how your A1c's fare while you are on injections in a future video. Anyway, that is my opinion. Please let me know any comments you have. So, if you go to the beach, you still have to carry your Fiasp and inject for any meals while on the beach.
I just got the call from my doctor yesterday and was informed I've developed type 1 diabetes.. I have always been a pretty healthy guy and this is a shock im so overwhelmed and also trying to educate myself.... Not gonna lie y'all im scared
Healthy doesn't have anything to do with it, you were just genetically predisposed to it. Try not to stress, soon it just becomes second nature and you'll get used to injecting before meals, testing your levels and correcting highs and lows. I was diagnosed two years ago and whilst at first I felt pretty sad, now I just basically don't think about it and it's all very routine.
I took a pump break last year for a beach trip...it was cool at first to try something new for a change, but lemme tell you...I was sooooo frustrated by the end of the week. I felt like I knew nothing about diabetes.
It's so tough to switch right? It's a completely different ball game!
I just filled my prescriptions for Tresiba, Fiasp and a half-unit pen for my own pump break so this video is great! I am curious how much did you decrease your pump basal each day as you were weaning yourself onto Tresiba?
You can do this!!! Haha another honourable mention, I think the retainer in bed is my favourite - Michelle IRL!
Thanks girl!! And thanks for all of your advice and help ... and for putting up with my constant texts with tresiba questions 😂. OMG THE RETAINER!
You could try the Diabetes M app it can do calculations like an insulin pump.
I have NEVER used a pump 21+ years type 1 without complications and 5.2-5.6 a1cs. I only take Lantus once a day. I cannot ever see using a pump. It keeps me feeling free from diabetes at least most of the day. I test but usually dont need insulin... but if i do i just take a shot of fast acting. I wish you the best.
I use the freestyle libre sensor!! How do you like having a sensor on the inside of your arm?? I typically put it on the outside toward the back but I need a new place to put it because I have sensitive skin and my arm is reacting.
I put my Dexcom on the top of my forearms and it isn’t painful at all
Awesome video!! My daughter is a type 1 also is that a dexcom you’re wearing on your arm?
Your pen needles are so much more shorter than mine....I’m jealous because I have a phobia for needles and I still hesitate to give my shots but I haven’t missed a dosage yet! Another thing I never thought of giving injection in my hip, I was told only in my stomach area.
and i have type 1 too! i’ve has it ever since i was 7
I was 8 . 29 now
Hey Michelle, what are the needles you are using? Is it a 4mm one? Looks really tiny! Have you never had a problem with not getting your dose due to the needle being too small?
You have to reduce the base dose by one percentage because it is the one that causes you to decrease in the middle of training.
Do you live in Canada? I do as well. I got diagnosed in May of 2019 at 18 years old, a bit older. I would love to learn more about diabetes from you. I am applying for a Dexcom and I am going through the process of picking a pump and I chose the t-slim. How old are you as well? I will definitely vote for you!! You are such an inspiration.
Yes! I live downtown Toronto! I am 30 years old. I have a ton of other videos on my channel, over 100 haha... so feel free to check them out. Thanks so much, but voting is closed as this video was posted last summer. Thank you though, I appreciate it!
I love ur channel so much, it helps dealing with diabetes so much❤️ Also aren't you suppose to wait between incjections 2,5-3h? You said before dinner you gave yourself coreection and then you gave yourself insulin also after dinner and I'm really confused right now coz my doctor has told that you have to always wait between injections
Thanks so much! I'm not sure about waiting between injections, as I have never been told this before, but if that is what your doctor has told you then you should definitely listen to them :). They will know better than me haha
What are the refrigeration requirements with pens , I'm using vials / syringes now and have been for years. Are they better to travel with? Thanks ............BTW Great info Michelle..
I want to take a break to just be in hooked but hate shots so much so I’m stuck. Good luck and be safe fellow diabetic
Hi Michelle! I hope your pump vacation works our for you and leaves you feeling refreshed and motivated! I have to ask, though - don't you need to hold the plunger down until you pull the needle out? I remember that user manual for Novorapid and Levemir says so, but maybe they improved the pens by now... With Novorapid, if you release the button with the needle still under your skin, there's a risk that liquids will be sucked back into the cartridge, contaminating it. It might also suck back a little bit of the insulin you've just injected.
Oh this is a great point!! It is very likely that I'm doing this wrong, so I really appreciate you bringing this up! I'm going to look into it for the pens I have :)
I hold mine down, that’s how I was trained. I was told to count to 6, but I always count to 10. 🤣
i noticed that you keep the needles on the pens after you use them, do you reuse the needle? if you use a sharps bin, where do you keep it at home and when your out an about?
I was diagnosed 14 years ago and I’m turning 15 this month
Have you ever thought about giving the artificial pancreas a try when you're ready to go back to a pump? I don't know how the Canadian health insurance system works with this but just read that Health Canada has approved the Medtronic 670G. You're pretty smart and would be more than up to the task.
Were you using Basal IQ on your Tandem? I've heard the company is coming out with an upgrade called Control IQ later this year if you want to stay with your tslim.
Just some random thoughts I had running through my mind. All the best!
16 years and u still use alcohol wipes?? Lol I gave those up 15 years ago. Never had an infection. Or any issues. I feel those extra germs are good for your immune system. I've been looking at getting an Omni pod. Just got the dexcom. Life changer. I work construction and sweat alot . Been MDI for 20+ years. Can't see any pumps with tubes working for me at all. Wish they would work on the closed loop systems more ☹️✌️💟🔥🔥🍻
Wow I'm from Sweden and I have Diabetes for 7 yrs and I use Tresiba at night and I take 24 and novrapid I use everytime I I eat
i mean you rollin the dice with the carb counting. im 1 year with type 1 diabetes and controlling my carb by calculating total food weight and knowing the total carb per 100g. For example my bread is 54g/Carb per 100g, and i take 120g, i just do 1,2x5,4=6,5 basicaly if im sittin not doing much its 7 units, if im active walking for 30 min i take 6. But i'm pumped to know what's the insulin pump with integrated cgm is.
Hey I’ve had type 1 Diabities for 9 years, I’m 13 and I was diagnosed when I was 4...I have a question, do u have any idea how to get rid of bumps on the tummy? As I’ve been putting the needles in the same spot and now I have bumps that look really really bad.. plss help me!
Gilly_ _1000 I got diagnosed a few days ago so I had to go through all the training for diabetes since. You don’t want to put the insulin in the same spot every time because bumps and hard spots occur like what you’re experiencing. So as long as you inject in different spots each time then you’ll be fine and the hard spots will go away.
Sorry I’m late but also bumps could be the insulin building up under the skin and it has not completely gone into the blood, if you try to move the injection place every time then they over time should go away. Maybe try to avoid that area for a little
I was just wondering if that once a day one is just like my night time one called deguladec or something like that
It is some people just take theirs in the morning instead of at night and there is a lot of different types of long acting insulin , there’s also Basaglar , Trojeou , and Lantus as long acting insulin
Thankyou Michelle for sharing. The reason I have never wanted to go on the pump is because of being attached to something 24 hrs a day. So have used pens for 25 years .
Still always a challenge whether we use pens or pump, but for me the freestyle libre has helped get my HbA1c down to 6.3 . Before had spikes I didn't even know about. Congratulations on your award
Is it weird that since being on my pump for 2 years I miss the click of the insulin pen lol
Haha!! No it isn't weird! It is somewhat of a satisfying sound 😂
And the twisting is fun too! So satisfying
I'm type 2 diabetic and I have to inject myself 5 times a day with 2 different insulin. It's a nightmare I have to write down all of blood sugar results l.
Wow, it is exactly the same for me. I’ve had diabetes for 16 years, was on pens for 4 and on a pump ever since 😅
I’ve actually started using a tiny amount of Levemir at night together with my pump, because if my blood sugar gets too low, and my pump turns off the insulin (Medtronic 640G), I get a “bump” in my blood sugar. It rises too much for too long afterwards, when the pump starts the insulin again.
I inject insulin from Wal-Mart and don't have a doctor so mine is always up and down. Seems safer to stay on your pump!
@@chaist94 thanks! I use the a combo or the R and N. Just hard to control because I'm a brittle diabetic.
I am also taking a break right now. Been nice to not have the beeping and frustrating spikes. Best thing is to do a basal check to make sure the long acting insulin is in the correct dose. After that things went pretty smooth for me. Then the short acting insulin was very close to what I used on the pump. Enjoy the break and don’t stress out over the blood sugars!
I hope you are having a good pump break! A basal test is something that I need to do. I'm torn between whether I need 12 or 13 units of Tresiba a day haha. Thanks so much for your tips and support!
Yeah, the advice I was given is take you pump basil rate and add 10%. That being said I don’t know much about Tresiba. And then adjust from there. I was using 22 humalog in my basil and ended up at 23 Lantus/basaglar. I just found your channel last week and I am really enjoying all your content :)
I’m fine with the pod I use the deacon g6 I like it it’s easier to manage at school
i just find your Channel my daughter got type 1 diabetes she only 2 years old
That's ruff man. I was 8 yrs old and now I'm 29. ✌️💟🤔🤔
thinking on moving from the pump back to pens because I started fasting and only eat once a day so having two injections a day is not too bad
On your next pump holiday, use Tresiba with Afrezza inhaled insulin. As a type 1 diabetic, I would love to see you do a video on Afrezza.
Alexander Lucas We don’t have Afrezza in Canada
@@MichelleLord that's terrible, Afrezza has changed my life. Oh well, keep making your videos. They are very helpful. 😁
For me personaly I feel like the pens I can rely on more than a pump. I like to be incontrol of situations and daily life so having a pump for me would seem like a hassel..
You're awsome thanks for sharing your story