Amazing TH-cam vlog video and I really enjoyed watching the video as well it was very interesting and also you have got a very nice new flat setup as well
Hope you feel better soon! I’m only at the beginning of the vid but your hair looked beautiful before you even put it up! Looks pretty both ways, but I hope you know how gorgeous it looks down as well, even before you’ve styled it 🫶🏽
Watching this while in my own eds flare hits different lol (I am hopped up on pain meds and haven’t been able to leave my bed lol) I’m glad you took it easy and listened to your body x
And TV shows that I would recommend family guy and American dad and the Simpsons and also NCIS and NCIS Hawaii because all of those shows are on Disney plus and station 19 as well also on Disney plus
Glad to see another long form video from you! Loved the flat modification ideas; I'm going to be moving into a new flat in a few months and have been wracking my brain to come up with ways to modify it to make it accessible. I haven't been brave enough to try Doctor Who again lol my first episode was also the weeping angels.
The long form videos are back every Thursday at 5pm!! Adapting places is so tricky so it’s all about buying little bits and bobs that can help. Maybe I should make a video on it?
have you watched 3 doctor who special episodes of of doctor who on the BBC iPlayer with David Tennant and I hope you enjoyed watching the new doctors series as well on the BBC iPlayer
I was just diagnosed with hEDS this year, and watching you and how you explain your symptoms and pain is exactly how I feel. Not having an appetite and struggling to eat is all too real. It’s nice to know I’m not alone with the bad days. The day seems to never end when I’m feeling unwell, it’s just as hard mentally as physically.
I’m glad these videos help. I tend to hide away on the bad days but knowing that they help people by sharing makes me want to do it more. Fingers crossed for some good days though!
Hey Ellie thanks for the video as always nice to see hope you cope when u struggle. one question have you spoken to your local council about what there can offer with funding to make your flat more accessable? as they might be able to help you with making the kitchen easy to use with maybe some cupboards that you an kinda pull out but then come down. its always worth asking to see what avabile. also its really good to have a PT, I have one to and it really does give you that reason not get up and go to the gym .
I don’t plan on staying in my flat for too long so I’m thinking of saving adaptations until I’m a bit more settled somewhere. I want to get it right and really think it through. I also don’t have a physio here! Not sure if it’s an NHS thing or I’d have to pay privately but I should probably look into it!
@@SmallandStrong66 I pay someone to help me with my PT we go to a local gym thats set up for people recovering from SCI's and other injuries. and yeah if your only in ur flat for a shot time its probably not worth doing anything till you are in somewhere permanent.
Every hair and makeup artist I’ve ever had comments on how they’ve never felt hair so soft! Someone asked me if I take collagen to make it that way which is what made me think of it as an EDS thing
Amazing video as always....You can buy transfer boards specifically for the bath so on flare up days you could use that to transfer then lower / manoeuvre yourself into the tub
Amazing TH-cam vlog video and I really enjoyed watching the video as well it was very interesting and also you have got a very nice new flat setup as well
And I hope your pain gets better soon and also I do understand what pain is like and I'm always here if you want to talk about anything Ellie
Hope you feel better soon! I’m only at the beginning of the vid but your hair looked beautiful before you even put it up! Looks pretty both ways, but I hope you know how gorgeous it looks down as well, even before you’ve styled it 🫶🏽
Awh bless you, thank you!
Watching this while in my own eds flare hits different lol (I am hopped up on pain meds and haven’t been able to leave my bed lol) I’m glad you took it easy and listened to your body x
Hope you’re doing okay! It can be so tough but we’ve got it 💪
And TV shows that I would recommend family guy and American dad and the Simpsons and also NCIS and NCIS Hawaii because all of those shows are on Disney plus and station 19 as well also on Disney plus
Glad to see another long form video from you!
Loved the flat modification ideas; I'm going to be moving into a new flat in a few months and have been wracking my brain to come up with ways to modify it to make it accessible.
I haven't been brave enough to try Doctor Who again lol my first episode was also the weeping angels.
The long form videos are back every Thursday at 5pm!! Adapting places is so tricky so it’s all about buying little bits and bobs that can help. Maybe I should make a video on it?
Sounds like a fab video idea. I'd love to see more of your setup and how you've adapted your flat
have you watched 3 doctor who special episodes of of doctor who on the BBC iPlayer with David Tennant and I hope you enjoyed watching the new doctors series as well on the BBC iPlayer
I was just diagnosed with hEDS this year, and watching you and how you explain your symptoms and pain is exactly how I feel.
Not having an appetite and struggling to eat is all too real.
It’s nice to know I’m not alone with the bad days. The day seems to never end when I’m feeling unwell, it’s just as hard mentally as physically.
I’m glad these videos help. I tend to hide away on the bad days but knowing that they help people by sharing makes me want to do it more. Fingers crossed for some good days though!
Bobs the best❤
Hey Ellie thanks for the video as always nice to see hope you cope when u struggle. one question have you spoken to your local council about what there can offer with funding to make your flat more accessable? as they might be able to help you with making the kitchen easy to use with maybe some cupboards that you an kinda pull out but then come down.
its always worth asking to see what avabile.
also its really good to have a PT, I have one to and it really does give you that reason not get up and go to the gym .
I don’t plan on staying in my flat for too long so I’m thinking of saving adaptations until I’m a bit more settled somewhere. I want to get it right and really think it through. I also don’t have a physio here! Not sure if it’s an NHS thing or I’d have to pay privately but I should probably look into it!
@@SmallandStrong66 I pay someone to help me with my PT we go to a local gym thats set up for people recovering from SCI's and other injuries. and yeah if your only in ur flat for a shot time its probably not worth doing anything till you are in somewhere permanent.
My hair is the same!! Weirdly soft and not tangly. It never occurred to me that it might be an EDS thing lol
Every hair and makeup artist I’ve ever had comments on how they’ve never felt hair so soft! Someone asked me if I take collagen to make it that way which is what made me think of it as an EDS thing
@SmallandStrong66 That's so interesting! I guess soft skin is an EDS thing, so why not soft hair? 🤷♀️
I never have to brush my hair and it’s never tangly, I always get told it’s soft and have eds so this is interesting
Amazing video as always....You can buy transfer boards specifically for the bath so on flare up days you could use that to transfer then lower / manoeuvre yourself into the tub
I’ve never used a transfer board before but I’ll look into it!
Sorry you had one of those days. But fantastic to see Ralph Lauren Henry holding the fort...and chatting his little curly head off!
He does his job every day!