I hope you enjoyed this episode of Disability news. Don’t miss all the previous episodes here: th-cam.com/video/WPVaatWbBQE/w-d-xo.html If there is a story or topic you think I should discuss please feel free to DM me over on Instagram.
I ordered one of the Not A Wheelchair manual chairs a couple of days ago. I became a wheelchair user this year due to chronic illnesses, but it's difficult to see specialist doctors in my area, so I've only received one diagnosis (fibromyalgia), and I'll likely have to wait six months to get my other diagnoses (heavily suspected EDS and POTS). My family doctor and physical therapist are supportive, but my insurance won't approve a custom chair for fibro by itself. There's no used market where I am, and I am so so tired of hospital chairs! I already had all my sizes and was prepared to pay an eyewatering amount for a tilite anyway, so this was worth a shot. If I have enough energy when it arrives I'll try to make a video review of it. The world needs more projects like this!
It is so frustrating how nit-picky insurance companies are. Even when your provider and specialists are telling them to give you a chair for mobility. I had to save up for my chair, and then I got a letter in the mail stating that the insurance would fund up to $200 towards a "service chair" one of those with four small wheels that needs someone to push you around. It is unreal what folks have to go through to get some help to make their lives a little easier to live. I have also looked into Not A Wheelchair for a replacement. They are certainly affordable and of good quality! I hope your new chair makes life a little easier for you to cope!
Thank you for sharing the info on Not a Wheelchair. The wheelchair I presently have is starting to fall apart, and the information that you have provided for an affordable wheelchair is most appreciated. Again, thank you so very much, you rock! I really like your Disability News segments!
Thank you for sharing Not A Wheelchair. I have been having fits for months dealing with my wheelchair insurance to replace my stolen customized chair which I paid three grand for. The manufacturer said they have the replacement chair ready, but the insurance will not send the funds for it, even when they receive the police reports! I have been using a cheap hospital-style wheelchair for months and I can't do anything by myself with it. It is too big to fit through some of my doors, the rear wheels are placed so far back that I can't pivot to clear thresholds, the frame twists out in our yard or if I turn quickly, argh! So frustrating! I looked at the link you shared and I can manage this cost for a new chair with them!! Wonderful! Thank you once again for sharing this.
I just got my first insurance covered chair! I had one through a charity before for about a year. This one is a power chair that elevates, tilts, and legs can be raised. It's a 30,000 chair!!! For me it was $0 with insurance luckily!!
Insurance won't cover my chair because in the US, insurance won't cover a chair you need because not having one confines you to your home. I need a chair to leave my home--I work full time and have insurance coverage--but had to buy my power chair used to get out and work. I was lucky and found a new $38,000 chair (11 miles on the odometer) for $1700 that was donated.
@@pjaypender1009 oof i'm sorry about that. i'm in the US too and insurance didn't approve my chair at first either. once i was using my power chair from the charity all the time for about a year, they approved me. good luck! it's a wild process
Gem i am so lucky when i found your channel a few years ago and you have helped me no end to fight the cisterm because of you and your channel so i thank you from the bottom of my heart
I had been considering a rehasense icon 60 until this feature for Not A Wheelchair - the cost was about $300 cheaper for the Paradox chair than the Icon [and the paradox is custom built!] Their ordering process was very straightforward and I've now received the CAD drawings for my chair and all the dimensions for it! They're really lovely and have been a breeze to work with so far. Current production estimates put me at getting my chair in mid January and I'm very excited for that.
Hi Gem! Rick here from Omaha Nebraska. Big fan. I love your videos as they are very informative. I roll a tilite AeroT. Ive been in contact with Not a Wheelchair and am going to purchase one of their manual chairs. I mean only $1000 for a complete chair , with a custom backrest? Holy Shit!!!!!!! My chair without the backrest was almost $3000. And the backrest was another $600. This is an awesome price for a custom chair.
I am currently on the hunt for a wheelchair as an ambulatory user. I had previously used a medical wheelchair that I found at a thrift store. It was a life saver at the time before surgery. But it's way too heavy and bulky. I can't be on my feet too long without being in a lot of pain, so I've been trying to find something much smaller, lighter, and possibly customized to me. I haven't asked my doctor for a wheelchair prescription as I'm sure he would not approve it. So far I can only find medical wheelchairs. But I did come across a company in the UK that another wheelchair user mentioned. It's called CareCo. Granted they are still medical wheelchairs, but some can be customized. I was looking at one that I could modify to look similar to a customized wheelchair, but when I converted the price, I realized it was way out of my price range. I'm now currently looking at one much cheaper, but can't really customize it. I can take the armrests off, but the rest of the chair still looks like a medical wheelchair. I just got done playing with customizing a wheelchair on Not a Wheelchair. I had to guess and use a measuring tape to the best of my ability. Since I am not approved by my doctor for a wheelchair, I don't think I can get measured properly. I would love to try one of these wheelchairs out, but it's currently still a lot of money for me and I don't want to take the risk and get a measurement wrong.
i totally understand , dishing out that sort of money if your unsure of your measurements and worried you may get it wrong is hard to do , maybe contact them if you can and they may offer some guidance ,, good luck , let us know how yo get on 👍🙂
@@SRoseAIResearch My DaVinci chair was about £1300 (I think, I got it pre-pandemic) and fully custom built, including paint in any RAL colour I wanted. They even rebuilt the frame for real cheap when I accidentally bent it. Definitely cheaper than flights + accomodation to Utah!
As a 5'1/2" lady Id like to buy clothes I don't have to alter or resort to the children section! Petite sizes are hard to find. Only two companies make rollators and canes my size too. At least 3 - 4 times the price of "regular" sizes!
When I went to Center parks Longleat and ate at one of the restaurants there earlier this year there were robotic trolleys serving the food to the tables- although there were waiters too.
Oh amazing. Yes I was looking at that. The rig I think it’s called when doing my research, and it looks awesome. When you get it, where do you plan on going in it?? ☀️
Yes! Those off-road ones look amazing! That is one thing that I have missed since becoming disabled, the ability to go back onto the trails, and go fishing without the worry of getting stuck in the ground or going butt over tea kettle. Such a wonderful little rig and not bad of a price for them either!!
I've always felt like the paralympics should be done in tandem to the regular Olympics. Like one day is all regular Olympics and then the next day is paralympics because it just keeps the eyes on it longer. I could barely find any way to access watching any of the paralympians without having to pay for a streaming service!
I contacted them a couple of years ago wanting to buy their off road rig. They won’t ship them out of the US, so I didn’t find them helpful. The equipment may be good quality but inaccessible to the majority of disabled people in the world.
Rooting for NaW to start selling in the UK! Mobility aids are so expensive, these would be much for accessible for people (No pun intended!) Actually, speaking of costs of items, will you be getting a new discount code for Ffora? Been eyeing them up for a while now!
Go play with the customizer. You specify the width and depth of the seat, the seat height, the dump (by specifying the height of both the front and back of the seat), and how far the footrest is from the seat. You specify the seat type and the backrest size and height from the seat.
I didn't know the cheepesr wheelchairs where that expensive, honestly impossible to get a wheelchair without support if you're not rich, why taxes and things like that are so important.
About the first 9 seconds of your video... Have you ever watched Agenda-Free TV? I'm not suggesting that you make your intro just as long. 0:24 I'm subscribed to @JerryRigEverything's channel. 5:17 This makes me wonder how far away one can control a robot. 7:59 In that order, no and yes.
I hope you enjoyed this episode of Disability news. Don’t miss all the previous episodes here: th-cam.com/video/WPVaatWbBQE/w-d-xo.html
If there is a story or topic you think I should discuss please feel free to DM me over on Instagram.
Thank you for the feature!!
Super stocked for this. 🙌🏽
@@Wheelsnoheels stocked or stoked? 😁
@@NotExpatJoe sorry dislecsia ,,, stoked hahaha
I ordered one of the Not A Wheelchair manual chairs a couple of days ago. I became a wheelchair user this year due to chronic illnesses, but it's difficult to see specialist doctors in my area, so I've only received one diagnosis (fibromyalgia), and I'll likely have to wait six months to get my other diagnoses (heavily suspected EDS and POTS). My family doctor and physical therapist are supportive, but my insurance won't approve a custom chair for fibro by itself. There's no used market where I am, and I am so so tired of hospital chairs! I already had all my sizes and was prepared to pay an eyewatering amount for a tilite anyway, so this was worth a shot. If I have enough energy when it arrives I'll try to make a video review of it. The world needs more projects like this!
It is so frustrating how nit-picky insurance companies are. Even when your provider and specialists are telling them to give you a chair for mobility. I had to save up for my chair, and then I got a letter in the mail stating that the insurance would fund up to $200 towards a "service chair" one of those with four small wheels that needs someone to push you around. It is unreal what folks have to go through to get some help to make their lives a little easier to live. I have also looked into Not A Wheelchair for a replacement. They are certainly affordable and of good quality! I hope your new chair makes life a little easier for you to cope!
@@bdctrans70Agree. Many of us could still be working if we could get appropriate medical and OT / PT help.
i would be really interested to see or hear how you get on with the chair , thankyou for sharing ,i hope it all works out for you 🙂❤
Thank you for sharing the info on Not a Wheelchair. The wheelchair I presently have is starting to fall apart, and the information that you have provided for an affordable wheelchair is most appreciated. Again, thank you so very much, you rock! I really like your Disability News segments!
thankyou so much 🙂
I love the disability news song. Always puts a smile on my face. ☺️
😀😀
@@Wheelsnoheels Dear Gem/All Looking for a app/tool which will measure my wheelchair steps any recommendatios .Thanks Lloyd.
@@123bwlch i will have a dig around , im pretty sure apple watches do them 🤔🙂
@@Wheelsnoheels Thanks.
Thank you for sharing Not A Wheelchair. I have been having fits for months dealing with my wheelchair insurance to replace my stolen customized chair which I paid three grand for. The manufacturer said they have the replacement chair ready, but the insurance will not send the funds for it, even when they receive the police reports! I have been using a cheap hospital-style wheelchair for months and I can't do anything by myself with it. It is too big to fit through some of my doors, the rear wheels are placed so far back that I can't pivot to clear thresholds, the frame twists out in our yard or if I turn quickly, argh! So frustrating! I looked at the link you shared and I can manage this cost for a new chair with them!! Wonderful! Thank you once again for sharing this.
aw that sounds horrific , i really hope things work out for you , thank you for commenting❤
I just got my first insurance covered chair! I had one through a charity before for about a year. This one is a power chair that elevates, tilts, and legs can be raised. It's a 30,000 chair!!! For me it was $0 with insurance luckily!!
Ahhhh so glad you got what you needed! ☺️
Insurance won't cover my chair because in the US, insurance won't cover a chair you need because not having one confines you to your home. I need a chair to leave my home--I work full time and have insurance coverage--but had to buy my power chair used to get out and work. I was lucky and found a new $38,000 chair (11 miles on the odometer) for $1700 that was donated.
@@pjaypender1009 😲
@@pjaypender1009 oof i'm sorry about that. i'm in the US too and insurance didn't approve my chair at first either. once i was using my power chair from the charity all the time for about a year, they approved me. good luck! it's a wild process
Gem i am so lucky when i found your channel a few years ago and you have helped me no end to fight the cisterm because of you and your channel so i thank you from the bottom of my heart
Cistern as in toilet? Lol.😅
awww that's so nice to here ,thankyou for watching and sharing 🙂❤
I had been considering a rehasense icon 60 until this feature for Not A Wheelchair - the cost was about $300 cheaper for the Paradox chair than the Icon [and the paradox is custom built!] Their ordering process was very straightforward and I've now received the CAD drawings for my chair and all the dimensions for it! They're really lovely and have been a breeze to work with so far. Current production estimates put me at getting my chair in mid January and I'm very excited for that.
Hi Gem! Rick here from Omaha Nebraska. Big fan. I love your videos as they are very informative. I roll a tilite AeroT. Ive been in contact with Not a Wheelchair and am going to purchase one of their manual chairs. I mean only $1000 for a complete chair , with a custom backrest? Holy Shit!!!!!!! My chair without the backrest was almost $3000. And the backrest was another $600. This is an awesome price for a custom chair.
Hey! Fellow Nebraskan! I feel the same here! It is an awesome price and looks of great quality too!!
thankyou so much for watching , it really does look like there doing great things for the community 🙂🙂would love to see hear how you get on with it 👍
@@Wheelsnoheels Absolutely. I promise you Gem that YOU will be my first person I contact when I get mine.
JerryRigEverything and Not A Wheelchair ❤️❤️❤️
☺️☺️
And Cambry Kay
@@Wheelsnoheels Gem, if you get a NAWC, please show it off, okay? ❤️♿️
@@stephensonmatthew7 Defo🙂👍
So much news I have missed. Will be checking out Not a wheelchair.
I am currently on the hunt for a wheelchair as an ambulatory user. I had previously used a medical wheelchair that I found at a thrift store. It was a life saver at the time before surgery. But it's way too heavy and bulky. I can't be on my feet too long without being in a lot of pain, so I've been trying to find something much smaller, lighter, and possibly customized to me. I haven't asked my doctor for a wheelchair prescription as I'm sure he would not approve it.
So far I can only find medical wheelchairs. But I did come across a company in the UK that another wheelchair user mentioned. It's called CareCo. Granted they are still medical wheelchairs, but some can be customized. I was looking at one that I could modify to look similar to a customized wheelchair, but when I converted the price, I realized it was way out of my price range. I'm now currently looking at one much cheaper, but can't really customize it. I can take the armrests off, but the rest of the chair still looks like a medical wheelchair.
I just got done playing with customizing a wheelchair on Not a Wheelchair. I had to guess and use a measuring tape to the best of my ability. Since I am not approved by my doctor for a wheelchair, I don't think I can get measured properly. I would love to try one of these wheelchairs out, but it's currently still a lot of money for me and I don't want to take the risk and get a measurement wrong.
i totally understand , dishing out that sort of money if your unsure of your measurements and worried you may get it wrong is hard to do , maybe contact them if you can and they may offer some guidance ,, good luck , let us know how yo get on 👍🙂
I really liked the idea of not a wheelchair but unfortunately at present time they don't ship outside of the USA and Canada
I thought the new ones do
I'm going to genuinely compare the price of NaW plus flight to Utah with a similar UK wheelchair and just going for whatever is cheaper in the end
@rebeccacreese7025 not according to their website unfortunately. Shame as I really liked the idea and cost.
@@SRoseAIResearch that's my thinking as well.
@@SRoseAIResearch My DaVinci chair was about £1300 (I think, I got it pre-pandemic) and fully custom built, including paint in any RAL colour I wanted. They even rebuilt the frame for real cheap when I accidentally bent it. Definitely cheaper than flights + accomodation to Utah!
For wheelchairs for me in the USA in Arizona I've always went to the wheelchair clinic since as long as I can remember.
As a 5'1/2" lady Id like to buy clothes I don't have to alter or resort to the children section! Petite sizes are hard to find. Only two companies make rollators and canes my size too. At least 3 - 4 times the price of "regular" sizes!
Cool i hope you find what you need with Ellies clothing brand ,its such a great step forward in fashion 🙂❤
When I went to Center parks Longleat and ate at one of the restaurants there earlier this year there were robotic trolleys serving the food to the tables- although there were waiters too.
Great episode, Gem!! x
thankyou ❤
I love the Not a wheelchair brand. My goal is to get one of their chairs and save up for the off road device.
Oh amazing. Yes I was looking at that. The rig I think it’s called when doing my research, and it looks awesome. When you get it, where do you plan on going in it?? ☀️
Yes! Those off-road ones look amazing! That is one thing that I have missed since becoming disabled, the ability to go back onto the trails, and go fishing without the worry of getting stuck in the ground or going butt over tea kettle. Such a wonderful little rig and not bad of a price for them either!!
Amazing video, great coverage!
I've always felt like the paralympics should be done in tandem to the regular Olympics. Like one day is all regular Olympics and then the next day is paralympics because it just keeps the eyes on it longer. I could barely find any way to access watching any of the paralympians without having to pay for a streaming service!
I would love to work for a robot café. I realy what to work but finding hard to find a suitable job.
its such a great idea isn't it 👍
@@Wheelsnoheels it realy is I hope this idea become a thing worldwide
I contacted them a couple of years ago wanting to buy their off road rig. They won’t ship them out of the US, so I didn’t find them helpful.
The equipment may be good quality but inaccessible to the majority of disabled people in the world.
8:13 Custom wheelchair for $1,000 now that is cool.
Can I ask which push rims you're using? I have natural fit with thumb ring but want short tab. Yours are what I'm looking for. Thanks!
cool ok there carbolife Curvel here is the link 👍 carbolife.de/en/products/handrims/curve/209/handrim-curve-l?c=100
Rooting for NaW to start selling in the UK! Mobility aids are so expensive, these would be much for accessible for people (No pun intended!) Actually, speaking of costs of items, will you be getting a new discount code for Ffora? Been eyeing them up for a while now!
💜💜💜💜
I happen to have been to a restaurant that serves ramen and poke and is served by a robot.
ooh thats cool ,how was it and where was it ?🙂
@@Wheelsnoheels it was pretty expensive and the food was okay that it is in Kansas City Kansas USA that's actually in the mid part of the US.
The only thing concerned me is that the footrest is too low for a small person like me.
You customize that. Everything about the chair is customizable. It's exactly as far from the seat as you specify.
Go play with the customizer. You specify the width and depth of the seat, the seat height, the dump (by specifying the height of both the front and back of the seat), and how far the footrest is from the seat. You specify the seat type and the backrest size and height from the seat.
What's concerning about that? It is made to fit your body and preferences exactly.
@@pjaypender1009 I checked. My measurements is 11” from seat to foot and the shortest on the website is 13”rest
Footrest I meant
$1000 is very inexpensive. You do need to know something about wheelchairs amass get your measurements correct but this is a fantastic idea.
What's your plans for marriage?
$1,000 is "affordable"?!
Starting price for the "cheapest" line of an ultralight manual chair is around $3,000 - so yes, sadly $1k is affordable.
I didn't know the cheepesr wheelchairs where that expensive, honestly impossible to get a wheelchair without support if you're not rich, why taxes and things like that are so important.
A custom wheelchair generally costs $3500 to $15,000, so yes, it's very affordable.
@@alexisjean6191and that $3000 is before you pay for the seat and backrest.
$1000 is downright cheap.
@@alexisjean6191 That doesn't mean it's "affordable." I'm a disabled mother in the US.
Are you married dear?
About the first 9 seconds of your video... Have you ever watched Agenda-Free TV? I'm not suggesting that you make your intro just as long.
0:24 I'm subscribed to @JerryRigEverything's channel.
5:17 This makes me wonder how far away one can control a robot.
7:59 In that order, no and yes.
$1000 is very inexpensive. You do need to know something about wheelchairs amass get your measurements correct but this is a fantastic idea.