Parkinson's Vibration gloves - How they have affected my health (full break down)
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- เผยแพร่เมื่อ 10 พ.ย. 2023
- Here is a full breakdown on the PD gloves at about 10 weeks of continuous use. I do not hold anything back.
Link to Dr Tass Presentation - • The Vibrating Glove: A...
Link to Today Show news report - • Scientists Develop Glo...
Link to channel with full instructions on how to build your own gloves
@pdvibrationtherapy
Check out our website! - lifewithparkinsons.ca/
Connect with us on Facebook - / davidslifewithparkinsons
I've included some helpful links in the video description.
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#parkinsons #parkinsonsawareness #parkinsonsdisease #yopd #youngonsetparkinsonsdisease #dystonia #vibrotactiletherapy #parkinsonsglvoves #mci #cognitiveimpairment #nexstride #gait #parkinsonsboxing #rocksteadyboxing
Thank you so much! Your videos are helping me to understand better what my mom is going through, and let me tell you that you are an inspiration for all of us, families included. Thank you for being here in youtube, showing yourself and creating content, sharing and speaking of this! Its eye opening to know that what we are going through some other people are going through the same, its not easy but speaking of this kinds of helps to not feel alone and by sharing what you are learning that helps us as well!!! God bless you
Hello Min, thank you for your kind and encouraging words. I am sorry that your Mom has to go through PD, but I am glad she has you and your family to support her as well. You are not alone here. Many understand. Bless you as well.😀😁😊
It will be a while as I'm working full time, but I will share results!
Well done!
It's great that you are spending the time giving feedback, I'm sure that this will be appreciated by everyone in the PD community.
Keep up the good work.
I hope your next 10 weeks prove to be exceptionally good!
All the best
Greg
Hi Greg, thanks for the encouragement. I will keep everybody updated.😀😁😊
Its been an amazing adventure helping you build the gloves. Really amazing to see how this treatment knocks back the Parkinsons.
Thanks Trevor. It has been an amazing journey, it's almost like blazing a trail together. We're only a few months into it, excited to see what will happen next. 😀😁😊
@trainman2860
I am going to build a set for my wife. I was waiting to see your results. I like the tech side of it and she's a willing patient.
Thanks for the report!
Awesome 😎 please let me know how it goes I would like to know the results thank you. 😊😃🙂
Thanks, always helpful to hear from you.
Thank you, Dina.😀😁😊
Thank you for all you are doing to help people with Parkinsons.
Thank you Suzanne!😀😁😊
Hi, it seems working fantastic, great to see your improvement. I just tried the simple version of hand vibration, and I used the massage gun with a soft head. You just put the fingers on it softly, and the whole hand vibrate vigorously. You could change your fingers or hands from time to time. It does work for me.
Great. So glad you found something that can help 😄🙂😊
Thanks for your time and lets see in 10 weeks what will be 🍀🍀🍀🍀
Thank you Dane!😀😁😊
Thank you for sharing. Glad to hear that you are finding some benefits from the gloves!
Thanks Michele! So far so good!😀😁😊
Glad you are having improvement with the gloves.
Thank you Sharon!😀😁😊
I am just starting this Parkinson’s journey, so am following your channel regularly. Thanks. Good luck to us both.
Thanks for saying hello. Yes good luck to us both 😀😄😉
Another great video. I will have to look into these gloves some more. It seems like there are so many ways people get PD. I know that there was no one in my husband's family who ever had it. Several years before he came down with it he developed a virus that was quite serious. I've often thought that this had something to do with him getting PD. I'm glad to hear the gloves are working and your beginning to smell things again. We always have to keep the faith.
Hi Judy, I feel it's worth the time looking into this technology, hopefully it helps many people who suffer.😀😁😊
my wife is parkinson too and check parkinson glove in Thailand has this medical glove.is it worth to try?
You are looking and sounding better!
Thank you so much 😃😁😊
I’m so happy for you keep it up
Thanks David. Will do!😀🙂😊
I found out about gloves 15 months ago. So I did it differently. Bought vibrating ball, peanut, roller, platform and do vibration on legs, feet, and hands always with finger tips. It helps muscles to get stronger, more flexible, more energetic.
Hi Yelen. Glad you found something that works for you. I tried the vibrating ball for a couple weeks also but it didn't help with any of my symptoms. 😄😀😃
One thing you mentioned stood out for me. You rightly point out, We have Parkinson's, but I have my PD and you have your PD. This is something people without PD have difficulty understanding. They think PD is one size fits all, but no. There are different cancers, different cold viruses, and indeed different PD unique to the individual.
Thanks for bringing up that point as it is a very easy one to forget. BTW I will should have my 6 month update on the PD gloves in a few weeks.😀😁😊
Thanks!
Hi Angela, thank you for your continued support!😀😁😊
Hey Dave, you are an inspiration for me and my PD gloves! I did not have the correct sequence of the vibration and was doing more harm than good. But now we have installed a new program and the gloves are much better. Thank you so much for your faith in these gloves!
This is excellent news! So glad you retraced your steps and found the solution. Thank you for letting me know!😊🙂😎
R vibes in hands synced ? I think shouldn’t b - listen to “ no silver bullet” Tass presentation
I found the video and the time stamp, not sure we are wrong at this point. Let me know if you find anything further. Thanks for checking into this important detail. Much appreciated.😀😁😊
On newer silver bullet Tass video dr specifically declines answering the question re syncing due to patent pending its at end of video
Look at 101.27
Thank u david pj from ireland ure not love ure chanell i am 14 years witth p d keep up good work
Thank you PJ!😊😁😀
Thanks for your videos on the gloves. To give you some background, I was diagnosed with PD nine years ago. I had DBS about 3.5 years ago. The DBS has really helped me, along with medication, with many of my symptoms except my gait. I now need a walker to get around and have near falls everyday. The Stanford video really made an impact on me and I tried to get into a trial at Stanford and at Synergic Technologies in Eugene but was rejected because I have DBS and they don’t know yet how this might affect things. So I made 2 sets of gloves. The bottom line after a few weeks of using them is that they don’t seem to be helping. Other than some sore fingertips, they seem to not to have any affect at all so I have stopped using them. I am contemplating donating one set to see if someone else can get some relief from their PD symptoms.
Hi Joe, thank you for the info. Yes I could understand that DBS interferes with the gloves. Hopefully you can find someone local to donate to.😀😊😁
See the YT interview w/ the older guy who did a keto diet, as he was in very bad shape, declining, and he has reversed the Parkinson’s by 90 or 95%! Incredible!
Thanks for the tip Janet😁😊😀
David, I,ve watched your glove progression from the very first video you published. It inspired me to build a pair myself. With in the first week I got my sense of smell back and was feeling my balance was a bit better but no help on the tremor. A month into it and nothing has changed. I too may simply have the wrong program. I have built a second pair and now looking for a program (I believe they call it a sketch) to use. Where did you get the program you're using on your version 3 gloves?
Gratefully,
Rusty
Hi Rusty, these are the comments I look forward to. Thank you for the encouragement and I am happy you are trying something new. Here is the link to the software github.com/pdbuzzboard/pdbuzzboard
I use the 167 program for the buzzboard configuration.
Since my symptoms are not tremor based, I cannot speak to how the gloves will affect them.
David, Thanks so much for the Response. I use the 167 program on my first set of gloves, so I'm looking for an alternate. I added B-1 therapy to my regiment and that has helped my concentration and eased my daily aches and pains. Unfortunately Nothing seems to help with my tremor so far. I'm part of a clinical drug program Which helps me measure my Parkinson's every month. I can truly see my ups and downs because of the monthly testing and they don't consider the gloves or the B-1 a drug which means in there eyes it doesn't interfere with the drugs they are pumping into my body each month. I'm still looking for something to help with my tremor. The latest path I find myself going down is focused ultrasound........th-cam.com/video/tEhBkdCg9Kk/w-d-xo.htmlsi=XuVSLD8Rh-bU_o4I Parkinson's8
On “ no silver bullet” Tass presentation he stated vibes should b one hand at a time randomly - I think syncing is wrong, listen to it
Thanks Ellen. I will check it out. That is a surprise for sure 😀🙂😊
hi sir my father affected by Parkinson tremor is in right hand only .can wear glove for right hand alone.
Hello, yes you can use the glove on just one hand. Also, please look at the VILIM ball for tremors, here is the link. vilimed.com/shop/
Use code LWP50 for a $50 EUR discount.
@@LifewithParkinsons Did you try it, and if you did it help if I may ask?
I read vibes supposed to b like cellphone vibe very mild but u sound like it’s strong. Can u describe this here again . Thanks so much
I like a stronger vibe, it seems to get more affect, but I wouldn't say it's overwhelming.
What mm diameter r ur motors
David did u get ur instructions to build from the buzzboard utube videos? Do u use program 100 or 167? Thanks so much 😊😊
Hi Ellen, yes I did. I use 167 and I love it!😀😊😁
Thanks for your suggestion that I was over stimulating. I have cut it back and am sleeping better. Slept 8.5hrs straight last night
I also listened to Tass again he recommends cut back after 3 months I listened at all of his stuff again last night not sure which one I heard it in - ps - did h try program 100 first- did it work?
@@ellenquintero6 thanks for that. No I went straight to 167
My father is affected by Parkinson. I want my father normal.Really daily i am crying about my father's condition. Where should i buy this glove? Can you guide me
Hello, sorry to hear about your father. I hope he is able to get some symptom relief. There is no where to buy these gloves at the moment, it is a DIY project. All the instructions and information are at this TH-cam channel. Thanks😀😊😁
www.youtube.com/@pdvibrationtherapy
You mentioned you had tried different programs offered on the DIY site before you finally got the right one. How was “ the right one” labeled -its title?
Hi Kevin, here is the link to the software I am using167 buzzboard
github.com/pdbuzzboard/pdbuzzboard 😀😊😁
I’ve had the DIY buzzboard modified by a relative and one of his buddies who are both engineers (one electrical and the other mechanical). We made some pretty cool actual gloves, but after trying the different programs, had no real results after as few as 45 hours of ‘glove’ time on those listed. Used 167 random, the 167 you use and a couple of others provided by the DIY guy. No real positive response noted, so they wrote another even more random combination of impulses and still not getting good response. Glad to hear you are sensing some positive results with the 167.
@@kevincaress4582 I am sorry to hear that it is not working well four you I hope you can figure something out. 😀🙂😁
......And where did you get the instructions how to bild the gloves?.......Why Dr. Peter Tass' ones are not in production yet?
Hello Ivan. All of the instructions on how to build the gloves can be found at this TH-cam channel. www.youtube.com/@pdvibrationtherapy
I do not know why the Tass ones are not in production.
Thanks for the questions.😀😊😁
@@LifewithParkinsons Thank you; unfortunatelly I am not electronically savy..I purchased European Cue1, but it is not halping any of my 14 symptoms...The whole field is rather confusing. Some reserches state too much dopamine causes PD; others blame gut bacteria and vagus nerve...etc.
@@ivankos3305 Yes things can get confused especially with the vibration technology. There's not much information out there and no guide
Have you been able to reduce your parkingsons medication
I will cover all of that in the update video. A Very small reduction in my levodopa carbidopa but there is more to it than simply that 😃😄😀
Have you had DBS?
Hi Angela, I have not had DBS. I am on the waitlist, approximately 3.5 years away if I am correct. I am thankful the gloves are helping.😊😀😁
Please reseàrch CHARCO DEVICE
Hi Stuart, I have looked into it. It is not available in Canada at this time. Would you like a video about it? Thanks😁😊😀
@@LifewithParkinsons thx. but I have one aĺready , I am77, diagnosed 3 years, no meds
Ì understood CHARCO is going Global, why not check again?
Best wishes from Uk
Hi David! Are the gloves mirror?
Hi Scarlet, mine are setup that way, but I don't know what the official word on that is. Another viewer is looking into that detail. Will let everyone know when she finds the answer.😀😁😊
@@LifewithParkinsons Thanks, understood.
David in the studies it was done both ways
@@ellenquintero6 hi Ellen thank you for letting me know
@@ellenquintero6 Hi Ellen, the motors I am using are the 10mm x 3mm, 12,000rpm
Do you think you will ever get DBS?
Hi Angel, I'm not sure on the DBS at this point. I would like to give the gloves more time to try and sort things out. To me, it just seems there are more options out there lately. Hope you are well.😀😁😊
Do u think too much gloves can make tremor worse? Loads stuff got better I think tremor worse I’m playing with glove dose wondering about ur experience
@@ellenquintero6 hi Ellen Tremors aren't really part of my symptoms spectrum I don't get them very often so I don't think I can answer your question. Super glad to hear some things are getting
@@LifewithParkinsonsthank you
@@ellenquintero6 did you get them made? If so could you send me a picture to info@lifewithparkinsons.ca