The Transverse Myelitis Mountain
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- เผยแพร่เมื่อ 28 มิ.ย. 2023
- Transverse Myelitis in my life is like a Mountain that grows every day. It is my job every day to climb that mountain. My Fitness, Nutrition, Rest, and recovery are the steps I take to scale that mountain. No matter how perfect of a day I could live making the right decision, that Mountain will grow the next day. I could quit but that Mountain will grow to impossible heights.
I take on this Mountain knowing that I will never reach the top of it but I do get higher and higher.
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Thank you. ❤️ On the best days, or in a dream, I’m running up the mountain. Most days, I’m rolling my wheelchair up it. My family keeps asking when I’ll reach the peak. I just keep moving, head up as high as I can hold it. Thank you for sharing. Keep it up. 👏 I needed this today
Mine started in 2010. listening to you has helped me a lot. feel I gave in to it, which could be why ive not recovered so well. I had lots of hope in the beginning so am hoping things can still improve. good luck on your journey
Thank you and I hope you can recover more fully
Dam bro I’m going through the same thing everyday I’m training everyday feel like I’m lose more mobile and strong wake up the next day and I’m back stiff again I’m only 6 weeks post how long was it for u until the little improvement stuck and became permanent? And when did just get to the timeline where it just kept restarting every day Thanks bro appreciate u making these vids
I’m sorry to hear that but glad to hear you’re hitting the training. In regards to stiffness it’s gotten better as I learned to recover better but I’m stiff every morning, after every nap, or after sitting long durations. But a combo of tracing and recovery helps minimize the time it take for the stiffness to go away once I’m up. Hope that makes sense
Yeah brother it’s so frustrating I have lost sense of soft touch as well from the chest down pins and needles in my legs aswell and strength in my right hand and left hip left calf other then training is there anything else you reckon I should try so that can help me and when do you think your recovery stopped and became stabilised and sore no more permanent improvement thanks for responding appreciate it
Thank you so much for sharing. My daughter developed this 4 months ago and has slowly been climbing this mountain. Her faith , her husband and baby, her will, her community and family have be what has cheered and supported her through through this journey. As a mother it is good to hear from you how you feel and all you go throught to try to understand her better day to day. She just turned 30 years old and wants to continue working and growing her family. We are here to support them in any way they need, to love her and to try to understand in our hearts what may be happening in her mind and body each day. Your witness helps me understand. I will add you and your family to my daily prayers. Continue with God as your best friend and He will always provide.
Thank you so much. That’s very encouraging to hear
God bless you as well
Thank you so much for sharing your journey with us.
My younger brother has not officially been diagnosed with TM as they were not able to fully prove based on just symptoms. This video provides us with some insight that we find helpful.
Question: Do you 'flare' or have minor relapses when you catch a cold or flu?
My younger brother seems to have this when he gets a flu or undergoes severe stress.
Thank you for your comment. Yes I do have flare up when I get sick. It’s pretty painful and scary
I have TM , got me oct last year. I’m similiar in symptoms and outlook
I’m sorry to hear that. I’m praying you are having a good recovery
Do you have an opinion of what may have contributed to your TM?
A dormant gene from a Vaccine I took in 2009 but that’s just a guess
Hi My Name Is Marilyn ay Have TM. What’s merecen Do You drink
Are you asking what medicine do I drink?