Moms Don't Have Time To Read Books | Podcast with Guest Jessica Fein

Jessica Fein author of Breath Taking
In this episode of "Moms Don't Have Time to Read Books," host Zibby Owens interviews Jessica Fein, author of "Breathtaking: A Memoir of Family Dreams and Broken Genes." Fein discusses the profound challenges and moments of resilience in her life, particularly focusing on her journey with infertility, international adoption, and her daughter Dalia's ultra-rare degenerative disease. Here’s a summary of the conversation, including key takeaways and notable quotes.
Summary
Jessica Fein’s memoir delves into the emotional and logistical complexities of raising a child with a rare and terminal illness. Her story begins with the journey she and her husband undertook to build their family through international adoption after facing infertility. The turning point comes when their middle daughter, Dalia, is diagnosed with a rare degenerative disease. The memoir captures the ensuing years filled with medical challenges, emotional resilience, and a deeply rooted commitment to maintaining a semblance of normalcy for their family. Fein emphasizes the importance of community, the resilience of the human spirit, and the necessity of finding joy amidst suffering.
Takeaways
Resilience in Adversity: Jessica Fein’s story is a testament to the incredible resilience required to navigate life's unexpected challenges, particularly those involving severe illness in a child.
Community and Support: The role of community and a strong support network is highlighted as essential in coping with and managing the care of a sick family member.
Balancing Normalcy and Care: Fein underscores the delicate balance of maintaining normalcy for her other children while providing intensive care for Dalia.
Acceptance and Transformation: The journey from a hopeful quest for a cure to an acceptance of the reality, focusing instead on creating meaningful and joyful experiences despite the circumstances.
Quotes
"The resilience that you have and the generosity of spirit, your endless love for those you care about, just pours off the page."
"When Dalia was diagnosed, I believed I would personally cure this disease that brilliant people who actually know what mitochondria are can't cure."
"It's creating a life of meaning and joy in that context of extreme challenges."
"Our house was like an ICU, and I tried to control the situation as we, as moms do, to fix the situation."
This episode sheds light on the profound emotional and practical aspects of caring for a child with a rare disease, providing listeners with insights into the strength and perseverance required to face such adversities.