thank you for explaining what cording is. This explains my pain that can some times almost feel like a heart attack as the pain radiates into my arm! no medical professional has ever explained this to me. Thank you so much for explaining this. Im going to watch part 2 as well, and i have subscribed to yr channel. I know this takes your own personal time to make these videos, and time is the most precious thing you can give some one. So thank you for helping us make decisions with clear explanations and explaining what most dr's do not! i am so grateful, you feel comfortable enough to share with us ladies, allt he stuff it intails, to go through a double mastectomy.
Thank god I came across your video. I’m 4 weeks post lumpectomy and discover my cord just recently. Doctors never mentioned this to me so I was very scared. I used to be very active prior to cancer and seeing you excersize gives me hope that one day I will be back to training again. Thank you❤
Glad you found this video too. I didn’t know about coring either before surgery. It’s quite a shock when you see/feel it. More movement will help your cording so don’t let it stop you from being active!
I developed cording 18 months after surgery/chemo/rads- it stinks! thank you for all your videos on the topic as there isn't tons out there. I got it on the side of my breast which I was told is more rare but it was close to where the surgery was and where they focused the rads so makes sense. PT , stretching, dry needling have helped I will try your cupping suggestion next. Ladies if this pops up see a PT person asap to help start the healing
The timeline is interesting - yours was 18 mths post-treatment while others can be a few weeks. Good advice with seeing a PT at the onset of cording! Hope the cupping helps.
Hi, I'm a rarity, having a wide excision in my armpit for a rare malignant sweat gland tumor. Though no lymph nodes were removed, I had an site infection after the first shave biopsy; it remained after the wide local excision. It's 4 weeks post WLE and I'm itching to begin scar massage & cording treatment. Your videos are super helpful! Thanks.
Erica, I literally gave a loud 'Yes!!!' when I saw in the video that you were in a gym. (Nice lats btw). I am an old gym rat who just happens to have breast cancer. DMX about 7 weeks ago, no recon. Was back in the gym 2 weeks later but of course not at full steam by any means. Discovered a cord under my left arm tonight and first thought was what the hell is that? Now see I have one on the right too. (Weirdly have no reduced range of motion or discomfort. Yet) I'll be ordering your info on cording asap. Thank you again. 🙏🏼💪🏼
It takes a gym rat to know a gym rat! Gathering info about other active women post-surgery was one of the missing links for me after my surgery...so I'm happy to pay this forward. That's great that you don't have reduced motion or discomfort. Mine always felt more like tension than anything. Interesting that you have cording on the other side too. Were there any lymph nodes removed on that side?
@@breast-cancer-rehab Two sentinel nodes on both sides. Only the ones on the left where the cording is worse showed up 'hot'. Doing the pullup hangs you showed. Not full body weight as I am thick. Feels weird when I'm doing them but no pain. After feels great. Edit to say finding your channel was such a relief. There is very much a lack of information about BC rehabbing for women who are strong/muscular. I have found Drs just don't get it. Thank you again ❤
@@rosaleesantamaria7673 Thx for clarifying with the lymph nodes on both sides. Appreciate the feedback - I agree, really not much out there for really active women. I’m still looking myself!
I hear you Sonia! Persistence is key with addressing cording. My other video on strategies to address cording should be helpful if you haven’t watched it already.
Surprisingly, men can experience this Axillary Web Syndrome as a result of Melanoma Wide Area Excision and the associated Sentinel Lymph Node Excision(s) performed for biopsies. Thanks for publicising this condition, which hopefully some doctors will see and take note. None suggested I should seek a Physiotherapist for post-surgical rehab, but I had good results many years ago following a fractured wrist, so I was already primed up to seek a local Physio if there were any hassles in the weeks following Melanoma surgery.
Interesting! It’s similar for melanoma and breast cancer surgery that there’s not very much information given regarding cording as a side effect. Hope the video helped - there’s a few other cording videos in the Playlist section. Good luck with your recovery.
Thank you so much for this video! I am 6 weeks post double mastectomy and just noticed when I was shaving something that looked like this. Great explanation and I am subscribing. 🙏 I am off to part 2.
@@breast-cancer-rehab That’s how I found you. 10 days post mastectomy and the cording kicked in. 😀 I practice martial arts and I kickbox/ strength train, and this page has just blessed me. You are an incredibly credible messenger for someone like me who was super active before the BC diagnosis (DCIS first then Stage 1a after surgery). Great stuff.
@@tippytodd9 Glad you're finding the videos useful. It's a high bar as athletes to not only recover from BC surgery/treatment but get back to exercise in a way that makes us feel like us again!
I'm 4 weeks out from a lumpectomy and when cords are touched it feels like a hot electric explosion and is extremely painful. Is this normal? Thank you. I appreciate you. My nurse navigator acted like she'd never heard of cording and what i was describing. Im happy to be able to subscribe!
I didn't have an electric sensation with cording, but I have heard others than have. It still surprises me that so many women (including myself!) weren't given the heads up with such a common side effect.
I’m dealing with crazy cording and definetly not educated to treat it effectively. I had bilateral mastectomy and radiation, but I have connective tissue issues m, hEDS. I think this is part of my issue. My question though is regarding my hand on the same side a lymph node dissection. I feel the cording is in my hand or is affecting my hand. I decided yesterday to get aggressive with my hand that PT is not willing to treat. I went at the space between my index finger and thumb and found what I think is cords. Also, I developed a superficial blood clot in my forearm. Does cording continue into the hand?
Yes, cording can continue into the hand. Treating the whole length of the cord (from underarm area to hand) is helpful even if you only feel the cord in your hand. Best of luck addressing this!
Sure there can be. The cording down my upper arm was visible but the cording in my lower arm wasn’t. I felt a ton of tension in that area and my wrist motion was reduced as well. Regardless of whether you see it or not the treatment is the same. This video covers what to do to address it - th-cam.com/video/fQvS8T9ICdI/w-d-xo.html
any suggestions on how to find an alt. dye or contrast to the mri, a sit has been the only thing they have been able to use to follow me, but since 2019 i am allergic so bad my throat closes up, so for 3 yrs now its like talking to a brick wall with medical professionals as the radiologist says i shouldn't have it, yet the interest says normal protocol is to prep the patient before the test with steroids and benidril. I am the only human being in our family of 11, so i shouldn't need to be intubated and almost die over an mri, they refuse to make an alt. dye to. if a kid is allergic to peanuts, mom checks every label on every food item til she is confident "not made in a faciality that process tree nuts". its not an "experiment with the child's life to see if his airway fully closes, we already know, kid allergic to peanuts, never let him have any food, processed were nuts were as well. Yet, they expect every human being to be like a empty plastic soda bottle, coming off a factory line. not all of us are the same, ALITTLE BIT OF COMMON SENSE HERE after 12 yrs of school would be nice! so i have lump same spot same symptoms as when i was 37 yrs old with stage 3. and for the last 3 yrs and 2 mos i have bounced around like a ping pong ball. is there any blood work you know of that could help diagnoses, as ultrasound originally saved my life for a palpable lump, but now cant read thur the scar tissue. mamo missed a stage 3 lymphatic invasive tumor the sze of a quarter. I don't want to wait any longer, i need to know if this new lump (since dec 4th 2020), is cancer again, or scar tissue, and not guess any more, as i don't want it to matsisize if it is cancer! i asked 1 surgeon should i just do "preventative and have a double masectomy"?. her reply was no there is stil a 10% chance the cancer can come back, well if yuo are taking 90% of the chance away then why not?????????????? i dont get it!
Getting into imaging and diagnosis is outside of my area of expertise. You could consider getting a second opinion or maybe you’ve already done that already. I can just imagine the stress you’re feeling with already having cancer and doing surveillance on a new lump. Best of luck to you.
I had none of the common listed predispositions to cording but i do have Ehlers-Danlos syndrome. As you probably know bring a doctor, this is a disorder of collagen production and/or faulty production. This connective tissue syndrome would be another predisposition. Thank you for your great videos!!
Yes, that connective tissue syndome would make you more predisposed. I had another thriver with EDS comment that they were experiencing radiation fibrosis and they thought this may have predisposed them to this as well. Best of luck with your recovery.
For many women it does go away. I still have some visible cording - I can feel the tension but my physical function is good. I show it in the video on Bar Hanging.
This video covers 7 strategies to get rid of axillary cording - th-cam.com/video/fQvS8T9ICdI/w-d-xo.html
I don’t understand why don’t the breast doctor speak about this, it’s so sad thanks to TH-cam and people like you 🙏🏾❤️
Yes, there's definitely more emphasis on side effects like lymphedema rather than cording. So many women have this side effect too!
thank you for explaining what cording is. This explains my pain that can some times almost feel like a heart attack as the pain radiates into my arm! no medical professional has ever explained this to me. Thank you so much for explaining this. Im going to watch part 2 as well, and i have subscribed to yr channel. I know this takes your own personal time to make these videos, and time is the most precious thing you can give some one. So thank you for helping us make decisions with clear explanations and explaining what most dr's do not! i am so grateful, you feel comfortable enough to share with us ladies, allt he stuff it intails, to go through a double mastectomy.
Appreciate the kind words!
Thank god I came across your video. I’m 4 weeks post lumpectomy and discover my cord just recently.
Doctors never mentioned this to me so I was very scared.
I used to be very active prior to cancer and seeing you excersize gives me hope that one day I will be back to training again.
Thank you❤
Glad you found this video too. I didn’t know about coring either before surgery. It’s quite a shock when you see/feel it. More movement will help your cording so don’t let it stop you from being active!
I developed cording 18 months after surgery/chemo/rads- it stinks! thank you for all your videos on the topic as there isn't tons out there. I got it on the side of my breast which I was told is more rare but it was close to where the surgery was and where they focused the rads so makes sense. PT , stretching, dry needling have helped I will try your cupping suggestion next. Ladies if this pops up see a PT person asap to help start the healing
The timeline is interesting - yours was 18 mths post-treatment while others can be a few weeks. Good advice with seeing a PT at the onset of cording! Hope the cupping helps.
Hi, I'm a rarity, having a wide excision in my armpit for a rare malignant sweat gland tumor. Though no lymph nodes were removed, I had an site infection after the first shave biopsy; it remained after the wide local excision. It's 4 weeks post WLE and I'm itching to begin scar massage & cording treatment. Your videos are super helpful! Thanks.
I’m glad the videos have been helpful! The scar massage will be especially important given the wide incision. All the best with your recovery.
I had mastectomy at 2020. Since this surgery I have cording. Your information is very helpful! Thank you!! 😍🙏
Glad you found it helpful. Anyone with cording can use all the help that we can get as it’s so stubborn!
Erica, I literally gave a loud 'Yes!!!' when I saw in the video that you were in a gym. (Nice lats btw). I am an old gym rat who just happens to have breast cancer. DMX about 7 weeks ago, no recon. Was back in the gym 2 weeks later but of course not at full steam by any means. Discovered a cord under my left arm tonight and first thought was what the hell is that? Now see I have one on the right too. (Weirdly have no reduced range of motion or discomfort. Yet) I'll be ordering your info on cording asap. Thank you again. 🙏🏼💪🏼
It takes a gym rat to know a gym rat! Gathering info about other active women post-surgery was one of the missing links for me after my surgery...so I'm happy to pay this forward.
That's great that you don't have reduced motion or discomfort.
Mine always felt more like tension than anything. Interesting that you have cording on the other side too. Were there any lymph nodes removed on that side?
@@breast-cancer-rehab Two sentinel nodes on both sides. Only the ones on the left where the cording is worse showed up 'hot'.
Doing the pullup hangs you showed. Not full body weight as I am thick. Feels weird when I'm doing them but no pain. After feels great.
Edit to say finding your channel was such a relief. There is very much a lack of information about BC rehabbing for women who are strong/muscular. I have found Drs just don't get it. Thank you again ❤
@@rosaleesantamaria7673 Thx for clarifying with the lymph nodes on both sides. Appreciate the feedback - I agree, really not much out there for really active women. I’m still looking myself!
This is great info and very descriptive. thank you. I am going thru cording right now and it's tough to deal with 😢
I hear you Sonia! Persistence is key with addressing cording. My other video on strategies to address cording should be helpful if you haven’t watched it already.
Thank you 😊 I will definitely check it out !
Great video! I really appreciate your knowledge and that you have shared your experience.
Hope the strategies help! Thanks for watching.
Surprisingly, men can experience this Axillary Web Syndrome as a result of Melanoma Wide Area Excision and the associated Sentinel Lymph Node Excision(s) performed for biopsies.
Thanks for publicising this condition, which hopefully some doctors will see and take note. None suggested I should seek a Physiotherapist for post-surgical rehab, but I had good results many years ago following a fractured wrist, so I was already primed up to seek a local Physio if there were any hassles in the weeks following Melanoma surgery.
Interesting! It’s similar for melanoma and breast cancer surgery that there’s not very much information given regarding cording as a side effect. Hope the video helped - there’s a few other cording videos in the Playlist section. Good luck with your recovery.
@breast-cancer-rehab Thank You 😁
Thank you so much for this video! I am 6 weeks post double mastectomy and just noticed when I was shaving something that looked like this. Great explanation and I am subscribing. 🙏 I am off to part 2.
That’s great you found this video when your symptoms started. It’s helpful to address cording at an early stage.
Very helpful and encouraging
Thanks for the feedback. Glad it was helpful.
Thanks!
thank you so much!
Thank you im going through this now with my newly diagnosis breast cancer lumpectomy surgery and lymph nodes desecration 4 weeks in.
That’s great you found this video so early in the process. Keep at it with the rehab as a consistent effort really pays off with cording.
Two weeks post SMX. You have described my experience. Thank you.
My pleasure! There's another video on the strategies to address cording if you haven't watched it already. Hope your recovery goes well.
@@breast-cancer-rehab That’s how I found you. 10 days post mastectomy and the cording kicked in. 😀 I practice martial arts and I kickbox/ strength train, and this page has just blessed me. You are an incredibly credible messenger for someone like me who was super active before the BC diagnosis (DCIS first then Stage 1a after surgery). Great stuff.
@@tippytodd9 Glad you're finding the videos useful. It's a high bar as athletes to not only recover from BC surgery/treatment but get back to exercise in a way that makes us feel like us again!
This is VERY helpful. Thanku
Glad to hear it Meca! Hope the video on how to get rid of cording helps too.
Informative. Thank you.
You’re welcome. Glad it was helpful.
I subscribed cus this was so helpful ~
Nice of you to share all of this
Thx for the subscribe! Lots more info on this channel to help along the way.
Thank you for sharing your VIDEO
Thanks for watching!
Thank you its only now that i understand
I'm 4 weeks out from a lumpectomy and when cords are touched it feels like a hot electric explosion and is extremely painful. Is this normal? Thank you. I appreciate you. My nurse navigator acted like she'd never heard of cording and what i was describing. Im happy to be able to subscribe!
I didn't have an electric sensation with cording, but I have heard others than have. It still surprises me that so many women (including myself!) weren't given the heads up with such a common side effect.
I also suffering that cording
Try out some of the strategies in the other cording video. It can be really stubborn so persistence is key.
Thank you so much is it fine even if it is 10 months agosince my surgery
Does it work?
You can definitely still get improvement even though it’s been 10 months.
Thank you Ma'am 🙏💖
You are so helpful.
Happy to help!
At what time did you begin 'stretching', exercise?? (You may have said...sorry I missed)
I waited a few weeks after surgery to begin stretching but did lots of rehab right from the beginning.
Where. Can I get the cappin♥️
?
Thank you.
14months post-surgery and effects pains still present, so depressing it sucks ! 😓😢☹️😩🥴🙏
I hear you! These side effects can last so long.
Can the Graston technique help with this, I would assume it could
I’m sure Graston would help. Comment again if it does.
I’m dealing with crazy cording and definetly not educated to treat it effectively. I had bilateral mastectomy and radiation, but I have connective tissue issues m, hEDS. I think this is part of my issue. My question though is regarding my hand on the same side a lymph node dissection. I feel the cording is in my hand or is affecting my hand. I decided yesterday to get aggressive with my hand that PT is not willing to treat. I went at the space between my index finger and thumb and found what I think is cords. Also, I developed a superficial blood clot in my forearm. Does cording continue into the hand?
Yes, cording can continue into the hand. Treating the whole length of the cord (from underarm area to hand) is helpful even if you only feel the cord in your hand. Best of luck addressing this!
Thank you!!!
Can there be cording that is not visible? How to deal with that?
Sure there can be. The cording down my upper arm was visible but the cording in my lower arm wasn’t. I felt a ton of tension in that area and my wrist motion was reduced as well. Regardless of whether you see it or not the treatment is the same. This video covers what to do to address it - th-cam.com/video/fQvS8T9ICdI/w-d-xo.html
any suggestions on how to find an alt. dye or contrast to the mri, a sit has been the only thing they have been able to use to follow me, but since 2019 i am allergic so bad my throat closes up, so for 3 yrs now its like talking to a brick wall with medical professionals as the radiologist says i shouldn't have it, yet the interest says normal protocol is to prep the patient before the test with steroids and benidril. I am the only human being in our family of 11, so i shouldn't need to be intubated and almost die over an mri, they refuse to make an alt. dye to. if a kid is allergic to peanuts, mom checks every label on every food item til she is confident "not made in a faciality that process tree nuts". its not an "experiment with the child's life to see if his airway fully closes, we already know, kid allergic to peanuts, never let him have any food, processed were nuts were as well. Yet, they expect every human being to be like a empty plastic soda bottle, coming off a factory line. not all of us are the same, ALITTLE BIT OF COMMON SENSE HERE after 12 yrs of school would be nice! so i have lump same spot same symptoms as when i was 37 yrs old with stage 3. and for the last 3 yrs and 2 mos i have bounced around like a ping pong ball. is there any blood work you know of that could help diagnoses, as ultrasound originally saved my life for a palpable lump, but now cant read thur the scar tissue. mamo missed a stage 3 lymphatic invasive tumor the sze of a quarter. I don't want to wait any longer, i need to know if this new lump (since dec 4th 2020), is cancer again, or scar tissue, and not guess any more, as i don't want it to matsisize if it is cancer! i asked 1 surgeon should i just do "preventative and have a double masectomy"?. her reply was no there is stil a 10% chance the cancer can come back, well if yuo are taking 90% of the chance away then why not?????????????? i dont get it!
Getting into imaging and diagnosis is outside of my area of expertise. You could consider getting a second opinion or maybe you’ve already done that already. I can just imagine the stress you’re feeling with already having cancer and doing surveillance on a new lump. Best of luck to you.
I had none of the common listed predispositions to cording but i do have Ehlers-Danlos syndrome. As you probably know bring a doctor, this is a disorder of collagen production and/or faulty production. This connective tissue syndrome would be another predisposition. Thank you for your great videos!!
Yes, that connective tissue syndome would make you more predisposed. I had another thriver with EDS comment that they were experiencing radiation fibrosis and they thought this may have predisposed them to this as well. Best of luck with your recovery.
@@breast-cancer-rehab thank you!
does the cording ever go away? or will be there for ever?
For many women it does go away. I still have some visible cording - I can feel the tension but my physical function is good. I show it in the video on Bar Hanging.