Oh fuck no. Neurosurgeons are the worst and can be so freaking arrogant. Ryan was looking at the Michigan place too!! 🧠 🧔🏻♂️ (brain brother!). So so so glad they called you 🥰. You have been putting in WORK, friend!!!!!! Definition of badass ❤️
Just watched found you through "Chiari sisters"on Facebook. Not sure if I've used the same name on each account but on Facebook I'm CorrinMarie Euvrard. It's so nice, in an extremely sad was to hear another basically tell my same struggle and health situation. I've been seen at 2 neurology departments but only by NP-C's that even stated that I needed to find a Neurologist that specializes in my " unique situation" after running tons of tests with even more to come including 3 biopsies on my leg to see if I have small fiber neuropathy. Which makes no logical sense whatsoever. But I never gave up faith and a woman in the Chiari group gave me the name of a neurosurgeon in my state who is 1 of very few in an amazing hospital in Boston MA. I sent him a brief email and got a call the very next day (a Thursday), in which they were willing to see me that following Monday. But because unfortunately I am on state insurance I have to be referred by my PCP and get approval for help with transportation. So an appointment was set up for September 9th and I just recently found out that everything went through. Now all I have to do is get transportation to get all my medical records and MRI'S sent to him (which should be fine). I'm just nervous because I'm at 7mm with no compression and no damage to my spinal cord, no tethered cord, either. I was told that no surgery is done unless there is either compression or permanent irreversible damage done to your spine, but NOT from the Specialist, so Im going to cont4to have faith and fight for my health and care. I've been so sick for so long, it's taking such a toll on my body that 80% of the time I am bed bound. I have ALL the symptoms you mentioned plus a few more to boot. Anywho, I'm a rambler, especially when I find someone who knows what it feels like to lay a day in my body (so to speak), lol. I've had so many doctors tell me it's in my head, well yeah....it is LITERALLY in my head. I've had to turn to humor because I sit and cry for hours upon hours about this! Anyway. I will stop chewing your ear off. Im praying for you, that EVERYTHING goes better than expected and planned! We are special and God has a reason for strengthen our spirits and souls, even if it's to help the next woman going through it! Your Chiarian Sister, CorrinMarie 🧠💋🥰🤗💕💐🙏🙏🙏🙏🙏🙏
Corrin Euvrard hi love! 💜💜💜 it doesn’t matter how big your herniation is or if they can see compression on the MRI. Sometimes you can’t see compression because it is a mild compression and those don’t show on the MRI. It’s all symptom based. It doesn’t matter the size and that’s why most Neurologist can’t do this for us. Most neurosurgeons cannot either unless they specifically study it and do it on a day to day basis! I hope the one you are going to see helps you! It sounds like he will!! You can always reach out to me if you need anything or have any questions! Stay strong sis. 💜 we got this! And I’m glad I was able to bring some relief by sharing my story!
It in your situation you have to be as educated as possible because as you have experienced doctors are so freaking quick to dismiss stuff. Omg I love you 8 page write up!!!
My severely abused/abusive NPD/BPD/ASPD psycho ex had a chiari malformation. She was considering the surgery. She had the most soul crushing migraines one could possibly imagine.
@@HowToLoveABatteredWoman I've often wondered how much the chiari malformation played a role in her personality disorders? I mean being in near constant soul crushing pain from those migraines must have been unbearable. Obviously not the sole cause but it couldn't have helped.
@@HowToLoveABatteredWoman Oh Wow! I didn't realize you'd already gone through with the surgery. Her doc said she was going to remove a piece of her skull around her spinal column about the size of a quarter. Is that what they did to/for you? And most importantly, are you glad you did it?
Oh fuck no. Neurosurgeons are the worst and can be so freaking arrogant. Ryan was looking at the Michigan place too!! 🧠 🧔🏻♂️ (brain brother!). So so so glad they called you 🥰. You have been putting in WORK, friend!!!!!! Definition of badass ❤️
I love seeing you being authentic and silly ❤️
Just watched found you through "Chiari sisters"on Facebook. Not sure if I've used the same name on each account but on Facebook I'm CorrinMarie Euvrard. It's so nice, in an extremely sad was to hear another basically tell my same struggle and health situation. I've been seen at 2 neurology departments but only by NP-C's that even stated that I needed to find a Neurologist that specializes in my " unique situation" after running tons of tests with even more to come including 3 biopsies on my leg to see if I have small fiber neuropathy. Which makes no logical sense whatsoever. But I never gave up faith and a woman in the Chiari group gave me the name of a neurosurgeon in my state who is 1 of very few in an amazing hospital in Boston MA. I sent him a brief email and got a call the very next day (a Thursday), in which they were willing to see me that following Monday. But because unfortunately I am on state insurance I have to be referred by my PCP and get approval for help with transportation. So an appointment was set up for September 9th and I just recently found out that everything went through. Now all I have to do is get transportation to get all my medical records and MRI'S sent to him (which should be fine).
I'm just nervous because I'm at 7mm with no compression and no damage to my spinal cord, no tethered cord, either. I was told that no surgery is done unless there is either compression or permanent irreversible damage done to your spine, but NOT from the Specialist, so Im going to cont4to have faith and fight for my health and care. I've been so sick for so long, it's taking such a toll on my body that 80% of the time I am bed bound. I have ALL the symptoms you mentioned plus a few more to boot.
Anywho, I'm a rambler, especially when I find someone who knows what it feels like to lay a day in my body (so to speak), lol. I've had so many doctors tell me it's in my head, well yeah....it is LITERALLY in my head. I've had to turn to humor because I sit and cry for hours upon hours about this!
Anyway. I will stop chewing your ear off. Im praying for you, that EVERYTHING goes better than expected and planned! We are special and God has a reason for strengthen our spirits and souls, even if it's to help the next woman going through it! Your Chiarian Sister, CorrinMarie 🧠💋🥰🤗💕💐🙏🙏🙏🙏🙏🙏
Corrin Euvrard hi love! 💜💜💜 it doesn’t matter how big your herniation is or if they can see compression on the MRI. Sometimes you can’t see compression because it is a mild compression and those don’t show on the MRI. It’s all symptom based. It doesn’t matter the size and that’s why most Neurologist can’t do this for us. Most neurosurgeons cannot either unless they specifically study it and do it on a day to day basis! I hope the one you are going to see helps you! It sounds like he will!! You can always reach out to me if you need anything or have any questions! Stay strong sis. 💜 we got this! And I’m glad I was able to bring some relief by sharing my story!
It in your situation you have to be as educated as possible because as you have experienced doctors are so freaking quick to dismiss stuff. Omg I love you 8 page write up!!!
Vegas nerve, gotta love it. My stomach stopped working suddenly. And gotta love how trauma can manifest to make it all worse.
I have Ehlers Danlos Syndromes and I do know what that is, sure hope that you can get an amazing dr to get you thru this. Lots of love
Ryan was always amused when we met his deductible by April lol
Oh hell no, they said they would rule it psych?! I am glad you got away from Kaiser. All doctors offices are just horrible.
My severely abused/abusive NPD/BPD/ASPD psycho ex had a chiari malformation. She was considering the surgery. She had the most soul crushing migraines one could possibly imagine.
Yikes that sounds like a lot of stuff. I’m sorry!! 🥺🥺
@@HowToLoveABatteredWoman I've often wondered how much the chiari malformation played a role in her personality disorders? I mean being in near constant soul crushing pain from those migraines must have been unbearable. Obviously not the sole cause but it couldn't have helped.
@@johnnycassell4338 it’s very possible. My personality did change a bit after the surgery. But yeah. It’s very possible. But still never an excuse.
@@HowToLoveABatteredWoman Oh Wow! I didn't realize you'd already gone through with the surgery. Her doc said she was going to remove a piece of her skull around her spinal column about the size of a quarter. Is that what they did to/for you? And most importantly, are you glad you did it?
The invisible disability component is horrible!!!!
Was there a specific name for the psoriasis that you had?
At this moment I cannot remember. But I do have a specific name.
KAISER IS THE ABSOLUTE WORST!!!!!!!!
Lol “she’s a bitch”