Thanks for the analysis! Just a quick off-topic question: My OKX wallet holds some USDT, and I have the seed phrase. (alarm fetch churn bridge exercise tape speak race clerk couch crater letter). How should I go about transferring them to Binance?
Now do a placebo controlled study on HCQ for PMR. I cannot find one. I doubt it has any effect on tapering. Good to have data on MTX at 25mg. as docs are still pushing it, even as a steroid substitute! "She wants me off prednisone, so I'm supposed to switch to (MTX, Plaquenil, Fairy Dust)" Good luck with that.
I know a few people who have done brilliantly on HCQ, a few with MTX. But I am absolutely convinced that it comes down to it not being the same PMR they are talking about. PMR is the name for the symptoms - not the underlying cause of those symptoms. The greatest unmet need in PMR is a reliable diagostic tool. Without that - the rest is fluff and fairy dust
@@EileenHarrison-x9j Some people do brilliantly tapering off prednisone in under a year and having full remission too. We dont know who they are,. Men seem to get into remission quicker though. My 20 month journey has been constant flares, less than 1mg/month. My doctor somehow thought that 6 weeks on prednisone was scary and excessive, lol. It's often more like 6 years. Fired her and found someone with experience.
@@zootybeano After 16 years of work on a support forum for PMR/GCA and with research groups in the field, I can honestly say that in thousands of patients I haven't come across more than maybe half a dozen off pred permanently in under a year! And my own rheumy who is a world renowned expert reckons that they probably didn't have the PMR we mean!!! The guys on our forum get a bit cheesed off at "men do better" too.
That's excellent 👍.
Thanks 🙏
Always a great summary - appreciate your efforts. Is that skeleton looking out the window Dr K?
Thanks for the analysis! Just a quick off-topic question: My OKX wallet holds some USDT, and I have the seed phrase. (alarm fetch churn bridge exercise tape speak race clerk couch crater letter). How should I go about transferring them to Binance?
Now do a placebo controlled study on HCQ for PMR. I cannot find one. I doubt it has any effect on tapering. Good to have data on MTX at 25mg. as docs are still pushing it, even as a steroid substitute! "She wants me off prednisone, so I'm supposed to switch to (MTX, Plaquenil, Fairy Dust)" Good luck with that.
I know a few people who have done brilliantly on HCQ, a few with MTX. But I am absolutely convinced that it comes down to it not being the same PMR they are talking about. PMR is the name for the symptoms - not the underlying cause of those symptoms. The greatest unmet need in PMR is a reliable diagostic tool. Without that - the rest is fluff and fairy dust
@@EileenHarrison-x9j Some people do brilliantly tapering off prednisone in under a year and having full remission too. We dont know who they are,. Men seem to get into remission quicker though. My 20 month journey has been constant flares, less than 1mg/month. My doctor somehow thought that 6 weeks on prednisone was scary and excessive, lol. It's often more like 6 years. Fired her and found someone with experience.
@@zootybeano After 16 years of work on a support forum for PMR/GCA and with research groups in the field, I can honestly say that in thousands of patients I haven't come across more than maybe half a dozen off pred permanently in under a year! And my own rheumy who is a world renowned expert reckons that they probably didn't have the PMR we mean!!! The guys on our forum get a bit cheesed off at "men do better" too.