I have xxy, Im an engineer, I didn't really enjoy reading or Math when I was a kid. But i just had to push myself to be that little bit better. Never Give Up. My parents taught me resilience from an early that helped.
I'm 70, and I struggled with learning and reading as a kid. Before I was diagnosed with being an XXY person. I was just considered a slow learner & a late bloomer. I loved daydreaming, and I had a creative mind. I was 13 when I was diagnosed, so my formal education was mostly done with, by that time. My slow learning was corrected by my mother who was a teacher. She sent me to after-school tutors. I spent my summer's off from public school, being privately tutored. This ended when I entered high school. By that time, I was able to be successful in school and I found my so called, "calling". I wanted to become a graphic artist or a fine artist. By age 12, I was building scale models from kits, but then I began building customized models, by combining all the parts, from various kits, to create models of my own design. I got into sculpting the plastic bodies, with a plastic putty. I entered local competitions, and even won a contest that got my name in our town's local paper. I also took art classes during my summers off from public school, that were taught at a near by college. In college I decided graphic arts, wasn't what I liked doing, and I switched my major to Fine Arts. After my freshman year, my professors recognized my talents, and they directed me to a scholarship program. I competed for entrance into it and I won it. My Art Scholarship, paid for the next 3 years of my college schooling. The classes, books & supplies , not my room and board. I earned my BFA in 1976. I went onto to graduate school, and earned my MFA, in 1979. I immediately found work at a non-profit Art Gallery. I built displays for our exhibits, and I learned how to professionally package and ship fine art, all around the country. I began renting a studio space in a warehouse, with 9 other local artists, which I maintained for 12 years. During those years I was creating sculptures, exhibiting them in competitive shows, & winning more awards. My art was being bought, by local patrons, and even by some corporations, for their offices. I applied for several competitive Arts Grants, and I handily won them. They paid large sums of money, that I used to buy more raw materials and woodworking tools, and some money was spent having my sculptures professionally photographed. Those photos helped me secure more exhibits. Even though it was slow going, I did eventually sell all my sculptures. I changed jobs several times, but they were always in art related businesses. I taught art at the college level, for 2 years. I worked at a retail display company. I had been a printmaker, & using the silk screen process, and worked freelance, in this field. And I was a professional picture framer for 30 years, working for a company in my town.
@@natscat4752 Indeed. I just turned 70, I've been retired for a number of years. I have some ailments, that make life difficult. Hand tremors which have ended my art making. I have to use a "walker" to get around.
As a Young Man with Klinefelter syndrome early on I was asking my parents for the information about xxy and they know as much as I know but what I just thought of would be a great help is if you make a little diary of all the information about Klinefelter syndrome and when he's 13 years old that's when I would be the best time to let him know what's happening and as my mom always said boys with xxy chromosome extra-special boys he's going to bring you lots of love 😍 he's so cute😍 hope for the best years to come bye-bye
My son was born with and diagnosed with klinefelter syndrome and CMT disease at the age of 2 because he was noticeably delayed. Despite now knowing his diagnosis and him continuing to be delayed, I have a hard time getting even doctors to understand so that I can get him the help he needs. My son not only has what you just talked about but from a very early age (1) he showed signs of a sensory disorder that is most likely linked to his xxy. But he is not on the spectrum despite having very simular symptoms.
really..? intriguing about the DPD without ASD. It can happen. Yes most doctors don't understand and endos only know the medical part about hormones nothing about brain. Does CMT mean charcot-marie-tooth as in the neuromuscular disorder...?
Our son is 12. He’s been struggling to read since when he was young. He was diagnosed with adhd . With just recently got his diagnosis of KS which explains so many of his quirks. For us it’s important we get him to read. So we pour effort into this. It’s a challenge.
@@shayl8063 he’s was put on Ritalin, this didn’t work as he was getting headaches. Once he got his KS diagnosis we’ve been trying to help him with tutoring. He’s more settled but his quirks are more obvious.
I was put on Ritalin when I was younger and it was horrible. Make reading fun, find books of topics hes interested in. Books on tape really help, and follow along in the book so he sees the words that are being read to him. As much as i hated reading outloud my parents pushed me to do this at home.
I myself have mosaic KS, and I was horrible at reading and writing. However, in high school I became motivated to improve my writing-because I wasn’t confident in speaking but wanted an outlet where I was confident-and in college worked hard to improve my reading and writing, and later speaking, though I still struggle in that regard, but that’s more because of my social anxiety than trying to coherently string sentences into speech. Anyways, I can tell you that it is possible for your child to become a better reader and writer. For me, I have notice some issues, despite how much effort I’ve spent improving my reading, writing, and speaking, such as not being able to say particular words-at this moment it is the word “digital”, but it used to be “strategy”. When I write, I tend to often skip words in my sentences: I think this perhaps my mind moving faster than my hands and assuming that I’ve already written it down. I’ve also noticed that when I read negations I get confused. Negations such as “He did not unfriend him”, where “not” is a negation and “un” is a negation. What helped me improve was majoring in Philosophy. This degree requires one to practice reading, summarizing the work of authors and incorporating their ideas into one’s own ideas. And that’s where the writing comes in, as this degree is “paper-heavy”, i.e., there is a lot writing papers. Professors then provide constructive criticism for improving writing. While taking English Literature courses also place emphasis on writing papers, in my experience, they are taught with more emphasis on what is the theme of a paper, and making sure the grammar of sentences are correct. Philosophy focuses more on how the ideas in sentences are connected with other sentences, to form an argument. And I feel this aspect is what is conducive to good writing.
3/2024....Me again. I don't know if my constant battle with depression, was caused by being XXY. I had emotional problems beginning when I was 10. It could have been triggered by being bullied, from 1st grade, to 9th grade. I was an easy target,...shorter than most other kids, & I wore glasses. I had poor coordination, & had difficulty making friends. I had no interest in sports, though I loved being creative. Being creative wasn't appreciated, until I was 13. My low self esteem was obvious to my peers. The guys and the gals wanted nothing to do with me. I was painfully shy, and kept the lowest profile, because otherwise I was likely to become the target of bullies. The bullying stopped when I began high school, it had nothing to do with a change in me. But rather, the bullies had all discovered "girls",....and flirting. It was also because "The Times-they-were-a changing". I began high school in the Fall of 1969. 1969 Marked the "Summer of Love" era's beginning. The counterculture exploded. Everyone was into creative self expression & Rebellion. I went from attending a small school with all the same kids, from kindergarten to 9th grade, to a giant (Magnet) school, with a 1000 kids per grade level. The bullies just disappeared into crowds of kids. The weirdos like myself, found there were 100s of us, and we found "our people". Being creative, out spoken, & having an off-beat take on life, made us interesting to others. I went from being an out-cast to becoming a "unique person of interest",.... almost overnight. I went from being introverted with a voice so quiet, it was barely louder than a whisper. To a talker, a joker, a loud laugher....even a conversationalist. I could take my creative talents and show them off. Kids who wanted to start their own Rock bands, well, they needed the "ART KIDS", to make their posters and advertising. Many young people were protesting the War in Vietnam,...at public rallies, marches and Sit-ins,...Joining the college kids at the nearby schools and they needed "protest signs" and big, eye catching banners. Call on THE ART STUDENTS. Our skills were in high demand. I traded in my Nerdy, thick black framed glasses, with the masking tape on the bridge for Cool looking wire-rims. My (cow licked), bowl shaped, childhood haircut, morphed into long tresses, similar to a young John Lennon. Even with low testosterone,....I could muster a wispy mustache, and thicker and longer sideburns.
KS is something few people in Scotland are diagnosed with from birth so we find it hard to find other people with it. Our son is doing great and is always catching up with his peers but not too far off. Though there's part of us that know he needs constant supervision or he would do some crazy stuff 😂
Thats unfortunate to hear Adam. Maybe some "key" to come will unlock it. I thought I was doomed in high-school in keyboarding class. Over the summer of 1998 it clicked and was doing 120wpm. It was almost a semi-miracle. I think I just typed away on computer stuff I liked instead of the teacher coming down on me and boxing my hands (similar to a dunce cap). ok so its not quite like never reading Do you have the right assistive tech in place...? One time I was mute and had to use a drawing tablet. The doctor was hampering the facilitation because he thought I was faking.
I have xxy, Im an engineer, I didn't really enjoy reading or Math when I was a kid. But i just had to push myself to be that little bit better. Never Give Up. My parents taught me resilience from an early that helped.
I'm 70, and I struggled with learning and reading as a kid. Before I was diagnosed with being an XXY person. I was just considered a slow learner & a late bloomer. I loved daydreaming, and I had a creative mind. I was 13 when I was diagnosed, so my formal education was mostly done with, by that time. My slow learning was corrected by my mother who was a teacher. She sent me to after-school tutors. I spent my summer's off from public school, being privately tutored. This ended when I entered high school. By that time, I was able to be successful in school and I found my so called, "calling". I wanted to become a graphic artist or a fine artist. By age 12, I was building scale models from kits, but then I began building customized models, by combining all the parts, from various kits, to create models of my own design. I got into sculpting the plastic bodies, with a plastic putty. I entered local competitions, and even won a contest that got my name in our town's local paper. I also took art classes during my summers off from public school, that were taught at a near by college. In college I decided graphic arts, wasn't what I liked doing, and I switched my major to Fine Arts. After my freshman year, my professors recognized my talents, and they directed me to a scholarship program. I competed for entrance into it and I won it. My Art Scholarship, paid for the next 3 years of my college schooling. The classes, books & supplies , not my room and board. I earned my BFA in 1976. I went onto to graduate school, and earned my MFA, in 1979. I immediately found work at a non-profit Art Gallery. I built displays for our exhibits, and I learned how to professionally package and ship fine art, all around the country. I began renting a studio space in a warehouse, with 9 other local artists, which I maintained for 12 years. During those years I was creating sculptures, exhibiting them in competitive shows, & winning more awards. My art was being bought, by local patrons, and even by some corporations, for their offices. I applied for several competitive Arts Grants, and I handily won them. They paid large sums of money, that I used to buy more raw materials and woodworking tools, and some money was spent having my sculptures professionally photographed. Those photos helped me secure more exhibits. Even though it was slow going, I did eventually sell all my sculptures. I changed jobs several times, but they were always in art related businesses. I taught art at the college level, for 2 years. I worked at a retail display company. I had been a printmaker, & using the silk screen process, and worked freelance, in this field. And I was a professional picture framer for 30 years, working for a company in my town.
Interesting life so far! 😊
@@natscat4752 Indeed. I just turned 70, I've been retired for a number of years. I have some ailments, that make life difficult. Hand tremors which have ended my art making. I have to use a "walker" to get around.
I am xxy graphic designer 33ago
Wow!!!!great live!!!!!👏🏻👏🏻👏🏻👏🏻
While the ppl with the challenges can be bright, your fight won't be with your child, it will be with the system.
Thank you so much from Spain for continuing the good work. You and you son are inspirational.
I appreciate that!
Hello, are u in Spain, me too, if u don't mind I would like to get in touch, thanks, and I hope I can talk with someone about this.
As a Young Man with Klinefelter syndrome early on I was asking my parents for the information about xxy and they know as much as I know but what I just thought of would be a great help is if you make a little diary of all the information about Klinefelter syndrome and when he's 13 years old that's when I would be the best time to let him know what's happening and as my mom always said boys with xxy chromosome extra-special boys he's going to bring you lots of love 😍 he's so cute😍 hope for the best years to come bye-bye
My son was born with and diagnosed with klinefelter syndrome and CMT disease at the age of 2 because he was noticeably delayed. Despite now knowing his diagnosis and him continuing to be delayed, I have a hard time getting even doctors to understand so that I can get him the help he needs. My son not only has what you just talked about but from a very early age (1) he showed signs of a sensory disorder that is most likely linked to his xxy. But he is not on the spectrum despite having very simular symptoms.
really..?
intriguing about the DPD without ASD. It can happen.
Yes most doctors don't understand and endos only know the medical part about hormones nothing about brain.
Does CMT mean charcot-marie-tooth as in the neuromuscular disorder...?
That is the same thing with me
Our son is 12. He’s been struggling to read since when he was young. He was diagnosed with adhd . With just recently got his diagnosis of KS which explains so many of his quirks.
For us it’s important we get him to read. So we pour effort into this. It’s a challenge.
Have you started him on medication for his diagnosed ADHD?
@@shayl8063 he’s was put on Ritalin, this didn’t work as he was getting headaches.
Once he got his KS diagnosis we’ve been trying to help him with tutoring. He’s more settled but his quirks are more obvious.
I was put on Ritalin when I was younger and it was horrible. Make reading fun, find books of topics hes interested in. Books on tape really help, and follow along in the book so he sees the words that are being read to him. As much as i hated reading outloud my parents pushed me to do this at home.
@@LivingwithXXY thank you. That’s a great idea regarding audio books for him to be able to follow and identity words.
I myself have mosaic KS, and I was horrible at reading and writing. However, in high school I became motivated to improve my writing-because I wasn’t confident in speaking but wanted an outlet where I was confident-and in college worked hard to improve my reading and writing, and later speaking, though I still struggle in that regard, but that’s more because of my social anxiety than trying to coherently string sentences into speech.
Anyways, I can tell you that it is possible for your child to become a better reader and writer. For me, I have notice some issues, despite how much effort I’ve spent improving my reading, writing, and speaking, such as not being able to say particular words-at this moment it is the word “digital”, but it used to be “strategy”. When I write, I tend to often skip words in my sentences: I think this perhaps my mind moving faster than my hands and assuming that I’ve already written it down. I’ve also noticed that when I read negations I get confused. Negations such as “He did not unfriend him”, where “not” is a negation and “un” is a negation.
What helped me improve was majoring in Philosophy. This degree requires one to practice reading, summarizing the work of authors and incorporating their ideas into one’s own ideas. And that’s where the writing comes in, as this degree is “paper-heavy”, i.e., there is a lot writing papers. Professors then provide constructive criticism for improving writing.
While taking English Literature courses also place emphasis on writing papers, in my experience, they are taught with more emphasis on what is the theme of a paper, and making sure the grammar of sentences are correct. Philosophy focuses more on how the ideas in sentences are connected with other sentences, to form an argument. And I feel this aspect is what is conducive to good writing.
Thanks for sharing this info. You are both gorgeous with kind eyes 😊
Thanks for watching!
@@LivingwithXXYI like the phrase ‘learning differences’ better then difficulties. At least for when talking to your darling boy 😊
Well said thank u for sharing and reminding us this 👏
Thanks for watching!
3/2024....Me again. I don't know if my constant battle with depression, was caused by being XXY. I had emotional problems beginning when I was 10. It could have been triggered by being bullied, from 1st grade, to 9th grade. I was an easy target,...shorter than most other kids, & I wore glasses. I had poor coordination, & had difficulty making friends. I had no interest in sports, though I loved being creative. Being creative wasn't appreciated, until I was 13. My low self esteem was obvious to my peers. The guys and the gals wanted nothing to do with me. I was painfully shy, and kept the lowest profile, because otherwise I was likely to become the target of bullies. The bullying stopped when I began high school, it had nothing to do with a change in me. But rather, the bullies had all discovered "girls",....and flirting. It was also because "The Times-they-were-a changing". I began high school in the Fall of 1969. 1969 Marked the "Summer of Love" era's beginning. The counterculture exploded. Everyone was into creative self expression & Rebellion. I went from attending a small school with all the same kids, from kindergarten to 9th grade, to a giant (Magnet) school, with a 1000 kids per grade level. The bullies just disappeared into crowds of kids. The weirdos like myself, found there were 100s of us, and we found "our people". Being creative, out spoken, & having an off-beat take on life, made us interesting to others. I went from being an out-cast to becoming a "unique person of interest",.... almost overnight. I went from being introverted with a voice so quiet, it was barely louder than a whisper. To a talker, a joker, a loud laugher....even a conversationalist. I could take my creative talents and show them off. Kids who wanted to start their own Rock bands, well, they needed the "ART KIDS", to make their posters and advertising. Many young people were protesting the War in Vietnam,...at public rallies, marches and Sit-ins,...Joining the college kids at the nearby schools and they needed "protest signs" and big, eye catching banners. Call on THE ART STUDENTS. Our skills were in high demand. I traded in my Nerdy, thick black framed glasses, with the masking tape on the bridge for Cool looking wire-rims. My (cow licked), bowl shaped, childhood haircut, morphed into long tresses, similar to a young John Lennon. Even with low testosterone,....I could muster a wispy mustache, and thicker and longer sideburns.
👏🏻👏🏻👏🏻🥹🥹🥹🫶🏼🫶🏼🫶🏼
👏👏👏
KS is something few people in Scotland are diagnosed with from birth so we find it hard to find other people with it. Our son is doing great and is always catching up with his peers but not too far off. Though there's part of us that know he needs constant supervision or he would do some crazy stuff 😂
No one helped my son to learned in the schools and them refused to pushing him to learner 😭😭😭he is a 17 years old and he can't read or write
Thats unfortunate to hear Adam.
Maybe some "key" to come will unlock it.
I thought I was doomed in high-school in keyboarding class.
Over the summer of 1998 it clicked and was doing 120wpm.
It was almost a semi-miracle.
I think I just typed away on computer stuff I liked instead of the teacher coming down on me and boxing my hands (similar to a dunce cap).
ok so its not quite like never reading
Do you have the right assistive tech in place...?
One time I was mute and had to use a drawing tablet. The doctor was hampering the facilitation because he thought I was faking.
of course learning disorders doesnt mean that you are not intelligent, many high IQ people experienced that
Doesn’t hurt to remind people or teach people who don’t realise this though!
♥️🇨🇦🌏