mySCS Story | 3 Year Implantation | Safe
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- เผยแพร่เมื่อ 10 ก.ย. 2024
- Friends and Family greetings 🖖🏽 TrickyRicky here, back with another video. Here we are three years into my Spinal Cord Stimulator implant journey. Today is my 3 year implantaversary! That's right guys, I am 3 years in!!! In today's video I will be talking about the highlights during the course of my first three years of recovery. Today's video is a bit long winded but it is filled with gems, gems, gems, lol. Make sure you watch this video from start to finish to learn all about my successes, my obstacles & benefits of having this system. You might ask: "Would you do it all again?" My answer is: "Absolutely" If you're new to the channel, mash the subscribe button and turn on post notifications so you don't miss when I release another video.
Also check out my Spinal Cord Stimulator Patient Playlist (found here):
• Spinal Cord Stimulator...
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For SCS videos from other creators, check out: @DjPorkchop73 @nancyrobinsjourney7843 @lifewithlizajane9854
#bostonscientific #spinalcordstimulator #painmanagement #backpaintreatment #backpainsolutions #painmanagementsolutions #backinjury #recovery #medicaldevices #trickyricky
YOU ARE GOOD MAN!!!!! Thank you for your hard work in keeping us informed for 3 years about all the SCS benefits and struggles. I have watched many TH-cam videos and yours is the best information out there. I want to thank you for allowing us into your private life and sharing with us your journey. Again thank you so much and GOD bless you and your family.
Thank you so much Phil. It means the world to me when I receive comments like these. When I'm feeling down, it's comments like these that lift my spirits when I go back and read them all again. It was my wife's idea. I didn't know what to do and she told me: " hit record and talk about everything that you feel" I never knew it would amount to this and be so helpful to others seeking clarity on this procedure. I am humbled and grateful for the wonderful feedback I've received (including this ☝🏽️) God bless you and your family. May you find relief and have a wonderful Christmas and Happy New Year my friend cheers 🍻
I'm looking at getting a SCS implemented and your videos from a personal standpoint has been extremely helpful. I have been dealing with bad pain for over 5 years now from my spine so hearing all of your life advice with the SCS is very good to know and prepare myself for what could be coming soon.
Thank you and I wish you continued success 🙏
Hello @72ndoyle thanks for watching and for your kind words. I'm praying that you find relief and have a healthy recovery
I've been watching your videos. . This information is priceless. I'm getting my trial 12-11-23. 9 days from now. Very nervous. This update gives me hope for the future. I'd really like to drive more than once or twice a month. Been on the couch for 17 months since getting hurt at work. I was a welder. When you said to stay away from welders and generators my heart broke. I wanna feel like you. I need my life back.
With some faith in the man upstairs and obeying the doctors orders, you should be right as rain. Thanks for watching and I'm praying for a successful outcome in your case
Any updates? How'd it go?
Are you asking the original commenter?
@@MySCSStory Yes sir I am. I’m looking into getting a SCS myself due to severe chronic neuropathy stemming from a Spinal Cord Injury I suffered 5 years ago. Gabapentin is the only thing that’s kept me alive this long but it recently stopped working as my body has built up a tolerance to it. I’m back to being in unbearable pain and I’m at my wits end with the chronic neuropathy. So I’m looking to get more information from people and hoping to hear some positive stories. Outside of your video, I’ve seen far too many negative experiences with it which makes me nervous.
Check out DjPorkChop, JosephOfBorg & Hand-i-Craft right off, those are the few I can recommend
I'm glad you are doing well finally. I had my SCS removed Monday 11/13. I have the old MRI incompatible Medtronic SCS, implanted in 2012. I shared before that I was awake during that entire surgery due to a high tolerance from prescribed Opioids for chronic pain. It was then realized that I was dealing with opioid induced hyper sensitivity, I didn't need the SCS, I needed to free from opioids. Day 6 post op, I'm dealing with terrible muscle spasms but they will go away eventually. I wish you success in your SCS journey. No pain or complications!
Helloooo Lizzz I'm praying for you my friend. I hate to hear that you had to get your system taken out because I know you are in pain pain ❤🩹 I noticed that I am sensitive to loud noise & overly talkative ppl during my quiet time. I get easily aggravated oddly
I saw my surgeon this past Wednesday. The Rep and I worked on changing the coverage range and she gave me a new program for the SCS to try for the next 6 weeks. She left the first program on the remote in the event I find the new program isn't working for me, I can at least fall back to it if need be. The new coverage area, only now on the 3rd day, appears at this point to be better than the last. Pain level has been down at a very manageable level. Level of pain during spikes of pain have been down. So far so good ! I'm excited this has been a long journey for relief.
Hello Fred, welcome back my friend, I'm happy to hear that you're getting some good results from your programming. Not sure if you have already, you may want to check out my video about programming and the options you have when you actually have the rep with you next time. Finding those trouble spots can be tricky but when you get a great program, OMG the relief is terrific 🙃 but seriously, I'm really happy for you
Thanks, I will give it a watch ! @@MySCSStory
I’ve had my permanent stimulater for about a year now & it hasn’t touched my back pain. It helps my leg pain but not my back. They think maybe the leads have moved & want me to have a X-ray soon. I’m miserable!! 24/7 I feel about a 7 in pain. I take Lyrica & pain meds as well. I’m so happy it helped you. You are BLESSED!!
Hello HereIAm, thanks for watching and sharing with us. I'm so sorry to hear that your scs isn't helping with your back pain. I tend to find relief when I run my back program at 40hz Pulse rate and set the pulse width and amplitude to your liking. I notice that I hurt more when my program is too strong and or running at a high pulse rate. I'm praying for you my friend ❤🩹 I totally understand where you are coming from and in the same sentence, I feel bad because I feel relief and you're in pain 😔
Thanks for video , doing the trial in 3 weeks , so tired of this pain
@@DRUMSRIO I truly hope that you get the relief that you been longing for. Thank you so much for watching and for your kind words. You may want to check out my video about programming. Good gems there
So glad you are doing well God bless you
Thank you so much 😊
You definitely sound stronger and more energetic now!! I'm routing for you Brother!!
Yes my brother, I'm feeling better and better as the years past. As the pain from the surgery goes away and my trouble spots are being targeted effectively, the more my pain decrease. The jacked up part about it is my underlying condition. I have whole body impairment and disc Slippage issues so I have to watch my movements closely to ensure that I don't click my back, change my coverage and or cause the pain to return. There's a lot of Pro's and Con's to this system but the Pro's are winning this week
Do not do the spinal fusion. I've had 2 surgeries on my back. I told everyone if I knew about the stimulator first I would've got it before those previous surgeries. I enjoy your contents because I didn't know about the postures now it makes since. Thanks again.
Wonderful news! So glad you are doing well. I finally got a surgery date for Jan 12 th for permanent implant . I appreciate all of you advice and DJ's too, you both are doing a wonderful thing too help us that are preparing for implant surgery. HappyThanksgiving to you and your family.
Hello Carol, thanks for watching. You will surely be in my thoughts and prayers and Happy Thanksgiving to you and your family too 🤗
Good video again. I go on the 28th for the trial period. Then if all goes well, out on the 1rst Dec. then 2-3 weeks after get full install. T10-ilium fused and 3 knee replacement, one advice, let the fusion be the last last resort. If your doing good keep it up. If hurts to bad or personal safty then hit fusion. Every one is different healing. I wouldn’t wish a major fusion like mine on anyone. A small fusion I can’t say. 2 1/2 years on it now. Slow and easy 🤙🤙
I heard that Mongo. As they say: slow motion is always the best motion... I do thank you so much for watching, sharing with us and especially for your advice. I've been getting a lot of mixed responses regarding that matter and yours is definitely a no brainer #lastresortonly 💯 I pray that all goes well with your trial and remember my suggestions when they program you. Your options are left, right, even (for both sides), make pulses wider, thinner, faster, slower, higher up your spine & lower down your spine. When you find the sweet spots, you'll feel great. Take your time with the reps. It's all about finding the best relief for you and there is no time table for that my friend. Take care and keep us posted
Amazing to hear you still have great results. My trial in August was a huge success and gave me 100% relief and I felt my body change after a few days where I could just sleep and relax for the first time in years!
My permanent implant is on the 12th! I'm so anxious but excited at the same time. Thanks for sharing your experience, I'm going to share my experience as long as the insurance stuff is all cleared up so I don't cause any issues. Thanks so much!
Hello Kurt thanks for watching and sharing with us. I am happy to hear that you had a successful trial run. Prayerfully you get the same if not better results with your permanent. Keep me in the loop my friend. Once you have uploaded your first testimony, let me know and I will shout out your channel to help you get off to a good start
Glad you're mostly pain free...I just meet my rep last week for reprogramming. Hopefully this will be helpful
Hello Kitten, thanks for watching and sharing with us. Hopefully you got some good programs and they work well for you❤🩹
Hey I’m glad you’re doing better
Hello Keisha, long time no hear 😆 it's always good to hear from you. How have you been so far?
Glad to hear you are doing very well. Happy holidays my friend!
Thanks so much for watching Terry. & Happy Holidays to you as well my friend
Hi, I am so happy for you. I will be going in the hospital this Wednesday to have my scs put in. I don't know what I will be doing once my pain will be diminished. Have had chronic pain since 2005 from a failed back surgery. So I love watching you and taking notes. Thank you for this.
You're welcome Wright, thank you so much for your kind words and for watching my journey. I'm praying for your speedy recovery ❤🩹
Thank you for this video. I really needed to hear this one. Friday is my big day. I hope they put me totally to sleep.
Hello Kindladyw thanks for watching. I'm praying that all goes well with your procedure and your recovery. If you have any questions during your trial, give me a shout ❤🩹
This is a great video sir. I've been dealing with chronic back pain since I was 27. I had a spinal fusion at L5-S1 in 1993. That wasn't the answer. At this point, I try to stay as active as possible and just deal with the pain. I try not to do anything stupid but sometimes every day life as a man presents challenges that we need to face and complete. I just finished up my one week trial on July 2nd. I believe it was successful and am in referral for the permanent implant. Do you feel like you can push-mow your grass, weed whack with a feather lite weed whacker? Do you feel like you could play 9 holes of golf using a golf cart? Do you feel like you could bowl 3 games with a 15 pound bowling ball? These are all of the activities I've been doing for many years but have done so with different levels of pain over the last 35 years. I went to pain management a year ago because of a very bad episode with months of back and leg pain. Tried a couple of injections with no relief. My insurance denied the MILD procedure at L3-L4 through 4 different appeals. So this is where I'm at. My goal with this SCS is to be able to do all of my household chores and continue with my hobbies like golf and bowling in less pain. Do you feel you can do these things? Thanks in advance.
@@wileycoyote3223 thanks for watching and for sharing with us. And thank you for your questions. As for me, my back is ruined (whole body impairment in my back) therefore I already before my implantation. I had a laundry list of restrictions ie. Lifting, twisting, etc. as for yard maintenance, I have a riding mower, I was cleared to ride it at 1 mo post op. I have a very lightweight battery powered weed eater. I’m able to use it with very minimal pain. It doesn’t begin to hurt until I’m using it past 30 mins. I tried to bowl but it caused me pain swinging the ball (all the body motions). I’m not a golfer so I can’t really speak on how it feels. Household chores are not a problem for me. It depends on if I’m having an arthritis or neuropathy flare up. Other than that, I have more good days than bad days, today my joint pain is a 1. If it makes you feel better, I am a member of Spinal Cord Stimulator Success Stories on fb. I have seen posts where ppl have resumed their normal life post op, going back to work, hiking, traveling, etc. so anything is possible with this system. It solely amounts to our individual bodies, what we have been through, type system you’re getting, how well they program you, how long it takes for the rep to hit that trouble spot & how your body responds to it. As long as you follow the doctors orders & give yourself time enough to heal properly, you’ll be fine. I strongly believe that adverse reactions are attributed to getting up, moving too soon and moving the wrong way too sudden. Results will vary from person to person.
Hey there my friend tricky Ricky I am very happy to hear you’re doing good I’m still having issues with my back and my small fiber neuropathy. I do good for a while and then I’m back at the start point going to get reprogrammed again but it feels like somethings went wrong with my back but it’s good to hear you’re doing good.
Hello Thomas, always good to hear from you. I hate to hear that you're still catching it. I pray that things settle down for soon
I am getting ready to ask my pain med about this having 10 disks operated on my pain is very very bad 3 back surgery my level if pain over the charts in-between shots pain is bad hopefully my doctor will agree to put it in i have been living with pain over 30 years
Hello Aurora, thanks for watching and sharing with us. I cannot imagine the amount of pain that you have experienced in your life but I can truly understand. It wouldn’t hurt to talk with your doctor, get his/her opinion on it and or at least try the trial. Who knows, it may help you manage your pain. I will definitely keep you in my thoughts and prayers my friend
I am in a hospital bed now been on it 3 years i dont know what being without pain is with 5 more disks messed up...
Oh my, I’m praying for you
I am with the same Company Georgia
How is your coverage? Are you getting some good results 🤞🏽
What about out of pocket for your procedure? I am thinking about doing the SCS trial but I'm concerned about the cost going forward. Does it cost you for maintaining the unit?
The procedure itself for me was somewhere in the $30k arena. I have blue cross blue shield federal. They paid 80% and I paid 20% which was shy of $4000 with the permanent and 1/2 of that amount with the trial
i feel for you my brother. i hope you improve.. One of the issues I'm having right now is my charger doesn't want to charge my battery.? I don't know what to do?. My battery is already going low and I won't be able to turn it on anymore. Is there any tips and tricks on that? I looked through your videos. I didn't see anything on that for the charger base???
Hello Rude Master, thanks for watching and thanks for your question based on what you're telling me, it could be one of 4 things. 1 (minor) you're probably not seating the charger box on your PG. If you don't seat it properly your device won't charge (if so, ask the rep to give you some insight) 2. (Minor) your charging puck may be defective and might need to be replaced 3. (Major) your PG has flipped over inside of you and you will need to get the surgeon to flip it back over and anchor it. 4.(Major) your PG might be defective and might need to be replaced. My question to you: are you feeling any pain around your PG? Overall you definitely need to contact your surgeon before the unit dies. If there's any major issues you'll get priority and they'll correct it. Keep me posted my friend. Best wishes
@MySCSStory I think it's either the charging base or the battery's defective i'm not sure? I just contacted my rep. He told me to set it in the charging base to see if the light comes on and if not, he'll try to get me another one on Monday, thanks for your input, I will be following you closely and I will keep you updated. It's good to be able to talk to someone that's going through this journey too I don't really have too many people to talk to about it. I'm glad I found you man..
I really appreciate that my guy. Always remember I'm a few clicks away if you ever need to chat if need be.
@@MySCSStory Absolutely I'll be in touch
I need to get this off my chest. Ive had three failed back surgeries. The pain is so bad that ive thought about suicide but i cant do that to my wife and son. Im going for the trial in a couple of weeks. If that doesnt work i dont know what im going to do.
Hello John, thanks for watching and sharing with us. Your story has touched my heart... I cannot even begin to wrap my head around, less long phantom the pain you feel as well as TRYING to process with and cope with dealing with all the things you've been through. As hard as it sounds, this too shall pass as all things are temporary. There is light at the end of the tunnel, just continue to have faith and follow the doctors orders. If you are going through with the SCS, I highly recommend you check out my early recovery videos a d my videos about programming to ensure that you have a successful recovery, optimal coverage and potentially a decrease in your chronic pain. **FULL DISCLOSURE: I too have seen some dark days but it was my wife and kids that kept my grounded. If you EVER feel like you're having a crisis, please call 988, call your doctor and embrace your family even more. Think of them as they will help you see this through. Life is so precious and we value life here because everyone's life matter ❤🩹 you are a living testament and you are a true warrior. You got this. Stay encouraged. If you wanna chat, I'm available via Facebook -Ricky Abercrombie (grey shirt)
@@MySCSStoryThank you sir. Its hard to stay level headed being in this much pain. I would never wish this on anyone. I can't think straight I can't sleep I'm falling apart. My only saving grace is the back implant in a couple of weeks. I don't have anything to lose at this point as i have no quality of life at all. Thank you sir for the kind words. They mean more to me than you know.
You are definitely welcome anytime. Again that video about programming is helpful keep in mind the info I share so you can get the best results
So I can go to a chiropractor and it won't hurt the stimulator?
Good question: it's important where they push, twist, press and jerk. So far I haven't seen a chiropractor but based on comments and other posts. They suggest you to follow up with the SCS manufacturer and or your surgeon before seeing a chiropractor. Everyone is different in regard to their back
Alabama man you have explain this viedo i have one please give the the name of the back support i had mine 4month still in pa,keep poestng so you c this ninggt where youyn i have learn something posted the name of your bracc Thank you so much
The back brace, It's made by Sleeq Medical. I put the link in your other comment
I was writing so fast mispell words please poet the name oo back beace
My back brace was given to me at my first back surgery. It's made by a company called Sleeq. It's an orthopedic brace. I've seen some on Amazon. I will look at it when I put the kiddos on the bus and I'll tell you the exact name of the brace
Yes the name is called Sleeq by Quinn Medical. Quinn medical.com is their website