how to deffrentiare between this syndrome and AS If the MRI show abnormality in L5 with sacrum And laboratory investigation show HLA gene positive really i don't know and i have incredible lower back pain from one year
Getting a diagnosis a great first step to finding relief. If you'd like to see how we can help, give us a call at 703-709-1114 to schedule a consult (in-person and Telehealth options are available).
What to do when you have scoliosis and this syndrome at the same time. They say my 17-year-old daughter should have surgery for scoliosis, the Bertolotti syndrome is IIIb, we haven't started the physiotherapy yet but we are very distressed because from having a healthy and happy life everything has permanently changed. What life awaits my daughter now?
Hey there, I'm a 38 y/o male who is having L5-S1 fusion with Dr. Jenkins in New York at the end of the month. I have something that's a weird combo of a Type II and a Type III. But anyway, minor scoliosis is one of the symptoms of my presentation of BS. There is a major instability at the base of my spine on the right, so all the muscles around that tighten up to protect it, which pulls my spine out of alignment. My hip and shoulder heights are wildly out of sync with one another, easy enough to see in the mirror when I care to look. Just want to make sure your daughter's diagnosis of scoliosis is not just a symptom of her Bertolotti joint! And good luck to you both! I had a "bad back" my whole life but had my first true, nasty BS attack in 2018 and I've been hopping from pain office to pain office until just last year when I finally found the local surgeon who is an expert on BS. I'm glad you're getting her looked at early! You don't want this kind of thing to sit around unaddressed.
I agree with this. I wonder if the response would be that just because it’s visible doesn’t automatically mean it’s the cause of pain. Still super weird... it’s so very easily visible on X-rays.
I had three doctors tell me that the pain can't be caused by my LSTV. It is literally the only anomaly found during all of the tests to figure out what's causing the pain. Even the spine surgeon said it's not the cause of my pain. I am at the end of my rope.
Sorry to hear you've been facing these challenges. Our physicians would be more than happy to help. If you'd like to schedule a consultation, give us a call at 703-709-1114 or email mycare@spinemd.com.
Im 50, recently found out my diagnosis and it still gets swept under the rug. Happy you found help. Im searching now🙏
Getting a diagnosis is a great first step to finding healing! We wish you the best on your health journey.
how to deffrentiare between this syndrome and AS
If the MRI show abnormality in L5 with sacrum
And laboratory investigation show HLA gene positive really i don't know and i have incredible lower back pain from one year
Just diagnosed with Bertolotti's Syndrome after 20 years. I also have osteoarthritis, scoliosis, DDD, Facet Joint Disease and stenosis.
Getting a diagnosis a great first step to finding relief. If you'd like to see how we can help, give us a call at 703-709-1114 to schedule a consult (in-person and Telehealth options are available).
It’s funny I ran across your video, I’m also in that Facebook group!
Me too!
Me too!!!
what is the name of this group, please
Yes what's the name of the group?
Just got diagnosed with it at 30yrs
same :( a lot of people around me thought i was faking the pain T_T
Me too. Just found out today. I’m 34..
What to do when you have scoliosis and this syndrome at the same time. They say my 17-year-old daughter should have surgery for scoliosis, the Bertolotti syndrome is IIIb, we haven't started the physiotherapy yet but we are very distressed because from having a healthy and happy life everything has permanently changed. What life awaits my daughter now?
Hey there, I'm a 38 y/o male who is having L5-S1 fusion with Dr. Jenkins in New York at the end of the month. I have something that's a weird combo of a Type II and a Type III. But anyway, minor scoliosis is one of the symptoms of my presentation of BS. There is a major instability at the base of my spine on the right, so all the muscles around that tighten up to protect it, which pulls my spine out of alignment. My hip and shoulder heights are wildly out of sync with one another, easy enough to see in the mirror when I care to look. Just want to make sure your daughter's diagnosis of scoliosis is not just a symptom of her Bertolotti joint! And good luck to you both! I had a "bad back" my whole life but had my first true, nasty BS attack in 2018 and I've been hopping from pain office to pain office until just last year when I finally found the local surgeon who is an expert on BS. I'm glad you're getting her looked at early! You don't want this kind of thing to sit around unaddressed.
@@Hoju3942interesting, how did your treatment go ?
Thank you 🙏🏽🇨🇴 ... Definitely 😣🤕 This is not a way to live.
I don't understand why it would be so hard to diagnose. Wouldn't it be very obvious from a simple lumbar X-ray that the L5 is abnormal?
I agree with this. I wonder if the response would be that just because it’s visible doesn’t automatically mean it’s the cause of pain. Still super weird... it’s so very easily visible on X-rays.
I had three doctors tell me that the pain can't be caused by my LSTV. It is literally the only anomaly found during all of the tests to figure out what's causing the pain. Even the spine surgeon said it's not the cause of my pain. I am at the end of my rope.
Sorry to hear you've been facing these challenges. Our physicians would be more than happy to help. If you'd like to schedule a consultation, give us a call at 703-709-1114 or email mycare@spinemd.com.
I just found out today and I'm scared.. 25yo