I agree, stress and anger are huge triggers for TN and MS. I have been dealing with the horrible TN combo since diagnosed with progressive MS five years ago. MS is the demylenation of nerves and has stripped my Trigeminal nerves of the myelin insulating covering, so MVD or Gamma Knife is not helpful for people like me. Tegretol doesn't work nor anything else. I had to cancel Christmas due to loud voices, sounds, lights and smells cause me to lose my motor skills and vision plus can induce vertigo. I feel so very sorry for you and the others like us with the only hope of a new medication. Bless you for sharing this as I find these videos sad but helpful at the same time to see how others cope. I have found listening to music with noise cancelling headphones to be very relaxing and got me reading again too with my ears though since the eyes are affected from the MS (optic neuritis). Thanks again and Happy new year 👍❤️
I find that at times I feel okay while talking with someone but then end up in severe pain that evening. Unfortunately, I won’t be able to socialize at Christmas as I am finding that because you look fine visually, even though people know your story the level of support and understanding just isn’t there. I look at it that it is a temporary thing and I agree that it’s about what you can do rather than what you can’t. I have been suffering for the same amount of time as you. Thanks for your advice and I hope you have a very nice holiday.
Hi Cheryl 👋 ...it sounds like a wise decision for you. Like you say, it's about knowing your own limitations because others just don't understand. Happy quiet holidays!!!
I know what your all going through I tried aquapungture and it worked for me lowered my medication and no pain going to ween of them all of if possible kath uk
@@Letsfaceittogether my pain is def controlled now. I get a headache on my temple every week maybe. I feel a few shocks daily but small ones. I’ve only felt that ugly scary bolt 2 times ever. But I used to feel so many symptoms at once daily and so it’s down to the shocks and temple pain which I can definitely live with but the side effects of my carbazepine is what I’m trying to get away from now. I will let you know if I do get Botox and wether it helped.
I agree, stress and anger are huge triggers for TN and MS. I have been dealing with the horrible TN combo since diagnosed with progressive MS five years ago. MS is the demylenation of nerves and has stripped my Trigeminal nerves of the myelin insulating covering, so MVD or Gamma Knife is not helpful for people like me. Tegretol doesn't work nor anything else. I had to cancel Christmas due to loud voices, sounds, lights and smells cause me to lose my motor skills and vision plus can induce vertigo. I feel so very sorry for you and the others like us with the only hope of a new medication. Bless you for sharing this as I find these videos sad but helpful at the same time to see how others cope. I have found listening to music with noise cancelling headphones to be very relaxing and got me reading again too with my ears though since the eyes are affected from the MS (optic neuritis). Thanks again and Happy new year 👍❤️
Hi Mike. Thank you for sharing with us. I really hope things can get better for you. Also, thank you for the encouragement 🙏
Even Mvd is risky surgery too
Happy New Year to you. I'm a long term TN person and had it a good while.
Thank you, Simon, for your good wishes
I find that at times I feel okay while talking with someone but then end up in severe pain that evening. Unfortunately, I won’t be able to socialize at Christmas as I am finding that because you look fine visually, even though people know your story the level of support and understanding just isn’t there. I look at it that it is a temporary thing and I agree that it’s about what you can do rather than what you can’t. I have been suffering for the same amount of time as you. Thanks for your advice and I hope you have a very nice holiday.
Hi Cheryl 👋 ...it sounds like a wise decision for you. Like you say, it's about knowing your own limitations because others just don't understand. Happy quiet holidays!!!
Thats true working hard and being stress causes flare ups
Yes, it does
Happy holidays 🎉🎄🧑🎄
Thank you! You too!!
You are amazing
That's so kind
I know what your all going through I tried aquapungture and it worked for me lowered my medication and no pain going to ween of them all of if possible kath uk
Have you considered Botox ? I hear it helps. It’s my next step. Please let me know.
No, but I’ve head it’s a good option. My pain is controlled, so I’m not considering it at the moment
@@Letsfaceittogether my pain is def controlled now. I get a headache on my temple every week maybe. I feel a few shocks daily but small ones. I’ve only felt that ugly scary bolt 2 times ever. But I used to feel so many symptoms at once daily and so it’s down to the shocks and temple pain which I can definitely live with but the side effects of my carbazepine is what I’m trying to get away from now. I will let you know if I do get Botox and wether it helped.
@@mizzmuhree9297 yes, let me know. I understand what you mean about the carbamazepine