My EDS Story/Zebra Month

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  • เผยแพร่เมื่อ 12 ก.ย. 2024
  • Hello everyone, welcome to my channel!
    This is my life story with EDS or Ehler's Danlos Syndrome. I don't go into detail about joint dislocations, subluxations or braces as this will be a whole separate video. If you have EDS, please feel free to share your story below to help inspire and uplift others. Thank you for watching :)

ความคิดเห็น • 6

  • @amandashepherd4952
    @amandashepherd4952 4 หลายเดือนก่อน +1

    Proud of you for sharing. ❤

    • @incurablyawesome2024
      @incurablyawesome2024  3 หลายเดือนก่อน

      Thank you so much, Amanda! It took a lot for me to share all of this. Sending positive vibes your way!

  • @amandamccallum6796
    @amandamccallum6796 3 หลายเดือนก่อน +1

    Great Job! It took me 10 years of fighting to get my diagnosis of EDS. I have almost all the same diagnosis as you and some more because I am older than you. Everyone knows what MS is, once I learned everything involved with EDS I wondered WHY doesn't anyone know about this???
    Thank you for bringing awareness.

    • @incurablyawesome2024
      @incurablyawesome2024  3 หลายเดือนก่อน

      Thank you so much for sharing your story, and for your kindness. We can keep pushing forward together!

  • @nadineevans5195
    @nadineevans5195 3 หลายเดือนก่อน

    What about sunscreen without so much perfume? Have you found anything?

    • @incurablyawesome2024
      @incurablyawesome2024  3 หลายเดือนก่อน +1

      Fortunately, sunscreen is the one thing that doesn't bother my skin. I have been using Hawaiian Tropic Sheer Touch 50+. May I ask what you use?