D is Diagnosis
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- เผยแพร่เมื่อ 28 ก.ย. 2024
- D is for diagnosis. It isn't always easy to get a diagnosis. If i had a do over I would have just gotten the DaT but i was scared. Scared of getting the results and dealing with the truth. So I found another neurologist...and another. I think i needed time to process everything, grieve and accept. When i reached out to Mayo for a second opinion and received my final diagnosis i had already been on my journey a few years so mentally i was ready, almost relieved. Diagnosis felt like the end of the road, but was really a beginning. In many ways I learned a lot about myself in the process. You're stronger than you know. Now i have amazing friends like you that support me every day. Thank you #ABCsOfPD
#parkinsonsawareness #parkinsons #yopd
1st dx 6mo ago, I had been n denial. Now all my symptoms match the Dr dx. So I have tryied red light therapy only helped my scars. Hubby bought me a Hyperice message gun, that helps a little. I do force myself to the gym, that helps a little. Grounding in the front yard along w stretching, helps a little. Best thing I'm still here n trying to b positive!! 65 walk w cane n never had so many people open the door for me,❤that!! Next try is cold plunge!! Wish me luck...love your videos from another beautiful Parkie!!❤
That’s great I’m hitting the gym too! Mindset is so important and we have lots of life to live
hi there! my dad hs parkisons hes 89 he hd for few years, hope ur doing ok dear
I have had PD for 31 years, dx at 35. Symptoms affecting work, domestic or social activities can be very stressful and this just makes things worse. There are strategies to help.
Another approach is to try to reduce the severity of the symptoms. Here are a few of the many things which have helped me.
Speech and memory - I tried learning Japanese. Still a work in progress but I have mostly eliminated speech difficulties.
Parkinson's specific exercise. This challenges the common PD movement problems in a controlled and safe environment.
Fine movement - asian ink painting and watercolor painting.
Learning to play musical instruments. Just now focusing on cello and fretless bass guitar.
These are all challenging activities but if you manage your expectations then they can be very rewarding. There is extensive clinical evidence that this is beneficial in most with PD.
Just pick something you always wished to do and then justify it as therapy.
On fait l amour avec un bon mariage
Hope your ok. You look soo well from the outside. My dad passed away from PD at age 83 he was in a wheel chair about last 5 years of his life. I have had weakness in my left arm and finger twitiches for a few years so i think i have it as a genetic predisposition. It has progressed to left foot and left hand. Doctors rule it out as stress but i feel something is wrong. Drs in Uk dont wanna know these days. When i wake up i feel my brain is eating itself away? I am 40 years old. Have you tried ketogenic diet and intermittant fasting? This usually controls my symptoms
What did your shoulder pain feel like? Was it stiff? I have shoulder pain but its very sharp when i extend it. No stiffness or loss of range of motion
It was just tight and sore
Were you diagnosed with Parkinson's or Parkinsonism?
I was diagnosed by the Mayo Clinic as having Parkinsonism because I lacked the cardinal trait of tremors or shaking.
I have stiff shoulder on my right side, I drag my right foot, I experience Dystonia in my left foot and leg. My symptoms are Bradykinesia, Akinesia and Hypokinesia.
I was wondering if you experience the same symptoms and what medication you take to alleviate the symptoms.
I was originally diagnosed with Parkinsonism and explained that there is an umbrella over several conditions that share symptoms. I nothiced they now referer to me as having "Parkinsons" 20-30% of people with Parkinson's don't have a tremor, and mine isn't constant and is often largely controlable and triggered by certain things (like cold, pain, stress)
I was given Rasageline in the beginning, the Sinament, then Rytary, then Amantadine. aloso propanolol. Currently I am taking only Dopa Macun (an alternative source for Levodopa) and carbidopa, but don't do this unless you talk to your doctor first.
I have had Parkinson's for 31 years.
About half of those with PD initially have any significant tremor and half don't. Now I have occasional very mild tremor. Consult another neurologist. Don't just rely on the reputation of the Mayo Clinic.
I recall the first time I told a doctor my legs were vibrating and back and side spasms the could be seen and felt on the outside of my body. That was around 2006. He treated the spasms with a narcotic. I couldn’t take it during the day because who wants to talk to a drugged up therapist? I had to ask clients to trade seats with me, so I could have the couch.
My PCP wanted to prescribe antidepressants I said maybe figure out what’s wrong with my brain first!
All the little insignificant quirks. Doctors are trained to treat symptoms. Parkinson’s is a myriad of seemingly unrelated issues. My favorite is but you look so well! ❤
Yes thankfully PD didn’t make me look bad🤦♀️😂