So what's up with Dr Chatterjee? Scleroderma expert in Cleveland but doesn't do specific antibody testing. No nailfold test. Very dismissive. Basic bloods were normal and I keep getting referrals to Psych 🙄 This was so informative and validating actually. Thanks guys. Talk about a delay in diagnosis I can't walk and now I have shortness of breath, back (kidney) pain, and chest discomfort! But CK and ANA was normal which is all that was tested. I just need to move.
Hi, it's sad to hear that there are doctors that don't know how to diagnose each form of Scleroderma. I recommend you to go to another doctor. And ppl who sees you in an integral complete way. I hope someday anybody has to go through a long awful path to get right diagnosis. :(
I have all the ANAS antibodies positive, the Mexican doctors here in Mexico, never ever cared. (For years, and a two German doctors,as well I Germany). The antibodies were elevating. Again nobody knew why and none doctor here cared, one was like "oh ummm all positive" and yawned. It's been so difficult when most of the doctors apparently "rheumatologists" don't care, they easily (misdiagnose) "diagnose" fibromyalgia.
I can't seem to find where the handout is located to be able to print it out. Can anyone help guide me how to find it? I'd love to have that for my own personal use & for my physicians.
can someone have blown capillaries (over a year ago) with naked eye, phone camera/light. thankfully I took photos, but now I see NO capillaries whatsoever. are they just gone?
Hello Sir Ed If you don’t mind, can you please share your email id, as I would love to share my condition and symptoms with you and get myself gain some of your valuable knowledge on the issue
So informative Ed. I'll mention this to my rheumatologist, who declared that i am fine despite all of my symptoms.
Great info, the handout made it easy to follow!!!
Ed, thank you for being so kind and helping us! You are a hero to many
So thankful Ed. He reaches out. Love him and I don't even know him.
Thanks Ed Harris for guiding me here! Very helpful info.
Great Video!!!! The hand out made it easy to follow!
This was an amazing informative video. The presentation was done so well for anyone to understand. Thank you very much.
So much good information. The explanations are wonderful
So what's up with Dr Chatterjee? Scleroderma expert in Cleveland but doesn't do specific antibody testing. No nailfold test. Very dismissive. Basic bloods were normal and I keep getting referrals to Psych 🙄
This was so informative and validating actually. Thanks guys. Talk about a delay in diagnosis I can't walk and now I have shortness of breath, back (kidney) pain, and chest discomfort! But CK and ANA was normal which is all that was tested. I just need to move.
Hi, it's sad to hear that there are doctors that don't know how to diagnose each form of Scleroderma.
I recommend you to go to another doctor. And ppl who sees you in an integral complete way.
I hope someday anybody has to go through a long awful path to get right diagnosis.
:(
I asked for a referral to someone smarter. My doctor laughed, and gave me the referral to a scleroderma specific specialist. @@lillyrocks2011
I have all the ANAS antibodies positive, the Mexican doctors here in Mexico, never ever cared. (For years, and a two German doctors,as well I Germany). The antibodies were elevating.
Again nobody knew why and none doctor here cared, one was like "oh ummm all positive" and yawned.
It's been so difficult when most of the doctors apparently "rheumatologists" don't care, they easily (misdiagnose) "diagnose" fibromyalgia.
I can't seem to find where the handout is located to be able to print it out. Can anyone help guide me how to find it? I'd love to have that for my own personal use & for my physicians.
can someone have blown capillaries (over a year ago) with naked eye, phone camera/light. thankfully I took photos, but now I see NO capillaries whatsoever. are they just gone?
Any update on your capillaries?
My PCP diagnosed me with a terrible case of Fat Old Depression. Turns out it’s kidney disease.
That's horrible. You're not alone, with rare disorders, many of us get treated that way.
Time to get another Dr.
Hello Sir Ed
If you don’t mind, can you please share your email id, as I would love to share my condition and symptoms with you and get myself gain some of your valuable knowledge on the issue