Getting the Right Diagnosis - ME/CFS & FM Educational Video Series

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  • เผยแพร่เมื่อ 20 ธ.ค. 2024

ความคิดเห็น • 30

  • @misschris6801
    @misschris6801 3 ปีที่แล้ว +6

    Thank you! I am a 40 year + 9 month survivor of ME CFS (diagnosed 11 years later) and a 33 year survivor of Fibromyalgia. I still have hope that something more will be able to help us old timers - you just so never know when research will have some very loud “aha” moments! My job is to cheer on doctors like you, to pray for cures, to encourage my fellow patients. Thank you, Dr. Bateman for your dedication to us and for giving us hope. You are an angel 👼

    • @Truerealism747
      @Truerealism747 ปีที่แล้ว

      Muscle pain is a part of CFS? Which I've had CFS 26 fybromyalgia 6 though I've found out I have Asperger's heds add the genes for it

  • @vickieoz
    @vickieoz 6 ปีที่แล้ว +6

    I have both FM and ME/CFS and have been sent to do hydrotherapy for my FM....the pain for 3 days was horrific and I found myself sleeping for 3 hours during the daytime...every now and then I do have a daytime nap but only for an hour,,,this explains it thanks

  • @dawnmichelle4688
    @dawnmichelle4688 4 ปีที่แล้ว +5

    Thank you very much for the detailed information on the differences between Firbro and ME/CFS.

  • @tessellatiaartilery8197
    @tessellatiaartilery8197 2 ปีที่แล้ว +1

    Thank you very much. Your work brings clarity, empowerment and encouragement to many patients and their families.

  • @gtbickfordify
    @gtbickfordify 3 ปีที่แล้ว +4

    ME/CFS at 19:18 minutes.

  • @fibromyalgianational
    @fibromyalgianational 4 ปีที่แล้ว +4

    This is a really great video! Thank your for acknowledging the research taking place in neuroinflammation.

  • @sweetiepienumber1
    @sweetiepienumber1 4 ปีที่แล้ว +3

    I appreciate the important information. Take care.

  • @teesachristie9087
    @teesachristie9087 2 ปีที่แล้ว +1

    Thank you for doing these educational videos. They’re a god send to help me learn about this devastating condition and I hope I can bring some info to my Dr

  • @mhbhorticulture
    @mhbhorticulture 2 ปีที่แล้ว

    An excellent video.

  • @angelfilley1981
    @angelfilley1981 2 ปีที่แล้ว +2

    This is a phenomenal explanation of this illness…now if I could find a physician that can try to understand it to even diagnose me. I’ve done my research over the past years of being sick now it’s time to educate them?!? Thank you.

    • @Melancomical
      @Melancomical 6 หลายเดือนก่อน

      Or even WANT to f*ck*ng diagnose it. That itself would be super d*mn helpful! 🙄

  • @AB-xy4bc
    @AB-xy4bc 6 ปีที่แล้ว +6

    Thank you so much for your work on this!! Saving lives.

    • @micahanakin8664
      @micahanakin8664 3 ปีที่แล้ว

      I know it is quite randomly asking but does anybody know a good site to watch new movies online ?

    • @micahdante9
      @micahdante9 3 ปีที่แล้ว

      @Micah Anakin try Flixzone. You can find it by googling :)

    • @chaseezra5450
      @chaseezra5450 3 ปีที่แล้ว

      @Micah Dante Definitely, I have been watching on Flixzone for since march myself :)

    • @micahanakin8664
      @micahanakin8664 3 ปีที่แล้ว

      @Micah Dante thanks, signed up and it seems to work :) I appreciate it !

    • @micahdante9
      @micahdante9 3 ปีที่แล้ว

      @Micah Anakin glad I could help :D

  • @paulbryner8595
    @paulbryner8595 5 ปีที่แล้ว +3

    This is heavensent

  • @NancyJane7
    @NancyJane7 3 ปีที่แล้ว +1

    Hi yes im asking this to..Im in Middleburg FL who can help me with this condition and all these horrible symptoms..we need doctors here in my state of FLORIDA to really help understand and properly honestly treat all of us here in FLORIDA to many sufferers here

  • @youknowcrimedontpay9257
    @youknowcrimedontpay9257 2 ปีที่แล้ว

    I was diagnosed by Dr. Hugh Smythe who pioneered the research of Fibrositis / Fibromyalgia. This is likely the research group Dr. Bateman is talking about.
    Toronto Western Hospital, Toronto Ontario Canada 🇨🇦

  • @Melancomical
    @Melancomical 6 หลายเดือนก่อน

    Could the maker of this video PLEASE tell me what kind of doctor should I go to to get a formal diagnosis? I'm in despair because I keep getting sent in the wrong directions! Thank you so much!

    • @Melancomical
      @Melancomical 6 หลายเดือนก่อน

      I'm currently collecting disability (SSI), but my lawyers are trying to get me on SSDI instead. Then I won't have to worry about covering my rent for a while and get me more food. To do this, I need a formal diagnosis letter, which will help my lawyers as they appeal my SSDI case. Thanks so much for any advice!

  • @kathypaup
    @kathypaup ปีที่แล้ว

    Tender points no longer necessary for FM diagnosis, using WPI (wide spread pain index).

  • @sapofish
    @sapofish ปีที่แล้ว

    I've been continuously sick for 14 weeks: Flu A - bronchitis - upper respiratory infection - some unknown virus - now symptoms of ME/CFS but it hasn't been 6 months, so now it's post viral syndrome. Would love (need!) to know more about PVS. Does it automatically go into ME/CFS? Is there a way to stop it before it becomes ME/CFS? I have 3 out of the 4 symptoms of ME/CFS. I used to have an active life, now I'm couch bound and pretty much unable to do anything for myself.

    • @Melancomical
      @Melancomical 6 หลายเดือนก่อน

      ❤ So sorry to hear that. Keep going; stay strong ❤

  • @simasp7189
    @simasp7189 6 ปีที่แล้ว +4

    ME/CFS HUA:2-8h ? Should be 0-8h. Don't sugar coat it.

  • @ryanneilcarr
    @ryanneilcarr 3 ปีที่แล้ว

    Recognising misdiagnosed CFS lool Oxymoron