@@lush462 yes, fluconazol the first month, Bactrim the first three months (delayed start after 2ish weeks though), and acyclovir for a full year :) still no infections.
Thanks, Laura - she *is* brilliant! I strongly recommend everyone gets themselves a nurse wife. Infuriating, stubborn, but brilliant. If you don't have one on hand, it's worth asking a nurse on the ward to take the job!
There are - I was sent home with an enormous bag of anti virals, antibiotics and anti fungals.... They just didn't work! After this readmission, when I got home, I was basically ill non-stop for about 4 months. Then things settled.
Hello , can I leave you my email/facebook ? I will like to ask some question about the therapy if you have some minutes ?Thank you so much and God bless you .
Hi Mihai. Please do, go ahead. Happy to answer questions if I can - but it's worth stressing, I can only go on my own experience. I'm no expert, and protocols differ between centres!
I feel so lucky in my recovery. I’m 5 months post (transplanted mid-pandemic), and I’ve had no infections yet, aside from a minor cold at the moment
That's amazing! I'm really pleased for you. I was ill about 200 times in the 4 months after getting out - but thankfully not much at all since.
Nice! Did you got poet HSCT prophylactic medications as antibitoics and antivirals?
@@lush462 yes, fluconazol the first month, Bactrim the first three months (delayed start after 2ish weeks though), and acyclovir for a full year :) still no infections.
If I ever get to have my own HSCT, I'm going to be so sad that I don't have a nurse wife to take care of me. She's brilliant ❤
Thanks, Laura - she *is* brilliant! I strongly recommend everyone gets themselves a nurse wife. Infuriating, stubborn, but brilliant.
If you don't have one on hand, it's worth asking a nurse on the ward to take the job!
There is no profylactic treatments post-HSCT as longterm antibiotics, antivirals etc?
There are - I was sent home with an enormous bag of anti virals, antibiotics and anti fungals.... They just didn't work!
After this readmission, when I got home, I was basically ill non-stop for about 4 months. Then things settled.
@@HSCTforMS ow ok. Hope you are good now!
Hello , can I leave you my email/facebook ? I will like to ask some question about the therapy if you have some minutes ?Thank you so much and God bless you .
Hi Mihai. Please do, go ahead. Happy to answer questions if I can - but it's worth stressing, I can only go on my own experience. I'm no expert, and protocols differ between centres!
@@HSCTforMS thank you for your kindness . Email will be m1ha1_r92@yahoo.com
And facebook Roșu Mihai .