I’m 31 and I’ve had AS since I was 21. My sacroiliac joints are completely fused already and I’ve got bone spurs up and down my spine and neck.. I stay as physically active as possible. It comes easy for me for the most part because I’m that kinda person who will go insane if I’m not doing something physical. I rock climb and workout a few days a week. Plus I do construction for a living. I’ve found being physically active is extremely important to battle AS. That stretch at the beginning of the video were they have you inhale and exhale with your hands behind you head is awesome and helps with my tight chest.. if you’ve got AS weather it’s new or old..pleeeeeeeease stay positive eat healthy and exercise and anything else to battle your AS.. the biggest middle finger you can give to AS is live a happy and physically active life style! Fuck AS!!
Hey man, 31y.o here, had it since puberty. Can you quickly give me a run down of how/when the fusions happened for you and what it felt like? When did you know for sure they had fused? My overall condition has deteriorated rapidly in the last 3 months and im now using walking aids over half the time. Everything hurts, all the time. Im really worried that im going to fuse bones because I tend to stay still more than I should to avoid pain. I only realised last week that ive been breathing smaller breaths for weeks now... maybe longer... and its because I couldn't fully inhale due to the pain and stiffness in my chest. Now that im aware I've been trying to stretch it out but yeah, fears of my bones fusing take up most of my waking thoughts, lately, and im wondering if there's ways I can know the warning signs to at least give me a chance of preventing it Im too young to turn into a popsicle stick... ☹☹☹
@@swine13 sorry to hear that. I’m not sure exactly when the fusion happened but maybe a year ago I noticed one day I had half the mobility in my right hip and then almost a year ago I saw a rheumatologist who did some xrays and said dude your hips are fucked and then proceeded to show me all the the bone spurs up and down my spine. I was on humera for a year got off it and it took 7 months for the pain to come back but I’m doing ok as long as I’m physical every day which is easy for me I’m naturally just a physical dude with work and exercise. I think the MOST natural way to fight A.S. Is physical movement
@@alexmouton4114 I have been dealing with this pain for almost 3 months now getting this pain and no rheumatologist could diagnose me. I just Google my symptoms and found about this AS. How are you dealing with it?? I am 37 and with young kids any advice will be appreciated
I commented years ago about how I dealt with the condition.. now, co don’t really have to in the same way because diet helped more than a thing else. I cut out gluten and have to keep sugar very low, but they are the main triggers. I’m now 95% better, get to do sports I couldn’t and I sleep much better. Look into it folks! My specialist laughed at me when I told him I was looking into diet. I haven’t seen him for 4+ years
I got diagnosed around 2 years ago when Im 19, used to swim everyday and it really help me painfree until now but gotta find othe alternatives to maintain this pain free and flexibility and hopefully will remain healthy in the future 🙏
Going through my first year of being diagnosed after struggling for 5 years. I have found this video to be the best. At the moment my right shoulder is frozen 😩 sending love an light to everyone battling AS as I know how draining it can become 😪
@Tmslogig I’m in the best shape of my life and with Pilates (not reformer, old school!) and diet I am in great stead, running, boxing and almost pain free!
@@AdrianWhyte which diet are you following, can you please tell me in detail . I am just 19 year old boy and AS fucked my life . I am suffering from AS , ibs and chronic anxiety. Please help me
@@gauravbhatt5541 absolutely - keep in m in that if your bowels are unhappy, your body is certainly telling you that food you are eating is triggering issues in general. It could be different for you than me, but start by having a very simple diet even just for a few days - meat and vegetables only. See how you feel! But my diet: NO gluten, must be zero - it must not be an ingredient in the food I eat. I try to keep sugar low, a piece of gluten free cake for example should be it for a day, but ultimately if I cut right down to say a small piece of chocolate, or zero sweets, I feel better. I also cut right down on dairy. The 3 big baddies are dairy, sugar, and the worst is gluten.
ty I feel alone going trough the stiffness and pain. My family doesn't give me much support; I will do your exercises and i sss you responses knowing I am not alone in my private fight. ty
Your not alone - I know what you mean No one but me in the family has AS and it’s hard to get them to understand but I have found a few groups on Facebook that have kinda helped me as I know they understand me when I talk about my feelings. There are so many people out there with AS ! You surely are not alone :) I am in two groups - Canada a... s.... Society ( there is a American one) and also no sugar /no starch a... s.... - hopefully you find what your looking for to help you
I would have been diagnosed with this several years ago, but I have ADHD and just can't stop moving. I don't sleep for more than a few hours at a time, always stretching everything because it feels tight. Totally slowing the progress of this down, but went through some traumatic psychological stuff, it exploded on me, instantly. Plantar fasciitis while Achilles tendon was flaring. Can't see even when it's not that bright outside, fatigue, depression, joints got tight so fast. My PT guy told me that he thinks this might be going on. He worked my spine and freed up everything! But I got to get this diagnosis so I can do PT regularly and he could keep my spine from fusing. This is so crazy. If I didn't dig through my DNA test and sequence all my raw data, I would not have found out that this is the number one thing I'm susceptible to where we were able to connect the dots. I encourage everyone check your DNA. If you're not sure. It won't always be accurate, but it's going to give you a pretty good idea if you should pursue this diagnosis....
I am on day three of a three-day fast and have ZERO symptoms now. I still stretch and roll my back out on a tennis ball. I can’t believe nobody talks about fasting to aid in resolving the symptoms.
A water fast and light meals is best but can trigger this since it is an autoimmune disease most of it is being healthy and admitting when you’re just not or when you’re not balanced it will attack on its own either way but since about a month ago having a severe attack I’ve hardly been able to eat and my back pain has actually gone away in some places from losing almost 25 lbs not the healthiest but I can control what I can with it. I wonder if you’ve tried cutting out starches? Been reading that it helps some
@@pfang7229 I’ve since gone vegetarian, she’d about 10lb of fat, upping my water intake, using a yoga ball and going to physical therapy twice a month. So far, it’s manageable.
@@TheStellarmanCo. I’m so sorry that I am just now seeing this. I did a water fast for three days. What my days looked like: my last meal was early (5pm) on a Tuesday. Woke up slightly later than normal on Wednesday, drank a cup of unsweetened green tea, sipped water whenever I felt hungry. If the hunger really got to me, I warmed up the water. Repeated this until Friday. Going to sleep early and waking up at a normal time was a major help. It minimizes your time to feel hungry. Friday at 6pm, I ate a light meal (6oz of in seasoned steak) and hit the hay. I haven’t fasted since but am icing my back, stretching on a yoga ball, eating mostly vegetarian, drinking a lot of water, doing a light bench press regimen with free weights (15-30lbs) and getting light physical therapy. I try to get more sleep. I’m also intermediate fasting every day. I don’t eat after 8pm and don’t eat until shortly after 11am. Also, I don’t drink. I don’t know if that factors in for you, but now I am symptom free. The physical therapy is more for my scoliosis that I’ve had since I was a child. The back inflammation didn’t set in until I hit about 30yrs old
@@rosharma7443 To be honest the delays in Diagnosis are a scandal - my doctors kept on sending me away but unfortunately even when I paid for 5 private MRI scans and an X-ray the Radiographers were not trained to spot my variant which did not affect my sacroiliac joints but caused severe inflammation in my Costovertebral joints - calcification and fusion in my Thoractic spine.
You guys are great. In addition to AS I also have crohn's disease and had my colon removed. These exercises give me hope that I can fight the AS. Keep up the great work. I have viewed other exercise sites but in addition to some helpful tips they are always promoting their videos.
Brilliant video- Over time I've worked out intuitively that strengthening exercises is the best soloution, and I've managed to go months without medication after a strict regime of strengthening, stretching and cardio, and also learning when you just have to rest and use heat. Balance is crucial as too much stretching has weakened joints and cause others to compensate. Number one rule in my opinion is stop sitting on the internet and complaining- when things are agonising,take some ibuprofen or when extremely bad, prednislone, cry your way to the poo, swim, sauna spa, repeat!
I went off ibuprofen some years ago due to stomach issues. I was put on gabapentin then which can cause drowsiness but seems to help. Profens long-term affect the stomach.
@@leonardgibney2997 great to come across this. Man, have I been on a journey since then. Cutting out gluten and sugar was the trick for me. No longer a major sufferer at all. Sad it’s not better known that diet seems to be the biggest issue
I am a personal trainer with Ankylosing Spondylitis and the movement, mobility, postural drills are crucial. Whenever I don’t do them I feel my body tightening up and becoming so stiff.
You comment a lot on videos about stiffness but do you ever feel, pain? I wake up with severe pain every single morning until I hop out of bed and start moving
Only when the pain is in hi stage, i have Diclofenac. Exercises are needed. My Doctor says to go swimming. These exercises are a good basic stretch to keep active. Thanks for your support. Best wishes to both of you :)
I got this diagnosis nearly three years ago. I saw the word "spindylosis" on the paperwork from my doctor after an L4/5 Surgery. He didn't elaborate nor has anyone else. Recently I was prompted to investigate because I also have scoliosis and wondered spindy was. Oddly enough I do most of the exercises you demonstrated as I learned a few in P.T. However, the I made motions organically on my own. I did learn two new ones. Thanks, as I feel that the AS id advancing at a faster rate since Im nearly 67 years old. Youre right, these motions do help relax the areas some and get me through the day.
I bought natto on Amazon. One of the comments was from someone with ankylosing spondylitis who said that natto brought him more relief from pain than anything medical that had been done. I have RA and have had the same reaction.
@@TheStellarmanCo. Nattokinase is the enzyme's full name that might help. Another enzyme that helps, which I think is better, is serrapeptase. For best use, take serrapeptase on an emplty stomach with water, and with proleatic enzymes to help with digestion/absorption, especially if you are older than say 50. These enzymes are not cure alls by themselves....do the stretches and keep moving along with taking them!
Hi ! I am 58 year old female having Osteoporosis diagnosed Ankylosing Spondylitis with broken spine now these are healed. My back, neck and head are very tight. I do stretching exercise and walk daily. I found this video is great for me. Please advise me what exercises exactly would improve my joints, so that I can move my head all around, bend towards forward. Will be waiting for your response. Thank you
I have had this for years and have found that agood anti inflammatory diet helps tremendously, gluten free too and also swimming and find a feldenkrais practitioner to help increase flexibility and movement
Thanks so much, I have just been diagnosed but quite tight already and desperately needed these. Can feel how tight i am even attempting them! Appreciated!
My sympathies. Get yourself onto an antinflamatory diet asap. This is an inflammatory condition, the less inflammation in your body the better . I was diagnosed March of last year. It takes a while to figure things out. Online look up whole30. It's an elimination diet for 30 days, then you decide what to add back. I did it in June, most of my pain is gone. You need to eliminate gluten and sugar. They are both highly inflammatory. There is an AS association, a website called creaky joints and the arthritis association. You can get good information at those places. There are millions of us out there but we're hidden. Best of luck
Thank for sharing this video Sir. It is really helpful to the persons suffering from ankylosing spondylitis. I am suffering from last 20 years and now its creating problem while i am walking. Can't walk properly. However some of excercise I was suggested by Physiotherapist in New Delhi, but expanding the chest and exercise with small pillow is new for me. I will do these. Great Job By You. A Big Thank You.
Hi I am Arpita Sengupta if anybody have Ankolysing Spondalitis plz join me at my Facebook its Arpi Abhi Sengupta. plz help me frnds to know about modern treatment I also tell u new information about AS
Manish Kumar Sir I m suffering from 15 years even used steroids but to no effect from past two months I am doing yoga and it's really helpful only important thing is to find a good teacher best of luck
I have had AS for years and it is progressing to all day stiffness and pain. I was doing the hip stretchs and exercise. I will add the others in this video since I have noticed shoulder and ribcage issues. Thank you!
First Thank You! I found this before my car accident in February of '17. This kept me in shape and running. Broke all my ribs on left side, punctured lung...After three weeks in hospital Dr. found I'd broken my neck, fused because of A.S, that fusion broke. Two things, a bone pillow for sleeping? Physical therapy even if I know the exercises?
I'm semihousebound due to AS. I need to watch where l sit as the wrong chair can cause problems. Posture too is important. It's better not to slouch in a chair but keep the back straight. With good management exercise and proper medication the condition can be manageable. I'm a spinabifida sufferer having had a fusion operation in my youth. I've had back trouble all my life. Pain levels have been often off the scale. All l say to sufferers is manage your condition and life will be OK. AS will normally burn itself out after a time and pain levels will reduce. Be hopeful... and keep busy!
I go to a physical fitness center, such as the YMCA, that has many exercise /weight bearing eqpt. Range of motion, muscle strengthening and chest expansion can be achieved. Many YMCAs have a sauna and whirlpool that help you to relax and enjoy the experiences. It's one of the best decisions I have ever made. Several medical insurance companies and some companies offer free memberships.
glad to have found this - the exercises make me feel GREAT ! - and I have been doing some of them already anyway - they are taught for warm-up in martial arts classes. I also found that a BIG HELP is an electric sports massager - a "thumper" type - I even take it on holiday with me because I cant be without it - for easing pain in joints & muscles all over - a big help once or twice a day - there are many kinds on the net. Hope it helps !
I did some of those instinctually, especially the last one when I would have pain in the muscles in my upper back as I was fusing. I'm mostly fused now in the upper part of my back and neck and in my si joints. I wish you'd show some for those who are more advanced. It's hard to be diagnosed until much damage is done, especially if you're a woman. I noticed in your video all your reference were as if this was a man's disease too. You should see the women in online support groups. There are hundreds and hundreds of us. Many, like me, take up to 3 decades to get a proper diagnosis.
Nicholas. Am in the military I have been diagnosed with AS over 15 years now I am 45years old, i most say thank you for the exercises in the video especially the one at the door wa it really loosen up my back, I have one of the therapy ball of which I would lay on my back and on roll it and it normally loosens my back also, could you please do a video on how we can use the ball to strengthen our back I would also appreciate it if someone could recommend a diet that I could go on to help reduce the amount of inflammation buildup from this disease.
Thank you for these effective exercise tips. I am an AS patient and at a mere late 30’s I have lost 98% of my neck mobility - I also suffer from Osteoporosis which is at the point of fracture- I don’t know if there are special tipa for regaining neck mobility!
I was diagnosed last year and was on humira for awhile but I kept getting skin infections. So now it’s just sulphasalazine and pain management. I also have hypermobility syndrome which makes it hard to gauge how far to stretch. My lower back is so tight and it feels like my hip joints are about to pop out of socket (which happened to me a ton during my adolescence) my tendons are really giving me problems in my knees, shoulders and elbows and I just need to find a way to loosen up my lower back, and strengthen my joints because working out is getting quite scary. Going through too much KT tape and still pulling things. The issue is, I don’t know how far to go and I don’t realize I’ve pushed myself too far in stretching until afterwards. I just made an appointment with a Physical therapist but now my lower back is already mad at me. Thank you for posting this though… I had no idea about the lungs. I could feel how tight things were
I was 29 when the pain started and then I found out that I had Spondylitis, about 2 years I had pain, after it was a little better, now I am 41 and the pain appeared, I hope to find a treatment if not for healing at least to stop the disease ..I wish you health
Along with exercising and stretching. Would you guys recommend cold therapy? The past week I've been doing cold showers, I was also thinking of doing ice baths. If it's inflammation, why not try something that can battle the inflammation
Really helpful thanks. I dont stretch at all and i know I should so hoping to turn a page and start a new daily regime od stretching. When I pull my knees into my chest my hips open up. i have problems with my rotators aparantley. is there anything i could do to help? perhaps u something like a band to stop them opening out.
It's easy to say, especially the pillow, it's hard to sleep at night, and if I can finally sleep because I folded my pillow, not only am I going to, I HAVE to.
Excercizes are indeed important. However my neck, wrists and sacroilliacs locked up during a week in the hospital for open heart surgery for Wolfe Parkinson White at age 36 and its been miserable for 32 years.
hi guys thank you for this informative video. i am suffering with AS from last 9 year, the most effected part is my chest i even do not have 1 cm expension and another problem is tieredness can u please advise me some thing to get rid of tieredness. thanks .
Hello, thanks for sharing the video. Please can you suggest as what tests can diagnose AS ? I have had a bone scan done which suggests bilateral sacroilitis. Thanku once again.
+priya nimani nop...i had this from childhood but been able to make things better since last three years n doing well thru bunch of things. post me ur email adrress n i Will post u what I did in case needed.
Thank you for your videos. Do u recommend these exercises for someone with severe scoliosis and kyphosis. If not please can you do a video focusing on that.
With ankylosing spondylitis typically range of motion in the transverse plane is lost progressively. At what stage do we begin trying to restore dynamic range of motion back to the thoracic and lumbar spine in the transverse plane? Do we continue to strengthen the erectors of the back(when the erectors may make the low back tighter especially in lordosis) , and not focus on other issues like anterior pelvic tilt, pronation of the lower extremities, and piriformis syndrome that will make the issue worse? Or should we strengthen the core, restore the hips back to optimum alignment, stretch the hip flexors, stretch the lower erector spinae through core activation exercises and fix the entire problem? In short. Should we strengthen the erectors and possibly make things tighter, or fix the postural issues contributing to the lordosis in the low back and upper back flexion along with the cervical spine and upper extremities associated with ankylosing spondylitis? Please let me know what you think
I am 57 3 back surgeries and I am shrinking bent over. I can't get out of bed without help. Damn bad mess. What is driving me crazy is how active I was just a few years ago. I was a nurse 34 years.
My pain is unbearable, I feel difficult to breathe in the morning and my back feels stiff! thanks to you both, I feel a little better with yours exercises! Is there any food that I should avoid for ankylosing spondylitis and arthritis?
I've been on a no starch diet(NSD) for 4 years and i went from being basically unable to walk to being able to run without stretching. check out the forums on Kickas dot org
Would you consider doing a video for those of us who are already fused and kyphotic to help with the constant pain and spasms in the upper and mid traps? I've been told it because they're trying to hold my head up and/or correct my spinal alignment, but no help other than muscle relaxers that don't work. Thanks in advance.
thanks sir,but sir i am suffering from AS since 30 year and my spine fused upto cervical..which exercise i have to use ..i have no pain in back but severe pain in neck.please suggest me.and i m under treatment of rheumatologist............
Sir, Thank you so much...very easy exercise that i can do only..i am suffering from ankylosing for almost 5 years my neck is frozen towards left right and lower i only can lift lil bit upper wards a lil bit only so can you gyz show me some of neck exercise and others as well please thank you frm bottom of my dying heart.
Thanks guys! I currently don't go to PT, and my rheumatologist has never recommended it, but I'm interested. Are there PTs who specialize in certain things? I don't want to go to someone who has little knowledge of AS, as I've found out most people (even primary care physicians) do not.
Just started watching your videos on AS after being recently diagnosed. I'm 69 and have already been through NH Lymphoma (stage 4) and have had a prostatectomy about 2 years ago. Now this. Got the AS diagnosis after seeing the doctor for some rather extreme lower back pain. Almost like an electric shock. My spine is pretty well fused on the upper part and I have bone spurs everywhere including knees, heels, and fingers. I just started PT and the exercises you demonstrated are pretty much exactly what I am doing now. Biggest problem with doing these exercises is not the actual exercise itself, but the repetition is downright boring. If I have to do this for the rest of my life, and I know I will, I'm going to go crazy. At this rate I feel I am going to eventually give up on the exercises and end up in a rolled up ball. Any ideas on what can be done to help spice things up a bit?
hey sir I m HLAB27 positive my question is dose ankylosing spondylitis is removable or not and what should I have to eat. please give me some tips I'm not feel good about this disease. I m waiting for your reply. thank you
Hello Sir, I thank you both. I have ankylosis spondylitis. I have trouble in sitting on floor. how can I sit? if you could suggest some gradual exercises.
Thanks guys this is great! I am fairly advanced, full fusion to neck and rib cage. Can't get the neck back straight anymore, gave up my inversion table because of this. Are these exercises still good?
Thanks for this great video.I just wanna know that can I do these exercises on my regular mattress or require any special one like you guys using in this video Thanks
nice video.i have A.S since 10years..have 3rd grade damage in my sacroiliac joints..any specific exercise for them?..can such damaged be reveresed with physiotherapy??
Fantastic video. Your tips have been extremely useful to my HLAB-27 positive wife. She complains a lot of chest pain and neck pain. Are there any kind of exercises to relief pain from those areas? Is it normal for Ankylosing Spondylitis patients to feel like their skin is burning (sometimes a rash pops up) after walking for no more than 10 minutes? Once again thank you very much.
Hi, I'm from Romania, yes, and I'm terrible with spondylitis, yes, you can feel that your whole body is burning, including my face, I can't even breathe because my chest, neck, shoulder, etc.
hi, I have a question AS and aortic rupture. first I do have AS ,was diagnosed as a child but never had any symptoms other than the eye problems until last year. last September my aorta dissected then ruptured. I am told it is because the AS has inflamed my aorta. since then I've had a onset of every symptom of this disease. I have been restricted in so many physical things. not lifting over 5lbs, no sort of impact activities, and even certain stretching. I am in so much pain at night that I can't sleep and I'm scared to death to do any sort of exercise or stretching . what is safe to do? none of it, all of it, some of it? also it hurts to expand my chest. is that because of the AS , or is that from the surgery and I shouldn't worry about it?
Thank you for the video and advice. I am 65 and have had AS for many years with fused ribcage and most of spine. Still got some neck movement and hips and shoulders seem ok for now. I can't sit cross-legged on the floor. I have no joint pain (mainly because there are no joints!). Biggest problem is pain in most of the muscles in my torso front and back. I have a feeling that because there is very little flexing of my frame, the muscles are wasting as I get older and the exercises designed to strengthen them will not work because I can't get enough extension or force into them. Shall I just accept it and shut up, or will doing some of these exercises help and are there any more?
With the fusing as well we have to understand baby steps like 1-3 of these motions is enough I learned the hard way thinking I could do yoga the same And possibly onset some stenosis in the neck pray for your healing 🙏🏽
My lower back pain (around L5) strangely comes and goes every other month ... It is especially bad when getting up from bed or a seated position but improves within a day using aspirin and/or vitamin D. Over the years I've had the occasional (sometimes debilitating) pains in the knees, wrists and costochondral joints, leading me to suspect a rheumatoid condition, but rheuma factor was always negative. Does that sound anything like AS? Should I be asking my GP a referral to a rheumatologist?
Thank you, that's very helpful, and thanks for being so easygoing, it makes us feel less anxious. We're not taken seriously when were are seronegative AS patients, and that's very frustrating. The morning stiffness alone is unbearable. Is it possible that sudden pain in the knee is also a side effect of AS ?
Hi im 19. My doc said i have AS my left toes are permenantly curled stiff except my big toe it still articulates. I try to bend them back to normal but I cant. I want to walk normal again what should I do??
Hellw sir. I'm form India. In 2021 I found that I have AS. Initially the pain was on my lower back. Now I don't have any pain on my lower back. But my back of the neck is so painful. I feel a great stiffness there. What should I do sir? I have been under medication since I found that I have AS. I'm very nervous and worried.
Here is a link that has all our related videos to stiff necks and how to fix. Hopefully you can find something in one or more of these videos to help: www.youtube.com/@BobandBrad/search?query=stiff%20neck
I’m 31 and I’ve had AS since I was 21. My sacroiliac joints are completely fused already and I’ve got bone spurs up and down my spine and neck.. I stay as physically active as possible. It comes easy for me for the most part because I’m that kinda person who will go insane if I’m not doing something physical. I rock climb and workout a few days a week. Plus I do construction for a living. I’ve found being physically active is extremely important to battle AS. That stretch at the beginning of the video were they have you inhale and exhale with your hands behind you head is awesome and helps with my tight chest.. if you’ve got AS weather it’s new or old..pleeeeeeeease stay positive eat healthy and exercise and anything else to battle your AS.. the biggest middle finger you can give to AS is live a happy and physically active life style! Fuck AS!!
chat.whatsapp.com/K6PspQn498T6OvnxUfPBxM
Those Who are suffering from AS Pls Join group. Creating a Platform to share about AS.
Hey man, 31y.o here, had it since puberty.
Can you quickly give me a run down of how/when the fusions happened for you and what it felt like? When did you know for sure they had fused?
My overall condition has deteriorated rapidly in the last 3 months and im now using walking aids over half the time. Everything hurts, all the time. Im really worried that im going to fuse bones because I tend to stay still more than I should to avoid pain. I only realised last week that ive been breathing smaller breaths for weeks now... maybe longer... and its because I couldn't fully inhale due to the pain and stiffness in my chest. Now that im aware I've been trying to stretch it out but yeah, fears of my bones fusing take up most of my waking thoughts, lately, and im wondering if there's ways I can know the warning signs to at least give me a chance of preventing it
Im too young to turn into a popsicle stick... ☹☹☹
How are you nowww
@@swine13 sorry to hear that. I’m not sure exactly when the fusion happened but maybe a year ago I noticed one day I had half the mobility in my right hip and then almost a year ago I saw a rheumatologist who did some xrays and said dude your hips are fucked and then proceeded to show me all the the bone spurs up and down my spine. I was on humera for a year got off it and it took 7 months for the pain to come back but I’m doing ok as long as I’m physical every day which is easy for me I’m naturally just a physical dude with work and exercise. I think the MOST natural way to fight A.S. Is physical movement
@@alexmouton4114 I have been dealing with this pain for almost 3 months now getting this pain and no rheumatologist could diagnose me. I just Google my symptoms and found about this AS.
How are you dealing with it?? I am 37 and with young kids any advice will be appreciated
I commented years ago about how I dealt with the condition.. now, co don’t really have to in the same way because diet helped more than a thing else. I cut out gluten and have to keep sugar very low, but they are the main triggers. I’m now 95% better, get to do sports I couldn’t and I sleep much better. Look into it folks! My specialist laughed at me when I told him I was looking into diet. I haven’t seen him for 4+ years
I got diagnosed around 2 years ago when Im 19, used to swim everyday and it really help me painfree until now but gotta find othe alternatives to maintain this pain free and flexibility and hopefully will remain healthy in the future 🙏
Going through my first year of being diagnosed after struggling for 5 years. I have found this video to be the best. At the moment my right shoulder is frozen 😩 sending love an light to everyone battling AS as I know how draining it can become 😪
Hope you're feeling better from the pain
Try diets. Look up “don’t eat that” - saved my life
@Tmslogig I’m in the best shape of my life and with Pilates (not reformer, old school!) and diet I am in great stead, running, boxing and almost pain free!
@@AdrianWhyte which diet are you following, can you please tell me in detail . I am just 19 year old boy and AS fucked my life . I am suffering from AS , ibs and chronic anxiety. Please help me
@@gauravbhatt5541 absolutely - keep in m in that if your bowels are unhappy, your body is certainly telling you that food you are eating is triggering issues in general. It could be different for you than me, but start by having a very simple diet even just for a few days - meat and vegetables only. See how you feel!
But my diet: NO gluten, must be zero - it must not be an ingredient in the food I eat. I try to keep sugar low, a piece of gluten free cake for example should be it for a day, but ultimately if I cut right down to say a small piece of chocolate, or zero sweets, I feel better. I also cut right down on dairy. The 3 big baddies are dairy, sugar, and the worst is gluten.
ty I feel alone going trough the stiffness and pain. My family doesn't give me much support; I will do your exercises and i sss you responses knowing I am not alone in my private fight. ty
Good luck and good health
hmmm do it
Your not alone - I know what you mean No one but me in the family has AS and it’s hard to get them to understand but I have found a few groups on Facebook that have kinda helped me as I know they understand me when I talk about my feelings. There are so many people out there with AS ! You surely are not alone :) I am in two groups - Canada a... s.... Society ( there is a American one) and also no sugar /no starch a... s.... - hopefully you find what your looking for to help you
People don't understand this condition. Calling it arthritis is much an understatement. Stay well!
Support is HUGELY important. My family and wife have supported and pushed me for years with my AS. i have had it since i was 8, i am 49 now.
I would have been diagnosed with this several years ago, but I have ADHD and just can't stop moving. I don't sleep for more than a few hours at a time, always stretching everything because it feels tight. Totally slowing the progress of this down, but went through some traumatic psychological stuff, it exploded on me, instantly. Plantar fasciitis while Achilles tendon was flaring. Can't see even when it's not that bright outside, fatigue, depression, joints got tight so fast. My PT guy told me that he thinks this might be going on. He worked my spine and freed up everything! But I got to get this diagnosis so I can do PT regularly and he could keep my spine from fusing. This is so crazy. If I didn't dig through my DNA test and sequence all my raw data, I would not have found out that this is the number one thing I'm susceptible to where we were able to connect the dots. I encourage everyone check your DNA. If you're not sure. It won't always be accurate, but it's going to give you a pretty good idea if you should pursue this diagnosis....
Thank you gentlemen, I've had AS for 20 years and learned some great techniques I never thought about. Much appreciated.
I am on day three of a three-day fast and have ZERO symptoms now. I still stretch and roll my back out on a tennis ball. I can’t believe nobody talks about fasting to aid in resolving the symptoms.
What kind of fast are you doing? Are you eat food or just water fast? I suffering from symptoms, any help would be appreciated
A water fast and light meals is best but can trigger this since it is an autoimmune disease most of it is being healthy and admitting when you’re just not or when you’re not balanced it will attack on its own either way but since about a month ago having a severe attack I’ve hardly been able to eat and my back pain has actually gone away in some places from losing almost 25 lbs not the healthiest but I can control what I can with it. I wonder if you’ve tried cutting out starches? Been reading that it helps some
@@pfang7229 I’ve since gone vegetarian, she’d about 10lb of fat, upping my water intake, using a yoga ball and going to physical therapy twice a month. So far, it’s manageable.
@@TheStellarmanCo. I’m so sorry that I am just now seeing this. I did a water fast for three days. What my days looked like: my last meal was early (5pm) on a Tuesday. Woke up slightly later than normal on Wednesday, drank a cup of unsweetened green tea, sipped water whenever I felt hungry. If the hunger really got to me, I warmed up the water. Repeated this until Friday. Going to sleep early and waking up at a normal time was a major help. It minimizes your time to feel hungry. Friday at 6pm, I ate a light meal (6oz of in seasoned steak) and hit the hay. I haven’t fasted since but am icing my back, stretching on a yoga ball, eating mostly vegetarian, drinking a lot of water, doing a light bench press regimen with free weights (15-30lbs) and getting light physical therapy. I try to get more sleep. I’m also intermediate fasting every day. I don’t eat after 8pm and don’t eat until shortly after 11am. Also, I don’t drink. I don’t know if that factors in for you, but now I am symptom free. The physical therapy is more for my scoliosis that I’ve had since I was a child. The back inflammation didn’t set in until I hit about 30yrs old
@@steve4729 can I do these things I am just 19 and diagnosed with as . I want solutions please tell me what should I do
Thank you. I’m a PT in home health and your channels provides good updates and refreshers
By the time you get your diagnosis, your exercise is get on and off your bed
I agree - my diagnosis took 40 years despite going to doctors in this period.
So true. 11 years but I think I'm almost at diagnosis
Hurt when i was 16. 38 now and finally diagnosed
Yes. Yes this…
@@rosharma7443 To be honest the delays in Diagnosis are a scandal - my doctors kept on sending me away but unfortunately even when I paid for 5 private MRI scans and an X-ray the Radiographers were not trained to spot my variant which did not affect my sacroiliac joints but caused severe inflammation in my Costovertebral joints - calcification and fusion in my Thoractic spine.
You guys are great. In addition to AS I also have crohn's disease and had my colon removed. These exercises give me hope that I can fight the AS. Keep up the great work. I have viewed other exercise sites but in addition to some helpful tips they are always promoting their videos.
+physicaltherapyvideo No, I grew up in Brockton, MA and have lived in Hingham, MA, Syracuse, NY, Houston, Texas and now live in Lakeville, MA.
How are you doing, friend? I'm also an AS patient, from China
Brilliant video- Over time I've worked out intuitively that strengthening exercises is the best soloution, and I've managed to go months without medication after a strict regime of strengthening, stretching and cardio, and also learning when you just have to rest and use heat. Balance is crucial as too much stretching has weakened joints and cause others to compensate. Number one rule in my opinion is stop sitting on the internet and complaining- when things are agonising,take some ibuprofen or when extremely bad, prednislone, cry your way to the poo, swim, sauna spa, repeat!
I went off ibuprofen some years ago due to stomach issues. I was put on gabapentin then which can cause drowsiness but seems to help. Profens long-term affect the stomach.
@@leonardgibney2997 great to come across this. Man, have I been on a journey since then. Cutting out gluten and sugar was the trick for me. No longer a major sufferer at all. Sad it’s not better known that diet seems to be the biggest issue
Sure. I agree with you. Thanks for the great work you both are doing.
I am a personal trainer with Ankylosing Spondylitis and the movement, mobility, postural drills are crucial. Whenever I don’t do them I feel my body tightening up and becoming so stiff.
You comment a lot on videos about stiffness but do you ever feel, pain? I wake up with severe pain every single morning until I hop out of bed and start moving
@@5point0h67 there is for sure pain, especially when I have sciatica or hip pain…
Only when the pain is in hi stage, i have Diclofenac. Exercises are needed. My Doctor says to go swimming. These exercises are a good basic stretch to keep active. Thanks for your support. Best wishes to both of you :)
Would the diclofenac work because I've been taking it for two years and I'm not vro ambinatatire even worse
I got this diagnosis nearly three years ago. I saw the word "spindylosis" on the paperwork from my doctor after an L4/5
Surgery. He didn't elaborate nor has anyone else. Recently I was prompted to investigate because I also have scoliosis and wondered spindy was.
Oddly enough I do most of the exercises you demonstrated as I learned a few in P.T. However, the I made motions organically on my own. I did learn two new ones. Thanks, as I feel that the AS id advancing at a faster rate since Im nearly 67 years old. Youre right, these motions do help relax the areas some and get me through the day.
Thank you very much Sir..u guys are doing great work..
May God bless you both. Thank you.
~AS patient
I bought natto on Amazon. One of the comments was from someone with ankylosing spondylitis who said that natto brought him more relief from pain than anything medical that had been done. I have RA and have had the same reaction.
What's the exact full name of the natto supplement you are referring to?
@@TheStellarmanCo. Nattokinase is the enzyme's full name that might help. Another enzyme that helps, which I think is better, is serrapeptase. For best use, take serrapeptase on an emplty stomach with water, and with proleatic enzymes to help with digestion/absorption, especially if you are older than say 50. These enzymes are not cure alls by themselves....do the stretches and keep moving along with taking them!
thanks for showing such a simple and useful exercise for spine.... I will definitely try
Thank you so much. I will share this to my love one who is suffering it now. Thanks!!!
Hi ! I am 58 year old female having Osteoporosis diagnosed Ankylosing Spondylitis with broken spine now these are healed. My back, neck and head are very tight. I do stretching exercise and walk daily. I found this video is great for me. Please advise me what exercises exactly would improve my joints, so that I can move my head all around, bend towards forward.
Will be waiting for your response.
Thank you
I have had this for years and have found that agood anti inflammatory diet helps tremendously, gluten free too and also swimming and find a feldenkrais practitioner to help increase flexibility and movement
It doesn't only affect spine and ribs. It affects hands, feet, elbows, knees ,hips and more.
thanks a lot sir , your videos really help me , i am really greatful
Thanks so much, I have just been diagnosed but quite tight already and desperately needed these. Can feel how tight i am even attempting them!
Appreciated!
I just got diagnosed did the excercises help at all?
My sympathies. Get yourself onto an antinflamatory diet asap. This is an inflammatory condition, the less inflammation in your body the better . I was diagnosed March of last year. It takes a while to figure things out. Online look up whole30. It's an elimination diet for 30 days, then you decide what to add back. I did it in June, most of my pain is gone. You need to eliminate gluten and sugar. They are both highly inflammatory. There is an AS association, a website called creaky joints and the arthritis association. You can get good information at those places. There are millions of us out there but we're hidden. Best of luck
Hi there is a herbal cure for ankylosing spondylitis I was recently cured using dr nafuar herbal medicine and now I’m better than okay
Thank for sharing this video Sir. It is really helpful to the persons suffering from ankylosing spondylitis. I am suffering from last 20 years and now its creating problem while i am walking. Can't walk properly. However some of excercise I was suggested by Physiotherapist in New Delhi, but expanding the chest and exercise with small pillow is new for me. I will do these.
Great Job By You. A Big Thank You.
Hi I am Arpita Sengupta if anybody have Ankolysing Spondalitis plz join me at my Facebook its Arpi Abhi Sengupta. plz help me frnds to know about modern treatment I also tell u new information about AS
Manish Kumar Sir I m suffering from 15 years even used steroids but to no effect from past two months I am doing yoga and it's really helpful only important thing is to find a good teacher best of luck
@@arpitasengupta7419 send me request in FB Mahendra Reddy Gali
@@vik832 if you are still active can you reply to me, I need to ask you about those yoga excercises
What a great video. I have had AS for 5 years and didn’t know until last year about AS. I can’t wait to see if these help me. Thanks!
Did it ?
I have had AS for years and it is progressing to all day stiffness and pain. I was doing the hip stretchs and exercise. I will add the others in this video since I have noticed shoulder and ribcage issues. Thank you!
how are you breathing?
First Thank You! I found this before my car accident in February of '17. This kept me in shape and running. Broke all my ribs on left side, punctured lung...After three weeks in hospital Dr. found I'd broken my neck, fused because of A.S, that fusion broke. Two things, a bone pillow for sleeping? Physical therapy even if I know the exercises?
thanks guys, you have no idea how much you save me with this video... i was just diagnosed with AS... so I gotta keep fresh!
Love you guys! You'll are the best. I like you'll sense of humor. It makes me lighten up about everything. Keep up the good work!
I'm semihousebound due to AS. I need to watch where l sit as the wrong chair can cause problems. Posture too is important. It's better not to slouch in a chair but keep the back straight. With good management exercise and proper medication the condition can be manageable. I'm a spinabifida sufferer having had a fusion operation in my youth. I've had back trouble all my life. Pain levels have been often off the scale. All l say to sufferers is manage your condition and life will be OK. AS will normally burn itself out after a time and pain levels will reduce. Be hopeful... and keep busy!
Many, many thanks. I have AS with all its complications and have been seeking further help. I will try your exercises.
I go to a physical fitness center, such as the YMCA, that has many exercise /weight bearing eqpt. Range of motion, muscle strengthening and chest expansion can be achieved. Many YMCAs have a sauna and whirlpool that help you to relax and enjoy the experiences. It's one of the best decisions I have ever made. Several medical insurance companies and some companies offer free memberships.
Good for you!
Amazing advise. Thank you❤
Thank you sir God bless you. A. Somasundaram. Tamil Nadu 🇮🇳
Thank you for sharing this exercise. hope this helps me getting rid of pain..
thank you guys i have had A.S. for 4 years now and it has expaned to my chest already... thank you for the advice
I absolutely love this video
Thanks guys.
Thank you so very much.
glad to have found this - the exercises make me feel GREAT ! - and I have been doing some of them already anyway - they are taught for warm-up in martial arts classes. I also found that a BIG HELP is an electric sports massager - a "thumper" type - I even take it on holiday with me because I cant be without it - for easing pain in joints & muscles all over - a big help once or twice a day - there are many kinds on the net. Hope it helps !
I did some of those instinctually, especially the last one when I would have pain in the muscles in my upper back as I was fusing. I'm mostly fused now in the upper part of my back and neck and in my si joints. I wish you'd show some for those who are more advanced. It's hard to be diagnosed until much damage is done, especially if you're a woman. I noticed in your video all your reference were as if this was a man's disease too. You should see the women in online support groups. There are hundreds and hundreds of us. Many, like me, take up to 3 decades to get a proper diagnosis.
I meant the one in the door. The last of the three in the first group. Confusing, I know :)
Yea same hear, the door one. I did naturally. I was also hanging from branches, to relieve pressure. I now have a pull up bar. Helps me alot.
Took me 4years to get diagnosed after being fobbed off. Turned out my dad and Aunt had it as well, kinda wish they had let me know before!
Thankyou so much for this!!!
Thanks. here in india where the symptoms are rare, they dont have so much knowledge & experience. so thank you guys fr information & excercise
Iam from India having same issue plz ping me in what’s up 8855934442
@@myworldvlogs3065 Hello I too have this disease bro..how are you dealing with it and where are you from
Nicholas. Am in the military I have been diagnosed with AS over 15 years now I am 45years old, i most say thank you for the exercises in the video especially the one at the door wa it really loosen up my back, I have one of the therapy ball of which I would lay on my back and on roll it and it normally loosens my back also, could you please do a video on how we can use the ball to strengthen our back I would also appreciate it if someone could recommend a diet that I could go on to help reduce the amount of inflammation buildup from this disease.
Thank you for these effective exercise tips. I am an AS patient and at a mere late 30’s I have lost 98% of my neck mobility - I also suffer from Osteoporosis which is at the point of fracture- I don’t know if there are special tipa for regaining neck mobility!
how are you breathing?
@@dc.pentrumesteri4893 I am breathing fine except that my chest compresses and I think my rips are pressing in more & more by each year
thank you so much teachers
I was diagnosed last year and was on humira for awhile but I kept getting skin infections. So now it’s just sulphasalazine and pain management. I also have hypermobility syndrome which makes it hard to gauge how far to stretch. My lower back is so tight and it feels like my hip joints are about to pop out of socket (which happened to me a ton during my adolescence) my tendons are really giving me problems in my knees, shoulders and elbows and I just need to find a way to loosen up my lower back, and strengthen my joints because working out is getting quite scary. Going through too much KT tape and still pulling things. The issue is, I don’t know how far to go and I don’t realize I’ve pushed myself too far in stretching until afterwards. I just made an appointment with a Physical therapist but now my lower back is already mad at me. Thank you for posting this though… I had no idea about the lungs. I could feel how tight things were
Really appreciate this video!!
I was 29 when the pain started and then I found out that I had Spondylitis, about 2 years I had pain, after it was a little better, now I am 41 and the pain appeared, I hope to find a treatment if not for healing at least to stop the disease ..I wish you health
These are great. Thank you. Do you have an opinion on foam rolling?
Thank you 🙏
The information you are sharing here are very helpful. May I suggest to make your audio more audible. Thank you
Along with exercising and stretching. Would you guys recommend cold therapy? The past week I've been doing cold showers, I was also thinking of doing ice baths. If it's inflammation, why not try something that can battle the inflammation
Hello brother how did the cold therapy help?
You guys are great! Thank you!
Very nice video thanks for this nice video
this is so much helpful. thank you
Really helpful thanks. I dont stretch at all and i know I should so hoping to turn a page and start a new daily regime od stretching. When I pull my knees into my chest my hips open up. i have problems with my rotators aparantley. is there anything i could do to help? perhaps u something like a band to stop them opening out.
Thanks guys, really helpful!
Great job dr
It's easy to say, especially the pillow, it's hard to sleep at night, and if I can finally sleep because I folded my pillow, not only am I going to, I HAVE to.
What about the hip..any sacroiliac joint strength exercises
Did you find anything?
th-cam.com/video/Pz0WR3EKO1k/w-d-xo.html
The last exercise in this video, alternatively there are loads on the following video th-cam.com/video/pbn5kXq75Xc/w-d-xo.html
thank you....it is useful for my examinations
Does the use of an inversion table help treat Ankylosis Spondylitis ?
Excercizes are indeed important. However my neck, wrists and sacroilliacs locked up during a week in the hospital for open heart surgery for Wolfe Parkinson White at age 36 and its been miserable for 32 years.
hi guys thank you for this informative video. i am suffering with AS from last 9 year, the most effected part is my chest i even do not have 1 cm expension and another problem is tieredness can u please advise me some thing to get rid of tieredness. thanks .
Hello, thanks for sharing the video. Please can you suggest as what tests can diagnose AS ? I have had a bone scan done which suggests bilateral sacroilitis. Thanku once again.
MRI, c-reactive protein, hla b27. At least that's what was done to me to completely diagnose AS
hello Mam. HLA B27 gives the right indication
+Shekhar Pandey thanku sir
+priya nimani nop...i had this from childhood but been able to make things better since last three years n doing well thru bunch of things. post me ur email adrress n i Will post u what I did in case needed.
Shekhar Pandey help me also
Thank you for your videos. Do u recommend these exercises for someone with severe scoliosis and kyphosis. If not please can you do a video focusing on that.
Hey hope you’re better
With ankylosing spondylitis typically range of motion in the transverse plane is lost progressively. At what stage do we begin trying to restore dynamic range of motion back to the thoracic and lumbar spine in the transverse plane? Do we continue to strengthen the erectors of the back(when the erectors may make the low back tighter especially in lordosis) , and not focus on other issues like anterior pelvic tilt, pronation of the lower extremities, and piriformis syndrome that will make the issue worse? Or should we strengthen the core, restore the hips back to optimum alignment, stretch the hip flexors, stretch the lower erector spinae through core activation exercises and fix the entire problem?
In short. Should we strengthen the erectors and possibly make things tighter, or fix the postural issues contributing to the lordosis in the low back and upper back flexion along with the cervical spine and upper extremities associated with ankylosing spondylitis?
Please let me know what you think
I am 57 3 back surgeries and I am shrinking bent over. I can't get out of bed without help. Damn bad mess. What is driving me crazy is how active I was just a few years ago. I was a nurse 34 years.
Thank you
My pain is unbearable, I feel difficult to breathe in the morning and my back feels stiff! thanks to you both, I feel a little better with yours exercises! Is there any food that I should avoid for ankylosing spondylitis and arthritis?
Take anti inflammatory foods. It helps to reduce pain like magic. Avoid starch foods. Fried and processed foods. Avoid oily foods. It will work.
I've been on a no starch diet(NSD) for 4 years and i went from being basically unable to walk to being able to run without stretching. check out the forums on Kickas dot org
How are you now :( same is with me i have unbearable back pain
Do lemme know how u got to know about your disease
Would you consider doing a video for those of us who are already fused and kyphotic to help with the constant pain and spasms in the upper and mid traps? I've been told it because they're trying to hold my head up and/or correct my spinal alignment, but no help other than muscle relaxers that don't work. Thanks in advance.
***** thank you!
thanks sir,but sir i am suffering from AS since 30 year and my spine fused upto cervical..which exercise i have to use ..i have no pain in back but severe pain in neck.please suggest me.and i m under treatment of rheumatologist............
How are you now Iam from andhrapradesh
Sir, Thank you so much...very easy exercise that i can do only..i am suffering from ankylosing for almost 5 years my neck is frozen towards left right and lower i only can lift lil bit upper wards a lil bit only so can you gyz show me some of neck exercise and others as well please thank you frm bottom of my dying heart.
I have been dealing with this for 5 years now and lostall ROM in my neck. I can’t turn side to side or look up. Did you ever get relief?
@@cynthiajones911 No, but the pain is relatively lower.
Thanks guys! I currently don't go to PT, and my rheumatologist has never recommended it, but I'm interested. Are there PTs who specialize in certain things? I don't want to go to someone who has little knowledge of AS, as I've found out most people (even primary care physicians) do not.
love42 Productions yes there pt's that specialize in as.
Diet man, look into it. Changing people lives with AS
Just started watching your videos on AS after being recently diagnosed. I'm 69 and have already been through NH Lymphoma (stage 4) and have had a prostatectomy about 2 years ago. Now this. Got the AS diagnosis after seeing the doctor for some rather extreme lower back pain. Almost like an electric shock. My spine is pretty well fused on the upper part and I have bone spurs everywhere including knees, heels, and fingers. I just started PT and the exercises you demonstrated are pretty much exactly what I am doing now. Biggest problem with doing these exercises is not the actual exercise itself, but the repetition is downright boring. If I have to do this for the rest of my life, and I know I will, I'm going to go crazy. At this rate I feel I am going to eventually give up on the exercises and end up in a rolled up ball. Any ideas on what can be done to help spice things up a bit?
That's how I am for 2 years and I have been blinded by blinded ribs, restricted breathing and what I have serious is Bpoc with emphysema
hey sir
I m HLAB27 positive
my question is dose ankylosing spondylitis is removable or not
and what should I have to eat.
please give me some tips I'm not feel good about this disease. I m waiting for your reply. thank you
How you feeling now
thank you!
I have just been diagnosed with Chondrocalcinosis. I am 50 and I love dancing. I have been told I can't.
What can I do to help myself?
Hello Sir, I thank you both. I have ankylosis spondylitis. I have trouble in sitting on floor. how can I sit? if you could suggest some gradual exercises.
Thanks guys this is great! I am fairly advanced, full fusion to neck and rib cage. Can't get the neck back straight anymore, gave up my inversion table because of this. Are these exercises still good?
Hi first thank you for share i have a question, I have AS Too, can i do planks , i always wonder about that , is it bad or good for me doing plank ?
Thanks for this great video.I just wanna know that can I do these exercises on my regular mattress or require any special one like you guys using in this video Thanks
Love your videos
nice video.i have A.S since 10years..have 3rd grade damage in my sacroiliac joints..any specific exercise for them?..can such damaged be reveresed with physiotherapy??
truly nice info
Fantastic video. Your tips have been extremely useful to my HLAB-27 positive wife. She complains a lot of chest pain and neck pain. Are there any kind of exercises to relief pain from those areas? Is it normal for Ankylosing Spondylitis patients to feel like their skin is burning (sometimes a rash pops up) after walking for no more than 10 minutes?
Once again thank you very much.
Hi, I'm from Romania, yes, and I'm terrible with spondylitis, yes, you can feel that your whole body is burning, including my face, I can't even breathe because my chest, neck, shoulder, etc.
hi, I have a question AS and aortic rupture. first I do have AS ,was diagnosed as a child but never had any symptoms other than the eye problems until last year. last September my aorta dissected then ruptured. I am told it is because the AS has inflamed my aorta. since then I've had a onset of every symptom of this disease. I have been restricted in so many physical things. not lifting over 5lbs, no sort of impact activities, and even certain stretching. I am in so much pain at night that I can't sleep and I'm scared to death to do any sort of exercise or stretching . what is safe to do? none of it, all of it, some of it?
also it hurts to expand my chest. is that because of the AS , or is that from the surgery and I shouldn't worry about it?
Alright! Thanks guys...good stuff!
Thank you for the video and advice. I am 65 and have had AS for many years with fused ribcage and most of spine. Still got some neck movement and hips and shoulders seem ok for now. I can't sit cross-legged on the floor. I have no joint pain (mainly because there are no joints!). Biggest problem is pain in most of the muscles in my torso front and back. I have a feeling that because there is very little flexing of my frame, the muscles are wasting as I get older and the exercises designed to strengthen them will not work because I can't get enough extension or force into them. Shall I just accept it and shut up, or will doing some of these exercises help and are there any more?
This is good info. Anything to help Ulnar Nerve Entrapment at the Elbow or Neck?
Excellent point on a small pillow. I've learned it the hard way.
+physicaltherapyvideo Thanks!
Note to all: Check with your doctor before doing these if you have fusing. I hurt myself pretty bad doing these yesterday. I can barely move today.
With the fusing as well we have to understand baby steps like 1-3 of these motions is enough I learned the hard way thinking I could do yoga the same
And possibly onset some stenosis in the neck pray for your healing 🙏🏽
My lower back pain (around L5) strangely comes and goes every other month ... It is especially bad when getting up from bed or a seated position but improves within a day using aspirin and/or vitamin D. Over the years I've had the occasional (sometimes debilitating) pains in the knees, wrists and costochondral joints, leading me to suspect a rheumatoid condition, but rheuma factor was always negative.
Does that sound anything like AS? Should I be asking my GP a referral to a rheumatologist?
Thank you, that's very helpful, and thanks for being so easygoing, it makes us feel less anxious. We're not taken seriously when were are seronegative AS patients, and that's very frustrating. The morning stiffness alone is unbearable. Is it possible that sudden pain in the knee is also a side effect of AS ?
I am AS positive and my knee is making it tough to even walk to sit on the chair.
I have AS and my knees are sometimes my worse symptom along with the Sciatic nerve.
Hi im 19. My doc said i have AS my left toes are permenantly curled stiff except my big toe it still articulates. I try to bend them back to normal but I cant. I want to walk normal again what should I do??
I can’t touch the back of my head and flatten my elbows either. These excersizes are very helpful. Thank you 😊
For how long u have been suffering
Hellw sir. I'm form India. In 2021 I found that I have AS. Initially the pain was on my lower back. Now I don't have any pain on my lower back. But my back of the neck is so painful. I feel a great stiffness there. What should I do sir? I have been under medication since I found that I have AS. I'm very nervous and worried.
Here is a link that has all our related videos to stiff necks and how to fix. Hopefully you can find something in one or more of these videos to help: www.youtube.com/@BobandBrad/search?query=stiff%20neck