Multiple Sclerosis and Frozen Shoulder: Is there a Connection?

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  • เผยแพร่เมื่อ 28 ธ.ค. 2024

ความคิดเห็น • 33

  • @lauraironstalksms
    @lauraironstalksms  หลายเดือนก่อน +6

    Sharing my MRI Results from my recent shoulder scan. This week has been so challenging, so much pain making everyday tasks harder. I have Optic Neuritis in my left eye at present also and every joint seems very painful, also issues with lower back pain. Development of FS is happening in my right shoulder, so I'm hoping to get treatment for this too. I hope this video helps others

  • @slobor3
    @slobor3 หลายเดือนก่อน +4

    Thank you for the updates

  • @christinahurt7505
    @christinahurt7505 หลายเดือนก่อน +4

    I am so glad you finally got a diagnosis but so sorry you are dealing with frozen shoulder. Years ago My husband had torn rotator cuff from a fall injury that was severe and could not lift his arm at all above his waist. This was a disaster for us because he couldnt work at all for 6 mos so we had zero income during that time. He did physical therapy by moving his arm and shoulder in warm swimming pool till it healed and was able to avoid surgery because the tear healed on its own. He did this very gradually slowly working up to lifting the arm higher and higher in the water. Usually if it is torn it requires surgery. I know this is different than the cause of yours but you may want to ask your Dr if you could benefit from water PT in addition to other treatments for the inflammation such as injections or just find a hot tub or pool near you to do this on your own. This will also help your muscles to not weaken too much while healing. I know that unfortunately MS makes everything complicated. Thank you for all the research you did in MS and shoulder problems. I hope you are able to get your shoulders feeling better.

    • @lauraironstalksms
      @lauraironstalksms  หลายเดือนก่อน +3

      @@christinahurt7505 Hi Christina, thank you. Sorry about your husband 😟. I totally understand where you're coming from, I got back into work 7 months ago and now I'm signed of. Because of my low hours there is no company pay and unfortunately I don't get SSP because I don't meet the criteria. We all have bills to pay even though we're unwell, but I don't think work has helped my arm - vicious circle! Your husband sounds like he had a good recovery using the warm water method with PT. I wonder if there's anything like that close to me as I'd definitely look into that and in all honesty would prefer that to injections. My left shoulder I don't believe will get better on its own, it sounds a lot like how your husband's was, very limited and extremely painful movement. My right shoulder however could benefit and possibly my left shoulder after I've had the injection? Thanks so much for your message.

    • @christinahurt7505
      @christinahurt7505 หลายเดือนก่อน

      @lauraironstalksms fortunately my husband's shoulder injury was many years ago and he runs his small heating and air business now. Like you, I am totally disabled from working and don't meet the criteria either for any disability benefits. Not enough credits in the system from my previous years of working because I became disabled so young despite working a 9-5 full time job prior to stopping work in 2005. Thus, I have been permanently disabled since 2005 and have never received a dime in disability income from the government nor from private disability insurance which I paid for at my last full time job but was denied benefits. I feel for you as it is a really big struggle to live off of only my husband's modest income in one of the most expensive areas to live in the US.

  • @anouk2115
    @anouk2115 หลายเดือนก่อน +4

    Hello, i have ms and also a frozen shoulder for 2 years now. I have diabetes so they think thats the reason. I have been to a fysio. Its getting better!! I am so sorry for your pain❤ from anouk, the netherlands

    • @lauraironstalksms
      @lauraironstalksms  หลายเดือนก่อน +1

      Hi Anouk, thanks for your message. I'm glad your FS is getting better 🙌🧡

  • @kristinadokic5
    @kristinadokic5 หลายเดือนก่อน +5

    Please look into dr Brooke Goldner and Goodbye lupus protocol for inflammatory and autoimmune disease. It may help with the inflammation. It has been life-saving for me. I am also diagnosed with MS.

    • @lauraironstalksms
      @lauraironstalksms  หลายเดือนก่อน +1

      @@kristinadokic5 Thank you, I will look into her. I'm glad it's working for you 🙏

  • @davelcx1958
    @davelcx1958 หลายเดือนก่อน +2

    Hi, Laura. I hope your recent doctor’s appointment provided some good options for managing your shoulder pain-I know from personal experience that shoulder issues are no fun!
    I first came across your channel while looking for resources to support a close friend of mine, Greta, who’s been dealing with MS since her early twenties. She went through years of waiting for a correct diagnosis, which was a scary and confusing time. Now, at 60, she’s doing relatively well; her treatment plan has put her MS into remission since the late 1990s.
    Having known her for nearly 30 years, I’ve seen her have occasional shoulder problems too, though hers are more like bursitis. She attributes these to posture issues from using a wheelchair, which can put her shoulders in a slumped position. Luckily, her pain doesn’t seem as intense as yours and can often be managed with an ice pack or heating pad.
    I’ve also been dealing with a frozen left shoulder for nearly two years now, and thankfully, it’s about 95% healed with very little pain as long as I don’t overdo things. My frozen shoulder came on suddenly and without much warning, just like yours. After some reflection, I suspect it was due to a repetitive strain injury from typing on my laptop in bed, which held my left arm in an awkward position.
    When the pain first started, it was incredibly limiting-I couldn’t reach behind my back, wash my hair, or even sleep on my left side, which was tough after decades of sleeping that way. But I had to adapt because of the pain. Like you, I turned to TH-cam to learn about frozen shoulder and its phases.
    I read about the “Freezing Stage,” which was by far the most painful. This transitioned into the “Frozen Stage,” which still hurt but felt a bit more manageable as long as I took it easy. Finally, I reached the “Thawing Stage,” which allowed me to start biking again. At first, it was uncomfortable, but the pain lessened over time, especially through the summer.
    Please keep us updated on what your doctor recommends, and feel free to reach out if you have any questions about my self-guided therapy sessions. Wishing you the best of luck with your recovery-stay strong, Laura!
    All the best, Dave L.

    • @lauraironstalksms
      @lauraironstalksms  หลายเดือนก่อน +1

      Hi Dave, thanks for your message.
      I have to agree with you that shoulder issues are absolutely no fun. I think this is the worst pain I've ever encountered and along with the disability in the arm is making for a very low mood indeed.😔
      I'm sorry to hear that your friend Greta spent so long getting a diagnosis of MS, but so nice that she has a good friend like you to swat up on it and look at possible help for symptoms /issues. It's great to hear that she's doing well with her treatment and long may that continue for her.
      Poor you experiencing frozen shoulder, the freezing stage as you've suggested it is quite unbearable. I haven't entered the frozen stage but from what I've heard the pain is more manageable.
      At the moment I can't do simple tasks like you mentioned, wash my hair, dress myself comfortably, or sleep on my side. Even walking is uncomfortable on the shoulder joint. Because my right shoulder is now also becoming an issue, I'm having double the difficulty.
      I had the hydrodilatation procedure on Monday 11th, it's a medical procedure that treats a stiff or frozen shoulder by injecting a fluid mixture into the shoulder joint to break up scar tissue and loosen the joint. At present I've had no pain relief from it and my mobility of my arm is very poor. It can often take 2 weeks to improve so I've got some time to go yet. My thought process is that the pain could be the Subacromial bursitis which showed up on my scan. Equally there's no ruling out that the probable Type 11 SLAP Tear is the culprit? But no painkillers will even help reduce the pain so I'm just gritting my teeth..
      I think at the moment only time will tell and hopefully my appointment next Wednesday (20th) will help.
      I would be interested to hear about your self guided therapies, so might others so please feel free to share some information.
      Thanks again, Laura.

    • @davelcx1958
      @davelcx1958 หลายเดือนก่อน +2

      @@lauraironstalksms Hi Laura,
      Thank you so much for your thoughtful response. I can only imagine how tough it must be to manage with such intense pain and limited mobility, especially since both shoulders are affected. You’re handling so much with incredible resilience, and I hope you’re able to find relief soon.
      When I first started dealing with my own frozen shoulder, I was in a tough spot myself-I was waiting for Medicare to kick in, so I didn’t have consistent access to medical care. That led me to do some self-guided therapy, relying mostly on TH-cam and online advice. I had to be careful, though, since not all advice online is reliable or safe.
      One of the first steps I took was identifying what might have caused the shoulder impingement. For me, I realized that typing in bed was a big contributor, along with certain movements that put strain on the joint. Cutting out those habits helped me start on the path to recovery.
      If you haven’t already, you might look for any small changes in your daily routine that could be putting stress on your shoulder. Sometimes, it’s the little things that catch us off guard. For example, did you recently get a new chair or start using a different watering can that’s a bit heavier? Subtle shifts, like using a heavier item or sitting at an awkward angle, can really add up over time.
      This reminds me of a friend who’s also dealing with frozen shoulder, and for her, the pain started suddenly. She homeschools her two pre-teen kids, and they’ve been studying together at the dining room table for years without issue. But shortly after moving to a new home, she began experiencing shoulder pain. We can’t be sure, but it’s possible that the new table is a slightly different height, forcing her shoulder into a new, awkward position day after day.
      Interestingly, she hasn’t received a COVID vaccine, so in her case, the shoulder problem seems to be more connected to her new environment than to any medical factor. It’s fascinating how these small, everyday things can impact our health in unexpected ways.
      After identifying what might have triggered my frozen shoulder, I dove into researching medical papers, and of course, the reality hit me: a frozen shoulder takes time to heal. With that in mind, I decided to steer clear of any stretching routines that seemed to worsen the pain during and after the exercises. Those videos that promised “quick fixes” often left me more sore for days, so I made a conscious decision to avoid them.
      The most valuable advice I found came from a TH-cam physical therapist who kept things simple yet effective. He recommended keeping the shoulder as immobile as possible to minimize inflammation, but also suggested starting a gentle exercise routine to keep the rest of the body active while the shoulder heals.
      For me, this meant using an elliptical trainer with arm levers, though I stuck with the center hand hold position at first to avoid further strain. As my shoulder pain eased, I gradually switched to the side levers with low resistance, which worked well for me.
      Over the summer, I added bike riding into the mix. I started with a mountain bike, and while it was uncomfortable at first, over time it helped push the ball joint back into the shoulder socket, strengthening the area. Of course, your mileage may vary, but this was what worked for me.
      Now I do biking, when I can, and I also use a physical therapy pulley device which latches onto the top edge of an inside door. It has two handles on ropes which allow many different types of exercises to help keep my shoulder joint mobile without placing undue stresses on it. It also helps my right shoulder stay healthy, so I won’t have to endure a similar frozen shoulder situation in the future.
      I hope this deep dive into my personal experience helps you, and others, who find themselves on this highly irritating frozen shoulder adventure! It’s a difficult situation, but with the shots you received on Monday and careful physical therapy choices, I bet you’ll be on the road to a full recovery this spring. So hang in there and do your best.
      Take care - Dave L.

  • @andrews3347
    @andrews3347 หลายเดือนก่อน +2

    I hope that this can be sorted out. The best news is it's a thing that people without MS get, so it's not just a quirk of MS. Some people don't like injections but, if you're a suitable candidate, I'm sure it will make a difference. Good luck.

    • @lauraironstalksms
      @lauraironstalksms  หลายเดือนก่อน

      Sitting in my appointment as we speak! Fingers crossed. Thanks Andrew

  • @user-bighughie
    @user-bighughie หลายเดือนก่อน +2

    Thanks for that update Laura. I have a stoma from Rectal cancer and I don't know if that is anything to do with this but I have the same symptoms as you had. Niggling aches in the arm and shoulder etc but it has calmed down a little this last month. I've been to see the physiotherapist at my doctor's surgery and he says it's the onset of frozen shoulder. He gave me exercises to help strengthen the arm. 😊

    • @lauraironstalksms
      @lauraironstalksms  หลายเดือนก่อน +1

      @@user-bighughie Hi, sorry to hear. The aches and pain did tend to calm down, the same as you said yours does. I think that's partly why I ignored it for so long because I assumed it was 'getting better' please just keep an eye on yours, because mine was 'OK' up until 3 weeks ago and out of nowhere just completely disabled my left arm. Good luck with the strengthening exercises, I hope it keeps on top of it for you 🙏

    • @user-bighughie
      @user-bighughie หลายเดือนก่อน

      @@lauraironstalksms Thanks so much Laura. It's my left arm too, so many similarities to you. I hope the exercise keeps it at bay. 😁👋

  • @Durace11Bunny
    @Durace11Bunny หลายเดือนก่อน +2

    Hey, I have Arthritis in one shoulder on the AC joint. Then I developed severe pain in my other one and any kinda sudden movement literally put me on my knees it was that painful. Had it checked out, have arthritis on that AC joint, scarring and a small tear. Had a cortisol injection, which helped with the pain and inflammation. Now back lifting weights, and I was told that it sounds counter intuitive but keep being in discomfort, as the body releases cytokines to break down scarring etc, and they said primarily focus on upper back exercises and rear delts so it pulls the shoulder back. Honestly, it's getting better week on week! Also potentially look at a collagen supplement.

    • @lauraironstalksms
      @lauraironstalksms  หลายเดือนก่อน

      @@Durace11Bunny Thank you, sorry to hear about your arthritis and pain - not great. To be honest that's what I thought mine was or something like rheumatoid arthritis as it runs in our family. Lots of people speaking positively about the cortisol injection, the hydrodilatation procedure is most part saline part cortisol. Happy for you that you're getting back on track though 🏋️. Thought about a collegen supplement, but I looked into food which provides high levels of it so trying to eat more of that. If you have any ideas on good collegen supplements please let me know - I will kill two birds with one stone as it will help with the ageing process too 😂

  • @kitshrapnel8548
    @kitshrapnel8548 หลายเดือนก่อน

    Fascinating 👍👍🦴🦴🐾🐾

  • @Returned2Forever
    @Returned2Forever หลายเดือนก่อน +1

    Hey laura, had not watched your channel in a while....guess you got lost in the shuffle as it were. Sorry about that. Hey i watched this though and saw what you are going through and wanted to wish you good luck in your recovery attempts & everything. You know us ms folk have to to stick together to keep our karma's straight. Hey doll, gotta a kick out of the boat pillow...would love to get the story on that sometime. I bet ada loves it. Oh well...maybe later. Bye.

    • @lauraironstalksms
      @lauraironstalksms  หลายเดือนก่อน

      @@Returned2Forever Hey! nice to hear from you, don't worry I often get lost in the shuffle ☺️. Thank you for your message, I've actually been quite overwhelmed by how much support and help I've got from our lovely MS Community. I'm glad you liked the boat pillow, it's one my favs.. It's actually one of Flynn's favourites too! Ada prefers the fluff 💖🐶. There's not too much of a story behind it other than I love the sea so like things to remind me of it. Keep well!

  • @chickocheek9499
    @chickocheek9499 หลายเดือนก่อน +1

    Technically i have the same problem it started one year after my Brain Hemorrhage, physiotheraphy doest work but it helps together with Osteopathic therapy, i was given a Cortisone but its last only a week. Try Osteopathic therapy with massage its really helps

    • @lauraironstalksms
      @lauraironstalksms  หลายเดือนก่อน

      Thank you, at this point in time I will try anything for the pain relief 🙏

    • @chickocheek9499
      @chickocheek9499 หลายเดือนก่อน

      @lauraironstalksms I have few seasions of acupuncture as well plus inbetween physiotheraphy,Osteopathic Therapy at home I do a hot compress before I exercise and after exercise I'll do an ice/cold compress, all of this will help you though it takes time but it will loosen up eventually. I have a second cortisone shot's on the 29th of November.... if you get one ask the Doctor to give you a local anesthesia first😅 because.... that cortisone shot's in Bursa area is Holy Guacamole Painful.

  • @mettejensen8653
    @mettejensen8653 8 วันที่ผ่านมา

    Could the connection be B12 deficiency?

    • @lauraironstalksms
      @lauraironstalksms  8 วันที่ผ่านมา

      Hi, thank you for the suggestion but I've been tested for my B12 and it's fine

  • @chumola9
    @chumola9 หลายเดือนก่อน

    Hi, Yes, frozen shoulder or feet or anything is all caused by MS. Have you noticed the front and the back of your head being higher than the middle of your head? chuck

  • @marufadnan614
    @marufadnan614 หลายเดือนก่อน +2

    The girl is very very very beautiful