Thank you for posting this webinar. I'm 34 and was diagnosed this week with a bicuspid aortic valve. My anxiety has been high since I was told about this, but this video has helped reasure me that it's not a death sentence.
It's not a death sentence, I was diagnosed with the same thing at the age of 44 but I had a significant aneurysm at the time. Almost one year later I had my surgery to replace the aneurysm but my native valve was kept, that was six years ago and I feel great today and I do everything I did before.
@@nickbardan3867 I had no symptoms my BAV in my aneurysm where discovered on a routine test. As my arteries were clear and my valve was in good shape I had no symptoms
@@chrisdiesenbruch7201 thank you for replying. Do you work out ? Strength training, cardio ? Is it safe ? I didn't speak with doctors about it. My blood pressure is always on the low side
@@nickbardan3867 well I'm not a doctor so I can't say for sure as each case is individual but for me I was told post-surgery I can do anything I wanted. My blood pressure is good and everything came out great with my surgery but obviously it depends on your situation. I still work out and ride a bicycle and stuff like that and do a little bit of strength training but nothing heavy duty but that's not because of my surgery that's more General busyness and little bit of laziness I guess?
Very excellent webinar! Thank you Adam and Drs. Malaisrie and Puthumana. I am 55 years old and have a bicuspid valve and aneurism of 5.1cms and have just been told by a cardiologist that I should start getting ready for replacement surgery. I have to (with doctors) decide on the mechanical vs. tissue valve. Maybe doing the tissue with a future TAVR procedure could be a good option in order to not have to undergo a second open heart procedure in the future. I'm in good shape with good BP and other indicators and kind of hope to be around for another 25 years or so, God willing! Thank you if anyone has any advice on valves. Great information in the webinar. Can't thank you enough!
Apparently I have the rarest of the bicuspid valves, the one with the two equal leaflets. I'm not sure but I'm thinking that is the reason why my flow and gradient levels are very good, comparable to a normal trileaflet valve. I had no calcification as of 5 years ago so when I had surgery to fix my aortic aneurysm, performed by Dr. Joseph Bavaria of the University of Pennsylvania, he kept my native BAV and just fixed the slight Trace leakage and replaced the aneurysm with a graft. It's very interesting to see these webinars. Thanks
Hi I've just been diagnosed with a bicuspid aortic value and a mild aortic regurgitation @the age of 50. I'm on losartan 50mg will I need surgery few years down the line ?
The progression of aortic valve disease is highly variable. That said, please get regular annual echocardiograms to monitor the disease and its progression.
Hi, This is a challenging question to answer due to all the variability of each unique patient - including health, age, lifestyle, risk factors, etc. That said, you may to discuss this specifically with your medical team.
I had surgery four years ago to replace my aortic valve. Was told the rest of my heart was extra strong. Have not taken any drugs and feel fine. I do have a little pain that comes and goes. It’s on the right side and it’s close to the middle upper chest. What could that be
Here's an article about Bicuspid Aortic Valves you may want to review about its symptoms and more - www.heart-valve-surgery.com/bicuspid-aortic-valve-symptoms.php.
High to everyone! I am diagnosed with BAV and Ascentic Aortic Aneurysm of 4,6 cm. I would like to ask if there is any endovascular surgery procedure taking place or evolving as we speak, instead of an open procedure such as David, Bentall or Ross that go on nowadays. It would be interesting to know if there is one. Thanks a lot in advance and many thumbs up to the channel holders. God bless you all. My regards, John from Greece.
I can understand you wanting to do a less invasive surgery but , speaking as a layperson here, I'm not sure they can get as good of result compared to actually getting in there. I had the same thoughts before my aortic aneurysm was replaced back in 2015 but I ended up going with OHS I'm happy I did. Of course this is a personal decision and also something for your surgeon to discuss with you but I wish you the best of luck
Hi, Yes... Some patients with bicuspid valves are getting TAVR. In fact, we are going to talk about that today on a live webinar. You can learn more about that at www.heart-valve-surgery.com/heart-surgery-blog/2024/10/05/bicuspid-aortic-webinar/.
Hi Omelia, Are you referring to transcatheter aortic valve replacement (TAVR). If so, you can learn more about it at www.heart-valve-surgery.com/tavr-procedure.php/.
I just wanna share, my daughter went in for her Ross and unfortunately wasn’t able to come off the heart lung machine, came out on ecmo and is now a heart transplant recipient. The cause is most like due to the dilated LV they pushed too long while I was begging to get her to surgery. Her heart was too weak. But I want to thank Adam and this amazing organization that gave me so much insight and education! So much confidence to discuss things with doctors, thanks you so much for your dedication to the valve community which I miss.
Thank you for posting this webinar. I'm 34 and was diagnosed this week with a bicuspid aortic valve. My anxiety has been high since I was told about this, but this video has helped reasure me that it's not a death sentence.
It's not a death sentence, I was diagnosed with the same thing at the age of 44 but I had a significant aneurysm at the time. Almost one year later I had my surgery to replace the aneurysm but my native valve was kept, that was six years ago and I feel great today and I do everything I did before.
@@chrisdiesenbruch7201 I'm 46. Just found out. What were your symptoms? Thank you
@@nickbardan3867 I had no symptoms my BAV in my aneurysm where discovered on a routine test. As my arteries were clear and my valve was in good shape I had no symptoms
@@chrisdiesenbruch7201 thank you for replying. Do you work out ? Strength training, cardio ? Is it safe ? I didn't speak with doctors about it. My blood pressure is always on the low side
@@nickbardan3867 well I'm not a doctor so I can't say for sure as each case is individual but for me I was told post-surgery I can do anything I wanted. My blood pressure is good and everything came out great with my surgery but obviously it depends on your situation. I still work out and ride a bicycle and stuff like that and do a little bit of strength training but nothing heavy duty but that's not because of my surgery that's more General busyness and little bit of laziness I guess?
This is 4 years old video any new discovery for BAV???
Perfect timing! Yes, we just posted on updated webinar about Bicuspid Aortic Valve Therapy at this link - th-cam.com/video/TW3PuWTzA8s/w-d-xo.html. 😀
Also, here is a list of all the other BAV videos in our channel - www.youtube.com/@HeartValveSurgery/search?query=bicuspid.
Very excellent webinar! Thank you Adam and Drs. Malaisrie and Puthumana. I am 55 years old and have a bicuspid valve and aneurism of 5.1cms and have just been told by a cardiologist that I should start getting ready for replacement surgery. I have to (with doctors) decide on the mechanical vs. tissue valve. Maybe doing the tissue with a future TAVR procedure could be a good option in order to not have to undergo a second open heart procedure in the future. I'm in good shape with good BP and other indicators and kind of hope to be around for another 25 years or so, God willing! Thank you if anyone has any advice on valves. Great information in the webinar. Can't thank you enough!
hello peter..can't the valve be repaired? must it be replaced?
Thanks for the kind words about the webinar. Here's a webinar about TAVR vs. SAVR. Hope you enjoy it. th-cam.com/video/mPG2AMZ-pks/w-d-xo.html
Apparently I have the rarest of the bicuspid valves, the one with the two equal leaflets. I'm not sure but I'm thinking that is the reason why my flow and gradient levels are very good, comparable to a normal trileaflet valve. I had no calcification as of 5 years ago so when I had surgery to fix my aortic aneurysm, performed by Dr. Joseph Bavaria of the University of Pennsylvania, he kept my native BAV and just fixed the slight Trace leakage and replaced the aneurysm with a graft. It's very interesting to see these webinars. Thanks
Great to hear that Dr. Bavaria was able to perform a valve-sparing aortic root replacement. Wonderful!
Hi I've just been diagnosed with a bicuspid aortic value and a mild aortic regurgitation @the age of 50. I'm on losartan 50mg will I need surgery few years down the line ?
The progression of aortic valve disease is highly variable. That said, please get regular annual echocardiograms to monitor the disease and its progression.
Hello adam arotic valve change life expectancy with Arotic root chang
Hi, This is a challenging question to answer due to all the variability of each unique patient - including health, age, lifestyle, risk factors, etc. That said, you may to discuss this specifically with your medical team.
@@HeartValveSurgery sir my age 32 and no other problem but Bicuped valve and arota root this time 39mm
I had surgery four years ago to replace my aortic valve. Was told the rest of my heart was extra strong. Have not taken any drugs and feel fine. I do have a little pain that comes and goes. It’s on the right side and it’s close to the middle upper chest. What could that be
We would encourage you to discuss this with your medical team.
How do we know that having three leaflets is the normal one !?
A normal aortic valve has three leaflets. A bicuspid aortic valve has two leaflets. A unicuspid aortic valve has one leaflet.
@@HeartValveSurgery yes but maybe it's normal to have two leaflets
What are symptons I have symptons but they cant figure it out cause I havent passed out
Here's an article about Bicuspid Aortic Valves you may want to review about its symptoms and more - www.heart-valve-surgery.com/bicuspid-aortic-valve-symptoms.php.
High to everyone! I am diagnosed with BAV and Ascentic Aortic Aneurysm of 4,6 cm. I would like to ask if there is any endovascular surgery procedure taking place or evolving as we speak, instead of an open procedure such as David, Bentall or Ross that go on nowadays. It would be interesting to know if there is one. Thanks a lot in advance and many thumbs up to the channel holders. God bless you all. My regards, John from Greece.
I can understand you wanting to do a less invasive surgery but , speaking as a layperson here, I'm not sure they can get as good of result compared to actually getting in there. I had the same thoughts before my aortic aneurysm was replaced back in 2015 but I ended up going with OHS I'm happy
I did. Of course this is a personal decision and also something for your surgeon to discuss with you but I wish you the best of luck
@@chrisdiesenbruch7201 The OHS is a scare factor indeed.... I think i ll worry about that when the time comes. Thanx for the answer Chris!
Hi, Yes... Some patients with bicuspid valves are getting TAVR. In fact, we are going to talk about that today on a live webinar. You can learn more about that at www.heart-valve-surgery.com/heart-surgery-blog/2024/10/05/bicuspid-aortic-webinar/.
My todecho result say that there is abnormal color flow across the 3 valve except in aortic valve. What does it means?
We would encourage you to discuss this with your medical team to get the best feedback to your echocardiogram.
What is the other option apart from surgery while needed a valve replacement
Hi Omelia, Are you referring to transcatheter aortic valve replacement (TAVR). If so, you can learn more about it at www.heart-valve-surgery.com/tavr-procedure.php/.
Nice
Thanks!
22:30 Ross Procedure
Yes, and here is more information about the Ross Procedure - www.heart-valve-surgery.com/learning/ross-procedure/.
I just wanna share, my daughter went in for her Ross and unfortunately wasn’t able to come off the heart lung machine, came out on ecmo and is now a heart transplant recipient. The cause is most like due to the dilated LV they pushed too long while I was begging to get her to surgery. Her heart was too weak.
But I want to thank Adam and this amazing organization that gave me so much insight and education! So much confidence to discuss things with doctors, thanks you so much for your dedication to the valve community which I miss.
@@goldyberkowitz5773 Our thoughts and prayers are with your daughter, you, your family, your medical team and everybody around you!!! ❤❤❤