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I cn relate so much cos I had craniotomy to remove 2 blood clots n I ddnt have time to think it thrgh cos it was a emergency craniotomy otherwise I wudve died n that was a true blessing for me ,I cn only thank God for giving me a 2nd chance n ur a true inspiration,god bless

Wow that described my life. Thank you!

Got 1 in 2 weeks had a bleed on my brain no tumour just hop for the best suppose

My mom just had a craniotomy to remove an abscess. This video was incredibly helpful in understanding what to expect going forward. Thank you! 💚

I just heard you say that it would be helpful to have a brochure for carers! I sooo could use that!

My child was just diagnosed. She’s a single mom with 2 children and she lives out of state. How can I help? What things to do presurgery to put things in place?

is it possible to have nerve pain 7 years i am havin excrutiating pain in my jaw in my head! and my neurologist keeps telling me it’s nerve pain and i pic headaches

Yes lights have affected me grateful for living in a dark community ..

❤ i had a haemorrhagic stroke and im very grateful for the surgery .the other wasn't an option ..5 hours in royal Melbourne hospital. Then 6 months in rehabilitation . I can remember some of it especially the nasogastric tube being inserted ..interesting story..xx I didn't know about the jaw muscle . I had half of my hair chopped off . My sister cut it all off ..being a rehabilitation nurse it was very interesting being on the other side of the bed ..

Thank you Kim for your testimony.!!!

This was very insightful, thanks for sharing

diagnosed at 14, almost died, i can relate.

Im 29 male and almost 2 month post gamma knife radiosurgery on putitary gland for cancled remission after transpinodal dissection 16 month prior. Question: What are Jack's new findings and thoughts on his current condition?

THANKYOU so much for sharing your story! You are in my prayers!🙏💙

How are you now Jack? 11 months later.

i am on the same journey as jack right now, and am also 25 in post surgery. am wondering how far jack got right now

This is needed on a larger scale. Please never stop sharing your story! Awareness is soooooo necessary. I remained undiagnosed for 17 YEARS, and I was only diagnosed after I self diagnosed. 💜💜💜💜💜💜 QOL is horrific, I’m fighting for disability (still, since June 2021) haven’t been able to work since mid 2019. Illness onset was 2004!!!! Was misdiagnosed w PCOS and anxiety, depression, panic attacks. Was ALWAYS Cushings. Severe delay in diagnosis left me with persistent Cushings. Same as Jack, my levels did not decrease or normalize post op. Got down about 50% but still high. Im now testing more and PRAYING I won’t have to beg for the BLA I clearly need. My tumor was tiny 1.5mm I have thyroid nodules and Hashimotos due to all this. I went to Doctors every year since 2004 I BEGAN WITH ENDOCRINE bc I knew!!!!! Im so upset!!!!!

Is cushings really as rare or misdiagnosed?

Had emergency one last month, was super painful. Blurry vision ,ripped breathing tube out, was restrained. Going bk next month to get bone bk

So glad Cushing's is getting more representation!

I wish I had the opportunity to low what was about to happen to me, didn't have a tumor but Blood clot and 2yrs nowafterwarrds still down with stroke, seizures, girlfriend took daughter and moved to another place, couldn't get a job,fully blind in one eye, lost peripheral vision in the other eye, having memory loss and had to go back to home country for traditional medicine, sometimes I wish I never had to go through it

I was cures from herpes with the help of #doctorapala who I came across on TH-cam.

Thanx for sharing ur story mate. I didn't quite understand, did they check your hormone levels, in particular cortisol in your blood and urine at the very beginning, when the symptoms of sleep problems began? Or did it take 2 years for the "doctors" to figure it out?

Have one coming up next week on the 22nd. Thank you for sharing!

I have had 3 crainiotomies in the past 2.5 years. My most recent 2 months ago, The edema in my head caused a 15 mm midline shift. My faith in Jesus is the only reason why i'm still here.

Thanks for this video. Jack was very informative and really well spoken.

How long did the pain last

I wouldn't advise anyone to do craniotomy. It's just a money making scheme. If you have a less serious tumor esp low grade, avoid it.

Did you have to take steroids prior to the surgery

I totally agree with this video. I had my craniotomy to remove a baseball sized meningioma and they didnt really tell me what to expect post surgery. I don’t know what is worrysome and what is normal really. I have this pressure on the top of the head where my tumor was and it throbs. But I don’t know if this is just part of the recovery process. Also my blood pressure has been higher and my heart rate sometimes is higher. I still get dizzy and blurry vision.

I'm having one march 1st I'm terrified

best doctor, thankfully

I wish I would have seen this before my second surgery. I can agree Drs don’t say the outcome after surgery. I wish I was told I would feel the sharp pains in my skull. It hurts when I yawn. The inside of my head hurts like if something is pinching me really hard. If I could go back and cancel my surgery I would have.

Thank you so much for this video, I was freaking out and am so glad I thought to just ask the internet 🥲

I ask all of my patients with adrenal insufficiency watch this video for education before they leave the clinic. It’s very helpful. Thank you so much. It makes my job so much easier.

Thanks for putting this video together. I wanted to understand whether it was safe to undergo a COVID-19 test after recently having trans-sphenoidal surgery. I never imagined that someone would take the time to answer such a specific question!

Thanks very much! I was afraid my concern was too niche!

Very helpful Ian. Regards Stephen.

I am an Australian. My mother is a refugee in west Africa. She has a pituitary macroadenoma- has gone blind in both eyes, experiences seizures and is home bound. The medical facilities cannot help help her. She can not afford the cost of overseas treatment. I contacted the Australian pituitary foundation few months back and they said they couldn’t help me. I have contacted a few neurosurgeons and hospitals in Australia and they have quoted me over $100,000 to perform the surgery. My wife and I are my mums only support and we can not afford this amount. The situation is urgent and life threatening. I am reaching out again to Yi Yuen Wang, the Australian Pituitary Foundation and others who might be able to help. My mother needs help, PLEASE HELP SAVE HER LIFE by helping her access surgery in Australia.

I am an Australian. My mother is a refugee in west Africa. She has a pituitary macroadenoma- has gone blind in both eyes, experiences seizures and is home bound. The medical facilities cannot help help her. She can not afford the cost of overseas treatment. I contacted the Australian pituitary foundation few months back and they said they couldn’t help me. I have contacted a few neurosurgeons and hospitals in Australia and they have quoted me over $100,000 to perform the surgery. My wife and I are my mums only support and we can not afford this amount. The situation is urgent and life threatening. I am reaching out again to Yi Yuen Wang, the Australian Pituitary Foundation and others who might be able to help. My mother needs help, PLEASE HELP SAVE HER LIFE by helping her access surgery in Australia.

I am an Australian. My mother is a refugee in west Africa. She has a pituitary macroadenoma- has gone blind in both eyes, experiences seizures and is home bound. The medical facilities cannot help help her. She can not afford the cost of overseas treatment. I contacted the Australian pituitary foundation few months back and they said they couldn’t help me. I have contacted a few neurosurgeons and hospitals in Australia and they have quoted me over $100,000 to perform the surgery. My wife and I are my mums only support and we can not afford this amount. The situation is urgent and life threatening. I am reaching out again to Yi Yuen Wang, the Australian Pituitary Foundation and others who might be able to help. My mother needs help, PLEASE HELP SAVE HER LIFE by helping her access surgery in Australia.

I am an Australian. My mother is a refugee in west Africa. She has a pituitary macroadenoma- has gone blind in both eyes, experiences seizures and is home bound. The medical facilities cannot help help her. She can not afford the cost of overseas treatment. I contacted the Australian pituitary foundation few months back and they said they couldn’t help me. I have contacted a few neurosurgeons and hospitals in Australia and they have quoted me over $100,000 to perform the surgery. My wife and I are my mums only support and we can not afford this amount. The situation is urgent and life threatening. I am reaching out again to Yi Yuen Wang, the Australian Pituitary Foundation and others who might be able to help. My mother needs help, PLEASE HELP SAVE HER LIFE by helping her access surgery in Australia.

I would love the how-to inject Solucortef chart