My ET DBS journey
My ET DBS journey
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DBS for Essential Tremor-Tune-up Part 7
This is my 7th tune-up session after the initial DBS programming session from May. Stick around to the end to see some of the tech inside my head from CT's Xrays to how the DBS system is programmed from a tablet.
Thanks to Dr. Wodziak, Dr. Sani, and Rush Hospital for making this all possible so that I can live life to the fullest!
On April 4th 2024, I underwent Deep Brain Stimulation (DBS) to treat Essential Tremor (ET), a neurological disorder causing involuntary shaking. Medications haven't sufficed, so DBS was the logical choice. After extensive research and consultations, I'm excited about the life-changing potential.
I'll even serve as a 'Patient Ambassador,' sharing my journey. The procedure involves implanting wires in my Thalamus, followed by the installation of the generator resembling a pacemaker.
Follow me on my other channel: th-cam.com/channels/YIshmP4lgHSrOzX4ubMjPQ.html
Here's a link to Boston Scientific and more info on their DBS system for Essential Tremor:
www.dbsandme.com/en/is-dbs-right-for-you.html?gad_source=1&gclid=CjwKCAjw9IayBhBJEiwAVuc3fs8MmODNpLavG7Zmt9iEKMEdyxMaZyNLLpU5KoMst2GDkXyH8IEZ7BoC_nMQAvD_BwE
Here's a link to Rush Hospital's DBS page:
rushdbsfus
#essentialtremor #Deepbrainstimulation #bostonscientific #neurology
#musicianswithDBS #guitaristswithDBS #guitaristswithessentialtremor #musicianswithessentialtremor #musicianswithmovementdisorders #guitaristswithmovementdisorders
มุมมอง: 21

วีดีโอ

Classical Guitar Practice-Pre and Post DBS-Part 3-Tremolo Picking
มุมมอง 8วันที่ผ่านมา
Part 3 of a 3 part series showcasing my classical guitar struggles and triumphs pre and post DBS. On April 4th 2024, I underwent Deep Brain Stimulation (DBS) to treat Essential Tremor (ET), a neurological disorder causing involuntary shaking. Medications haven't sufficed, so DBS was the logical choice. After extensive research and consultations, I'm excited about the life-changing potential. I'...
Classical Guitar Practice-Pre and Post DBS-Part 2-"Allegretto"-Sagreras
มุมมอง 614 วันที่ผ่านมา
Part 2 of a 3 part series showcasing my classical guitar struggles and triumphs pre and post DBS. On April 4th 2024, I underwent Deep Brain Stimulation (DBS) to treat Essential Tremor (ET), a neurological disorder causing involuntary shaking. Medications haven't sufficed, so DBS was the logical choice. After extensive research and consultations, I'm excited about the life-changing potential. I'...
Classical Guitar Practice-Pre and Post DBS-Part 1-"Adelita"
มุมมอง 1621 วันที่ผ่านมา
Part 1 of a 3 part series showcasing my classical guitar struggles and triumphs pre and post DBS. On April 4th 2024, I underwent Deep Brain Stimulation (DBS) to treat Essential Tremor (ET), a neurological disorder causing involuntary shaking. Medications haven't sufficed, so DBS was the logical choice. After extensive research and consultations, I'm excited about the life-changing potential. I'...
DBS for Essential Tremor-Tune-up Part 6
มุมมอง 31หลายเดือนก่อน
This is my 6th tune-up session after the initial DBS programming session from May. Thanks to Dr. Wodziak, Dr. Sani, and Rush Hospital for making this all possible so that I can live life to the fullest! On April 4th 2024, I underwent Deep Brain Stimulation (DBS) to treat Essential Tremor (ET), a neurological disorder causing involuntary shaking. Medications haven't sufficed, so DBS was the logi...
Shaving with Essential Tremor (DBS OFF and ON)
มุมมอง 74หลายเดือนก่อน
On April 4th 2024, I underwent Deep Brain Stimulation (DBS) to treat Essential Tremor (ET), a neurological disorder causing involuntary shaking. Medications haven't sufficed, so DBS was the logical choice. After extensive research and consultations, I'm excited about the life-changing potential. I'll even serve as a 'Patient Ambassador,' sharing my journey. The procedure involves implanting wir...
Eating with DBS on and off
มุมมอง 652 หลายเดือนก่อน
On April 4th 2024, I underwent Deep Brain Stimulation (DBS) to treat Essential Tremor (ET), a neurological disorder causing involuntary shaking. Medications haven't sufficed, so DBS was the logical choice. After extensive research and consultations, I'm excited about the life-changing potential. I'll even serve as a 'Patient Ambassador,' sharing my journey. The procedure involves implanting wir...
CBS DBS Interview (behind the scenes)
มุมมอง 1732 หลายเดือนก่อน
This video is the behind the scenes footage of my interview with CBS 2 Chicago that will be aired December 27th. It was great to see my neuro-heros Dr. Sani, Dr. Wodziak, and Shama Patel! Special thanks: Tobin Klinger (Director of Media Relations for Rush University Medical Center) for setting this up Edie Kasten of CBS 2 Chicago for producing and interviewing me and the Doctors Allen Maniscalc...
DBS for Essential Tremor-Tune-up Part 5
มุมมอง 243 หลายเดือนก่อน
DBS for Essential Tremor-Tune-up Part 5
My DBS SURGERIES-Reaction/Commentary-All Footage
มุมมอง 773 หลายเดือนก่อน
My DBS SURGERIES-Reaction/Commentary-All Footage
MY DBS SURGERIES-Behind the Scenes
มุมมอง 1504 หลายเดือนก่อน
MY DBS SURGERIES-Behind the Scenes
DBS for Essential Tremor-Tune-up Part 4
มุมมอง 484 หลายเดือนก่อน
DBS for Essential Tremor-Tune-up Part 4
DBS for Essential Tremor-Tune-up Part 3
มุมมอง 385 หลายเดือนก่อน
DBS for Essential Tremor-Tune-up Part 3
Cookie Baking-Post DBS Surgery
มุมมอง 296 หลายเดือนก่อน
Cookie Baking-Post DBS Surgery
DBS for Essential Tremor-Tune Up-Part 2
มุมมอง 716 หลายเดือนก่อน
DBS for Essential Tremor-Tune Up-Part 2
My Essential Tremor DBS Journey
มุมมอง 1216 หลายเดือนก่อน
My Essential Tremor DBS Journey
DBS for Essential Tremor-Tune Up-Part 1
มุมมอง 717 หลายเดือนก่อน
DBS for Essential Tremor-Tune Up-Part 1
Hybrid Picking with and without DBS
มุมมอง 1948 หลายเดือนก่อน
Hybrid Picking with and without DBS
Jam Session post DBS
มุมมอง 358 หลายเดือนก่อน
Jam Session post DBS
DBS for Essential Tremor-1st Session
มุมมอง 768 หลายเดือนก่อน
DBS for Essential Tremor-1st Session
Boston Scientific DBS Remote and Charger Unboxing
มุมมอง 3738 หลายเดือนก่อน
Boston Scientific DBS Remote and Charger Unboxing
DBS generator post-op update (stitches out)
มุมมอง 589 หลายเดือนก่อน
DBS generator post-op update (stitches out)
DBS generator post op update
มุมมอง 499 หลายเดือนก่อน
DBS generator post op update
Classical guitar run-through PreDBS
มุมมอง 469 หลายเดือนก่อน
Classical guitar run-through PreDBS
Emergency medical ID for DBS system
มุมมอง 189 หลายเดือนก่อน
Emergency medical ID for DBS system
DBS leads recovery (4 days after surgery)
มุมมอง 639 หลายเดือนก่อน
DBS leads recovery (4 days after surgery)

ความคิดเห็น

  • @georgewelch2366
    @georgewelch2366 10 วันที่ผ่านมา

    The difference is black and white. In the pre-DBS portion you can clearly see your frustration/exasperation before you comment on it. I used to use back button focus when photographing which, if you don’t know, involves using one of the buttons on the back of the camera rather than the shutter button to focus. It involves a squeezing motion with the right hand. This, along with left hand tremors, definitely brings challenges to holding the camera steady.

  • @georgewelch2366
    @georgewelch2366 17 วันที่ผ่านมา

    The difference is actually quite profound Matt

  • @1hellocat
    @1hellocat 20 วันที่ผ่านมา

    I just saw your article on the news. Thank you for sharing! I am going to Rush for the first time this Friday because I have a tremor in my head and hands too. It makes life unbearable but no medicine or botox injections have helped. I haven't seen very many people talk about the deep brain stimulation and I am hoping the doctor will talk about it when I see her. I live in Peoria so it's a bit of a drive, but I am encouraged seeing your videos that Rush will be able to give me help too. Following your channel now!

    • @MyETDBSjourney
      @MyETDBSjourney 8 วันที่ผ่านมา

      You're in good hands. Amazing doctors! Keep me posted and you and your journey will be in my thoughts!

  • @hbviceroy7274
    @hbviceroy7274 21 วันที่ผ่านมา

    I’m happy for you, man

  • @NeurogeneratedGuitar
    @NeurogeneratedGuitar 25 วันที่ผ่านมา

    Very pretty. Thank God for DBS surgery!!

  • @georgewelch2366
    @georgewelch2366 25 วันที่ผ่านมา

    The differences pre and post DBS are profound. So glad I found the article about your surgery and overall journey.

  • @juliawatkins5983
    @juliawatkins5983 27 วันที่ผ่านมา

    That’s amazing!

  • @andychris5400
    @andychris5400 27 วันที่ผ่านมา

    I seen your story on the news. I recently moved to Chicago and i need to look for a movement disorder specialist/ PD specialist. Do you recommend someone?

    • @MyETDBSjourney
      @MyETDBSjourney 6 วันที่ผ่านมา

      Northwestern medicine and Rush are the best imo. I got my DBS at Rush. Game changing.

  • @andychris5400
    @andychris5400 27 วันที่ผ่านมา

    Is there a reason why you would need to turn dbs off ?

    • @MyETDBSjourney
      @MyETDBSjourney 27 วันที่ผ่านมา

      @@andychris5400 just to demo the tremors without it or if I have a medical procedure.

    • @andychris5400
      @andychris5400 26 วันที่ผ่านมา

      @MyETDBSjourney I'm new to the Chicago area. Can you recommend a movement disorder specialist?

    • @MyETDBSjourney
      @MyETDBSjourney 26 วันที่ผ่านมา

      @@andychris5400 Dr. Wodziak at Rush

  • @sblonsky
    @sblonsky หลายเดือนก่อน

    Wow we just came into Chicago to have the procedure tomorrow at Rush by the same Doctor for my wife’s essential tremor Happened to watch the news and saw your story thanks

  • @MattGorecki-xd9zj
    @MattGorecki-xd9zj หลายเดือนก่อน

    Nice job! Is there an upper age limit for DBS implants?

    • @MyETDBSjourney
      @MyETDBSjourney หลายเดือนก่อน

      @@MattGorecki-xd9zj not sure but I imagine it would depend on other health factors with the individual.

  • @leeg6565
    @leeg6565 หลายเดือนก่อน

    Why is there so much loud background noise?

  • @77mjterry
    @77mjterry 2 หลายเดือนก่อน

    I’m considering having the surgery I play guitar as well and I am becoming increasingly frustrated every day to the point that seething with anger because I can’t play probably what I used to play I would love to be able to speak with you to ask you about the surgery and just get some better insight on that and actually speak with someone who has had the surgery rather than just watch videos I would consider a great honor to be able to talk to you. You’re a very brave person for having the surgery and I really enjoy your videos. They have given me hope

    • @MyETDBSjourney
      @MyETDBSjourney หลายเดือนก่อน

      @@77mjterry on your computer in the about section of my channel is my email address. I'd be happy to talk with you!

  • @OBrienKevin
    @OBrienKevin 2 หลายเดือนก่อน

    Maybe a plastic fork would do better so you don’t lose an eye 😂

  • @davidoakesguitar
    @davidoakesguitar 2 หลายเดือนก่อน

    With my DBS surgery, I still have to use weighted forks, spoons and knives to eat normally. With the stimulator off, watching you eat would be like seeing me in a mirror!

  • @TheHadMatters
    @TheHadMatters 2 หลายเดือนก่อน

    Is the difference between DBS on and off purely physiological, or is there a mental clarity difference too, and if so, do your thoughts behave differently? I'm amazed that this treatment can be targeted so well.

  • @M.AngeloRivera
    @M.AngeloRivera 4 หลายเดือนก่อน

    Hi Matt, Interesting info in this video. Intrigued by the tuning up process. Will ask some questions on that when we connect soon.

  • @davidoakesguitar
    @davidoakesguitar 4 หลายเดือนก่อน

    Are you taking any medication like Primadone along with the programming

    • @MyETDBSjourney
      @MyETDBSjourney 4 หลายเดือนก่อน

      @@davidoakesguitar no no more meds

    • @davidoakesguitar
      @davidoakesguitar 4 หลายเดือนก่อน

      @@MyETDBSjourney I started back on primidone along with my DBS programming in combination, and that has helped my right hand a lot for playing the guitar. I recognized your problems with playing that Bouree in my own playing. It sounds a lot like me.

    • @MyETDBSjourney
      @MyETDBSjourney 4 หลายเดือนก่อน

      @@davidoakesguitar I was on gabapentin, propranolol, and klonipin. So glad to be off of the meds.

  • @GoProGoalieUzi
    @GoProGoalieUzi 4 หลายเดือนก่อน

    Looking good!! When did you have dbs?

  • @KB-it9vr
    @KB-it9vr 5 หลายเดือนก่อน

    Thank you for sharing all of the videos from your dbs journey. I am getting dbs next month done for my ET (I am 45 and was diagnosed at age 19). It's so helpful to know what to expect :)

  • @davidoakesguitar
    @davidoakesguitar 7 หลายเดือนก่อน

    You seem to have a better DBS result than I had six years ago with a Medtronic wiring and battery. I have that same feeling as you when I pluck guitar strings.

  • @davidoakesguitar
    @davidoakesguitar 8 หลายเดือนก่อน

    Just watched your video. I’m a former professional guitar player now suffering with ET. I’ve had DBS surgery but it hasn’t helped as much as yours did. I’d love to get a chance to chat sometime. If you want to see me play with my tremors, in TH-cam search David Oakes plays Tenderly

  • @fabiolaalvarado2728
    @fabiolaalvarado2728 8 หลายเดือนก่อน

    Whats??... la cirugía es estando consciente como cuando vas al odontologo 👀, oh my god!!!

  • @fabiolaalvarado2728
    @fabiolaalvarado2728 8 หลายเดือนก่อน

    Dios bendito, ese aparato en tu cabeza no te pesaba? Necesito saber mas de ésto, mis temblores estarian peor que cuando tomo café 3 días seguidos... 😂🤣😂

  • @fabiolaalvarado2728
    @fabiolaalvarado2728 8 หลายเดือนก่อน

    Waoo que increíble! Como era tu nivel de temblores?... Yo me acabo de mudar a Montevideo y el frio me está empeorando mas que la cafeína... Aun no he ido a ningún neurólogo acá, quiero probar otras alternativas antes...

    • @MyETDBSjourney
      @MyETDBSjourney 8 หลายเดือนก่อน

      Probé otras alternativas. Este procedimiento tiene los mejores resultados. Apenas tengo temblores excepto en la mano izquierda, pero desaparecerán pronto. eso es lo que dijo el doctor

    • @fabiolaalvarado2728
      @fabiolaalvarado2728 8 หลายเดือนก่อน

      @@MyETDBSjourney yo probé propanolol y labrixile y me tumban la tensión... Averiguare acá si hacen ese procedimiento, se ve rudo pero si sirve, bienvenido! Éxitos totales en tu recuperación y tu nueva vida 🌞💫💯✌️😎

  • @kathyplaza9883
    @kathyplaza9883 9 หลายเดือนก่อน

    I feel your frustration.....I sometimes can't even keep the bow on my fingerboard when attempting to play my fiddle with my ET. My ET comes and goes, so I never know when it's gonna hit when I'm on stage on the mic! LOL. A girl's gotta keep a sense of humor, right! LOL. Keep up the good work....making music is worth it! <3