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MGAthlete
South Africa
เข้าร่วมเมื่อ 26 ก.ค. 2016
This channel is to show my personal journey through Myasthenia Gravis and Graves Disease. Diagnosed in 2015, I have learned a lot and would like to share that as well as show my journey going forward. I developed a keen interest in nutrition and sustainable lifestyles and am always interested in hearing and discussing challenging points of view.
Myasthenia Gravis Speech: Part 2
Myasthenia Gravis and Graves Disease are two autoimmune diseases that I was diagnosed with in 2015. This is part 2 of the MG speech I did in 2016 explaining the disease and my symptoms (including diplopia, ptosis, difficulty talking, chewing and general muscle fatigue) as well as my plan for recovery.
Myasthenia is a neuromuscular, chronic, autoimmune disease. The disorder affects the acetylcholine nerve receptor sites, which get blocked by antibodies formed against the thymus gland.
Part 1 was more a background and getting diagnosed. Part 2 is about why I did't choose certain treatments, what I am doing instead and where I plan to go in future.
PLEASE SUBSCRIBE to get updates about my recovery journey.
FOLLOW or Contact me on Social Media:
Facebook:
MGAthlete/
Instagram:
mgathlete
Blog:
mgathlete.wordpress.com/
Myasthenia is a neuromuscular, chronic, autoimmune disease. The disorder affects the acetylcholine nerve receptor sites, which get blocked by antibodies formed against the thymus gland.
Part 1 was more a background and getting diagnosed. Part 2 is about why I did't choose certain treatments, what I am doing instead and where I plan to go in future.
PLEASE SUBSCRIBE to get updates about my recovery journey.
FOLLOW or Contact me on Social Media:
Facebook:
MGAthlete/
Instagram:
mgathlete
Blog:
mgathlete.wordpress.com/
มุมมอง: 3 425
วีดีโอ
Myasthenia Gravis Speech: Part I
มุมมอง 3.3K4 ปีที่แล้ว
Myasthenia Gravis and Graves Disease Talk. This is a MG speech I did in 2016 explaining the disease and my symptoms include ocular (diplopia, ptosis) and general (difficulty talking, chewing and general muscle fatigue.) Myasthenia is a neuromuscular, chronic, autoimmune disease. The disorder affects the acetylcholine nerve receptor sites, which get blocked by antibodies formed against the thymu...
Myasthenia Gravis Remission: My Story Summary
มุมมอง 9K5 ปีที่แล้ว
Myasthenia Gravis Remission is a dream for most MG patients. The symptoms of diplopia, ptosis and muscle fatigue go away in a remission which can be while still on medication or meds free. Myasthenia is a neuromuscular, chronic, autoimmune disease. The disorder affects the acetylcholine nerve receptor sites, which get blocked by antibodies formed against the thymus gland. This stops the muscles...
Myasthenia Gravis Symptoms
มุมมอง 38K5 ปีที่แล้ว
Myasthenia Gravis Symptoms. My MG symptoms include diplopia, ptosis and muscle fatigue. Other names for symptoms: double vision and a droopy eyelid. Myasthenia is a neuromuscular, chronic, autoimmune disease. The disorder affects the acetylcholine nerve receptor sites, which get blocked by antibodies formed against the thymus gland. This stops the muscles from contracting as they are not able t...
What is Myasthenia Gravis?
มุมมอง 3.7K5 ปีที่แล้ว
Myasthenia Gravis is a neuromuscular, chronic, autoimmune disease. What is Myasthenia Gravis? The disorder affects the acetylcholine nerve receptor sites, which get blocked by antibodies formed against the thymus gland. This stops the muscles from contracting as they are not able to receive nerve impulses. The symptoms of Myasthenia Gravis, called MG, are diplopia (double vision), ptosis (droop...
How I spent my Trust Fund
มุมมอง 8485 ปีที่แล้ว
How did I spend the trust fund money that was donated? What did I invest that money in? The return on investing in health resulted in massive returns. Health problems can be very expensive. Finances are important along with a budget and a plan. This video explains those steps and how the fundraiser changed my life. I was fortunate enough to receive a lot of support when I was diagnosed with Mya...
Is it Possible to Recover from Myasthenia Gravis?
มุมมอง 7K5 ปีที่แล้ว
Myasthenia Gravis and Graves Disease (autoimmune disease) changed my life. They affect the immune system, thymus gland and thyroid. Is there a cure or only remission? How can I recover from MG and Graves Disease (hyperthyroidism)? Are these really chronic illnesses? I was diagnosed in 2015, I quickly looked for treatments that would help me. My muscles became very weak, I had a thymoma (enlarge...
Worth watching ❤
Thank you 🙏 ABSOLUTELY TRUE it’s a long journey 😢especially when it returns.
But how??
Can someone please advice how to get rid of double vision😢
I was diagnosed MG at 17 in 1987. I find both covid vaccinations and covid infections very much exacerbate my MG. Anyone else out there similar? Also I have chronic generalized fasciculations. Anyone else have these?
Ive suddenly developed alternating ptosis at 23 and the only thing in the literature that points to it is myasthenia gravis or thyroid issues, I don’t have double vision but, I had normal eyes before but now this ruined my self esteem and I hate how I look which put me in a long depression, I really hope I can fix this..
Try Oxymetazoline Hydrochloride Eye-Drops 1%
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Thank you for some useful explanations of symptoms - I was diagnosed ( after a long 7 years!) at 25 and now at 55 years old can say it's manageable with care, though I've always had symptoms probably due to a demanding family life 😅 ( 2 sets of twins and one more). Certainly been tough times but grateful for the full and happy life
My father has this.. thanks for the video
South africa got MG
Hello, I am in the process of getting a diagnosis and came across a video as I am trying to explain to others what im experiencing and hoped for a video like this. My symptoms finally brought me to this diagnosis as I was finally able to articulate what my eyes were doing as well as take pictures identical to what you showed (talk about confirmation which brought me to tears). When the symptoms first started a year and half back, it was alot of weird nerve related things they and with the presence of white brain matter they thought it might be MS but it has turned out not to be. I've since been searching for answers. I really appreciated your video and telling of your situation! Thank you!
Have had MG for 35 years now. Looking into herbal remedies to go into remission
Any update today? Are you still in remission?
I was diagnosed with MG when I was in 11th grade, now I'm going to college. My teacher said, I am a chosen person, I am special. She always encourages me. I always try to make peace and make MG a friend. Yeah, I'm fine. ♡
what did u exactly do to shrink your thymus gland?
Nice video I was born with MG but was diagnosed at the age of 37 i am now 59 years old using pyridostigmine along with Azathioprine 50 MG I would like if someone can help me out i am still feeling weakness as I start to walk
Mine has gone into remission after i was diagnosed 2 years prior. I don’t know why, and I have been told by my Dr. it might come back.
With me just seeing this videos, has he been able to play football again?
This is another autoimmune condition. Like all the other AI conditions mainstream Medicine pops the symptoms affecting a particular or group of organs into a silo and treats it as a stand alone disease. It’s not a disease. It’s process just like lupus and MS and RA and many others. I have several autoimmune conditions which isn’t unusual bc this is an other process that kicks off due to an overactive immune system. We can never get completely rid of the antibodies that have been created by our immune system to keep us safe from some perceived harm but it is within our power to be our own health detective, find and then avoid the triggers that flare the immune system into over reacting to environmental triggers. Great video. All the best
Thank you for sharing your journey.
Thank you very much. It is a very informational video....Love it
What you think about the virus?
Having a view that an autoimmune disease is self inflicted is kinda crazy. I’ve never seen any evidence to support such a strong claim
Did you ever make a video on how you put yourself into remission?
I truly believe eating carnivore diet would put this disease in remission. If anyone has given it a try it would be good to hear about their experience.
I’ve gone into remission twice over about 10 years due eating a keto diet. Anytime I feel it flaring up I drop carbs up the water and vitamin d and tan.
Thank you so much for creating this channel, Ross. I suddenly became very ill with MG at 27 years old with 2 young children. It was detrimental. I have the same convictions of you and have worked very hard to recover as naturally as possible. I rely heavily on mestinon fir function. I'm 3 years into MG and I'm slowly getting to where i want to be. Heavy metals and nutrition was huge piece for me. I'm also so thankful for the comment section in this video.. these testimonials are so much encouragement for me as someone who is praying and working towards recovery for sustainable health.
Excellent video. I have had MG for about 5 years, but its not a severe case and i have managed to work around it. The double vision sure makes driving a chore, though.
How did you get into remission?
It happens with some people only. Nothing can bring it on. MG is very varied among individuals.
Thanks for the info, it's only because a friend of mine was diagnosed with it this week I know about it. Thank you.
So nice to hear that it is possible, glad for you... I am trying all possible ways to but not finding any solution for my myasthenia gravis... Can you please share ehatbyou did or is advised for remission? Thanks a lot and more power to you.
Hey, I'm a MG patient myself. What stage are you at ?
Good
Anytime I go to the hospital they tell me they can't do any diagnosis... Even when I tell them my Dr believes I have kt
Hello and thank you for offering this resource!! My mom was diagnosed with MG about 2 years ago. Started with speech and swallowing issues then a crisis. No medications are helping. I appreciate what you are doing here!!!
I appreciate your testimony in battling MG. I have also been dealing with this issue since 2019. I have gone in and out of remission 3 times. Mine is aggresive general MG. I crashed once and almost met my maker. I am presently in remission. I agree with you in the need to change or modify your dietary lifestyle. In my case, I was initially prescribed Mestinone and Prednisone which have helped but they also carry lots of negative side effects. For me, cutting down sugar, salt and fatty foods has helped. I decreased my intake of Prednisone from 40 mg to 5 mg daily. From 14 daily pills of Mestinone to 9. My vision is quite normal now. In sum, MG is not the end. Life is precious and we must be willing to change our life style in order to enjoy more years.
Great video! this was streamed 4 years ago. I wonder how are you doing now? still in complete remission of MG? would be great to get an update and if you are still good and keeping the nutritional diet and supplements...
My understanding from Josephson is MG results from a manganese deficiency. Recovery has to happen macro and micro ways, vit e and manganese address MG micro, in more macro terms eliminating diets n increasing nutrients takes us all the way back. Dr. Josephson, Dr. Jerry Tennant, and Dr Shawn Baker have all brought me back. Thanks for the work you have done and willingness to share it💪
did @mgathelet reply? wonder how he is doing now...
When I got diagnosed about 6 years ago in 2017, because of slurred speech. I thought not really a big deal. Went on Mestinon Immediately. Than a couple of days of not being able to swallow or drink seemed more serious. Otherwise until 1921 seemed mild, apart from the constant slurring ( and unbecknown to me then the leg paralysis if seriously over strained, as in 8 flights of stairs for a morbidly obesese) Then in 1921 suddenly got feet leg and arm and palm swelling all simultaneous, thought it might be arthritis. found internal bleeding. Had an endoscopy, suffered a (mayathsenical) respiratory distress (ICU went from 5 people to 55 people after revival ). Got put on IVIG monthly bleeding cured.(5 month later had a bought of occular mayathsenia for about 3 hours) Unfortunately 7 month after had difficulty breathing, thought it was because my IVIG was due, 50 meters short of hospital emergency, got a nurse to wheel me in and had full mayathsenian crisis, with total respiratory failure. Spent 14 days in ICU and 7 days in obsevation, fast tracked to Chemo. Now with my last Chem dose, postponed twice due to covid and fever. My respiratory and upper body part appear to be in full-remission. Legs, knees waist ??? could be osteo, or overweight. Mobility at best 2 km/h
I have so many questions can you share how you were diagnosed and what were your symptoms exactly and what’s the difference between MG-CPEO because I was diagnosed with CPEO?
Yep I've been there,
Never heard your story but I’m super proud
Thank you for sharing. I’ve just started my journey with the intent of putting MG in remission. Your story encourages me to never stop making my daily wins in this fight to regain my health back.
Thank you for sharing your story cause my son his diagnose m. G. Also. You can help me
Thanks for your input. I had symptoms after a Chikungunya virus episode in 2014. Started with intermittent diplopia , dizziness, speech slurring etc. Each time a different symptom would be first and strongest.so it took almost 3 years to get a diagnosis. It is stable now on pyridostigmine, but varies from day today and also throughout the day. At 85 it gets confused with the general aspects of aging. Choking is what fears me most and I no longer eat in front of others. ..it is not a pretty sight. It is vastly misunderstood by most doctors and several tell me they have only read of it and have never treated a patient who has been diagnosed with MS. Thanks for putting yourself out there.
oh yeah i have MG too recently diagnosed but was suffering from it a long time ago i also stopped eating infront of others and giving presentations due to slurred speech , MG made a introvert and i am grateful for it
Can you tell us how you overcome the symptoms. If you had some treatment. God bless you..
What book did you read? And what was your diet like to helped your remission
I hope you are still doing well. I had Ptosis in my left eye that would totally close. This led to my doctor, who didn't know what the problem was, deciding to give me prednisone starting at 50mg and tapering off. The ptosis went away after eight days. About a month after that I got the double vision which was very disturbing. I had the usual tests MRI of brain and neck, blood tests and was diagnosed with MG. An ophthalmologist recommended to not use prednisone and an emergency room doc gave me an Rx for another steroid which did nothing. My drivers license was about to expire, and I was driving with an eye patch. My primary care doc, who had never heard of MG but is now quite educated about it, put me back on prednisone and referred me to a neurologist. While I still get some instability when walking and fatigue, I am better with little to no eye symptoms. I got my license renewed too. I was also getting bad leg cramps, mostly at night. A 250mg magnesium tablet before bed got rid of that. Your video shows what most MG patients go through.
I have been diagnosed with MG but my symptoms happened in reverse to yours, double vision first then the eyelid drop on the left. Did Prednisone clear you're symptoms and have you stopped taking medication now? How are you feeling?
Thanks for this. I was diagnosed in January 2012, been struggling ever since. Managing as best as i can with meds but hard going. After all this time and discussion with my neurologist, I'm booked in for thymectomy in December. Expecting a long process but hoping for the best.
Hi good en vivo
I'm a MG victim and this is so positive for me thanks