Aldelly V
Aldelly V
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Parenting with a disability, NMO.
Parenting with a disability! We did an Instagram live to talk about parenting with NMO. Enjoy!
มุมมอง: 154

วีดีโอ

QUARANTINE week 1/ Kids talk about NMO/ mom with disability
มุมมอง 1914 ปีที่แล้ว
Week #1 of quarantine and we've decided to make a video. My children talk about their experience of having a disabled mother (NMO), being in quarantine, and much more. Everything is way more fun from a kids perspective! I hope you enjoy it because it was fun to make!
Plasmapheresis, my experience! IT WORKS!
มุมมอง 3014 ปีที่แล้ว
It's been a while since I've posted a video and I finally have had the time & health to make one! After failing terrible with the IVIG(Panzyga) treatment and after long discussions with my neurologist I ended up having plasmapherisis treatment done. The wonders that this treatment provided for me is AMAZING! When I tell you that in 4 weeks I was back to doing things I wasn't able to like; lifti...
HANDICAP PARKING EXPERIENCE/PETITION.Support & share!
มุมมอง 1674 ปีที่แล้ว
Hi Fabs! Ever experienced a dirty look or nasty note while in a handicap parking space? In this video is one of many stories with handicap parking spots. Parking in the handicap space is a very big responsibility in which us(the disabled) have to be prepared. Why prepared? Prepared for all the dirty looks, comments, nasty notes & everything.Prepare to educate those around us as well. But what i...
Sending Spoons subscription box. Whats inside my box!?
มุมมอง 1044 ปีที่แล้ว
Sending Spoons is a company that sends a monthly subscription box to you or a loved one, dedicated to someone suffering from a chronic illness. It's the perfect way to lift the spirits of someone who is suffering from a chronic illness. I enjoyed every piece in my box and everything was very useful for my everyday life. If you haven't already check them out please do so in the link below.Thank ...
Alinker part 1
มุมมอง 1164 ปีที่แล้ว
Hey Fabs! I received my very first Alinker over two weeks ago but unfortunately I was an in between size and medium was not the correct size for me. I emailed the company and they responded quickly & were so helpful! Without any hesitation they understood my needs and resolved my issue. Today I received my Alinker again and I’m just as excited as the first time! This time i have a small size Al...
My experience with parenting with a disability , NMO.
มุมมอง 1284 ปีที่แล้ว
I think we can all agree that parenting is a complicated journey to go through , but we still do it with love,, but parenting with a disability is another subject. As a mother of two vey active young boys I find ways to challenge not only myself but my children on ways to keep active. From at home projects, cooking, to chores at home I always try and make the best of it. One of the reason why I...
Discharging myself from rehab. It just doesn’t make sense for me.
มุมมอง 2084 ปีที่แล้ว
UPDATE: After heavy consideration I’ve came to the conclusion that a rehab center is not the place for me. This is a great center for those who have an acute attack/injury. For me though, it just isn’t working. For 1️⃣ I miss my children & husband dearly. Secondly,2️⃣, I want to be home for the holidays. Thirdly,3️⃣, I’m back at my baseline of walking with my crutches. Fourthly4️⃣, I need to pu...
NMO flare
มุมมอง 2314 ปีที่แล้ว
UPDATE :This I was hospitalized with an infection causing me to flare up & cause me paralyze, loose my vision and all mobility issues. But I overcame it like a true #nmowarrior! More updates to come soon. 💚💚💚💚 For more on my updates please follow: Instagram: fab_nmo Facebook: Fab NMO #fabnmo #fabulouslylivingwithnmo #neuromyelitisoptica #nmo #neuromyelitisopticaspectrumdisorder #flareup #flareu...
RAW, emotional stages of dealing with a diagnoses.
มุมมอง 2494 ปีที่แล้ว
These past two weeks NMO has really kicked my butt! Through it all, I remind myself what I’ve already been through and keep positive. When you are living with an autoimmune disease like mine, it can get hard. The emotional rollercoaster that I been through so far serves me as reminder that there will always be brighter days. In this video, I talk about the emotional stages that I went through w...
Incontinencia urinaria y catéteres ! Mi historia , tips y soluciones.
มุมมอง 1835 ปีที่แล้ว
¡Esta semana estaré hablando de incontinencia urinaria y catéteres! Soluciones que tal vez puedan ayudar tu día a día. Compartiendo mi historia y experiencias de como yo vivo con NMO. Este vídeo contiene 2 parte en 1. Espero que les pueda ayudar de una forma o otra.😁 Sígueme Facebook: Fab NMO Instagram: fab_nmo Twitter: @fabnmo www.curemedical.com www.bardcare.com
Let's talk catheters and bladder incontinence with an autoimmune disease!
มุมมอง 4455 ปีที่แล้ว
This week I’m talking about bladder incontinence and catheters! Solutions that may help your everyday life. Sharing my experiences and my solutions along side living with NMO.This is a two part video in one. The first half is about bladder incontinence. The second part I'm reviewing catheters that I received. Hope you guys enjoy!! as samples. Want to try your FREE sample? Simply request them at...
Como me diagnosticaron con NMO/Devic's Disease
มุมมอง 6965 ปีที่แล้ว
Mi nombre es Aldelly y fui diagnosticada con Neuromielitis Optica cuando pensé que estaba en el mejor momento de mi vida. Con solo 27 años estaba comprando mi primera casa, finalmente graduándome de la universidad y con un trabajo muy exitoso. Hice todo eso mientras tenía dos hijos menores de 5 años y siendo esposa. De repente, yo, súper mamá con tacones, siempre tratando de lucir lo mejor posi...
How I was diagnose with a rare autoimmune disease, NMO (Devic's Disease)
มุมมอง 3.3K5 ปีที่แล้ว
Getting diagnosed with a rare autoimmune disease was a long scary journey for me. I've decided to tell my story in the hopes that I can help inspire others that may be going through similar situations. I was diagnosed with NeuroMyelitis Optica (Devic's Disease) & ever since then my life has never been the same. I will be posting videos in English & Spanish. I will be sharing my thoughts, experi...