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To mark two full years on chemotherapy, i decided to make a video talking about how it all began, all the doctors appointments, and side effects i've experienced.

My chemotherapy has to be kept cold so whenever I travel and can't take the refrigerator with me, I have to carry around a snazzy Captain Marvel lunchbox with an ice pack. Unfortunately, the pharmacy does not send it the same way. Here's a real quick unboxing video of how my chemotherapy is packaged when it gets mailed to me!

At this time last year we were preparing for me to start chemo. As part of this we spent three months seeing different specialists, having multiple diagnostic tests done and documenting my symptoms so that we all knew my baseline. Instagram: kelleigh_gus Facebook: KelleighsCause

So, I've been keeping a bit of a secret for almost a year now... Instagram: kelleigh_gus Facebook: Kelleigh's Cause

In honor of Rare Disease Day 2019, I decided to make a video documenting a week in my life of living with a rare disease! Follow me while I attend class and doctors appointments. Stay tuned for my video detailing my day to day symptoms in my Day in the Life video! Instagram: kelleigh_gus Facebook: KelleighsCause

Here's a quick video following my trip this past June to Milwaukee, Wisconsin for surgery. Many people don't get to see what it's like for me to have a procedure they just see the before and after so I wanted to take you on the trip with me!

With the new year coming up, my goal is to remember that each person suffers differently and no one Illness looks the same. Kelleigh's Cause Facebook: KelleighsCause Instagram: kelleighscause Twitter: KelleighsCause Website: www.kelleigh.org My Personal Instagram: kelleigh_gus Twitter: kelleigh_gus

As promised, here's the full version of What's Behind the Makeup. I wanted to explain a little more about how it feels to look different and why I made the video. Nikki Lily's account: th-cam.com/channels/4RH7UBW2_c8qUP2qcF6zmQ.html

This is me, Kelleigh. I started Kelleigh's Cause to create a community for those suffering with AVM's. Many people who suffer with AVM's fear going outside and being judged for the way they look. I wanted to challenge that. We should all be proud of our journey and the way we look because of it.

Michigan House Representative Sam Singh introduces House Resolution 306 to name July 3rd - July 9th as Arteriovenous Malformation Awareness Week in the State of Michigan.

Kelleigh Gustafson meets with Governor Kasich of Ohio at LeMoyne College in Syracuse, NY

Kelleigh's Cause 2015 Michigan Senate Resolution

Kelleigh's Cause on stage at The Color Run Milwaukee

The Color Run Milwaukee Color Throw

Thank You to Wheeler Trigg O'Donnell

Kelleigh's Dress Down Day Speech